[Gus1234U]

[January]

[COLOR="Teal"]I went to the gastro on Monday. She had to change my medicine that allows me to digest food in the hope the profound nausea will ease. The prescription costs over $3,000. I am so grateful that I receive help with the costs. We discussed if I should try living in Ensure, but I can't afford it.

I saw the rhuemy yesterday. It wasn't good. I need to have a biopsy on my face. She expects me to demand the University specialist do it. I feel like I'm really in the middle. I can't make the specialist do anything, and besides, she sent me back to the rhuemy over my face. By the time I got home last night I could barely walk. Today is not a lot better. I have nothing for pain except advil. There have been so many Drs that over prescribed pain meds in this state that no one will prescribe it anymore. The rhuemy increased my methrotrexate because the original dose quit working. Maybe the new dose will help.

I see the new pdoc on Friday. I hope I have good news, but I'm scared to death.

[cakeladie]

Well I just caught up with everyone here.

Liz your inner strength amazes me. On the flip side I do worry about you. The people you work for are jerks and I am very sorry you have to work for them.

Christina I wish I could tell you it will get easier but I kinda think you might need to move to start healing. Just know you are in my thoughts and prayers just like everyone on here.

Jan girl you have had a rough time lately with all the doctors appointments strange men coming in and making you move stuff etc. take it one day at a time. You might want to look on the internet and see if you can get the ensure at a cheaper price.

Kiya sweet Kiya take care of yourself.

Has for me well my mom went left for Oaklahoma last week. My step dad was in the hospital again. He was due to get released the day she left. Which meant his daughter would have to be his caregiver. She's not a very good caregiver nor a very good daughter. Well guess what he died on Friday. Apparently the home heath nurse came to draw his blood. She thought he looked a little yellow so she called the daughter the daughter came home and called his doctor. They said take him to the ER. Now he has an external machine that helps pump his heart. He's also been getting blood transfusions every week. The doctors keep asking how much more do you want to do and he always says I want to keep trying. Without my mom there he started throwing a fit and he was in a lot of pain. The doctors convinced the doctor to let her give him something for pain and for anxiety and once he starts to go to sleep they will turn off his heart pump. His heart only beated a couple of times then he died.

So I have been dealing with my mom and this. My mom might loose her house now and now she is talking about moving to Oaklahoma where they treat her better WTH really

Add to this drama with my daughter and the weather. One day it's raining with thunder and lightening and next like today it's over 90. My head is pounding and hubby's hours are all over the place. Today he left for work at 2:45 am it's hard to go back to sleep after that.

I am sure I have forgotten someone one and something and I am sorry.

Gus your pictures are truly lovely

Gental hugs to all

[lizardlady]

I think I mentioned the stress of the last few weeks triggered a flare. Still flaring - everything hurts and my brain has gone on a walkabout.

I have to post a follow up about work. Tuesday they posted a Survey Monkey survey asking for feedback about how they handled the response to the hurricane. My oh my, I suspect they are going to regret asking. I was appropriate and professional, but let them know just what I thought. I used words like inhumane and lack of compassion. The very last question asked the site where I worked. I wonder if they thought we were stupid enough to actually tell them!

[cakeladie]

Liz if it's annomous let the flood gates out so to speak tell them everything without giving yourselves away

[lizardlady]

Cake, the surveys are supposed to be anonymous, but I'm not sure they really are. Frankly, at this point I don't really give a rat's teeny tiny backside. They give a lot of lip service to how much they appreciate the work we do but they treat us like shyte. I'm tired of it. From talking to co-workers, I'm not the only one who laid it on the line. We're wondering if we're all gonna get fired.

Fibro is kicking my butt. Everything hurts. I swear my toe nails hurt. Thank gawd tomorrow is Friday.

[January]

((((( Cake ))))) I'm so sorry for your family's loss and the chaos with your mother. I pray for peace for you.

Liz, I'm glad you had the chance to share your views on how you were/are treated. I hope some good comes out of this. I hope your pain goes away. Maybe it will be better over the weekend.


Today is the day I go to the new pdoc. I had to fill out papers that asked the most invasive questions. They literally asked for my family member's names, ages and where they live! That's the tip of the iceberg. They said the first meeting will be at least two hours long so they can do a thorough intake of information. I wrote a short, appropriate cover letter so I could make sure the Dr. understands my past help and what I need help with right now. I keep telling myself that the worst that can happen to me today is that it's not a good fit and I don't go back there. Panic is a horrible thing. It makes you imagine the worst.

I'll let you know what happens today. (We need a "freaked out" emotie, because this "sad emotie" isn't cutting it.)

[Gus1234U]

[Gus1234U]

[January]

I made it to the pdoc. Actually, there were two of them. I laid bare my very soul to get the help I need. It worked and I now have some medicine. It will take a while to get used to so I'll have to be patient. I go back in a month.

I am emotionally and physically worn out completely. It's hard to tell everything to total strangers when you're desperate.

The pain in my legs, ankles and feet is worse and yesterday I could barely walk.

[Gus1234U]

i found it was less shocking to my body to start with a smaller dose than recommended and work my way up over the course of several weeks to the intended dose. bless your widdo feeties, Jan.

I fell over again last night.

landed so painfully

finding I can't move far without screaming in agony

yesterday when I did sit down, it took 40 minits for the painfull feeling to go away

[childofchaos831]

It seems the sciatic pain is starting to go down one of my legs now... up until yesterday, it was staying in my back... oh fun.

[Gus1234U]

[~Christina]

Cake,

We are unable to break this 1 year lease. We have our place in Tennessee. Our lease ends here in April.

One thing I am grateful that she didn't do this my home up there.

I hope you are being kind to yourself ! You always do too much

Hugs to everyone

[cakeladie]

Christina to bad your land lord would not let you out to the lease. I am glad she did not do it in Tennessee in fact I wish she had not done it at all. Just know we are here for you

[January]

Shattered I'm so sorry the pain is so bad.
Have you called your Dr. and made an emergency appointment?

Child, your rhuemy can give you a cortizone shot in a "band"
for that. It will help. Call and see if you can get in and get some help.

Christina, I'm so sorry you have a lease. How long is it before you can go back home? Will it be an entire year? I'm so sorry,
Christina. I wish we could all of us here in the forum could come and sit with you.

Cake, how are you doing?

Kiya, what's happening?

Gus, I love those pictures. They make my heart warm.

I am taking the new medicine and it is helping, but I'm mostly sleeping or snoozing. My body has to adjust to it. The neighbors started fighting and screaming at the top of their lungs and cursing each other around 7:00 a.m. yesterday. That's something they do just about every Sunday morning and sometimes through the week. They do it with their door open and it spills out right in front of my door. I waited until the fighting was over and went out and talked to the male. He was shocked and embarrassed that they wake me up all the time and that I actually said something about it. It's only been going on for six years. He apologized and said they'd shut their door the next time they get into it. I think I will have to talk to them again about it, but I'm so proud of myself to have the courage to go out there and stand up for myself. It's so hard for me to do. It's easy to stand up for someone else, but hard to do it for me.

The longer I live here the more I hate it, but I have to live somewhere.

I love you all.

[Gus1234U]

[~Christina]

We are here until April. I think if we really appealed we might be able to get out our lease I dunno.

We are more about going back to Tennessee to stay instead of moving down here for good. Variety of reasons , like we are 750 miles closer to the kids yet his boys can't find time to come see and spend time with there dad ! Makes me livid. I'm seeing my daughter weekly but that happened after I told her how much it hurt to have been here 3 months and I had seen her 4 times. So she's actually making time now, but it makes the lack of Steves boys making an effort bother, hurt and pisses me off more so , ugh

Between the hurricanes earthquakes and mass shooting I am just wanting to stick my head in the sand

Hugs and love to you all ,I promise I'll catch up with each of you soon. ((( hugs )))

[January]

((((( Christina ))))) I don't know just what to say, so I will sit with you for a while, if you don't mind.

WW III broke out here yesterday. I got a new upstairs neighbor last week. It's been a long week. I haven't said a word, but she did something that wasn't nice and my other neighbor called her on it and three of them got into a huge fight. Her dog seems to think Belle is lunch. I have to carry Belle when she's around her. I'm going to talk to the manager today. Maybe we can get the train stopped before the train wreck happens. I can see it coming.

[Wild Coyote]

A warm hello to all!

I've been on PC a little over a year, mostly active in the BP and the CPTSD/PTSD forums. I did not realize there was a "Chronic Pain" forum and a Fibromyalgia check-in thread.

I deal with several painful conditions; I won't list them all since this is the fibro check-in. One is fibromyalgia. I see people are also mentioning inflammatory arthritis. I also deal with Psoriatic Arthritis (PsA) and am currently on methotrexate.

I hope to participate with the check-in, if I may?
I am looking forward to it.


WC

[January]

Welcome WC! We are very glad you found us.
Many of us deal with more than one type of painful condition.
It seems they are all related.

You'll find the nicest, most understanding people in the world in this little corner of PC.

I have fibro and Sjogrens Syndrome, among a host of other things. I have Sjogren's Arthritis, which is very similar to Psoriatric Arthritis. Please feel free to share with us. Be prepared for lots of hugs.

[Wild Coyote]

Thanks, Jan!

I'd just written a longer post, which has vanished into thin air. I am getting "Site Security Certificate Warnings," advising me to leave the site. I have left a thread about this in the technical forum for DocJohn/Admin.

Signing off for tonight.


WC

[lizardlady]

Hi Wild Coyote. Going to second what Jan said, the folks in this group are some of the most supportive at PC. Welcome to the group!

[cakeladie]

Jan I think you need one of those super soaker water guns and when they start going at it get them all wet. It used to work for my grandma when my cousins were arguing but she used a bucket of water.