[shirley1221]

I have fibro and tonight I am hurting so very bad. Some days i just want to sit and cry cause there is not anything that helps.

My family thinks I am faking. They say that I am only 55 and that lots of doctors don't even believe this is real. IT doesn't matter if I show them material or even if the doctor talks to them.

it is hard having teenagers and also fibro. I feel quilty that I can not do so many things. They don't understnad and so they are mean to me.

[Rhapsody]

((( HUGS ))) - I know exactly how you are feeling as I have RA, Bursitis and Fibro...... and I too have to deal with people that think I am faking the pain or that I am being lazy and just not wanting to do house work or runs errands any more - Yeah Right!

[mrsmoggles]

gently and some more lumped in ... I know what you mean...the doctors around here can't even get on same page...I bought a fibro/myofacial book from local library sale and things i have been dealing with things that stumped my old doctors for ages...and OMFG there it is in PRINT describing these things!!!!! I am shocked and surprised and and and I can't read too much right now as I have a cluster going on 7(approx, I lost count) and it keeps rearing its ugly head is i try and focus on things like reading or writing...why i havent been on much either...and i am falling apart, uggh rambling sorry, it is only one but i think i will try to sleep now...only got a few hours over weekend!!!!!

FIBRO SUCKS ENDOMETRIOSIS SUCKS DIABETES SUCKS and last but not least NEUROPATHY SUCKS!!!!!!!!'

[Perna]

I'd sweetly point out to your teens, especially daughters, that it has a hereditary aspect and they might want to learn as much as they can about it before they get it? :-)

http://www.4woman.gov/FAQ/fibromya.htm

[mrsmoggles]

More owies...lol as if it cant, nm, I can handle it..it isn't nothing new...my lower back has kinked...and allergies/sinus probs due to weather changes and persistant migraine/cluster headache...and still get laid up when i get to gym...oh well...i just keep saying it will get better, i want to be better...but then room mate and dad have flu and tummy flu so now i am really laid up...moggles cooked the whole weekend and i couldnt even eat it ... and he got hurt because i didnt eat what he cooked...he couldnt understand that meat is sooo hard to digest and my reflux and burning in throat dont help by eating it...oh well...another day...hugs and thoughts for everyone to have a great time, whether it is a minute, an hour, a day or a night...take care everyone, y'all are in my thoughts (part is if you can make it, then i can...and the other part is prayers you each get some peace, love, freedom of pain, etc. etc...) luv, mel

[CedarS]

There is a wonderful self help resource at CFIDS & Fibromyaliga Self-Help. I've taken the online course and participate in discussion groups. Very well organized and so supportive. You can also find lots of resources at the site.

I'm younger than you and I have fibromyalgia. Some children even have it. And just because some doctors have whatever opinions doesn't mean that you aren't experiencing what you are experiencing.

A good summary at: http://www.aafp.org/afp/20070715/247.html

I also find lots of help through my public library, look for books on fibromyalgia, wide array to choose from. Some even talk over how to deal with difficult family members. Also check on chronic pain books that include info on fibromyalgia.

No one should be mean to you. Do you have a good therapist? That might be good support in learning how to deal with people treating you badly. You don't deserve cruelty.

I hope I don't sound too harsh here I just really feel for you and feel protective of anyone going through chronic pain.

[LadyDragus]

Fibro can be a pain.. I know all too well the lower back pains, aches and migrans and oteher symptoms..

My doc put me on Lyrica 150mg twice a day.. it has helped me to be able to sit up, and talk online, and do a little house work..
Doctors do not belive in cronic pain syndromes and I do not think any of them will in our life time

[patsyf]

[Brian37]

my wife wants to try it but we cant swing the 150.00$ a month

what do you pay?

[LadyDragus]

I have state medicade, so I only pay around 2.00dollars...

There are assistant programs out there contact the maker of this med and maybe they can help you find on in your area, or sometimes, doctors can help if asked

(((hugs))) to all...

thought that mine was the only one that was flared... am in so much pain last few days.. too..

lycria... made me "nuts"..... didn't mix with my psych drugs..


does anyone get very "swollen glands"???????

[star515]

That's horrible that nobody is trying to be there for you. I have Fibromyalgia and a 3 yr old. A lot of days i have to stay in bed and i feel terrible because i want to go play with her. Fibromyalgia is very real. here is a site with the symptoms.

http://www.labtestsonline.org/unders...myalgia-2.html

[withit]

I'm a lot younger than 55 and I get the same kind of attitude from people. I've since learned who I can I share this info with and who I can't. My children get upset with me for being unable to do things I used to do, and I gently remind them that it's due to my fibromyalgia...that I am doing the best I can under the circumstances... I often feel sad for the part of me that is lost.

Take gentle care, surround yourself with people who are supportive. Being around unsupportive people exacerbates symptoms.

[Brian37]

my wife is 33 and has it....i sometimes feel i dont support her enough because "she looks normal".....

we too have realized that this is not something to share with everyone and it shouldnt have to be that way

my wife recently was prescribed Deplin and has stated it has made her less depressed and somewhat more energetic.....

Brian

[withit]

I'm on anti-depressant and it does nothing to lessen the physical pain. Nor does it make me feel any less sad for the parts of life I can no longer enjoy. Oh well.

[CedarS]

(((withit)))

I have fibromyalgia also. Hugs to you and hopes that you get some occasional relief.

[MoodyGecko]

I completely understand. I find it embarrassing, at times, to say "I don't feel well" because it is to often that I don't. Teenagers do get older and one day they will see beyond their selves, ha---like in their 30's! I don't have the diagnosis, but have suspected that this isn't just arthritis. I can't make the pain disappear, but getting out or finding a focus seems to get me through. Other days, well...I find a blog like this!
Hang in there. I don't think you can lean on the kids for emotional support; they genuinely can't respond to your needs, but that's just my opinion and frame of reference.