Home Menu

Menu


Closed Thread
Thread Tools Display Modes
  #851  
Old Sep 29, 2020, 07:18 AM
childofchaos831's Avatar
childofchaos831 childofchaos831 is offline
Elder
 
Member Since: Nov 2016
Location: Texas
Posts: 5,037
Quote:
Originally Posted by raging vortex View Post
no plans for today.


no idea why I'm alive. *sighs*
Because you are important and you matter Fibromyalgia Check-In Thread #5 ...
__________________


Diagnoses:
PTSD with Dissociative Symptoms, Borderline Personality Disorder, Generalized Anxiety Disorder, Fibromyalgia and Chronic Pain
Hugs from:
Anonymous41006

advertisement
  #852  
Old Sep 30, 2020, 09:30 AM
Anonymous41006
Guest
 
Posts: n/a
It took me an hour and 20 minutes to change my linens this morning!

Fibromyalgia Check-In Thread #5 ...

AN HOUR & 20 MINUTES!

Ugh!


Hugs from:
lizardlady
  #853  
Old Sep 30, 2020, 01:53 PM
Anonymous32451
Guest
 
Posts: n/a
today I found out that my doctor's surgery are not yet willing to give me a new doctor. they tried to patronize me today re: my complaint, and tried to stick up for the doctor when ever they could.

for now, it's still ongoing. I've said that I'm not willing to work with someone who wishes kovid on their patients, and they are saying they are unwilling to give me someone else at this time

so
Hugs from:
Anonymous41006
  #854  
Old Sep 30, 2020, 04:30 PM
lizardlady's Avatar
lizardlady lizardlady is offline
Legendary
 
Member Since: Nov 2002
Location: Mid World
Posts: 18,067
I found out today one of the kids I work with tested positive for Covid. GULP!
Hugs from:
Anonymous41006, ~Christina
  #855  
Old Sep 30, 2020, 10:29 PM
~Christina's Avatar
~Christina ~Christina is offline
Legendary Wise Elder
Community Liaison
 
Member Since: Jul 2011
Location: Tennessee
Posts: 22,450
I am hurting PsA wise, We had a mild cool front come in , But the increased pain joint wise has been going on about 7-8 days. I am so worried Xeljanz is no longer working like it should Ugh! Im actually scared its stopped , I see Rhuemy in a couple weeks so my blood work he orders will show if my Inflammation rate is higher .. Im going to seriously lose it.

Gentle hugs Ladies
__________________
Helping others gets me out of my own head ~
Hugs from:
Anonymous41006, lizardlady
  #856  
Old Oct 01, 2020, 06:01 AM
lizardlady's Avatar
lizardlady lizardlady is offline
Legendary
 
Member Since: Nov 2002
Location: Mid World
Posts: 18,067
I feel like crap this week. My body is telling me I'm sick. Body aches, hurts to breath, coughing, congestion, chills, EXHAUSTED. I scheduled another Covid test for later today, especially after finding out I was exposed. I obviously have some kind of respiratory thing going on. Going to rule out Covid first.

I am so pissed that no one told me I was exposed. I only found out because I went to see the kid at school. Her attendance report showed a string of absences, including future days, that were excused by the nurse. Asked the nurse what was going on asked was told the kid tested positive. So much for contact tracing!
Hugs from:
Anonymous41006, ~Christina
Thanks for this!
~Christina
  #857  
Old Oct 01, 2020, 06:03 AM
lizardlady's Avatar
lizardlady lizardlady is offline
Legendary
 
Member Since: Nov 2002
Location: Mid World
Posts: 18,067
Christina, I wish there was something I could do for you.
Hugs from:
Anonymous41006, ~Christina
Thanks for this!
~Christina
  #858  
Old Oct 01, 2020, 11:08 AM
Anonymous41006
Guest
 
Posts: n/a
I hope it's NOT that the medication has quit working, @~Christina!

I don't blame you pfor being pissed, @lizardlady!

Gentle hugs pfor us all ...

Hugs from:
~Christina
Thanks for this!
lizardlady
  #859  
Old Oct 01, 2020, 05:24 PM
~Christina's Avatar
~Christina ~Christina is offline
Legendary Wise Elder
Community Liaison
 
Member Since: Jul 2011
Location: Tennessee
Posts: 22,450
Liz..
Oh NO

You should have been notified the minute as soon as the kid was tested positive

Very happy your being tested .

Im so sorry this is happened

Please take good of your self

(((((((( Liz ))))))))))))))))
__________________
Helping others gets me out of my own head ~
Hugs from:
Anonymous41006
Thanks for this!
lizardlady
  #860  
Old Oct 02, 2020, 07:14 AM
Anonymous32451
Guest
 
Posts: n/a
it has been raining all night, and, acording to the weather forcast, it's ghere to stay all weekend- glad of that, love rain.

not doing much today (surprise surprise), showered in pain, now sat here doing nothing

later I'll have mcdonalds which of course I am looking forward to. yum yum

but that's it for today
Hugs from:
Anonymous41006
  #861  
Old Oct 02, 2020, 08:04 PM
lizardlady's Avatar
lizardlady lizardlady is offline
Legendary
 
Member Since: Nov 2002
Location: Mid World
Posts: 18,067
Sorry folks, I need to whine.... I've got body aches to rival one of my worst flares, sinuses are swollen and hurt, sore throat, alternating chills and hot, headache, exhausted, hurts to breathe... I just plain feel like crap. It will be Monday at the earliest before I get test results. Gawd I just want this over.
Hugs from:
Anonymous41006, Cocosurviving, Travelinglady
  #862  
Old Oct 03, 2020, 05:57 AM
Anonymous41006
Guest
 
Posts: n/a
((( @lizardlady ))) ...

I can't even imagine what you're going through!

I'm hoping and praying that these results are negative too ...

Thanks for this!
lizardlady
  #863  
Old Oct 04, 2020, 03:31 AM
Cocosurviving's Avatar
Cocosurviving Cocosurviving is offline
Elder
 
Member Since: Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,920
I’ve been dealing with health insurance crap. People that say Medicare for all have no clue. Once you have insurance they go over and beyond to cover only the bare minimum.
After waiting three weeks for insurance to approve an injunction similar to a epipen. It’s for my Hereditary Angioedema. I was approved on last Friday now it’s a matter of finding funding for the injection. Meanwhile my immunology specialist has suggested another injection which is administered every four weeks for my Chronic Idiopathic Urticaria. The injection is $30,000 per year.
__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
Hugs from:
Anonymous41006, Travelinglady
  #864  
Old Oct 04, 2020, 08:28 AM
lizardlady's Avatar
lizardlady lizardlady is offline
Legendary
 
Member Since: Nov 2002
Location: Mid World
Posts: 18,067
My results came back negative. I still feel like crap though. Not sure what to do next. I don'thave a primary care doc. Maybe I'll try teladoc or doc in a box.

I just scheduled an appt at a local doc in a box.

Last edited by lizardlady; Oct 04, 2020 at 08:48 AM.
Hugs from:
Anonymous41006, Travelinglady
  #865  
Old Oct 04, 2020, 09:04 AM
Anonymous32451
Guest
 
Posts: n/a
i've gone crazy on the overeating again, and eaten too much so now my tum hurts

along with my back

and legs

and shoulders

and loads of vital body parts
Hugs from:
Anonymous41006, Travelinglady
  #866  
Old Oct 04, 2020, 05:41 PM
lizardlady's Avatar
lizardlady lizardlady is offline
Legendary
 
Member Since: Nov 2002
Location: Mid World
Posts: 18,067
Went to the doc in a box this afternoon. As I suspected all along I have a sinus infection which exacerbated my asthma. I have a baggy of drugs to take. At least I have an answer now and meds to treat it.
Hugs from:
Anonymous41006, Travelinglady
  #867  
Old Oct 04, 2020, 10:29 PM
Travelinglady's Avatar
Travelinglady Travelinglady is offline
Legendary Wise Elder
 
Member Since: Sep 2010
Location: North Carolina
Posts: 49,212
liz, sinus infections aren't any fun. I hope your baggy of meds gets you fixed up soon.

What distresses me is that COVID19 can cause body aches and such. Just what sufferers of fibro need! More pain....
Hugs from:
Anonymous41006, lizardlady
Thanks for this!
lizardlady
  #868  
Old Oct 05, 2020, 02:42 AM
Cocosurviving's Avatar
Cocosurviving Cocosurviving is offline
Elder
 
Member Since: Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,920
I came across this post and had to share it. 💜💜💜

♻️♻️♻️ RePosted @withregram • @worrywellbeing Over the past few days, I’ve been struggling and having dealt with mental health problems for a long time, I’ve learnt to recognise the signs that I’m finding things harder than usual. I can’t really pinpoint what’s wrong, I just don’t feel right. I’ve been finding it hard to get up in the mornings, I’ve had panic attacks (something I haven’t experienced in months), my thoughts have felt completely uncontrollable. If you’re going through a difficult time at the moment, you’re not alone. I’m not sure what the answers are, this account has never been about giving advice and telling people how to be happy, it’s about me being honest, sharing my experiences, sharing things that have helped me, reminding you that you’re not alone. I am struggling at the moment, but that’s okay. And if you’re struggling, that’s okay. You will get through this. Recognising you are struggling is the first important step in helping yourself feel better💚
__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
Hugs from:
Anonymous41006, lizardlady
Thanks for this!
lizardlady
  #869  
Old Oct 05, 2020, 04:34 AM
Anonymous41006
Guest
 
Posts: n/a
Whew, Two!

Great news again, @lizardlady ...

I hope the meds knock that sinus infection out and you're pfeeling better soon.

I also hope that your good boss realizes the implications of having in person meet-ups and allows you to go back to teleworking.

Some people are more at risk than others and should be given extra special considerations!

  #870  
Old Oct 06, 2020, 06:52 AM
Anonymous32451
Guest
 
Posts: n/a
Quote:
Originally Posted by lizardlady View Post
Went to the doc in a box this afternoon. As I suspected all along I have a sinus infection which exacerbated my asthma. I have a baggy of drugs to take. At least I have an answer now and meds to treat it.


I hope that the meds work. be sure to let us know
Hugs from:
Anonymous41006
  #871  
Old Oct 06, 2020, 06:53 AM
Anonymous32451
Guest
 
Posts: n/a
you know it's going to be a bad day when your first thought is, " why am I here?"

litirally doing nothing
Hugs from:
Anonymous41006, lizardlady
  #872  
Old Oct 06, 2020, 04:05 PM
lizardlady's Avatar
lizardlady lizardlady is offline
Legendary
 
Member Since: Nov 2002
Location: Mid World
Posts: 18,067
The first few days I take new meds they kick my behind. It's getting kicked hard. On the other hand I seem to be breathing a little better sand coughing less.

They gave me an asthma med that makes me a little shakey when I use my inhaler. They also gave it to me to use in a nebulizer. Boy howdy, I was shaking all other like a leaf in a hurricane. I'm going to have to time using it to not interfere with things from now on.
Hugs from:
Anonymous41006, ~Christina
Thanks for this!
~Christina
  #873  
Old Oct 07, 2020, 03:02 AM
Cocosurviving's Avatar
Cocosurviving Cocosurviving is offline
Elder
 
Member Since: Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,920
The last two days I’ve been in a lot of pain. When weather fluctuations happen I get flares from my autoimmune illnesses. I have continued walking 15-20 minutes each day. My legs, shoulders, back and torso experience severe pain.
I’ve been utilizing my cannabis license seeking to reduce my pain and other symptoms.
Yesterday I had a Zoom meeting to receive training on a new treatment for my Hereditary Angioedema. I watched a video a few days prior. I’m very nervous to be honest.

I have experience administering my Epipen which the needle is not visible. However this new treatment injection the needle is visible. It gets very overwhelming constantly juggling multiple autoimmune diseases/rare diseases.
__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
Hugs from:
Anonymous41006, lizardlady, ~Christina
Thanks for this!
~Christina
  #874  
Old Oct 09, 2020, 03:51 AM
Anonymous41006
Guest
 
Posts: n/a
It's amazing what a difference a couple of inches makes!

Got my ADA toilet seat installed ...

My hips & knees certainly appreciate it!

Hope all are pfaring as well as possible considering our various conditions ...

Gentle hugs pfor us all ...

Hugs from:
~Christina
Thanks for this!
lizardlady, ~Christina
  #875  
Old Oct 09, 2020, 02:00 PM
Anonymous32451
Guest
 
Posts: n/a
I showered today.

wow it was painfull. a job that should take 10/15 minits at most takes me about 45 now

that's the amount of pain I am in- even with my shower chair
drained me for the day and so then I just sat here eating chips

**** my life
Hugs from:
Anonymous41006
Closed Thread
Views: 95086

attentionThis is an old thread. You probably should not post your reply to it, as the original poster is unlikely to see it.




All times are GMT -5. The time now is 03:30 PM.
Powered by vBulletin® — Copyright © 2000 - 2025, Jelsoft Enterprises Ltd.




 

My Support Forums

My Support Forums is the online community that was originally begun as the Psych Central Forums in 2001. It now runs as an independent self-help support group community for mental health, personality, and psychological issues and is overseen by a group of dedicated, caring volunteers from around the world.

 

Helplines and Lifelines

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider.

Always consult your doctor or mental health professional before trying anything you read here.