[sabby]

Hi gruvingal,

Welcome to Psych Central!

I'm sorry to hear about the pain you are in and that it's more than just the fibro. Fibro can be bad enough but when you have other things bothering you as well, it seems one feeds off of the other at times.

I have bad knees and shoulders and I know that when they act up it seems to through my fibro into a hissy fit as if to say "wait a minute, pay attention to ME!!". I wonder if this is happening to you as well, one playing off the other and deepening the pain levels?

I hope you do get things checked out and get some answers. Only then can you work to find some help with the pain levels and maybe even some other kind of medical intervention that may help you. I do understand why you don't want to know though, and to be faced with having to apply for disability is a very daunting situation, both physically and mentally. Been there, done that myself.

I just want you to know that I'm thinking of you and hoping that you find some relief really soon. Keep posting, sometimes writing about it all helps!

Take good care,
sabby

[lizardlady]

I had another dental emergency this week. It's triggered both fibro and CFS. Walking to the barn (100 feet from the house) was enough to give me the shakes. Had to sit down before I could walk back to the house.

Dang I HATE this!

[sabby]

Awww, I'm sorry about this lizardlady. I hope the pain subsides really soon for you!

[inchronicpain]

[quote=Anonymous81711;804989]I thought we could have a thread like neurotalk does to check in and tell how we are doing day to day or week to week ect.

So how is everyone doing?

I'm in a pain flare unfortunately, not too bad yet but its pretty ouchy, i might go to our little hospital tonight if it gets any worse.[/quote

yes i have fibro and i am having awful fibro flare i have had this flare for about few months now but its got worse the last few weeks because on top of this flare that wont let up.

i been sick off and on now for few weeks i will get to feeling better then i get sick again then it takes me like a week to 2 weeks to get better but then a few days later to a week later i am sick all over again.

i have not been getting much sleep with this flare and i will go like 3 or 4 days without sleep then i start getting sick

i was DX with fibro about 2 months ago but i have had it almost my whole life i think i have other problems that are causeing my chronic pains .

my fibro doctor has me on Norco 7.5-325 3 times a day and buspar 10 mg 3 times a day but the buspar is to strong so i have to break it in half.

the Norco is not touching my pain at all and she wont up the strength yet or change it i think i need something stronger and i am also on Cymbalta 30 mg i take 2 of them at night which is 60mg that's what my fibro doctor wants me on.

but its not helping my pain eather it does help my depression.

i have bronchitis and upper restorty infection right now i finshed the meds for it and still no better called my reg doctor yeturday and they want to see me today.

i am having chest pains because i am coughing so much it hurts to breath and hurts to move but i will update later on today when i get home from the doctor.

how is everyone else doing today ? hugs everyone

[sabby]

I'm so sorry you are struggling and in so much pain. It sounds like you are doing your best to take care of yourself.

As far as the sleeping issue goes, maybe you could ask your dr if taking some melatonin might help you get some sleep. I don't know if it would be contraindicated with your other meds or not, but it may be worth a try.

I hope too that your dr does a chest xray on you. I had bronchitis 2 months ago and it turned into pneumonia. I had some of the same symptoms as you did and didn't realize what it was until I got the xray.

When we cannot get the sleep our body needs, our body does break down and become susceptible to illness. This may be at least part of the problem you are experiencing.

I wish you luck with your dr appt. and hope you can find some rest very soon. I'll keep you in my thoughts and prayers.

Gentle *hugs*

[inchronicpain]

Originally Posted by sabby

I'm so sorry you are struggling and in so much pain. It sounds like you are doing your best to take care of yourself.

As far as the sleeping issue goes, maybe you could ask your dr if taking some melatonin might help you get some sleep. I don't know if it would be contraindicated with your other meds or not, but it may be worth a try.

I hope too that your dr does a chest xray on you. I had bronchitis 2 months ago and it turned into pneumonia. I had some of the same symptoms as you did and didn't realize what it was until I got the xray.

When we cannot get the sleep our body needs, our body does break down and become susceptible to illness. This may be at least part of the problem you are experiencing.

I wish you luck with your dr appt. and hope you can find some rest very soon. I'll keep you in my thoughts and prayers.

Gentle *hugs*

thank you sabby I got into my reg doctor and she did send me for chest xray because she said my lungs sounded awful.

she said its bronchitis but wanted to make sure it did not turn into pneumonia it came back ok so its just bronchitis.

[sabby]

I'm so glad you did go for that chest xray and it's not turned to pneumonia. I know when I had it, I was surprised as I did have the pneumonia shot about a year ago or so. I guess it may not work for all pneumonia's or maybe it makes it so it's not such a bad case if you do get it.

Just keep a good eye on yourself okay? It can turn quickly.

Take good care of YOU!

[inchronicpain]

Originally Posted by sabby

I'm so glad you did go for that chest xray and it's not turned to pneumonia. I know when I had it, I was surprised as I did have the pneumonia shot about a year ago or so. I guess it may not work for all pneumonia's or maybe it makes it so it's not such a bad case if you do get it.

Just keep a good eye on yourself okay? It can turn quickly.

Take good care of YOU!

ok sabby I will keep a eye on it to make sure I don't get any worse but I am staying to feel better slowly with the bronchitis now as far as the fibro flare its showing no signs of letting up any time soon

[sabby]

I'm glad to hear the bronchitis is getting better!

I have found that when I get sick with something, it can exacerbate the fibro as well. I hope that when you are better from the bronchitis, your flare begins to subside too. I also have issues with changes in weather....has your weather been changeable?

[inchronicpain]

Originally Posted by sabby

I'm glad to hear the bronchitis is getting better!

I have found that when I get sick with something, it can exacerbate the fibro as well. I hope that when you are better from the bronchitis, your flare begins to subside too. I also have issues with changes in weather....has your weather been changeable?

yes the weather been changeable it will get warm then rain and then turn cold again and the fibro flare is showing no signs of letting up

[sabby]

I've had maybe 1 day in the past 3 months or so where I had very little pain. I enjoyed that day so much and so wish I had more days like that.

What I think is the worst is when there is absolutely no position in which to put my body that doesn't hurt. Lying down, on my back or side, sitting, standing, whatever it is...it all hurts no matter what. Some days are not as bad as others, but nothing like I had the other day with basically no pain.

Most days, I try to do my best to get done what I have to do. I try to take my time, and go easy on myself. I've also noticed that stress is a HUGE factor in my pain levels. I've done a fairly good job of learning how to live my life with less stress (meaning, letting fewer things stress me out).

[inchronicpain]

Originally Posted by sabby

I've had maybe 1 day in the past 3 months or so where I had very little pain. I enjoyed that day so much and so wish I had more days like that.

What I think is the worst is when there is absolutely no position in which to put my body that doesn't hurt. Lying down, on my back or side, sitting, standing, whatever it is...it all hurts no matter what. Some days are not as bad as others, but nothing like I had the other day with basically no pain.

Most days, I try to do my best to get done what I have to do. I try to take my time, and go easy on myself. I've also noticed that stress is a HUGE factor in my pain levels. I've done a fairly good job of learning how to live my life with less stress (meaning, letting fewer things stress me out).

I hear that so sorry about that and I wish I could also have better days and have better days more then the bad days . I agree about the stress to if your under a lot of stress it makes you hurt worse.

I hate fibro and this fibro flare is not letting up at all still I am feeling so much better with the bronchitis but this fibro flare wont let up.

it got to 75 here today and but the weather is going to turn cold again and I am feeling it already can feel the weather change coming. and I hate that to when I can feel the weather changing .

[lizardlady]

There's a tropical storm working its way up the Guld this week. Change in pressure has me aching and without a brain from fibro fog.

Ah well, this too shall pass....

[sabby]

I'm keeping my eye on that storm as well LL, and hoping that when it reaches me up north, it's not going to affect me as it's affecting you and the fibro. We have other rain coming in ahead of it though. So far, today I haven't felt so bad, and I'm really hoping that it doesn't hit me tomorrow. Luckily, I have nothing planned for Thursday and I can sleep in if I want or need to.

Keeping you in my thoughts and I hope the storm passes quickly and you are feeling better soon!

[Beautiful_Mess]

I'm in agony. my entire body hurts. I can barely even stand the pressure of my clothes even though I'm wearing soft, light pajamas.
I'm so drained in every way imaginable. I'm trying so very hard to be a good mommy but its so hard to do when I go through flare ups like this.

[sabby]

Originally Posted by Beautiful_Mess

I'm in agony. my entire body hurts. I can barely even stand the pressure of my clothes even though I'm wearing soft, light pajamas.
I'm so drained in every way imaginable. I'm trying so very hard to be a good mommy but its so hard to do when I go through flare ups like this.

I'm so sorry you are hurting so badly right now. I've had some flares that were pretty bad and the same as you with clothes hurting. It is no fun.

Try not to feel guilty about not being able to do much right now. It's okay to take care of yourself. Maybe you can find some quiet games that the kids can play while you are resting. Coloring or watching a fav movie can keep them quiet for awhile.

Take good care of yourself!

[lizardlady]

Oh "poo". My CFS seems to have decided to team up with my fibro and have a party. I ache all over and am exhausted. If I had the energy I'd rant against this!

Beautiful Mess, I also have those days I wish I could go naked because it hurts to wear clothes.

[CyberCitizen]

Fibro is truly a cruel illness- for many reasons already mentioned. There is nothing worse than being in constant pain (for years), loss of nerve sensations in arms & legs, overwhelmed with exhaustion and so sleepy you can't hold your head up and then have your doctor tell you to make an apt with your 'shrink'. There is nothing simple or manageable about this life. It may take several to many years to get a proper diagnosis....and several more years to discover the combination of effective treatments that address the individual personalities of our disorder. It is likely I have had this since I was 6 years old.....realized something was 'really wrong' around 2005 and finally diagnosed in July of 2007.

Fibro's constellation of conditions in my case involves, O.A., CSA & OSA, IBS, idiopathic polyperhiperal neuropathy, ADD/fibroFog and things I can't bring to mind, because....I've lost my mind somewhere along the journey. Having various conditions presenting themselves over the years, makes it difficult to get a firm diagnosis. Gathering the needed support to go through the process of making the necessary life changes...is another installment of frustration.

Mental and physical therapies, medication, life style adjustments, financial stressors, shifting of the people who support us... so much to face, when we are at our weakest. There is no "easy button". The demand is that we must choose to engage (when we don't want to) and find the strength in someone larger than ourself to begin to dissect and rebuild our world.l

I hope to share more on another blog- for now I am tired...look forward to the exchanges.

[fearfulfrog]

I haven't checked in for a bit- my fibro is "moderately controled"- I have special equipment @ work to help and a really expensive bed to cut down on pressure to my body- but being OCD about my home AND working 30+ hours /week is causing me such stress that I feel like I am headed for another stay in the psych ward- every time I get the right coctail of drugs in my systom, something happens and I have to change one or more, then the side effects mess with my other medications- so those have to be adjusted- ARGHH! I just started on a new medication a month ago- but trouble sleeping, stress, and general hopelessness has me on the brink again! I want to keep my job- we really need the money- but it is putting toomuch pressure on me and I am declining in my mental health rapidly- I want to stop the downward spiral before I get to the bottom when all I see are handcuffs( yup that's how my county transports people to the psych hospital!)- just the fear of the trauma of that make me not want to tell my therapist the truth- I supposed it is like a person who got paroled- the fear of returning to that horid place make one do all sort of weird stuff. Don't know what will happen- just got a new therapist and she is too quick to jump on little things- great she is observant, but she also has seen me better- now she is seeing the downward spiral I am on and wants to intercecpt sooner so I don't do anything crazy/

[sabby]

(((((((( fearful )))))))))

It's been awhile since I saw you here last. I'm sorry you are struggling right now, but I'm glad that your fibro has not been too bad for you lately.

Maybe it's a good thing to have your T intercept things now before you spiral down to the dreaded handcuffed transportation. Please try to talk with her and let her know how you are feeling and what you are thinking. If she is worth her weight, then she cares about you and wants you to succeed, not slip and fall out of control.

Thinking about you and saying a prayer or two as well. Please take good care of yourself!

[Quebec01]

Hello! I also have fibromyalgia. It seems to have started after an accident in 2006. But before that, I was diagnosed with bipolar disorder in 2001. When fibro came into the picture, both illnesses became hard to manage. I would like to know if any members of the community have both. I'd like to share and learn more how to cope with the situation. Also, my dream is to afford to move to a warm country... 28-34 Celcius all year around...and no air conditioning!

[sabby]

Quebec01

Welcome to PC and the Fibromyalgia Forum. I'm sorry that you are also a sufferer. I don't have Bipolar and I can only imagine how difficult it may be fore you to deal with both problems.

I'm in the northeastern US, so I understand how the cold might affect your fibro. It affects mine as well, but I find that the heat/humidity affects my fibro worse than the cold does.

I wish you well and I hope you can someday move to the "hot" place you want to go to....lol and I don't mean hell...LOL.

Take good care!

[Quebec01]

Dear Sabby,
Thank you for this warm welcome. I sympathise with you since not too many people understand fibro. Most of my family don't believe in the diagnosis, but as we know, the pain and all other symptoms are very real. One thing is sure, my condition improves when I am not under too much stress. So I had to adopt a new lifestyle.
Take care and stay warm.

[sabby]

Oh boy, I surely do understand the stress element to fibro. I too have been working on letting go of my stress in order to feel better. In many ways it's worked pretty well for me, unfortunately I have some other physical issues going on that can also exacerbate it as well as the weather. Ahh well....each day is something to behold, in pain or not in pain so I keep on smiling as best I can!

[Socialogical_Mishap]

I have had a lot going on this week and its really run me down i'm sore all over but nothing I can't handle ^.^