[Kiya]

Originally Posted by BlueEyedMama

I woke suddenly with a very sore chest. I feels like pleuresy (sp) but it's been awhile since I've had a flare up of that so I am not 100 Percent sure. Very uncomfortable. Trying to not get my anxiety levels up and also trying to not wake my husband which is hard since we are in a hotel. He starts his new job in the morning so he needs his sleep.

Let us know how you're doing, ok?? That doesn't sound like something to ignore.

[Gus1234U]

"there are cracks, there are cracks in everything; that's how the light gets in,, that's how the light gets in...." (leonard cohen)

my heart goes out to you, Jan... and each of you who suffer so much from everyday life

i seem to have lost a couple of days, mostly to sleep, i hope. my cousin who gave me so much joy to be helping, has forgotten me, it seems....

sending good thoughts for your transition, Blue~!

[cakeladie]

Well I finely slept past 2 am but barley. Apparently sunny the cat was meowing and woke up hubby who then woke me up it was 2:43 am. I don't think it's to much to ask to let me sleep till 4 am when he gets up for work. He knows how I haven't been sleeping.

Anyway tonight will be a long night. My daughter's friend went missing in 2012 on her way to school. They have never found her body. They have had someone in custody this whole time. He had the nerve to tell his mom to take care of his daughter.

Her DNA and her hair were found in his car. His attorney claims that she just ran away. They found her clothes that she was wearing that day with his DNA and her phone. His attorney claims she ran away because she did not like the area they moved to. What teenager would? At 15 you loose all your friends and your school.

Anyway th jury is back it will be announced tomorrow at 9 am

I won't be able to sleep tonight and neither will her parents.

I know this is not fibro related and thanks for letting me vent

[January]

Cake, please go to the Dr. before you get even worse. This does not sound good. Remember, we all love you and want you to feel as good as possible.

I think you should tell hubby off about waking you up. Grrrr.

I cannot begin to imagine the pain that girl's family has gone through and I hope things happen in the least upsetting way possible for them and for you.

Cake, I post about non-fibro related things in here all the time because all of you are my family. It's all right.

Gus, I'm so upset that your cousin has forgotten you. I wish I was there to give you a big hug and spend time with you.


I have been doing little tasks and then putting ice on my back all day and evening. Thank you for caring and the ecouragement, Gus. I have to keep fighting. The other choice isn't so hot.

For the first time ever, Belle smells a little like a dog instead of just a sweet puppy tonight. I find it kind of scary.

[BlueEyedMama]

Originally Posted by Kiya

Let us know how you're doing, ok?? That doesn't sound like something to ignore.

Thanks for checking in hon. It really feels like pleurisy which happens from time to time with lupus. I see my doc on Thursday and Hubby said if my symptoms get worse before then he will take me to urgent care. Thank you for caring hon and I sure do hope that you have been feeling better these past few days. I have been thinking about you.

[January]

Oh my gosh Mama, I yelled at poor Cake when I was trying to fuss at you to please go to the Dr! I'm so sorry! I do hope you go to the Dr. and I'm really glad that your hubby is behind you on this. You take good care of yourself and know that you are loved!

[January]

Lots and lots of pain today. I managed to get some paperwork done, but nothing physical. I even called the PT asking for help, but she told me she'd work with me tomorrow and to hang in there. I'm wearing my brace. It will be time to take it off soon. Belle escaped today. I couldn't move fast enough to shut the door in time. Some very kind men caught her for me. She was quite pleased with herself that she had a little foray!

[cakeladie]

So the verdict is back guilty on all charges the judge gave the jury a week off then they will start the penalty phase

[lizardlady]

Originally Posted by cakeladie

So the verdict is back guilty on all charges the judge gave the jury a week off then they will start the penalty phase

I hope they lift the corner of the jail and drop it on him. Maybe his attorney too!

[lizardlady]

REALLY bad day today. Woke up exhausted and in pain. It's one of those days when I just want to roll in a ball and cry.

I am too worn out to reply to everyone tonight. I tried to thank and/or hug everyone. Sorry if I missed anyone.

[January]

Liz, I'm so sorry you're in so much pain. I wish there was someway I could help you.

Cake, I agree with Liz on what the jury should do to both the lawyer and the defendant.

I hope you all have a peaceful, restful night.

[BlueEyedMama]

Woke up in pain again this morning, not just from pleurisy but my joint pain is through the roof. I feel as if I can feel every bone in my body. Today is going to be a long day as we check out of hotel and I have to sit in the loby for 6 hours while hubby works and then we have a 2 hour ride home. I see my doc tomorrow morning as well as get my weekly iron infusion so I should feel a little better after that.

Jan, thank you for fussin at me darlin' and I promise to keep my Doc appointment tomorrow. I do feel loved and I thank you. I love you guys too. I hope that you feel better soon.

I am thinking of you all and sending healing vibes your way. ~Gentle hugs all around.~

[cakeladie]

Gentle hugs to everyone

It's weird I am very exhausted and our weather needs to make up its mind is it winter summer or spring. One day it's 40 degrees the next day it's 90 degrees. Wth my allergies don't know what to do and neither does my body.

I have never followed a trial like this. This verdict has been a long time coming 5 years it took to get to trial then the trial took 4 months without a body. Now the jury has to decide if he goes to deal the row or life in prison. He's a young guy who has not been in trouble with the law before plus they brought up today that his father who is now in prison mistreated him has a child.

But he was not only convicted yesterday of Sierras kidnapping and murder but also the attempted kidnapping of 3 other women.

So I grew up catholic and I am very conflicted. We were taught not to kill and putting someone to death is killing but on the other hand the Bible does say an eye for an eye and then you have me has a mom. Who has held this girl in my arms. Killing him will not bring her back. Also it's been 20+ years since California has put anyone to death. We currently have close to 800 people on death row. I am all for giving him life if he tells us where she is. That way we can bring her home.

But on a positive note and a good note I slept past 3 am today. Yeah for me.

Take care all

[lizardlady]

Another rotten day ahead. Woke up exhausted and in pain.

[cakeladie]

I am so sorry Liz

Today is Lupus Awareness Day wear purple to show your support

I wondor if there is a fibro Awareness Day I will have to look that up. It's up to us to get our stories out there and let people know that these are real dieases and are very debilitating

[January]

I've been really sick and in great pain ever since I had this last round of shots. It has even effected the colitis, which had settled down a little bit. I have so much to do and need to go to PT and the store, but I just don't know if I can make it today.

Mama, my thoughts are with you today. Oh, I hope your Dr. can help you tomorrow. Hang on, hon. Tomorrow is coming.

Liz, I so hope you feel better today. Can you take anything for your pain? They only let me have advil the week of the shots and then only tylenol. It doesn't work.

Cake, I have gone through your struggle with the d. penalty.
It's a hard decision. I hope you and her family can find closure through all of this. I really do.

Where is Gus? Has anyone heard from her? I miss her.

Kiya, where are you? Are you ok?

How are the rest of you? Let us hear from you.

[Gus1234U]

i remain MIA... glad to be able to catch up on the news,,, (worry about you Blue~ )... so sorry for your pain, so glad you have little miss Belle, {{{Jan}}}.... glad it's almost over, {{{ Cake }}}....

my puter is crashing, PC doesn't work half the time, my games won't load and my life is,,, well sleeping is the nicest thing i do ... catch you all on the rebound~~ :*

[January]

((((( Gus )))))

You are loved.

[cakeladie]

I second that Jan

Hi everyone, I hope this message finds you all doing as well as can be expected. The warmer weather usually brings about a reduction in pain for me but so far this has not happened and I worry it won't this year. I had 2 horrible dreams awaken me into shaking, pain and terror last night. Didn't sleep well so I guess that means more pain today. It's easing up a little but not enough yet. I always think I might wake up one day and the pain will all have been a nightmare that's finally over. I feel like everyone is tired of me complaining and even being. Maybe I'm the only one that feels that way about myself.....I don't know. I just want to be normal in so many ways in which I'm not at all. I got a self esteem workbook and I don't even know how to answer the questions regarding how I feel about myself.

Sending love and support to you all. I'm new here so I'm not familiar with all your specific challenges but I do know and understand how hard it is to live in constant pain of one type, then another, then another. (((Hugs)))

[Kiya]

((((Cake lady)))))
I never knew your story 😞 (plus millions more).
Holding you and this situation in prayers. Much love to you

Originally Posted by cakeladie

Gentle hugs to everyone

It's weird I am very exhausted and our weather needs to make up its mind is it winter summer or spring. One day it's 40 degrees the next day it's 90 degrees. Wth my allergies don't know what to do and neither does my body.

I have never followed a trial like this. This verdict has been a long time coming 5 years it took to get to trial then the trial took 4 months without a body. Now the jury has to decide if he goes to deal the row or life in prison. He's a young guy who has not been in trouble with the law before plus they brought up today that his father who is now in prison mistreated him has a child.

But he was not only convicted yesterday of Sierras kidnapping and murder but also the attempted kidnapping of 3 other women.

So I grew up catholic and I am very conflicted. We were taught not to kill and putting someone to death is killing but on the other hand the Bible does say an eye for an eye and then you have me has a mom. Who has held this girl in my arms. Killing him will not bring her back. Also it's been 20+ years since California has put anyone to death. We currently have close to 800 people on death row. I am all for giving him life if he tells us where she is. That way we can bring her home.

But on a positive note and a good note I slept past 3 am today. Yeah for me.

Take care all

[Kiya]

((((Liz, Jan, Mama))))
My thoughts are with you!!! Hoping things will turn up!!!

(((((Gus))))) aw- wilted flower rest and water and everything working right!!!

((((Mars))))) welcome. We totally get it and will not tire of you! Totally supportive, lively group. Home away from (or within) home.

[Kiya]

I'm here. My mom has been in the hospital for six days with heart issues; namely afib and was in the beginning stages of heart failure due to water retention. She is doing better and is at home today. I am very tired from taking care of two households and her cat. As well as going to the hospital to see her. Ironically Friday night I was supposed to go to psych ER and then after agreeing to go, I went home only to get my moms frantic message early Saturday morning. So I see it as divine providence.
I guess that's not really irony but coincidence. The irony is that I felt safer with her admitted than I do now that she is in her own home. I had anxiety about picking her up and had to come to an understanding around my own emotions.
It isn't like she can't hurt me where I am, I simply feel like she has control and the upper hand typically whereas she didn't have that while in the hospital. Of course I felt a worry for her as well and concerned that she would die. It is complicated.
Due to my own medications, my own irregular heartbeat and missed beats and possibly PVCs have picked up daily now. I had a wellness check today and my doctor heard my irregular heartbeat for the first time. I guess she didn't believe me up until now even though five years ago I wore a heart monitor for 48 hours. She doesn't like that it is so frequent but all other vitals are good. It is just uncomfortable.
She did suggest that I could go off the HRT even though I just had a hysterectomy. She said that I would have to in a few years anyway and that it if it is going to do this to my heart and mess up my psych meds it might not be worth taking. Something for me to think about.
All things considered I am doing well and as always I'm thinking of everyone in here! Even though I can't be in here daily, know that you are all in my thoughts daily

[January]

Elsa, you are so welcome here and we will never tire of you. We all understand what it's like to live in pain and to not be "normal", whatever in the universe that is.

Kiya, it is so good to hear from you. I wish that things weren't as complicated as they are for you. Going off the HRT is a big decision. I know you will research it all before deciding what to do. I'm sorry you don't feel as safe with your Mom out of the hospital. I do understand what you mean, though. I really do.

I've had a week of total incapacitating illness and pain. I haven't managed to do anything but basically stay in the recliner. I am going to try hard to make it to PT tomorrow. Maybe she can help me in some way.

I love you all.

[BlueEyedMama]

Just a quick little update since chest pain is keeping me up. Went to the doc who did an ekg and that came back abnormal but normal for me so that is good. Xrays shoed that I am quite inflamed and have a whopping case of pleurisy. This is not uncommon in those of us with lupus but it has been several years since I had it last.I started a round of steroids this morning so hopefully that will start to help soon. I need to go rest but I will post in the morning and see how each of you are doing.