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  #451  
Old Jan 24, 2022, 05:38 PM
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Based on history my cold last week caused a sinus infection. Am going to call teledoc tomorrow to get antibiotics and steroids.
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  #452  
Old Jan 24, 2022, 06:27 PM
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Well, durn, @lizardlady ...

Glad you were able to puzzle it out though ...

Hopefully those RX's will have you pfeeling better in no time!

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  #453  
Old Jan 26, 2022, 11:39 AM
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This is not fibro related, but I need to whine about health stuff...

Still struggling with respiratory bug. Today is first day on meds. First day of meds kicks my butt. I think it's my body and the meds fighting the infection, but it makes me feel even worse. I feel like death on a stick. Meds include steroids which increase appetite in other people. It kills what little appetite I have.

To top things off I think this is moving into my chest. Time to break out the nebulizer.

Okay, that's enough whining!

I just had to add this because it's funny. Antibiotic is labeled one at breakfast, one at bedtime. "Do not lay down for 30 minutes after taking" Do they think people sleep standing up !?!


Last edited by lizardlady; Jan 26, 2022 at 12:11 PM.
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  #454  
Old Jan 26, 2022, 05:58 PM
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I'm sorry it got a hold of you so badly @lizardlady ...

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  #455  
Old Jan 28, 2022, 08:16 AM
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Cocosurviving Cocosurviving is offline
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Our weather fluctuated over the last few days. I used to like cold weather however now it triggers my Fibromyalgia.

I can’t remember if I mentioned purchasing a foot massager. It really helps with tender points.

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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  #456  
Old Jan 31, 2022, 08:16 AM
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Just wanted to say I'm tired of being in pain all the time.

That's all ...

May Today Be Kind To Us!

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  #457  
Old Jan 31, 2022, 03:43 PM
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Quote:
Originally Posted by Pflower View Post
Just wanted to say I'm tired of being in pain all the time.

That's all ...

May Today Be Kind To Us!

Me too pflower!
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  #458  
Old Feb 02, 2022, 07:38 AM
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Quote:
Originally Posted by Pflower View Post
Just wanted to say I'm tired of being in pain all the time.

That's all ...

May Today Be Kind To Us!

Tired of pain. Tired of being exhausted all the time.

Friends, I'm not posting much at the moment. I feel like poo which makes me cranky. So I'm lurking for a bit. I have no patience for what seems to me whiney, crybaby behavior. There are times I just want to scream at people. Hence, not posting much.
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  #459  
Old Feb 04, 2022, 08:58 AM
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More whining....

Gawd almighty I hurt and I'm exhausted.... I so want this over....
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  #460  
Old Feb 04, 2022, 03:05 PM
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Gentle hugs @lizardlady ...

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  #461  
Old Feb 05, 2022, 07:23 AM
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Thanks hon.
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  #462  
Old Feb 06, 2022, 08:37 AM
Anonymous32451
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very painful today getting ready for the day, took way longer than it needed to.

taking a full few minutes to put on one item of clothing... well.. not having much luck
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  #463  
Old Feb 09, 2022, 03:54 PM
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Pflowers Pflowers is offline
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Well, as predicted, MetLife took all my SSDI Lump Sum Payout ...

All but the 5k in attorney pfees!

I mailed them the check yesterday ... Dammit ...

  #464  
Old Feb 09, 2022, 07:02 PM
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Cocosurviving Cocosurviving is offline
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•I Just Need to Vent and Get My Feelings/Frustrations off My Chest. I’m not Seeking Feedback.

•I Often Feel People with Multiple Chronic Illnesses Have No Place or Voice in the Chronic Illness Community.

•Words Matter the Constant Use of Chronic Illness vs Chronic Illnesses Really Upsets me on Days that I Struggle.

•I’m Freaking Exhausted with Having Multiple Chronic Illnesses. I Feel like a Single Parent with Quintuplets.

•I Get one Chronic Illness Back to Baseline However the Others Get Triggered and I’m Dealing with More Flare Ups.

•The Constant Flare Ups Really Trigger My Depression.

•I’m Tired of being in Pain.

•I’m Tired of Missing Training/Workshops.

•I’m Tired of Feeling Nauseous.

•I’m Tired of Medical Bills.

•I’m Tired of ****** Health Insurance.

•I’m Tired of Fatigue.

•I’m Tired of Dealing with Vitamin Deficiencies.

• I’m Tired of Constantly Sleeping.

•I’m Tired of Chronic Hives.

•I’ve Tired of Swelling.

•I’m Tired of Figuring Out Which Chronic Illness is Causing Which Symptom.

•I’m Tired of Hashimotos, Fibromyalgia, Asthma, Alopecia, Chronic Urticaria and Angioedema.

•Today I’m also Tired of Crying.


Fibromyalgia Check-In Thread #6 ...

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__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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  #465  
Old Feb 11, 2022, 12:11 PM
Anonymous32451
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I still feel super drained from my shower this morning.

ow it really hurts!
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  #466  
Old Feb 12, 2022, 05:42 AM
Anonymous32451
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it took me around 15 minutes this morning to get 3 items of clothes os

ow
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  #467  
Old Feb 12, 2022, 07:53 AM
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Still struggling with the sinus infection. Called Teledoc Thursday. She ordered me stronger antibiotics and stuff for my asthma. Started the new stuff last night. We'll see how it goes.

I made the mistake of telling the Queen B about still being sick. Asked if I might be able to take breaks during the day. She lived up to her nickname. Basically told me I needed to do my job. Gawd I miss my old boss. He would've told me to do the best I could, but take care of myself.
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  #468  
Old Feb 13, 2022, 03:00 PM
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Pflower, I was repotting some of my orchids and thought of you. Here are some pics

Fibromyalgia Check-In Thread #6 ...
Bought this one to celebrate selling my mom's house.

Some pretty blooms...
Fibromyalgia Check-In Thread #6 ...

Here are most of the rest of them in their "winter home" AKA my bathtub.
Fibromyalgia Check-In Thread #6 ...
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  #469  
Old Feb 13, 2022, 04:50 PM
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Those are beautiful @lizardlady!

Mine's still in pfull bloom ...

They take their sweet time reaching pfull bloom, but ...

Once they're there, they let us enjoy them pfor a long time.

Thanks pfor sharing!

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  #470  
Old Feb 18, 2022, 04:44 AM
Anonymous32451
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in a lot of pain.

showered today and well..... almost broke my body
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  #471  
Old Feb 21, 2022, 07:40 AM
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Cocosurviving Cocosurviving is offline
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Location: Muscogee (Creek) Nation Reservation
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Fibromyalgia Check-In Thread #6 ...
Ups and downs

Downs
I was symptomatic for three weeks. Chronic Illnesses flare up. I attended three medical appointments last week… my primary care, endocrinologist and immunologist. I started another medication to control Hashimotos.

Fibromyalgia
I experienced a week of increased Fibromyalgia pain. I usually have a lot of pain in my legs, arms and tender points in my feet.
I have an appointment in two weeks with my Rheumatologist.

Depression
My depression is usually triggered by my chronic illnesses. I definitely have days I’m so frustrated with being symptomatic. I get upset about having a crapload of medical bills…..so much is not covered by insurance. I’ve applied for Medicaid multiple times and apparently I’m not poor, poor. I keep getting denied.

Venting
In a society that attempts to push toxic positivity on womxn, I’m glad groups and forums exist.
It helps to clear my head and frustrations. It’s a process to brainstorm and figure out solutions.
I really do get exhausted from chronic illnesses, health insurance bs, medical bills and out-of- pocket expenses not covered by health insurance.
It was hard receiving phone calls, letters and e-mails about multiple medical bills. They do not care if you make payments. Most hospitals don’t seem to relate to people who are on a fixed income and want medical bills paid off in 3-4 payments. They definitely fail to comprehend a lot of people with medical bills have several medical bills. I had medical bills sent to collections while I was making payments. I noticed that one hospital
listed the same medical bill twice. I did contact the credit bureaus.

Ups

I decided to space my medical appointments out more. I had appointments with specialists weekly and every two weeks. I started making detailed notes to get the most out of my appointments and having my provider check that I have refills.

When I’m symptomatic I sleep a lot. I took naps and went to bed a lot earlier than usual. I ate a lot of fresh vegetables and fruits.

I enjoy functional paper planning and attending virtual workshops. I use money management sheets to track my medical bills and the payments I make. I include the account numbers.

I pick workshops that interest me and align with the personal growth that I seek.
I popped in last week the last 30 minutes for two workshops (Monday and Thursday). Friday I participated in a full healing Fibromyalgia Check-In Thread #6 ...*🩹 gathering that lasted about 45 minutes.

I’m still going to bed early. My teenager school district is out of school this week. Parent Teacher conference is next week.

I’m excited that Feb 28th is Rare Disease Day. I have several autoimmune diseases but also have two rare diseases.
__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata

Last edited by Cocosurviving; Feb 21, 2022 at 08:35 AM.
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  #472  
Old Feb 21, 2022, 09:07 AM
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Pflowers Pflowers is offline
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I'm over the Medical Industrial Complex!

I want to place a HUGE Tattoo across my chest that says ...

"HEAL ME AT YOUR OWN EXPENSE!
I REFUSE TO ACCEPT PFINANCIAL RESPONSIBLITY PFOR ANY & ALL MEDICAL CARE!".

Maybe if they see that, they'll just let me expire on the table and be done with it.

Pfat lot of good their mistakes & pfailures have done me anyhow.

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  #473  
Old Feb 21, 2022, 05:49 PM
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lizardlady lizardlady is offline
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What happened pflower?
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  #474  
Old Feb 21, 2022, 08:32 PM
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Pflowers Pflowers is offline
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Location: Georgia (USA)
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Nothing new @lizardlady ...

Just how Doctors / Insurance / BIG PHARMA look out pfor one another - the patient be damned is all ...

It's a damn disgrace!

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  #475  
Old Feb 22, 2022, 06:35 AM
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lizardlady lizardlady is offline
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They can be frustrating beyond all reason. Sorry they are giving you trouble.
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