[inchronicpain]

Originally Posted by sabby

I understand about the cold, I live in NH and it doesn't take long after September for the cold weather to come in. I'm kind of darned if I do and darned if I don't with the cold. On the one hand, I can be in a lot of pain because of it, but on the other hand, I do worse in many ways in the heat. To me though, it's always easier to keep warm then to keep cool.

Have you ever tried any time of massage? I know it can be painful around the trigger points (and others as well) but I also think it can help release some of the strained muscles in some areas which might help other muscles to release their tension as well.

I've had TMJ for years, mostly because I've had teeth removed and not replaced. I think, when you go in for your cleaning, tell the hygenist what issues you have with the TMJ and they should be able to give you breaks and help you (or the dentist can) to get your mouth closed with as little pain as possible.

Good luck to you!

yes I have tried every treatment to help with the fibro and I have also tried everything the dentist said to do when I seen him I am going to ask them Monday when I go if they can use the bite block or will that make it worse

[sabby]

Hmm...I'm not sure about the bite block, I've never had one before, never heard of it before. I haven't been to a dentist in many many years. I need to go, but I have no insurance, haven't had any in 10+ years now. So, that's out for now!

I wish you luck on Monday. Oh, one thing I wonder about though.... do you take any meds for anxiety? If so, you may want to take something before the visit as it may help you with relaxing a bit so your jaw isn't so tight. Then again, I don't know if it would interfere with the bite block. Best to ask ahead of time I think.

Hang in there.....Gentle

[sweetyjss]

Originally Posted by Anonymous81711

Im sorry your having a rough time free. I am the same way with the sleeping thing.

I dont have much experience but i hear the memory foam is good!

Hi! I have used a Select Comfort bed for years now. It has been a life saver! You adjust the bed to your needs and I seem to have to do a little adjusting every night. I also have a memory foam topper on it for the warmth factor. It is up to you. I wouldn't have any other kind of bed. I hope you check them out online. Then go into a store and they will show you how it works. You'll see. Oh, and the customer service has been great. We only needed it once and it was perfect. I hope this helps.

[inchronicpain]

I am having a lot of fibro frog and still in a flare I am hurting all over

[sabby]

Originally Posted by inchronicpain

I am having a lot of fibro frog and still in a flare I am hurting all over

Gentle *hugs* to you! I absolutely understand what you are feeling and I'm so sorry. This illness is not for the faint of heart ..... *sigh*

So, did you get to the dentist yet? If so, how did it go for you?

I finally received my Lyrica in the mail the other day. So now, I'm titrating off one med so I can start my Lyrica. Not sure if that is my problem or the colder weather we are experiencing or maybe both, but dang....I can't sit for long, I can't stand for long, I can't lay in one position too long so that makes sleeping a difficult task as I'm tossing and turning all night. Uggh....this just plain sucks

[inchronicpain]

Originally Posted by sabby

Gentle *hugs* to you! I absolutely understand what you are feeling and I'm so sorry. This illness is not for the faint of heart ..... *sigh*

So, did you get to the dentist yet? If so, how did it go for you?

I finally received my Lyrica in the mail the other day. So now, I'm titrating off one med so I can start my Lyrica. Not sure if that is my problem or the colder weather we are experiencing or maybe both, but dang....I can't sit for long, I can't stand for long, I can't lay in one position too long so that makes sleeping a difficult task as I'm tossing and turning all night. Uggh....this just plain sucks

I know and I go on Monday for a cleaning and to do other work on my mouth

[sabby]

Ahh okay, I was thinking it was this last Monday...silly me.

[inchronicpain]

Originally Posted by sabby

Ahh okay, I was thinking it was this last Monday...silly me.

its ok and its this up coming monday

I just now noticed that this thread existed! I have fibro too, and it seems to be getting worse as the cold weather sets in. The pain is much more bearable than the fatigue. I used to take lyrica and Cymbalta but found that neither seemed to help too much. I just go med free now and roll with it.

I believe stress plays a big part in my fibro worsening now too. Being in this bipolar depressive phase has been very stressful - - worried about when it will end, will meds ever help, etc.

We all are very strong for trying to manage the beast that is fibro!

[inchronicpain]

Originally Posted by newgal2

I just now noticed that this thread existed! I have fibro too, and it seems to be getting worse as the cold weather sets in. The pain is much more bearable than the fatigue. I used to take lyrica and Cymbalta but found that neither seemed to help too much. I just go med free now and roll with it.

I believe stress plays a big part in my fibro worsening now too. Being in this bipolar depressive phase has been very stressful - - worried about when it will end, will meds ever help, etc.

We all are very strong for trying to manage the beast that is fibro!

hey newgal2 my fibro always flares up during the winter and the cold weather has set in here of a night my fibro is already flareing and its not even winter yet .

I now its going to be a bad winter with my fibro flareing and I am having a lot of brain fog with the pain I am in my whole body hurts

[Wren_]

I wish more medical professionals here would actually believe in fibro then i might actually get some help

[sabby]

I hear you on that tigergirl. I'm sorry that the docs are not responding to your needs. It really stinks!

Back about 11-12 years ago, I was going through a lot of testing. I had a lot of neurological tests and the like for possible MS, I had sleep tests for apnea and asked the neurologist if fibro might be screwing up my sleep. He completely poo pooed my question stating that he believed that sleep apnea caused fibro like symptoms and that he had only read some articles about fibro so he wasn't going to dx me with it.

It took me another 8 years to finally get my gp to finally recognize the fibro (after another round of neuro testing and the recommendation from that neuro that it "could be" fibro). Doc finally put me on some meds for it.

Luckily for us here in the states, more and more doctors have come to the realization that this is a very real issue for people and are now taking it more seriously. I hope that you can find someone in your neck of the woods who jumps on this bandwagon and can help you.

[inchronicpain]

I went to my pain management doctor and also went to my dentist apt and I throught they was going to do the cleaning but no they did xrays and exam and told me I have to have 4 cleans have to do one at a time and then omg I have to a lot of fillings and a lot of work I go for my first cleaning next monday

[inchronicpain]

and with my fibro being in a awful flare all this going to make this worse I am in a lot of pain just from yeturday and I had to keep my mouth open almost the whole time they did the exam I was almost in tears it was hurting so bad

[inchronicpain]

Originally Posted by tigergirl

I wish more medical professionals here would actually believe in fibro then i might actually get some help

hey tigergirl I know what you mean hang in there there is some good doctors out there that know and will treat you for fibro

[Wren_]

and with my fibro being in a awful flare all this going to make this worse I am in a lot of pain just from yeturday and I had to keep my mouth open almost the whole time they did the exam I was almost in tears it was hurting so bad

so sorry you are going through that ... I keep putting off desperately needed dental work for similar reasons, not sure what to do there have you tried either heat or ice packs duing treatment to see if they have any impact (sometimes my jaw prefers ice to heat and sometimes the other way) ... once i had a dentist who helped a bit by massaging my jaw during treatment and letting me rest it as much as possible but haven't found anyone else who really understands this ... wish there was an easier solution for all of us when it comes to dental treatment

[Wren_]

thanks sabby and inchronicpain

i had an initial diagnosis of fibro a few years ago but my gp was then dismissive of the whole thing; and since then each doctor or physio i've been near has been equally as dismissive. Sabby I had the MS check as well; and that was ruled out thankfully but it doesn't seem anyone over here really believes it exists I found one article online that was actually an old meetup group for people in my area who couldn't find help with getting treatment for fibro but the group seems to no longer exist; did help confirm i wasn't just imagining the lack of help though.

Originally Posted by sabby

I hear you on that tigergirl. I'm sorry that the docs are not responding to your needs. It really stinks!

Back about 11-12 years ago, I was going through a lot of testing. I had a lot of neurological tests and the like for possible MS, I had sleep tests for apnea and asked the neurologist if fibro might be screwing up my sleep. He completely poo pooed my question stating that he believed that sleep apnea caused fibro like symptoms and that he had only read some articles about fibro so he wasn't going to dx me with it.

It took me another 8 years to finally get my gp to finally recognize the fibro (after another round of neuro testing and the recommendation from that neuro that it "could be" fibro). Doc finally put me on some meds for it.

Luckily for us here in the states, more and more doctors have come to the realization that this is a very real issue for people and are now taking it more seriously. I hope that you can find someone in your neck of the woods who jumps on this bandwagon and can help you.

Originally Posted by inchronicpain

hey tigergirl I know what you mean hang in there there is some good doctors out there that know and will treat you for fibro

[inchronicpain]

thank you tiggergirl

[lizardlady]

I heard something I wanted to share. A friend told me his doc told him "You are like a used car. Some days you will start right up and getting going. Some days your engine won't crank and you'll spend the day parked in the driveway." I loved it, it's so accurate!

[sabby]

That analogy is so spot on! Thanks for sharing it lizardlady!

[inchronicpain]

Originally Posted by lizardlady

I heard something I wanted to share. A friend told me his doc told him "You are like a used car. Some days you will start right up and getting going. Some days your engine won't crank and you'll spend the day parked in the driveway." I loved it, it's so accurate!

don't get me wrong with the icon I am angry because the changes that may be coming when it comes to pain meds we need and if this bill and law passes we chronic pain suffers wont be able to get the meds we need

my pain management doctor already took my vicodin away from me and he was talking about the new laws that may be passed so know I am going to have to suffer in pain or find a pain management doctor that will give or put me back on my vicodin it was helping and he put me on tramadol that does not help me

yes that's so right lizardlady I don't know if I said what meds I was put on by my pain managemet doctor he treats my chronic back pain and wont treat my fibro pain which its chronic pain he has me on tramadol and muccle relaxant they are not touching my pain chronic pain or my chronic back pain so I am suffering he did have me on vicodin because the laws may be changing next year ill post the link here if you guys have not seen it

there is also comments from doctors saying if the law passes they cant give chronic pain suffers meds they need its because the people who abuse there pain meds and all the addited to there meds .

also if it passes you wont even be able to get the cough med when your sick that has pain med in it .

even surgons commented on it that they wont be able to give the meds they give people who has had surgery the pain meds they need

here is some about what is going to happen if it passes this is someone who suffers with chronic pain to and I read this post on facebook also here is the link at the end of this read the doctors comments they are right with there comments You know how there is this big push now by the FDA to reschedule hydrocodone (ingredient in Vicodin, Lortab, Norco, etc) so that it will be much harder to even get a prescription? Well, here's my little vent session that I know only you guys can understand.

It just occurred to me that besides pain meds, I will no longer be able to get the cough medicine that contains hydrocodone when I get my usual horrible respiratory infections. That is the ONLY thing that works and keeps me from coughing until I barf. (I have multiple medical issues, long story). I am so mad at this overly intrusive government and it breaks my heart that they are taking away treatment options for people. And yes, making hydro a schedule II instead of III will do that as many docs can no longer (or will choose not to) prescribe it.

The person who makes the final decision on this? That Kathleen Sebelius woman who is in the hot-seat already. I have a feeling she won't be too sympathetic to us these days.

Aaaaargh! We should all protest in D.C. If it was possible ...


http://www.nytimes.com/2013/10/25/bu...lers.html?_r=1& and also there are petitions going in support if this passing but there is also petitions to not have it passes if you google it you will find the ones we need to sign and not this happen to us I will look for the links and post them here if ok

[lizardlady]

Inchronicpain, I'm confused. What does the analogy my friend shared with me have to do with being able to get, or not get, pain meds?

I'm sorry it the analogy bothered you. Personally, I like the analogy. There are days I can get up and get going. Other days it practically takes a crane to haul me out of bed in the morning.

[Wren_]

I heard something I wanted to share. A friend told me his doc told him "You are like a used car. Some days you will start right up and getting going. Some days your engine won't crank and you'll spend the day parked in the driveway." I loved it, it's so accurate!

and some days ... you just kind of splutter along doing the best you can

love this also; thanks for sharing it

[lizardlady]

I was so looking forward to doing some things outside today since the weather cooled off a bit. Between fibro pain and arthritis pain I can barely get around. So much for doing anything.

[inchronicpain]

Originally Posted by lizardlady

Inchronicpain, I'm confused. What does the analogy my friend shared with me have to do with being able to get, or not get, pain meds?

I'm sorry it the analogy bothered you. Personally, I like the analogy. There are days I can get up and get going. Other days it practically takes a crane to haul me out of bed in the morning.

no it did not bother me I liked it