[lizardlady]

RV, sorry you are hurting.

Pfrog, love the humor!

Christina, thanks for the hugs.

sleep=0

activities today=0

blah. it's going to be like this again all weekend. nothing on

I have made a list of 5 necessary chores that need done around the cottage each week.

I haven't had the energy to stay on top of these while working full time.

Not to mention the pain and fatigue!

Starting Monday, I'm going to tackle the chore I've assigned to that day.

It most likely will take most of the day with several breaks along the way, but ...

This is the plan I've implemented so we'll see how it goes.

today I feel a bit sick.

nothing serious. honestly: I think it's because my hair is going in my mouth (lol, I know, I need to actually get off my backside and do something) again though: another day of very little motivation

nothing but eat dinner later. that's the day

Originally Posted by Pfrog

I have made a list of 5 necessary chores that need done around the cottage each week.

I haven't had the energy to stay on top of these while working full time.

Not to mention the pain and fatigue!

Starting Monday, I'm going to tackle the chore I've assigned to that day.

It most likely will take most of the day with several breaks along the way, but ...

This is the plan I've implemented so we'll see how it goes.

I hope this works for you.

great at planning myself, suck at sticking to it

Pfrog is wondering should I go ahead and apply for SSDI too, or wait until the LTD claim with employer is finished processing.

Pfrog is also wondering if she will need an attorney that specializes in SSDI to help her through that process.

Pfrog gets an overwhelming and often crippling anxiety when facing a lot at one time.

Reading the documents becomes difficult and my focus gets fuzzy and disjointed.

Then everything starts falling apart.

It's always been that way, as far back as I can remember.

It scares me I will mess up and miss something very important.

[lizardlady]

Pfrog, what about contacting your state vocational rehabilitation program for help and guidance? The program is designed to help people making the kind of transition you're facing.

As for having trouble wading through reading stuff I have a few suggestions
It helps me to take notes on what I read. It means I have to understood the stuff enough to write the note. It helps me, especially if I'm flaring , to tackle small portions of the reading. If I try to just plow through it all becomes gibberish. Lastly, is there someone you trust that you could ask to also read the material? Some times a second set of eyes helps.

nothing to see here.

fed up, depressed, in pain, doing nothing all day..

Whew, Boy!

That social security application for disability is a long one!

Got it done for the most part though.

Thought of a couple of things to add overnight.

Hope it's sufficient.

out of breath and feel like I am going to fall.

pain is soooo bad

ditto yesterday, basically.

I know, really bad management

I know it's gonna be a lengthy process, but ...

Got my first call from Social Security regarding my application within 6 hours of submitting it.

I answered most questions okay, but I keep remembering stuff I forgot to put down.

So I've started making a list because those medical recollections (and losses of function) are important too.

Like that allergic reaction to that antibiotic, its impact and how my body's never been the same since ...

And when I could no longer lift the coffee urn off the top burner without using both hands, etc.

I'm hoping the paperwork I'm supposed to fill out and return has a place for all that.

bad.

simply put: done nothing all day, another day wasted, feel like a failure

plus side is that I actually did eat better this evening. I had chicken burgers which were quite nice

praying for you, Marcus

in a lot of pain today, friday = shower day, and shower= pain.

got to have fruit salad for breakfast, for dinner I'm having mcdonalds. doing nothing for the rest of the day though. blah

[~Christina]

Hey everyone...

PFrog The SSDI process is annoying but, just take your time. Yes I also forgot numerous things so I was told to send in anything that I thought of and they would include on the claim.

My Fibro is always at a 7 ... But the other day it just literally spikes to a 8 headed for 9 .. I got that super frantic feeling and decided numerous xanax and a ambien was in need, Knock myself OUT ! When I woke up I was able to mentally get in front of the pain.

Does anyone else feel like that ?? Like if you can get in front of the pain you can handle it somehow , but if it overwhelms and your behind it its like OMG

I get stupid and think of ways to escape, It has sent me IP many times and I think its ridiculous. My T Pdoc and GP tried to get my local hospital to set up that if I was suicidal from the pain that I could come to the ER and get a shot of something , just to knock me .. Back and forth they went and the hospital said it was too much of a liability ???? All my providers were pissed. I mean I get to that point maybe 3-4 times a year at most so its not like I am a drug seeker.. I think it ridiclous that I would go IP for a freaking week and they want to change psych meds ??? NOoooooooooo I need help with pain, Ugh Thankfully Vanderbilt always files for medicaid for me or they just write off my 20% .. But what a waste , I'm taking up a much needed bed ... Because I have horrible pain and no one will really help me. My next GP appt I am going to ask for 3 pain pills, I do not care what kind... Just something that might knock me out so I can wake up and fight for another day.. Literally they might last me 3 months... But because of people abusing pain meds , people that truly need it cant get it... SUCKS !

Today Its been a steady increase , I cant take a deep breath and that's when I know push is coming to shove. So I am doing another round of Ambien and Xanax I really hope it helps.. I dont even want to think of the this pain staying this bloody high again tomorrow

And a damn Hurricaine is going to head over Florida, My daughter lives in Tampa Bay area but says it isnt going to be much , I hope so.

Sorry for the rant..The entire world is overwhelming me.... only good I can report is my husband FINALLY is getting better , hes been sick since March.. He finally drove the other day for the first time since coming back from Florida over Christmas

Gentle hugs to everyone

@~Christina ...

I'm sorry the pain is so overwhelming ...

Not even the "professionals" can understand what it feels like unless they, too, are dealing with it themselves.

I don't think escape plans are ridiculous.

I also have a plan in case it ever gets to be more than I can handle. Sometimes that's the only coping mechanism that works.

I don't care how annoyed the "professionals" get.

Not many can live with this kind of pain day in / day out and somehow decide to stick another day to fight another round.

I hope "That Pain, The SOB" releases you from its grip soon so you can get back to what you've come accustomed to tolerating ...

Even though that kinda pain sucks too!

I cuss and cry a lot when I'm having "That Pain, The SOB".

I'd pray but that doesn't seem to help as much as the crying & cussing!

Thanks for the encouraging words about Social Security. I called yesterday and they allowed me to add all the stuff I thought of.

Love, Peace & Gentle Hugs To You Too!

[lizardlady]

Oh ladies I hear you about "those" thoughts when the pain gets too bad. I told my pdoc that I understand why people kill themselves because of the pain. He said many/most of his patients with fibro have said something similar.

Christina, if your doc won't give yo uh a limited number of pain pills, would they be willing to call in a script for a few pills if you call the office and say you need the pills?

Pfrog, you are right. People who don't have fibro just don't understand.

Gentle hugs to all.

Pondering if I should include my two in-patient stays at the psych hospital back in the 90's in my claim?

It was when I first left home and was reeling and dealing with the fallout of all that.

My admissions were for PTSD / Anxiety / Depression, & ...

Possible trigger:

Suicidal Ideation & One Attempt

.

For some reason I'm reluctant to include all that.

Would appreciate y'all's opinions @~Christina & @lizardlady.

Treatment included a lot of psych meds (melaril / seroquel / paxil / effexor / wellbutrin) from 1993 until taken completely off around 2010.

I can remember waking up in the mornings while on melaril and seroquel and every part of my body would be all drawn up tight like some kind of palsy, and I'd have to lay there and manually articulate myself into being able to physically function. When they took me off the melaril and seroquel it eventually stopped being an issue.

Not sure if that may or may not be a contributing factor as to where I'm at today with the arthritis and chronic pain.

[lizardlady]

Pfrog, what disability are you applying for SSDI for? If you are applying for disability for psych problems you should certainly include it. If you are applying for SSDI for pain and mobility problems I would lean toward not including it. There's so much prejudice about psych disorders I would be afraid they'd think "it's all in her head." We get plenty of that kind of shyte about chronic pain as it is.

Thank you, @lizardlady ... Sage advice!

This is for the arthritis, chronic pain & mobility issues.

Of course, it has had a rather significant impact on my mental health, and my current Psychologist is addressing that angle as well.

We've been working together since 2013, and I think that's far back enough.

That is also the year the arthritis was discovered and started being addressed by my PCP at the time.

My current PCP has all those records, and my psychologist has seen the decline in my physical health as well.

Their input from 2013 to now should be sufficient enough for the disability claims.

Again, appreciate your and @~Christina's input and support more than words can ever say!

I have spent most of the day catching up on tv shows. not really ther most productive, but I suppose it was nice to relax and watch some of my favorite things

in fibro pain too. today's one of those days where it's gradually getting worse as the day goes on. I hate those days, and would rather it constantly be at the same level from the beginning (at least I then know the worst to expect)

[~Christina]

Liz . I dunno what my Doctor can do or wont do. Laws are being tightened in TN seems like weekly. Say if someone is truly hurt and needs pain meds for a injury.. They will only give out 3 days worth of pain meds at a time and then recheck office visit.. They are annoyed with it all. they practically have to offer up documentation in blood in case the state every wanted to know why Mrs Jones got 21 Loratabs .. Its so stupid

My Rhuemy said he seldom offers unless joints are red hot and visiable swollen he too has to worry about losing his licence so long term pain he has to refer to a pain clinic every tho he is treating people with long term painful conditions..

I get livid every thinking about how so many good doctors have there hands tied .. I shut up now, I feel a soapbox coming near lol

Grocery shopping for somethings to the town west of me tomorrow and have to pay for my husband Oxygen. Tuesday I have to take Steve to a Doctor appt . Wednesday I talk to my T and finish the grocery shopping in the town to my east .. Such a production but I will not buy fruit and veggies at hellmart , its always old and junk here..

Hugs ladies

it's going to be another really, really painfull day

yesterday was too much (especially the night), but what can I do. showing no signs of dying down

my accomplishment for the day is that I was able to get ready for the day without screaming in agony. it would have been more of an accomplishment if I'd actually showered and not felt in pain, but I didn't shower. still an accomplishment though as this doesn't happen often

Pfrog is feeling right sorry for herself.

Wishing I wasn't so afraid all the time.

It's exhausting!