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#501
Mar 13, 2022, 09:10 AM
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Great article about living with fibro.
People Keep Telling Me I'm 'Too Young To Be Sick.' Here's What They Don't Understand. People Keep Telling Me I'm 'Too Young To Be Sick.' Here's What They Don't Understand. | HuffPost null |
 Pflowers
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 Pflowers
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#502
Mar 13, 2022, 10:33 AM
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Great article!
Thanks pfor sharing it @lizardlady ...  I've pfound myself pfeeling as if I'm in a vice grip these past pfew days, and ...  Am looking pforward to when it decides to release me! 
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| downandlonely
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#503
Mar 13, 2022, 03:11 PM
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Oh, I know that feeling pflower.
Love the turtle graphic. Poor baby! |
| downandlonely, Pflowers
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| Pflowers
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#504
Mar 19, 2022, 02:01 PM
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“Dizziness, Balance and Falls During Fibromyalgia Flares.”
Dizziness, Balance and Falls During Fibromyalgia Flares – Fibromyalgia Community Sent from my iPhone using Tapatalk
__________________
#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
| Pflowers
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| Pflowers
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#505
Mar 20, 2022, 09:34 AM
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Pfalling is my greatest pfear!
If that happens, I'm toast! 
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#506
Mar 21, 2022, 01:15 AM
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 Sent from my iPhone using Tapatalk
__________________
#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
| Pflowers
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| lizardlady, Pflowers
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#507
Mar 23, 2022, 05:49 AM
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 This week, my Fibromyalgia has been ok…so far. My two rare diseases is another topic tho. I’m sharing this post…this question is often asked to individuals with disabilities which is part of ableism. Sent from my iPhone using Tapatalk
__________________
#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
| Pflowers
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| lizardlady, Pflowers
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#508
Mar 23, 2022, 07:35 AM
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My health insurance coverage ends 03/31 at midnight.
All because I got a refund of contributions pfrom a retirement system I never made it to retirement on! That's not supposed to count as income, but the Healthcare Marketplace says it does! My premium shot up 3X what it was, the deductible increased by 6K, and ... The yearly out of pocket went pfrom 2.5K to 8.5K! SSDI was awarded this past December (2021), but ... Medicare won't kick in until December of next year (2023). Needless to say, I'm a bit distressed about all that ... I sure hope I don't get some other kind of sick before then! Our system is broken & needs to be pfixed! 
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| lizardlady
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#509
Mar 23, 2022, 08:08 AM
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Quote:
 Pflower, I wish there was something I could do to help. 
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| Pflowers
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| Pflowers
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#510
Mar 23, 2022, 09:04 AM
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Thank you @lizardlady ...
I'll try to sign up again at the end of the year ... But if they still want to penalize me, I'll go another year without. I'm tired of being shanghaied by our unscrupulous health insurance industry! They should be ashamed! 🤬 |
| lizardlady
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#511
Mar 24, 2022, 09:03 AM
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Headin' out here in a little bit to look at power-lift recliners ...
Pfound one I really liked yesterday, but the store no longer does delivery & set up. They refer you to the manufacturer pfor their white glove service which adds several hundred dollars to the thousand+ you just paid pfor the chair ... Ridiculous! I know my hips, knees & shoulders would certainly appreciate it, but not sure I can justify spending that kinda money pfor one. May the remainder of this day be SAFE & KIND to us!
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| lizardlady
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#512
Mar 25, 2022, 12:29 PM
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Pflower, do you have neighbors who could get the chair for you? Or what about a small moving company like Two Men and a Truck?
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| Pflowers
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| Pflowers
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#513
Mar 25, 2022, 12:38 PM
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more whinging......
My best friend is in hospice dying. Drove to see her Wednesday. 4+ hours of driving did not make my body happy. A couple of hours of sitting with her did not help either. Tuesday I fumigated my house. That meant rounding up all seven cats and putting them in carriers/crates. Three of them went bat poop crazy and tore me up. When I got done cleaning the wounds my bathroom looked like a scene from a slasher movie! While the house was fumigated and during the airing out I worked in my rosebed. Too much for my old aching body. Even my hair hurts today. Of yeah, I got up yesterday to discover the neighbor's chickens tore up my rosebed. If I owned a gun I would've shot every last one of the b@stards! |
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| Pflowers
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#514
Mar 25, 2022, 01:32 PM
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Gentle hugs pfor all you've been through this week @lizardlady ...
I did pfind a recliner at a different (locally owned & operated) mobility store, and it includes delivery & set up. They also have service techs that can provide service pfor it when needed.   That's the one I got ... The guys that deliver it will remove the bed & pframe pfrom the room I'm putting it in before setting it up, and I plan on tipping them $20 a piece pfor that! I'll have them lean all that up against the wall in the living area and the people I rent pfrom can take it pfrom there. I'm going to have the delivery guys place the chair near the center of the bedroom at an angle so I can see out the cottage door when it's open, and I'll add what I need around it as I go. It's so comfy, I wish I could sleep in it at the mobility place until they deliver it on Tuesday! May the remainder of the day & this weekend be kind to us!
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| lizardlady
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| lizardlady
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#515
Mar 25, 2022, 01:39 PM
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Oooooh, the chair looks great pflower! Bless you for tipping the guys who do the delivery. So many people act like, well, it's their job.
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| Pflowers
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| Pflowers
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#516
Mar 26, 2022, 02:03 PM
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5:45 this AM was awakened by a phone call to tell me my friend passed away last night. That's what time I normally wake, but I am dead from the neck up today I'm so tired.
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| Pflowers
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| Pflowers
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#517
Mar 26, 2022, 04:09 PM
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I'm sorry about your pfriend @lizardlady ...
I hope you're able to get some rest over the weekend. After the week you had last week, you deserve to give yourself lots of extra TLC. 
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| lizardlady
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| lizardlady
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#518
Mar 31, 2022, 03:06 AM
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it needs to be said, getting ready for the day hurts!. really, really hurts!
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| lizardlady, Pflowers
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| Pflowers
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#519
Mar 31, 2022, 03:07 AM
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it's things so simple as putting a shirt on that make me feel about 100...
and I've not even reached 50. it really sucks |
| Pflowers
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| Pflowers
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#520
Apr 01, 2022, 04:30 AM
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today while showering, I struggled so much that my shower chair tipped sideways
I nearly ended up flying in to the metal taps. I didn't, but it was close.. |
| Pflowers
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| Pflowers
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#521
Apr 01, 2022, 09:35 AM
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Well, today is my pfirst day of being officially uninsured ...
Kinda scary, but it is what it is. Our healthcare system is broken & needs to be pfixed! 
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| lizardlady
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#522
Apr 03, 2022, 03:17 PM
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(*(*(*(*pflower*)*)*)*)
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| Pflowers
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| Pflowers
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#523
Apr 03, 2022, 03:22 PM
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I spent Thursday and Friday helping my friend's family start sorting through her stuff and carting some of it away. If that wasn't enough to leave me sore and tired I tripped and fell. Hit the corner of her dining room table with my ribs. I am some lovely colors from the bruising and hurt like you would not believe.
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| Pflowers
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| Pflowers
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#524
Apr 03, 2022, 04:56 PM
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| lizardlady
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#525
Apr 08, 2022, 04:51 AM
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shower caused me agony today.
back, sides, stomach, legs, just ow ow ow |
| Pflowers
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| Pflowers
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