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#1
Oct 13, 2020, 06:07 PM
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I am in that in between place where one med is wearing off and the other hasn’t picked up yet.
I am getting used to this place with the number of med changes I have had in the last year. This time is different though because I am begrudgingly taking my med, just waiting for the plethora of side effects to creep on in. In the meantime, I go to the depressive place and hope the SI doesn’t get too bad. There isn’t much yet, but those thoughts flicker in at random moments, a lot like a bug lamp in July. I am trudging forth. |
 *Beth*, BeyondtheRainbow, bpcyclist, Fuzzybear, Soupe du jour, Yaowen
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 bpcyclist, Fuzzybear
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#2
Oct 15, 2020, 11:23 AM
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Hang in there. You will feel better.
What is the current med lineup? Maybe your friends here might have some helpful observations.
__________________
When I was a kid, my parents moved a lot, but I always found them--Rodney Dangerfield |
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#3
Oct 15, 2020, 11:35 AM
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Meds do not like me so I can only offer hugs
 
__________________
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| bpcyclist
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| bpcyclist
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#4
Oct 15, 2020, 04:55 PM
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I have had so many reactions and side effects that right now we are trialing a tiny dose of Rexulti. It’s my only med. we have been hesitant to add anything until we find something that offers hope without so many side effects.
We are rapidly running out of meds. I went through this years ago and ended up with ECt. I cannot do that again based on how my life is set up now. I need my cognition intact to work and be a parent and the last time i did ECT, I was not able to work or parent. |
| bpcyclist, Fuzzybear
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| bpcyclist
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#5
Oct 15, 2020, 06:58 PM
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Got it. So, I recommend checking in here every day so we can assist and support you. Highly recommended. Most of us do it.
__________________
When I was a kid, my parents moved a lot, but I always found them--Rodney Dangerfield |
| Fuzzybear
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#6
Oct 18, 2020, 09:40 AM
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I’m not doing so great and am getting ready to tell T and p-doc. I see them Tuesday. I think I can wait until then.
The repercussions of not doing well could pull apart everything I have worked so hard for during the time I was well. Everything hinges upon my health and if I don’t have my health, I don’t know how to maintain everything else. I need my job. I need my status as a mom and the child support it brings. If I lose either of those, I would lose my home. I know that’s a rabbit hole of cognitive distortions but I don’t know how to get the help I think I need without blowing all of that up. |
| *Beth*, bpcyclist
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| *Beth*, bpcyclist
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#7
Oct 18, 2020, 10:55 AM
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Well, Rexulti seems to me to be just a part of treatment for BD. What about a mood stabilizer?
__________________
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| bpcyclist
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| bpcyclist
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#8
Oct 18, 2020, 11:37 AM
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That may be the next step but I have tried just about all of them with either serious side effects or allergic reactions.
Meds are not my friend. |
| bpcyclist
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| *Beth*, bpcyclist
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#9
Oct 18, 2020, 01:28 PM
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Okay. So. Look. We have all hade med situations. All of us. Me? Been on around 52 or so since 1997.
It is a normal and appropriate human reaction for most of us to kind of say, in moments of fear slash exasperation--they all suck!! Nothing will ever help me because I am the only one who is this sick! I have felt this many times. But it is not true. There are probably at least five million other bp 1 patients around the planet as sick as I am. Almost for sure. So, this thought? It is not facts-based. It is false. To combat this harmful cognitive trap, I recommend maybe making a careful list of previous medications and all recalled, actual or suspected side effects. In our collective experience, there is virtually always a solid med combo to be found. But. But--if you get stuck in the ""all-bp-meds-will-immediately-assassinate-me" trap, you could be hosed. Most likely, by yourself. Good luck!
__________________
When I was a kid, my parents moved a lot, but I always found them--Rodney Dangerfield |
| *Beth*
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#10
Oct 18, 2020, 07:10 PM
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It’s not all that bad. I am just med sensitive snd frustrated. I am having a lot of symptoms and want to find something that will help.
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| bpcyclist
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| bpcyclist
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#11
Oct 18, 2020, 10:38 PM
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Wait. Wait.
So, the message you received from my post above is that I was judging you? Labeling you a bad human? So sorry! A thousand apologies. Just substitute me or maybe many of the other members here if you feel i or we were insulting you The point was just that I slash we pretty much have all been where you are before. I just want you to feel better.
__________________
When I was a kid, my parents moved a lot, but I always found them--Rodney Dangerfield |
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#12
Oct 19, 2020, 06:18 AM
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I know you were offering support. No worries there. Thank you for that.
I kind of always feel judged when I am not feeling well. It’s not you. I didn’t mean to make you feel that way. |
| bpcyclist
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| bpcyclist
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#13
Oct 19, 2020, 08:35 AM
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Quote:
__________________
When I was a kid, my parents moved a lot, but I always found them--Rodney Dangerfield |
| Reply |
This is an old thread. You probably should not post your reply to it, as the original poster is unlikely to see it.|
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