[lizardlady]

Fibro and CFS are absolutely kicking my butt. I think it's stress related. I posted in the pets forum asking for positive thoughts for the little Quarter Horse who boards with me. I mentioned I'm sad that his owner might have to put him down, what I didn't mention is what that means for me. I hate to sound self-centered, but if she puts him down that puts an end to her coming over on the weekends. That's my one last social outlet. I'm not expressing this well. Sorry.

[lizardlady]

Originally Posted by cakeladie

Jan I think you need one of those super soaker water guns and when they start going at it get them all wet. It used to work for my grandma when my cousins were arguing but she used a bucket of water.

Truly excellent idea Cake!

[cakeladie]

Welcoming me WC.

Liz is correct I posted something in nother category and kinda got beat up I asked for the thread to be closed. For now on I will stay here or in the pet section

[cakeladie]

Liz I am sorry about Quater horse. Maybe the owner will still come over or maybe get another horse ?

I m alone all day everyday until hubby gets home. But he works long hours. I get very lonely

[Wild Coyote]

Thanks for the warm welcomes Jan, Lizardlady and Cakeladie!

Jan, I've heard of Sjogrens. I am sorry you have to live with that.

Liz, I deal with CFS, too. I was very involved in the research for both CFS and FMS in the 1980's. I've been "totally medically disabled" for over 30 years.

Liz, Sorry you may be losing your Quarter Horse friend.

Cake, sorry you'd had a negative experience here at PC. I've had one, too, but just one so far.


WC

[Wild Coyote]

It's a gorgeous Fall day here!

H and I are going to go into the mountains for a part of the day. We live in the foothills. I hope the scenery will be great. It's not "peak" yet; however, it's still beautiful!

I hope everyone experiences some joy in their day today, even if only for a moment!


WC

[childofchaos831]

Welcome Wild Coyote!

I also have a few things going on...

(and for everyone else, cuz I don't think I've ever actually put it all down)

I have fibro, diagnosed three years ago I think. When my doc told me that it *was* fibro, I could have cried, because that meant that they might be able to make it better.

I was also in a bad car accident a little over a year ago, and it really screwed up my back. Since the wreck, I have had steroid injections in my cervical spine, thoracic spine, and more than I can count in the lumbar area. A couple scans later, I was told I have severe spinal stenosis in L4/L5. I actually am going for surgery tomorrow to hopefully deal with the stenosis... The wreck also gave me headaches, a certain type. They start and the base of my skull at the back and then radiate ov ER the top of the skull to the forehead. It's basically a nerve that got aggravated. Main thing to do with those in massage my neck around where the headache starts.

In other scans, it's shown that there is calcification in areas, which has been explained as arthritis, but I don't really remember too well...

In addition to all of that, I have addiction issues, so I can't take any pain medication with addictive properties. Bit I also have stomach issues, so I can't take NSAIDs... my pain doc prescribed tramadol, and so far so good. Itg doesn't quite knock out the pain, but it helps.

[Gus1234U]

welcome Wiley ( ) Coyote~!
i don't care to talk about my troubles much, so i just post pretties to cheer people up....

[Wild Coyote]

Hi Childofchaos and Gus!

Thanks for the warm welcome.

Child, thanks for sharing. I am sorry you suffer. I wish you good luck for your surgery tomorrow.

Gus, Awesome pictures! Wonderful avatar!

With Gratitude,
WC

[Wild Coyote]

(((((( childofchaos ))))))

May you feel Love surround you, comforting you during your surgery tomorrow. May the surgeon be at his/her best. May you heal with ease.


WC

[January]

WC, I'm so glad you're here. I'm sorry you're having problems with your post. Doc or the other mods will clear it up quickly.

Liz, I'm so sorry about Quarter Horse. Please let us know what happens. I understand about not having personal contact with someone. I hear the neighbors, but no one comes to visit unless it's my one friend and that's about once a month. Anyway, I digress, and again, I'm so sorry about the horse and all it's ramifications.

Child, I hope your surgery goes very well tomorrow. I hope it heals your pain and allows you to have renewed energy and all things good.

Gus, you know we love you and your pics!

Cake, I really like your idea about the super soaker! I talked to the manager yesterday. Hopefully it will help. I wish I lived in a little place that wasn't close to other people, but I don't and have to make the best of what I've got. I'm so thankful to just have a roof over my head that I feel guilty complaining sometimes.

I love you all!

[Gus1234U]

[January]

The new neighbor does not realize that not everyone around here gets up at the crack of dawn like she does.
She had a robust conversation outside with someone at 8:00 this morning. I managed to get to sleep somewhere close to 4:00 a.m.
so I am not pleased.

I could barely stand up again yesterday. I don't know what's wrong, but this is not good. My ankles and knees are not working right.

[Wild Coyote]

Gus, thanks for the lovely picture!

Jan, So sorry you are experiencing difficulties. Are these symptoms part of Sjogrens? I hope you feel better soon. It's tough to live with/near strangers, especially if they seem oblivious to the needs of neighbors.

Childofchaos, thinking of you as your surgery is today.

Christina,

Had a fun day yesterday. Met up with another couple (then strangers to us) and had fun sharing. Turns out the husband is a police officer in a neighboring town. We'd hit it off so well, they went to dinner with us later in the day.

I am very fatigued today. In pain, too. It's often a trade-off, it takes me days to recover from a "day of fun." It's well worth it.

Hugs all around!

WC

[January]

I so understand having one decent day and then being down for a couple because of the toll the good day takes.

I don't know if the pain is fibro or Sjogrens arthritis. I have no way of knowing. The increase in methrotrexate doesn't seem to be working. Maybe I can get my Dr. to increase it again.

I truly resent needing to go to sleep by 11:00 p.m. to be up at 7:00 a.m. to fit in with the neighbors. My anger grows and I see no solution.

[childofchaos831]

Hurting right now... can't seem to get comfortable at all, unless I'm in my bed...hoping it gets better quickly.

[Wild Coyote]

Jan, How long have you been on methotrexate? Does it give you side-effects?
I've been on it all year, save a 10 week break in the summer. I'd restarted it 4 weeks ago. I inject it in order to limit GI symptoms. I also take an anti-nausea med for the first day or two of injection time.

So sorry about the disturbances with your housing. I'd be upset if I had to live by someone else's routine. My mother lives with us. We honor one another's needs/routines, which are not all the same.

Childofchaos, I hope you are getting more comfortable by the moment. So sorry you've been so very uncomfortable.

Love all around!

WC

[Gus1234U]

[January]

Child, I hope you find comfort soon.

WC, I've been on methro for about a year now. I have so many GI issues that I honestly can't tell you if the methro makes it worse. I didn't know you could inject it. I take Zofran for nausea.
Maybe you could ask your Dr. for some. It really helps.

I've done a little bit of errands and a little bit of house cleaning today. That's a major improvement. I may pay for it tomorrow, but I was out of meds. I'm down to dry toast, cheese, and just a couple more things that I can tolerate. They don't sell lactose free cottage cheese in this area or I'd try some of that for protein.

Belle is doing great. The neighbors are driving her crazy and I don't blame her. (WC, Belle is my little pup, and the thread's mascot. )

[cakeladie]

Not sure where to start.

Kiya are you ok? I know I haven't been on much but I miss you and I hope everything is ok.

Liz you to I hope you are doing better. I heard Florida is to get hit again. I am sorry for all the work you have to do. The pain must be outrageous
F
Gus just love love love your pictures they bring a smile to my face

For the new people Hi and welcome. This is a pretty tight group of people. No one on here judges anyone

Jan I am sorry for everything you are going through. I hope you got your apartment back in order. I have been trying to declutter and wish Christina was here to help . Keep us posted on what's going on. Also if you are having trouble getting someone to take you to appointments there are solutions out there and we can work together to find them.

Christina my heart just breaks for you. I know you are pretty non verbal right now just know we love you and if you need anything reach out to someone we are here for you.

Now not sure I said this before but since someone posted it I am going to bring it up again. Mexotrexate destroyed my life. I was on it for years and because of that it has damaged my lungs and my liver. Did it help me yes. I would have 2-3 good days and 4really bad days. The issues did not show up in lab test. They way they found it in my lungs was because I got a cough. My pulmonary doctor was out of town so my rhemy ordered s CT with contrast. It was summer time and my rhemy cuts her hours in summer time due to the fact that she had school aged kids. 2 months later I asked about the test and she was shocked. I had to go in and not get one but 2 CT scans STAT. Then I had to have an ultra sound of my liver. It's not good and the doctor said it was all mexotrexates fault so please please be very careful.

Well my meds are starting to kick in so I best sign off for now.

Sending positive vibes and hugs to everyone

[Wild Coyote]

I'd had a very long day on Friday. Fridays are set aside for my mother only. She has lives with us since my stepdad passed 6 years ago. She was too lonely and too deep in grief to live alone. Some Fridays are all "recreational," while others are all errands. Yesterday was all errands. She is awaiting a second hip replacement, which means I am doing more and more to try to help her. I am more than happy to help; I just get tired and in more pain.

Cake, thanks for the warnings about methotrexate (MTX). I am very sorry for what happened to you. I get frequent labs. I take a 2.5 month break in the summer. It's scary. I cannot walk w/o it. Seriously. The only other options I have left now are the biologics, which are potentially more dangerous for me, I feel. It's a catch-22. I deeply appreciate your sharing. What do you use in place of MTX?

Jan, thanks for introducing me to Belle. I'll bet she's a great companion!
I use a different anti-nausea med because dystonia is a potential side-effect of Zofran and I have a neuromuscular disorder which makes me prone to dystonia. My GI is very sensitive; this is why I inject the MTX. I am sorry your diet is so restricted!

Gus, your pictures are beautiful and vibrate with positive energy! Thank you!

Christina, Sending positive vibes. I pray for your healing.

Liz, it sounds like maybe you are getting hit with challenging weather? Stay safe.

Child, I hope you are feeling better with each passing day!

Kiya, we have not "met" yet. I hope to meet you soon.

I think I have included everyone. If I've missed someone, my apologies.

I hope everyone experiences at least one moment of joy today.


WC

[Gus1234U]

i adore the art of Bev Doolittle~!

may we all find beauty in unexpected places~

[Kiya]

Gus- I love Bev Doolittle, but I've never seen the bear one red before- the original is cool because your eye follows the paw prints in the snow off into the distance before you realize the bear is in the bush, looking right at you

[Kiya]

Hi all (and hello new folks )
Ok so I just caught up on the five pages worth of posts and oh my goodness everyone! You all have so much going on. Lots of support and hugs! Far too many to address individually but my full support as always to everyone.
Life for me… I have had pretty severe state of confusion almost to the point of incapacitation. I almost couldn't drive and my providers were concerned. Two almost put me in the hospital. I think it is med related and so does my GP. She wants me to have a neuropsych evaluation and see a new neurologist. As well as a new psychiatrist – I don't think I've ever seen a psychiatrist; just psych nurse practitioners.
I did have another night in psych ER last weekend I think… Right as my confusion was hitting full on. But with the medication titration that I am doing on my own since I can't get in to see my provider until next week sometime, I am functioning a little better I am also trying to get into a fibromyalgia clinic to see what can be done other then "take Advil with coffee and Prilosec".
I've been doing physical therapy for my foot, back, and now pelvic floor as well. That last one is pretty triggery for me but necessary after the hysterectomy. My mom has been helping me some with the chronic fatigue and household chores. I have been too tired to be on the net much and my attention span has been absent.
I think that is everything for me oh and I also had some sort of viral infection that put me out for a week but that is almost completely better.
Anyway, with all the chaos in the world and our own personal lives, please take good care of yourselves! Thinking of you all

[lizardlady]

Hello all!

Gus, I never heard of Bev Doolittle before. I love the artwork!

Hurricane Nate didn't come near me. We got a lot of rain from feeder bands the last few days, but it made landfall around Mississippi and Alabama.

I'm sorry so many of us are struggling so right now. Am not going into how I'm feeling because it's SSDD. I get tired of hearing myself complain.

On a happier note, Woody (the horse) is doing better. The swelling is going down in his leg. I rode him for his owner for a few minutes yesterday to see how he did. Good so far. We might have bought some time.