[sabby]

I can relate!

Glad you are handling the pain.....hope it fades away quickly for you.

[Quebec01]

I guess the best for you is to take some extra rest if you can allow yourself to it and to pamper yourself. I know for myself, that when I override my limits, I pay for it. Just figuring out when the yellow light flashes and not going through the red light has been a long learning process. And I'm still learning...
Take good care.

[nattym]

The internist I'd been seeing for 20+ years told me there is nothing wrong with me, physically. I regularly see a rheumatologist, however I've been helped significantly by a pain management doctor and one specializing in integrative medicine. The pain md is the ONLY one to even consider giving me pain meds, regardless of the unbearable pain and/or the WHO definition of both fibro and cfids being conditions marked by pain!
I hope this helps.





[QUOeTE=freewill;810216]This thread is really good...

How do you get a doctor to give you any pain relief? They... the physicans that I have seem... a family, an internist.. and a reumothologist - all agree on the diagnosis...

The reumothologist sent me back to my family MD.. and she told me to "tough" it out.. and nothing that can be done... except some physical therapy.. which I did.. didn't help.. racked up a big co-pay bill..

Internist tried Lycria - but with my psych. meds it really did not mix well... was well "wacky".. so...she had said.. do not come back for 3 months...even when I called and said it wasn't working...

I went in to see.. her a few months ago to get help.. got stung by a bee in her waiting room... swelled.. had a reaction..

she said... "it is best to not come back - except for regular physicals - because I was 'one of those people'" one with a mental illness - therefore.. perhaps more "prone" to feeling physical aliments - more aware of my pain than others... even though.. she does acknodlwedge the fibrom.. DX..

For that visit - she marked "migrane headache"... as DX.. and I do not have headaches..

I am allergic to all asprin products.. very severe...

My family MD did say to take tyleonal.... but... other than that be "tough"..

My Therapist... glosses over my pain... though it is hard to sometimes sit that long...in session...

so.. how go you guys get... any help??????

I live in a very conservative area...[/QUOTE]

[lizardlady]

I'm on Day Seven of the flare from Hades. I am soooo ready for this to end.

[SeekingZen]

Originally Posted by lizardlady

I'm on Day Seven of the flare from Hades. I am soooo ready for this to end.

Lizardlady,

I hope you are feeling better!

[Pained75]

Today is day 3 of the utmost horrible flare up I have ever had! I don't know what to do! I already take pretty heavy medicine but when I have these flare ups it takes ridiculous amounts to help! My husband hates the use of any medication. he's a recovering alcoholic he's had five years sober. so when I use extra medication it upsets him even more. Just recently had gotten off of all narcotics and then I hurt my back. An mri was done and showed I had five herniated discs an 1 wedging. So needless to say I'm back on the narcotic roller coaster and I hate it. Sorry if I'm rambling, I just needed to vent!

[lizardlady]

having another $*^^&!!!*** flare!!!

[avlady]

SameHere###@@@

[Perfectly Broken]

I've been coping with fibromyalgia for over five years now. I am constantly in pain and have fatigue. I'm 19 and I still have to deal with doctors that do not believe fibromyalgia is real and believe it is all in my head. It's frustrating since my doctor told me that my anxiety is my choice today. The only thing we can 100% agree on is that I have major depressive disorder. My doctor has allowed me to continue my cyclobenzaprine, however, so I'm always happy as long as I have my muscle relaxer and not just OTC tylenol or ibuprofen. I guess being on 4+ medications just comes with the territory. Fibromyalgia has turned my PMS into severe dysmenorrhea and I have to get a pelvic exam now. Ugh. And I haven't even mentioned my IBS symptoms or carpal tunnel syndrome symptoms or how I'm still getting painful paresthesia that prevents me from moving. Itching is painful. If I dare scratch my skin, the imprint of the pain of my fingernails scratching my skin stays there for hours, hurting and being sore. Pinching my skin is also as bad as scratching. "Get comfortable with being uncomfortable," is our motto.

[sabby]

So sorry you folks are all in a flare and feeling crappy. I soooooooo get it, I'm there as well at times.

I've been dealing with a lot of brain fog again lately. I can't seem to make a decision or even talk right. Even typing this post is taking it's toll atm. But, as always, I just keep on keepin' on. And all of this just because I had one 4yr old grandson for a couple of hours yesterday afternoon and another 4 yr old grandson overnight last night then had to take him to daycare today. These boys, who I adore, just wear me out. lol One good thing from it all though, they make me laugh....and laughing is soooooo good!

[inchronicpain]

Originally Posted by One in the Chamber

I've been coping with fibromyalgia for over five years now. I am constantly in pain and have fatigue. I'm 19 and I still have to deal with doctors that do not believe fibromyalgia is real and believe it is all in my head. It's frustrating since my doctor told me that my anxiety is my choice today. The only thing we can 100% agree on is that I have major depressive disorder. My doctor has allowed me to continue my cyclobenzaprine, however, so I'm always happy as long as I have my muscle relaxer and not just OTC tylenol or ibuprofen. I guess being on 4+ medications just comes with the territory. Fibromyalgia has turned my PMS into severe dysmenorrhea and I have to get a pelvic exam now. Ugh. And I haven't even mentioned my IBS symptoms or carpal tunnel syndrome symptoms or how I'm still getting painful paresthesia that prevents me from moving. Itching is painful. If I dare scratch my skin, the imprint of the pain of my fingernails scratching my skin stays there for hours, hurting and being sore. Pinching my skin is also as bad as scratching. "Get comfortable with being uncomfortable," is our motto.

hey one in the chamber I have had one doctor that do not believe fibromyalgia is real told me its not real when I know its real so your not alone and hang in there.

I am also going through a fibro flare right now or my fibro is trying to flare I am under alots of stress and drama which makes me hurt worse yeturday was the first day of no fighting and the stress and drama .

I was in er the other day I been DX with TJM and arthiis how ever you spell it in my jaw joints but anyways that's it for tonight I am going to bed to try to sleep hope everyone has a happy labor day weekend tc everyone.

woundering how everyone is doing ?

[CedarS]

Hope everyone who needs rest and sleep can get some soon.

Big hugs for us all.

[sabby]

Gentle *hugs* and good wishes to everyone suffering.

I've been in a flare myself. I think that the cymbalta is not working very well for me anymore. I've been on 60mg's for a number of years now and it's all seeming to get worse and worse. *sigh*

I see my doc on Tuesday and I'll talk with her then about where to go from here. Not having any medical insurance or prescription insurance really sucks. I do get some prescription assistance and I receive the cymbalta free from the manufacturer along with some other meds I'm on, but it takes time to get a new med like that....sometimes it just seems so confusing to me with the fog.

Ahh well, here's hoping for a fairly good day!

[lizardlady]

Today is day three of current flare with no sign of it ending any time soon. Hurt all over, no brain from the fog and sleeping 12 hours per night and still exhausted when I wake up. I have to go back to work tomorrow. Am wondering how I'm going to handle the sleep issue since 12 hours of sleep would mean going to be before the end of my work day.

Sorry to read about so many of you also struggling. Gentle hugs to all.

[sabby]

(((((((((( lizardlady )))))))))))))

As much as I want to work, I can't imagine doing it these days. It takes me hours to get my act together when I get up. I can't move more than very slowly and my brain just won't function quickly and normally. If my body didn't ache so badly, I think I could sleep 12 hours too. Don't know that it would help me to do so though, but I do manage to take naps now and again in the afternoons.

[fiddler32]

Hi I just joined PC... I've had pain, I guess from fibromyalgia starting when I was 12. I'm 25 now. I've tried Lyrica and Cymbalta, both with no relief. My GP said he wouldn't prescribe pain medication - I think he thinks I'm making it up. I'm obese, which I suspect is making the pain worse. I have trouble exercising because of the pain and a lack of energy. I don't know what to do.

[sabby]

Hi fiddler32,

Welcome to PC. I'm sorry you are suffering from fibro....it's not a fun thing at all is it. I understand what you mean about not being able to exercise, I find it very hard to do that also. Mostly what happens is the next day or two or three I'm in worse shape than before I exercised. It's so frustrating.

I talked to my doc the other day telling her that the cymbalta is just not hitting it anymore. I've been on it for a number of years. She's going to add Lyrica as well as soon as I can get it for free or reduced cost from the manufacturer as I have no insurance and I'm on disability. She said she thinks that using both the Lyrica and Cymbalta together may help. We'll see!

Take care and be good to yourself!

[qberry]

I've had fibro for more than 10 years now. I sleep in a electric chair because it's to painfull to sleep in bed. My left arm has been burning in pain steady for about 2 years now. I keep asking my doctor to cut it off. You have to find a doctor you are comfortable with and stick with them. I have been on just about everything so you can ask I am friendly. I was on morphine once and all I wanted was to get off it. But the pain doctor told I had to take more and more. I hated it finally he gave me a morphine pill that you take once a day and it releases the medicine throughout the day. 2 days later I was in intensive care with kidney failure. They saved me and the pain doctoer said it wasn't his fault. If you do take any kind of narcotic do not take it 3 days in a row. I know it's hard but that way it will work 2/3 of the time and you won't get addicted. It's cold here and the cold always hurts me bad so i'm not feeling so hot today. But it's my not to take a vicodin so I will not. I will have to rely on biofeedback to get through the day and not go out.

[inchronicpain]

I feel a fibro flare coming on on top the problems I am having with my mouth I have TMJ and TMD going to start treatment for them and I hope it works

[sabby]

Originally Posted by qberry

I've had fibro for more than 10 years now. I sleep in a electric chair because it's to painfull to sleep in bed. My left arm has been burning in pain steady for about 2 years now. I keep asking my doctor to cut it off. You have to find a doctor you are comfortable with and stick with them. I have been on just about everything so you can ask I am friendly. I was on morphine once and all I wanted was to get off it. But the pain doctor told I had to take more and more. I hated it finally he gave me a morphine pill that you take once a day and it releases the medicine throughout the day. 2 days later I was in intensive care with kidney failure. They saved me and the pain doctoer said it wasn't his fault. If you do take any kind of narcotic do not take it 3 days in a row. I know it's hard but that way it will work 2/3 of the time and you won't get addicted. It's cold here and the cold always hurts me bad so i'm not feeling so hot today. But it's my not to take a vicodin so I will not. I will have to rely on biofeedback to get through the day and not go out.

I so understand the sleeping in your electric chair thing. I have a pretty comfy recliner and sometimes I have to sleep in it because the bed will get to my trigger points in my hips and shoulder areas.

I don't plan on taking opiates for pain now or in the future. I'll be starting Lyrica soon (I hope). I've been on the Cymbalta for years now and it's just not hitting it like it used to. My doc thinks the combo of the 2 will be a help to me, so we shall see.

Thanks so much for your wise words of wisdom and I hope you find some less painful times!

[sabby]

Originally Posted by inchronicpain

I feel a fibro flare coming on on top the problems I am having with my mouth I have TMJ and TMD going to start treatment for them and I hope it works

I hope the flair is a short lived one and not too painful for you. I too have TMJ but it's not too bad. I pray the treatment goes well for you and you find some relief. I do understand how painful it can be.

[inchronicpain]

Originally Posted by sabby

I hope the flair is a short lived one and not too painful for you. I too have TMJ but it's not too bad. I pray the treatment goes well for you and you find some relief. I do understand how painful it can be.

ty sabby I am woundering if anyone else here has TMJ along as fibro I know about of friends on facebook in a group I am in has TMJ and fibro to and I am woundering if TMJ comes along as fibro know what I mean

I am having a really bad fibro flare as long as my TMJ acting up to I have to go get my teeth cleaned and get my mouth clean before the dentist will start treatment for me I go this Monday to get them cleaned but I know how painful its going to be keeping my mouth open to do the cleaning I can barly open my mouth as it is with out my jaw poping and clicking the dentist even heard it when I open and closed my mouth

he said that there is to much pressure on my shull where my neck is and its also causeing the problems with my back i sit and walk with my head in the forward pistion how ever you spell it he could tell i do this and that's what he said he can tell i sit with my head in forward and also when i walk to . he says i am out of alinement on my jaw to that's cause me pain to.

he said that's why i am hurting so much and i also have arthritis in my jaw to if the treatments he wants to do i may have to have major surgery to fix it

[inchronicpain]

Originally Posted by fiddler32

Hi I just joined PC... I've had pain, I guess from fibromyalgia starting when I was 12. I'm 25 now. I've tried Lyrica and Cymbalta, both with no relief. My GP said he wouldn't prescribe pain medication - I think he thinks I'm making it up. I'm obese, which I suspect is making the pain worse. I have trouble exercising because of the pain and a lack of energy. I don't know what to do.

hey fidder welcome to the site and so sorry you are hurting and suffering so bad to It sounds like to me you need to find a doctor that will listen to you .

I am on Cymbalta it don't touch my pain ether I use to take lyrica but had to go off it because it was making me worse then better .

I am also here to listen if you need to talk ok just send me a message or add me as a friend .

hang in there your not alone . I have fibro to

[inchronicpain]

its cold here and I know when winter hits here I am in for it my fibro is always worse during the winter I got to find a doctor that will treat my fibro pain and soon to I am in a really bad fibro flare

[sabby]

I understand about the cold, I live in NH and it doesn't take long after September for the cold weather to come in. I'm kind of darned if I do and darned if I don't with the cold. On the one hand, I can be in a lot of pain because of it, but on the other hand, I do worse in many ways in the heat. To me though, it's always easier to keep warm then to keep cool.

Have you ever tried any time of massage? I know it can be painful around the trigger points (and others as well) but I also think it can help release some of the strained muscles in some areas which might help other muscles to release their tension as well.

I've had TMJ for years, mostly because I've had teeth removed and not replaced. I think, when you go in for your cleaning, tell the hygenist what issues you have with the TMJ and they should be able to give you breaks and help you (or the dentist can) to get your mouth closed with as little pain as possible.

Good luck to you!