[cakeladie]

Everyone needs to take it easy.

Gus it makes me sad to see you wilted

Jan take it one day at a time

Christina has hit her wall. The pain came crashing down on her the other day I hope she is ok

Liz has not been on since early yesterday morning I hope she can get some rest and her pain eases up.

Kiya you hold a special place for me since you were the first person I connected with over 2 years ago thank you. I know you worry about your mom but please take care of Kiya you are much loved and we worry about you.

I am sure I am forgetting someone and I am very sorry if I am.

But I do have some good news. If you remember my son's comfort cat McGee went missing but was found several days later. Well since he has been home he has been kinda standoffish I think for a while he went back to being a "feral/wild" cat but has I type this he is sitting on my sucking in my shirt. He also is back to playing with Sunny our other cat and ambushing people

Hugs to all

[January]

Cake, I am so glad McGhee is back to his old self.
That is good news, indeed!

I'm so glad you are starting your medicine. That stuff really helps.

Please let us know about Christina if you get any more information. ((((( Christina )))))

Love to all.

[cakeladie]

Christina had a thread going in her move and it's on there that she posted she hit her brick wall. We all know that felling you go go go untill you just drop. I hope she is ok

[Gus1234U]

[Kiya]

((((Cake!!!))))) I care about you lots!

I am ok. One day at a time.
Mom called at about 10 last night with more worries (and not doing a darn thing her Dr's told her to). I got kind of snippy with her and gave her a list of things to try. Then found out her BF was there. I'm not sure what she wanted from me. It irks me tho, since everything is about her and I am supposed to drop everything for her. "That's what family does"- runs you over without care. Even when it's about me, it's about her, you know? It's complicated.
Jan, I know you understand....

I have another therapy apnt today and I don't want to go. It's with the social worker and last time didn't go well. I expect a tongue lashing. I can't even get myself to go shower. I want to soak in the tub, but this damn HRT patch will come off... It's already coming off and it needs to last until Monday. I may have to move to the 3 day patch... Or just say to hell with it
I've been researching it- seems to be a rather imperfect branch of medicine. Frustrating.

I've got to find a way to cure myself... Sadly, I often just don't give a dam. No... I just don't have the energy.

(((((All))))$

[cakeladie]

Well I got a surprise this morning. I told everyone not to get me anything for Mother's Day I don't need anything etc. I told Mikey to get something for my grandmother and my mom. They both do a lot for him.

I was on the phone with my daughter and someone knocked on my front door. I told her to stay on the phone with me while i answered it. We have had some trouble in the neighborhood so I wanted her onnthe phone when I answered the door. There was a flower delivery person Mikey had sent me flowers from his work with a card that he wrote himself.

It's times like this that I feel real blessed to have a son like him but I also get very angry because his dad wants nothing to do with him because he is special needs

[Kiya]

Oh that's wonderful!!! ❤️💖❤️

[cakeladie]

I know everyone is hurting but if possible please send positive vibes to our Liz. She's been in a lot of pain lately

[January]

Oh Cake, I'm so glad Mikey sent the flowers to you. What a wonderful surprise and what a sweet hearted young man.

What forum is Christina's post in and I will go read it. I've just been cruising here because it's all I can manage. I sure hope she's ok.

Gus, thank you for the beautiful, beautiful rose. Please know that you are a very important part of this group. We love you.

Kiya, I'm so sorry your Mother is playing that game again. Please don't let her use you if you can help it. I know - I know personally how that game is played. They are so self serving when they do that. I have much more I'd like to say about that, but perhaps this is not the time, I just don't know.

Please, please take care of you. How dare that person try to give you, of all persons, a tongue lashing! You try so hard.

I made it to PT today. I had three other errands to run including going to the store. I've been too sick to leave the apartment. The PT told me not to plan to go to the store on the same day as PT again. She said I'm undoing what good is being done by her massage, etc. I just know I'm always down for a couple days at least after I go to the store. We don't have delivery services here at all.

I treated Belle and myself to a roasted chicken today. Oh my, it tastes so much better than my own cooking! Belle got into a little tiny bit of chocolate today while I was gone. I swear, she's an acrobat. She's acting just fine and I filled her up on good food. I'm watching her closely and she's playing with her favorite toy and bone...

[cakeladie]

Also I hope I did not hurt anyone's feeling by posting what my son Mikey sent me. I was just so proud and touched. I also have posted the card and the flowers on my page if anyone cares to see them.

You can't really see what he wrote. I will try and get a better picture

[cakeladie]

Jan the easiest way to find it is to go to Christina's page and look at the posts she started. It's filled with how her move went etc.

I also just wanted to say I could not get through my days without you guys. You guys understand the pain and the toll this diease takes on someone's body, mind and sprint

Thank you from the bottom of my heart

Xoxo

[BlueEyedMama]

~sending warm healing vibes to Liz and all else that need them~

[BlueEyedMama]

Well it's 2 am and I am keeping Hubby up because pain has woken me up once again. That and the fact that steroids make it hard to get a restful sleep. Pulse is skipping like crazy from the meds. Found out recently that I need a double knee replacements but I don't see that happening anytime soon. Too much on my plate with severe anemia, hysterectomy, and chronic kidney issues. Cake, not sure how you handle both fibro and lupus. It takes every ounce of me to handle lupus and lupus related disorders. The strengthon this board is inspiring. I am sending much love everyone's way. HUGS

[BlueEyedMama]

((((((((((((((((((((((GUS))))))))))))))))))))))))))))

[Gus1234U]

wood you be mine ??

[January]

Cake, it was a joy to know that Mikey sent you something. You did not hurt anyone's feelings, so don't worry about that.

I will try to look for Christina's page. I do hope she's all right.

Mama, I'm so sorry you are in pain. Do you have anything you can take for it? Tylenol or advil, perhaps? It's not much, but it helps a tiny bit. Have you thought about going to the ER for some help? Take good care of yourself.

Gus, thank you so much for the pictures. They are lovely!

I am trying to accomplish a few things here today. I have my back brace on and it is helping a little bit. I look like a wrestler in it. Honestly, it's horrible and there is no way to really hide it. I'm just going to have to buckle down, as it were, and learn to wear it no matter how embarrassing it looks.

I have not learned how to eat with my dentures. It's a real problem. I'm going to try again today. I know I needed my teeth removed and this was the only option, but it's so much easier not to try to eat anything at all. I have an important meeting Monday in a cafe! I hope they have something like pudding there.

I love you all.

[lizardlady]

I'm here. Flare is continuing. I would not wish this disorder on my worst enemy.

Did want to wait for the garden tub to fill last night for a soak so I stood under a hot shower for a good long time. It helped things relax a bit. Pain level is less than it was. Still not great, but better.

You know how they call fibro the "irritable everything" disorder? Everything is irritated - digestive tract, you name it. What's toughest is the emotional irritability. I'm on my last nerve. Would happily rip someone's head off and shout down the hole. Am having to be careful what I respond to here at PC. Probably get myself in trouble if I told some people what I really think!

Cake, the flowers from Mikey sound wonderful. What a sweet thing for him to do!

Thanks to all for the thoughts and hugs. Sorry, just don't have it in me to respond to each of you tonight.

[January]

You can't tell I've done much at all, but I've worked myself silly today. I'm still not finished. Hopefully I can get more done tomorrow.

Liz, I'm so sorry you're in such pain. I really do understand about being grouchy because of the pain. I'm normally a very patient person, but I feel the same way you do. I don't like it about myself and it scares me. The pain just won't stop and tylenol just doesn't work. I don't want to be impatient and angry all the time. It's not my nature.

I put extra fix-it on my dentures today. Now they're stuck and I can't get the top ones out! Only me!

[Kiya]

(((((Liz))))) wrap you up in soft warm cloud and keep you there until the pain melts away.

[cakeladie]

I am with you on the irritability i used to have a lot of patience not anymore. Some people just drive me nuts.

It's 1:54 am here and my head is pounding my leggs are pounding and I slept on the couch last night so ken could get a good nights sleep and in all honestly I knew I would not. My stomach was rocking and rolling.

But ken had a big outside job that my nephew was helping him with so I took them both lunch and the lady that lives there lunch then headed to the grocery store. While shopping every step hurt more then the last one and I could not wait to get home. I prayed ken was home but nope I just took it one step at a time. I manage to get everything in the house in and I start to put things away and ken comes home he helped and told me to sit down.

He went and took a shower then laid down. He had been trying to take out these juintiper bushes that have been there for 47 years. They made good progress

Well I just took some more sinus meds hopefully they kick in soon

Gental hugs to all

Liz feel better

[BlueEyedMama]

I don't go to the ER for chronic pain it is just part of the beast. I see my doc every friday for chronic kidney issues. I was just started on steroids for pleurisy and joint pain and it is beginning to take the edge off. Can't take NSAIDS so I have stronger painkillers on hand but I rarely take them. Anyway, I hope that you all start to feel better and have a nice Mother's day. I am thinking about you all this early morning. HUGS

[January]

Cake, you need a little shopping cart to take with you to the store. Keep it in the car while you shop. When you get home, just unload things into the cart and push it inside. I can't carry my groceries, much less unload them right away when I get them in the apartment. The buggy really helps. I have to push the refrigerated things in first and then wait until the next day to get the canned goods, etc.

My dentures are still stuck this morning. My upper mouth is extremely swollen and I look like someone punched me. I've researched it on Google and tried the suggestions. If any of you have any ideas, please let me know.

I hope all of you have a peaceful day free of pain. Wouldn't that be nice...

[lizardlady]

Jan, how about holding hot water in your mouth to try and dissolve the Fixident? My partial used to come loose when I drank hot liquids.

Pain is down to dull roar today. Am absolutely exhausted though. Slept 10 hours last night and woke up tired. Probably the chronic fatigue acting up. Loed but I'm tired of hearing myself complain.

I posted in the pets section about riding Kieran yesterday. My head wanted to, but my body wasn't too sure about the idea. I swear he decided to take care of me. We spent about 20 minutes just poking around the ring. He was such a gentleman. The movement seemed to help a bit with the pain, gentle swaying motion seemed to help stretch me. Was definitely good for my head.

[January]

Liz and Mama, I hope so much that your pain goes away.

I got the dentures out at last. The swelling has gone down, but my mouth is sore. I have an important meeting this morning, so I'm going to have to put them back in, but not with Fixodent.

Love you!

[Kiya]

Hope your meeting goes well Jan!