[cakeladie]

Liz hubby needs to stop holding things in. He learned to do it at a very early age. If he didn't he got the crap beat out of him. It's surprising he turned into a kind loving person (most of the time). He mom (and I use that word loosely) is a witch. She had 4 kids by 4 different men. The only good thing is when baby daddy number 4 thought the best way to punish him for not putting his toys away (he was maybe 8 at the time ) was to burn him with a hot poker from the fire place. She sent him to go live with her parents. I am not sure if his sister came next or his brother. But the 3 oldest came to live with the grandparents until they graduated from high school. She kept the youngest with her who followed in her foot steps but she only had 3 children. Her youngest just graduated and the day after he graduated he moved in with my sister in law. His mom has been on public assistance since she first got pregnant at age 15. Considering her oldest child is 25 going on 26 she made it her career. Free rent money for food, cash and her gas and electric paid for all through welfare.

Ok I am done sorry guys.

[Gus1234U]

thank you for including me in your thoughts and prayers. it's been so hot here, too. yesterday was the worst yet. i dread a long hot summer, but i am supposed to get some home repairs done at a discount this year, so i look forward to that. if i can bring some small pleasure with my pictures, that is all i ask.

[lizardlady]

Gus, your pics bring more than a "small measure" of pleasure. If I see you've posted to this thread I get excited to see what the newest picture is.

Cake, if hubby is snapping at you he isn't hold it in. He's holding it until it pops out as nastiness. I used to do the same.

It would pay me to watch the weather reports. There's a tropical storm sitting out in the Gulf bearing down on poor ol' Louisiana. They always trigger a flare for me. This is weird. It doesn't do anything to ease the pain or exhaustion, but I'm always relieved when I can identify what triggered a flare.

[childofchaos831]

The doc raised our gralise a few weeks ago,but we have to go back down cuz of side effects. The hope was pain relief and anxiety relief would be better... but it was causing some health problems and also probably some mood lability, from what I can find. I only mentioned the one thing, swelling of feet and legs, to the medical assistant, cuz it was all I knew for the timeline, but I googled today after getting the call back, and ya. I had taken the lower dose last night, since I knew the answer was going to be go back to the previous dose. And some of the otherr stuff is getting better (maybe not the right word) also.

[January]

Cake, I agree with Liz. Hubby needs to treat you better. Being mean to you isn't going to solve any of his problems.

Gus, you bring us so much joy with your pictures. You really do!

Child, I'm sorry your med didn't work out for you and I hope you feel much better soon.

Thank you, one and all, for being Pocket Riders for me today. I held you dear to my heart. My visit went pretty well. I am not going to have to have more shots right into the spine for a while, but I have to have more shots in two other joints in my back. He's going to take heat and try to change the nerves in the joints. He's going to let me take PT just down the road instead of having to drive to the other place, which is a long, long drive. That part is very good.

Today Belle has been very naughty. She escaped twice and this is not the time she needs to be running around. Also, she jumped out of my arms and landed on her side on the cement. She's fine but she about scared me to death.

[January]

I received some very bad news yesterday. It is possible that it can be fixed, but I don't know. I'll know more tomorrow. Anyway, I got so upset over the news that my fibro shot pain thought both shoulders, my neck, my shoulder blades and down my back. I also could barely get out of the recliner to stand. It's the first time I've proven so clearly that stress can make fibro rear it's ugly head so badly.

We are to have horrible flooding here starting Friday and lasting into Monday, so I have to get all my errands done tomorrow. I don't think it's possible, but I can try.

Liz, are you safe? Are you in the path of the Tropical Storm, too?

All of you, please stay safe. I hope your pain levels stay down. I'll try to let you know if my bad news gets any better tomorrow.

[Gus1234U]

keeping you in my thoughts~

[January]

Well, my problem is not solved. There is a chance it will be resolved, but just as great a chance it will not. I won't know until the first of the month. I've done everything I can do so now I wait.

The storms are moving in so I need to get off the computer. I should be perfectly safe. I just worry about other people.

Thank you for the wonderful picture and sentiment, Gus. I love you!

I love you all.

[childofchaos831]

January, are you in the path of Bert? I hope it's not too bad!

[January]

Hi Child, thank you so much for asking and for your concern. I'm in the path of Tropical Storm Cindy. We're to get 4 inches of rain and the ground is already soaked. The rivers are already high and we have mountains here, so there's not much room for the water to flow. Thanks again!

[childofchaos831]

Originally Posted by January

Hi Child, thank you so much for asking and for your concern. I'm in the path of Tropical Storm Cindy. We're to get 4 inches of rain and the ground is already soaked. The rivers are already high and we have mountains here, so there's not much room for the water to flow. Thanks again!

That does not sound good... I hope it doesn't get too bad.

[lizardlady]

Jan, I'm nowhere near Cindy's path. Thanks for asking. We got a lot of rain this week from the storm but it was all peripheral stuff. Poor New Orleans is getting hit yet again.

[BlueEyedMama]

Today is the last day of packing before the movers come tomorrow. The big stuff is all packed and ready to go but I have about 3 hours of work to get done today. I pace myself and roll slow and so far that has prevented any flares from creeping up on me. I am so glad that Hubby took my advice and hired movers. His back hurts too much and I would be of no help especially with the heavy stuff. So my next three days look like this: today finish packing and do laundry, tomorrow have the movers come, and clean the house on Sunday. I am grateful that I am feeling up to the task. I am even more grateful that the weather is cooling down as it has been HOT here which is bad for lupus.

After tomorrow I won't have internet for about a week so if you don't hear from me that is why. Please know that I think of all of you often and send you positive vibes every day. Much love.

[childofchaos831]

I hope the storm wasn't too bvad for y'all Jan. My state didn't get hit too hard, but the rest of the gulf seems to have gotten hit bad.

[childofchaos831]

I'm a ways up from the coast tho.

[January]

Hi Child,

I'm so glad that things weren't too bad for you and your state. We have had unconfirmed tornadoes nearby and there is flooding. The major rain is about to pass me, so things are looking up. I'm so glad I don't have to drive in this!

Take care everyone. Stay safe!

[Kiya]

Hi everyone- catching up. Last few days have been super busy.
I didn't even know there were storms out there causing havoc for many of you. Please all be safe and sound.
We're in a heat wave. I'm in this new craziness of not knowing. I used to like warmth and sun. Now I am in photosensitive medication and had the full hysterectomy (aka hot flashes) and now I like being cool.
But fibro doesn't like cold. So when I get up, it takes several hobbled steps to get everything back in working order. If I'm sitting, I'm ok. Or once I'm moving I'm ok. But I'm cold, I'm hot, I'm confused lol. I'm stinky sweaty because my ph balance has changed. Eek!
And I'm being tested for (unlikely) absent seizures.
Meanwhile I'm behind on everyone's life in here!!!
So!! Take care, be goo to you, and hoping everything turns out well for everyone!!!
Hugs!

[Gus1234U]

[Kiya]

Ooooh pretty, Gus!!!
How are things?

[January]

Kiya, if I may ask, what are absent seizures? I do really understand the hobbling and needing to be cool all the time. I pretty much have to stay indoors or in the van with the A.C. running. It's a huge adjustment, but I know you can do it.

Gus, that picture is magnificent. It takes you right in so you can smell the water and hear the birds. Thank you so much.

Mama, I hope the moving goes perfectly and that you don't do too much. Please let us hear from you as soon as you can.

Love to all of you.

[Kiya]

Um I guess they are where the person just freezes entirely in both movement and speech... And then when they start up again, they don't know they did it and continue doing what they were doing. I do the first part, but I am still aware of things (I think) and at least at some point I am aware that I am frozen and staring. Then I start up again.
Yep a/c on full blast. 104 degrees :/

[January]

Kiya, when my son was a young teen, he had that except he completely blanked when he had them. He would even stop right in the middle of the road when he was crossing it. He was triggered by colored lights on a screen. The poor thing had to give up his video games and even though it made him very sad, he never once complained. Can you talk to the Drs and see if there are possible triggers for you?

[lizardlady]

'Scuse me for butting in about seizures.

Kiya, I hope they sort out what's going on with you.

Way back when I was a kid I was tested for epilepsy. I don't remember what lead to the testing but I had a couple of EEGs done. Our doc at the time told me I had "pre-epilepsy", whatever the hell that is supposed to mean.
Several years ago I read that folks with DID show epilepsy-like signs on EEGs. At the time no one knew why. I was (am?) dissociative. Today I believe I was having, and still have, "focal awareness seizures." I get this weird sensation inside my head and sort of blank out for a few seconds. I'm still aware of what's going on around me and can respond to things. I've also taught myself how to snap out of it. It's interesting, the Epilepsy Foundation site says these can be caused by head trauma. I got my first concussion at 2 years old when I fell out of my stroller.
Yeah, I said "first concussion." I stopped counting at the ninth one. When I read about football players and the negative effects of the concussion they get I figure I'm doomed.

From the Epilepsy Foundation.

An absence seizure causes a short period of “blanking out” or staring into space. Like other kinds of seizures, they are caused by brief abnormal electrical activity in a person’s brain.
An absence seizure is a generalized onset seizure, which means it begins in both sides of the brain at the same time.
An older term is petit mal seizures.
Absence seizures usually affect only a person’s awareness of what is going on at that time, with immediate recovery.

[lizardlady]

Just a heads up - I might not be around much this week. I'm on vacation!!!!!!! Am going to be away from computer access for the last half of the week. So, no worries if I'm not here.

[Gus1234U]

(the vacation in my head~ )

i'm doing better, thanks for asking, Kiya. i know about both concussions and absent epilepsy, first hand. when i was being poisoned by psych meds, i would have what i called "electrical storms" in my head,, i could feel them like spider webs running over my brain,,, yuk. i've had at least 5 major concussions, where i was unconscious for half an hour to an hour and a half (or more). no one ever acted like it was important, not even ER. i am amazed that i work at all~! (let alone half the time~~ )