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Default Nov 14, 2019 at 11:29 PM
  #941
Well my rheumatologist agreed that Humira can cause the breathing problems. So for right now he doesn’t want me to start another med until my breathing goes back to normal, but if I get a psoriasis outbreak we will have to start something.

I have the Ultrasound on my liver tomorrow.

My Brothers Doctor is working to try and get something figured out. He truly needs the 24/7 antibiotic through a IV port. I’m still pretty frantic over it.

My sleep is really terrible think maybe 7-8 total hours in last 10 days.

I always tell my husband if he asks how I’m doing “ you don’t need to know it will just stress you out” well last night for a few reasons I told him a couple things and now he’s tripping the F out !

I really don’t need this and I flat told him “ this is exactly why I don’t tell YOU my Bipolar stuff” ugh I’m super annoyed and kinda rage-y about it which I really don’t need mentally right now.

But on a happy note.... my hair is now my natural white silver and has grown long. I can’t figure out how to change my pic on here ( clueless) but I get compliments all the time. My rheumatologist office staff are always so kind and fully admit they are jealous lol... It was nice to hear I needed something positive today.

Hugs and cookies ~ ( mine are boring unlike BirdDancers scrumptious looking ones )

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Heart Nov 15, 2019 at 12:49 AM
  #942
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Originally Posted by ~Christina View Post
Well my rheumatologist agreed that Humira can cause the breathing problems. So for right now he doesn’t want me to start another med until my breathing goes back to normal, but if I get a psoriasis outbreak we will have to start something.

I have the Ultrasound on my liver tomorrow.

My Brothers Doctor is working to try and get something figured out. He truly needs the 24/7 antibiotic through a IV port. I’m still pretty frantic over it.

My sleep is really terrible think maybe 7-8 total hours in last 10 days.

I always tell my husband if he asks how I’m doing “ you don’t need to know it will just stress you out” well last night for a few reasons I told him a couple things and now he’s tripping the F out !

I really don’t need this and I flat told him “ this is exactly why I don’t tell YOU my Bipolar stuff” ugh I’m super annoyed and kinda rage-y about it which I really don’t need mentally right now.

But on a happy note.... my hair is now my natural white silver and has grown long. I can’t figure out how to change my pic on here ( clueless) but I get compliments all the time. My rheumatologist office staff are always so kind and fully admit they are jealous lol... It was nice to hear I needed something positive today.

Hugs and cookies ~ ( mine are boring unlike BirdDancers scrumptious looking ones )
It feels like things may be coming together for you medically, in that a plan was put in place and is being carried out. :

I hope your US tomorrow goes well, with an excellent out come.

Wonderful hair! Sounds beautiful!!!

Love ya!

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Default Nov 15, 2019 at 01:10 AM
  #943
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Originally Posted by Wild Coyote View Post
It feels like things may be coming together for you medically, in that a plan was put in place and is being carried out. :


I hope your US tomorrow goes well, with an excellent out come.


Wonderful hair! Sounds beautiful!!!


Love ya!


Thanks , one day I might get on my laptop and try to figure out how to change my pic.. I honestly don’t know how I put one up on the day I signed up here, way too long ago lol

I just hope the tech doesn’t have to grind me to the spinal column to get the right views of my liver, had a heart echo once, I was like ... are you trying to break bones or just crush my heart til it explodes ??! LOL.

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Default Nov 15, 2019 at 01:24 AM
  #944
To change your picture (avatar, the profile pic is something else). At the top left go to My profile, scroll down to edit avatar (which is under settings and options). At the bottom of the page it tells you how to upload your new avatar and then I assume you have to select it at the top and then you're good to go.

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Heart Nov 15, 2019 at 02:16 AM
  #945
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Originally Posted by BeyondtheRainbow View Post
To change your picture (avatar, the profile pic is something else). At the top left go to My profile, scroll down to edit avatar (which is under settings and options). At the bottom of the page it tells you how to upload your new avatar and then I assume you have to select it at the top and then you're good to go.
Are you still awake?
I am glad to "see" you! I have been wondering about you!

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Default Nov 15, 2019 at 05:50 AM
  #946
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Originally Posted by wildflowerchild25 View Post
Thanks for this! I too will most likely have to have an endoscopy (if I ever get to the dr for my stomach pain) and I was very nervous. You made me feel better.
Yeah, it sounds scarier than it actually is.

They give you a "bite block" to bite down on. If you don't know what that is, it looks like this:

Bipolar check in #39

Yeah, looks kinky. But obviously that's how they keep your mouth open to prevent you from biting down on the small scope (which, btw, is twice as thin as a pencil).

Now that I think of it, though... I think my throat *was* a little sore because the GI dr applied some pressure when she put the scope down my throat (causing it to stretch a little), but my throat wasn't scratched/cut at all. My stomach and large intestine didn't hurt one bit, either. And believe me, I've had a nasal endoscopy FOUR times, and my nose hurt like a b**** from getting scratched every time. I know what getting scratched from a scope feels like.

The soreness of my throat went away in about 30-40 mins, I'd say, so... not a very long lasting effect. It just feels like you've coughed a bunch of times and have a sore throat. You may actually cough, too. But it goes away so fast that you forget about it.
 
 
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Default Nov 15, 2019 at 06:03 AM
  #947
Sounds pretty humanitarian. All this info you're sharing is very reassuring.

I can't sleep so I'm up, watching The Advengers and lurking on PC

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Heart Nov 15, 2019 at 07:02 AM
  #948
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Originally Posted by bluebicycle View Post
Yeah, it sounds scarier than it actually is.

They give you a "bite block" to bite down on. If you don't know what that is, it looks like this:

Bipolar check in #39

Yeah, looks kinky. But obviously that's how they keep your mouth open to prevent you from biting down on the small scope (which, btw, is twice as thin as a pencil).

Now that I think of it, though... I think my throat *was* a little sore because the GI dr applied some pressure when she put the scope down my throat (causing it to stretch a little), but my throat wasn't scratched/cut at all. My stomach and large intestine didn't hurt one bit, either. And believe me, I've had a nasal endoscopy FOUR times, and my nose hurt like a b**** from getting scratched every time. I know what getting scratched from a scope feels like.

The soreness of my throat went away in about 30-40 mins, I'd say, so... not a very long lasting effect. It just feels like you've coughed a bunch of times and have a sore throat. You may actually cough, too. But it goes away so fast that you forget about it.
I was scrolling through this thread and saw Blue's name ... and then a blue contraption! My first thought: "oh no! Blue's gone manic!"

It's very nice of you, Blue, to share your knowledge and your experiences!

Thanks for the laugh, Blue!

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Default Nov 15, 2019 at 07:43 AM
  #949
Not sleeping great, still/yet. Even if I am tiired, my mood is better. At times, I do feel on the edge of depression. I want to avoid depression, mine are do severe and last so long!
So far, i've been brought out of depression by Mirapex. I have had to observe myself and make quick med adjustments with Mirapex. I also must watch for any obsessive-compulsive behaviors.

These behaviors may be just fine, depending upon the effects upon one's life. I'd like to become an obsessive housekeeper! Lol!
I have company coming over the holiday. I need to get some things done/ready/etc. I have a guy coming this morning to shampoo the (white) carpeting in the front staircase and related hallways.
I will have more done with carpeting after the holidays.

I have found a "handyman!" He seems like a very nice guy! A little expensive, but it is the going rate around here.

"Just say NO!" Many of you may recall how strung out I was over the holidays. You might recall I was doing a lot of work without help from any of the 28-32 guests. I was feeding. I was fed up long ago; yet, had kept doing it for my mother. My mother has never gotten an invite from her other children on a holiday.. Many know my mom turned 80 y.o. this year. She also has some additional health issues. this year. I have put my foot down and have finally said I am done doing this for everyone. I have had a rough year myself, on top of assisting my mom.. I have compromised so my mom will get to see her grandchildren, I hope. People are invited to stop in for dessert and fun and games after 2 PM.

If you plan to stop in, just let me know 5 days ahead, if possible. I must give Bird Dancer a count so she will have some idea as to how many deserts to make.

I remain hopeful for a Happy Thanksgiving!

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Default Nov 15, 2019 at 08:42 AM
  #950
Quote:
Originally Posted by ~Christina View Post
Well my rheumatologist agreed that Humira can cause the breathing problems. So for right now he doesn’t want me to start another med until my breathing goes back to normal, but if I get a psoriasis outbreak we will have to start something.

I have the Ultrasound on my liver tomorrow.

My Brothers Doctor is working to try and get something figured out. He truly needs the 24/7 antibiotic through a IV port. I’m still pretty frantic over it.

My sleep is really terrible think maybe 7-8 total hours in last 10 days.

I always tell my husband if he asks how I’m doing “ you don’t need to know it will just stress you out” well last night for a few reasons I told him a couple things and now he’s tripping the F out !

I really don’t need this and I flat told him “ this is exactly why I don’t tell YOU my Bipolar stuff” ugh I’m super annoyed and kinda rage-y about it which I really don’t need mentally right now.

But on a happy note.... my hair is now my natural white silver and has grown long. I can’t figure out how to change my pic on here ( clueless) but I get compliments all the time. My rheumatologist office staff are always so kind and fully admit they are jealous lol... It was nice to hear I needed something positive today.

Hugs and cookies ~ ( mine are boring unlike BirdDancers scrumptious looking ones )
Keep rocking that beautiful hair Christina! Mine is blonde/brown and the gray is starting to show. I don't like coloring my hair. I can only hope mine turns out half as lovely as yours sounds.
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Default Nov 15, 2019 at 09:05 AM
  #951
@BirdDancer: You said your dad was "making a statement by sleeping in the chicken coop." What on Earth was the statement saying? Haha, funny story tho i'm sure it wasn't fun to live thru, your dad's absences.

@~Christina: Glad you are getting somewhere with your various illnesses, getting some answers, re the Humira. Hope your upcoming test goes well. Sorry i couldn't read the details of your scope as i find that sort of thing triggers my PTSD. My husband was horrified when i told him a little of the self-violence flashes i got during a psychiatric assessment he was asked to attend with me. I guess no one knows our inner experience until we express it in words.

I find that's such a problem with an invisible episodic disability. I LOOK healthy. So people don't understand why i can be racing around the city one season and then too tired to help them out the next. During the long slow recovery from my acute fear reaction in October i wore a surgical mask with dark sunglasses and my black hoodie with the hood up and that STILL wasn't enough to discourage some people from talking to me.

Ack!

At least they asked about my health and one lady got the message, said she was sorry to see i wasn't feeling well. Sorry your husband wasn't supportive and just reacted with alarm. My husband was like this once when i had a medical crisis, told me not to "upset him that way." Darn it all, it was ME who would have had to go to emerg if i hadn't solved the problem on my own eventually. And yet all he could think of was HIMSELF . . . .

Be well my friends!

 
 
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Default Nov 15, 2019 at 09:09 AM
  #952
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Originally Posted by Wild Coyote View Post
Not sleeping great, still/yet. Even if I am tiired, my mood is better. At times, I do feel on the edge of depression. I want to avoid depression, mine are do severe and last so long!
So far, i've been brought out of depression by Mirapex. I have had to observe myself and make quick med adjustments with Mirapex. I also must watch for any obsessive-compulsive behaviors.

These behaviors may be just fine, depending upon the effects upon one's life. I'd like to become an obsessive housekeeper! Lol!
I have company coming over the holiday. I need to get some things done/ready/etc. I have a guy coming this morning to shampoo the (white) carpeting in the front staircase and related hallways.
I will have more done with carpeting after the holidays.

I have found a "handyman!" He seems like a very nice guy! A little expensive, but it is the going rate around here.

"Just say NO!" Many of you may recall how strung out I was over the holidays. You might recall I was doing a lot of work without help from any of the 28-32 guests. I was feeding. I was fed up long ago; yet, had kept doing it for my mother. My mother has never gotten an invite from her other children on a holiday.. Many know my mom turned 80 y.o. this year. She also has some additional health issues. this year. I have put my foot down and have finally said I am done doing this for everyone. I have had a rough year myself, on top of assisting my mom.. I have compromised so my mom will get to see her grandchildren, I hope. People are invited to stop in for dessert and fun and games after 2 PM.

If you plan to stop in, just let me know 5 days ahead, if possible. I must give Bird Dancer a count so she will have some idea as to how many deserts to make.

I remain hopeful for a Happy Thanksgiving!
Just a quick note to let you know

You are fighting for a healthier and happier holiday. Very wise
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Red face Nov 15, 2019 at 09:24 AM
  #953
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Originally Posted by yellow_fleurs View Post
Oh and I am picking at my skin more again. It's gross, I know. I just keep around hand sanitizer to use when I catch myself doing it.

On a positive note I went to the gym yesterday and cooked dinner for myself today. Vegetarian "beef" and broccoli with teriyaki sauce.

Sorry, I know this post is all over the place, like my brain right now. Sending compassion!

I was picking a lot and asked my pdoc about it and she prescribed an amio acid that helps with that. NAC from amazon inexpensive. one capsule twice a day then double that. even after a week I think it is helping. good luck...hate wearing bandaides and embarrassing!
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Default Nov 15, 2019 at 09:49 AM
  #954
I woke up last night at 2AM due to nightmares. I don’t get them that often but from time to time I do and they affect my sleeping patterns. I went back to bed around 4AM and woke up at 7AM. Not the best night’s sleep but some interrupted sleep is better than no sleep, even if I do feel restless.

Today I feel fine, tired but fine. I’m worried about this new job I’m supposed to start next week. – There is a chance I may not make the deadline (depends on how fast the government decides to move) and we’ll have to look at what other options are available (most likely waiting another few weeks for a training to open up). I’m going to call in today and ask about it, hopefully I will know something. I really am stressing about the situation.

I’ve been going through some rapid changes in attitude recently – from neurotic to flippant. I know it’s all based in the level of stress I’m under and my want to evade anything I deem uncomfortable. I’ll figure it out I guess, I don’t really have any other choice, do I? haha..

Anyway, That’s me.
 
 
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Default Nov 15, 2019 at 10:31 AM
  #955
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Originally Posted by whatever2013 View Post
@BirdDancer: You said your dad was "making a statement by sleeping in the chicken coop." What on Earth was the statement saying? Haha, funny story tho i'm sure it wasn't fun to live thru, your dad's absences.

We were all happy to see my Dad out of the house for a bit. He could be unbearable, at times. The chicken coop was only in the back yard. As for the statement, it had a figurative meaning that he made literal thinking he would shame my mother, but it didn't work. My mom got a laugh out of it and was happy he had such discomfort because of his stubborn obnoxious irritable behavior. We all laughed, but he wasn't. Again, he could have stayed down the road at my paternal grandmother's house.

Don't get me wrong. We always loved my dad, and still do. He has had his faults, but so does everyone else in my family, too, including yours truly. People have, at times, been happy for me to shut up or be out of sight. Looking back, I now don't blame them. Yup!

Last edited by Anonymous46341; Nov 15, 2019 at 12:35 PM..
 
 
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Default Nov 15, 2019 at 11:01 AM
  #956
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Originally Posted by Wild Coyote View Post
Not sleeping great, still/yet. Even if I am tiired, my mood is better. At times, I do feel on the edge of depression. I want to avoid depression, mine are do severe and last so long!
So far, i've been brought out of depression by Mirapex. I have had to observe myself and make quick med adjustments with Mirapex. I also must watch for any obsessive-compulsive behaviors.

These behaviors may be just fine, depending upon the effects upon one's life. I'd like to become an obsessive housekeeper! Lol!
I have company coming over the holiday. I need to get some things done/ready/etc. I have a guy coming this morning to shampoo the (white) carpeting in the front staircase and related hallways.
I will have more done with carpeting after the holidays.

I have found a "handyman!" He seems like a very nice guy! A little expensive, but it is the going rate around here.

"Just say NO!" Many of you may recall how strung out I was over the holidays. You might recall I was doing a lot of work without help from any of the 28-32 guests. I was feeding. I was fed up long ago; yet, had kept doing it for my mother. My mother has never gotten an invite from her other children on a holiday.. Many know my mom turned 80 y.o. this year. She also has some additional health issues. this year. I have put my foot down and have finally said I am done doing this for everyone. I have had a rough year myself, on top of assisting my mom.. I have compromised so my mom will get to see her grandchildren, I hope. People are invited to stop in for dessert and fun and games after 2 PM.

If you plan to stop in, just let me know 5 days ahead, if possible. I must give Bird Dancer a count so she will have some idea as to how many deserts to make.

I remain hopeful for a Happy Thanksgiving!
Wild Coyote, I hope you will ask for more help from guests this year. Wow! 28+ guests is a huge number of people. I was telling my mother, in her last years, to skip a year or ask for more help, but she wouldn't. She had almost the full burden of all holiday meals, though I helped her a bit. Some relatives did contribute either one side dish or a dessert. My uncle would just bring rolls from an Italian People's Bakery and make them out to be the most important part of the meal.

A good handyman is a treasure. My brother can do almost anything. We actually have a small project for him, but haven't asked him because he's been sick and stressed lately. My husband tries to do some things. He can succeed at some projects, but not without yelling multiple curses in Czech. My Czech curse vocabulary is pretty extensive.

I hope someone can bring some desserts to your gathering. Why should you make them all? If you must, there are plenty that can be made 2 or 3 days ahead. There are some easy/quick ones that still impress.
 
 
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Default Nov 15, 2019 at 03:58 PM
  #957
Hello all! Checking in. I feel increasingly overwhelmed and unable to fulfill the responsibilities and functions of my daily life. I don’t FEEL anxious or depressed. In fact, I feel nothing at all. Just increasing periods of numbness. It’s disheartening and I’m struggling to find a solution before things get out of hand. Sigh. All indicators are that I’m stable so this is puzzling. SAD presenting differently?

In other news, my good friend called me to ask about my cat who has been sick and things have been resolved. I’m thankful for that. I won’t forget the lessons I learned.

Warm wishes to all and hugs to those that are struggling.
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Default Nov 15, 2019 at 05:01 PM
  #958
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Originally Posted by BeyondtheRainbow View Post
To change your picture (avatar, the profile pic is something else). At the top left go to My profile, scroll down to edit avatar (which is under settings and options). At the bottom of the page it tells you how to upload your new avatar and then I assume you have to select it at the top and then you're good to go.


Ooooh thanks... I’ll have to get on my lap top to do it, I always get stuck when it comes to putting my pic somewhere to get it from , the picture I want to use is on my Facebook. Can I pull off there? Or do I need to download it to somewhere else first ??? I wish my kid was here to do it for me ! LOL ! She’s a total nerd geek haha

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Default Nov 15, 2019 at 05:04 PM
  #959
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Originally Posted by Nammu View Post
Sounds pretty humanitarian. All this info you're sharing is very reassuring.


I can't sleep so I'm up, watching The Advengers and lurking on PC


I’m such a Marvel fan!! Did you ever get some sleep ?

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Default Nov 15, 2019 at 05:10 PM
  #960
Quote:
Originally Posted by Wild Coyote View Post
Not sleeping great, still/yet. Even if I am tiired, my mood is better. At times, I do feel on the edge of depression. I want to avoid depression, mine are do severe and last so long!

So far, i've been brought out of depression by Mirapex. I have had to observe myself and make quick med adjustments with Mirapex. I also must watch for any obsessive-compulsive behaviors.


These behaviors may be just fine, depending upon the effects upon one's life. I'd like to become an obsessive housekeeper! Lol!

I have company coming over the holiday. I need to get some things done/ready/etc. I have a guy coming this morning to shampoo the (white) carpeting in the front staircase and related hallways.

I will have more done with carpeting after the holidays.


I have found a "handyman!" He seems like a very nice guy! A little expensive, but it is the going rate around here.


"Just say NO!" Many of you may recall how strung out I was over the holidays. You might recall I was doing a lot of work without help from any of the 28-32 guests. I was feeding. I was fed up long ago; yet, had kept doing it for my mother. My mother has never gotten an invite from her other children on a holiday.. Many know my mom turned 80 y.o. this year. She also has some additional health issues. this year. I have put my foot down and have finally said I am done doing this for everyone. I have had a rough year myself, on top of assisting my mom.. I have compromised so my mom will get to see her grandchildren, I hope. People are invited to stop in for dessert and fun and games after 2 PM.


If you plan to stop in, just let me know 5 days ahead, if possible. I must give Bird Dancer a count so she will have some idea as to how many deserts to make.


I remain hopeful for a Happy Thanksgiving!


Oh thank god you don’t have to go through last holiday season again!!! that knocked you on your backside for weeks and weeks!!

Glad you found a handyman ! That is a huge relief !!

Honestly i think I’ll make a pizza for TDay this year. It’s just me and my husband after all.

Ohhhh BirdDancers cookies hehe

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