[cakeladie]

That's good Liz that you found a doctor that you like. That is so important.

How is the brain fog?

[Okaritix]

I'm so tired today.. pain everyplace.. crawling to bed.......... but cant' sleep... fml.

[~Christina]

It took forever for me to get moving today, Pain and my brain fog is so thick I could use a spoon.

*sigh* Tomorrow is a new day, right?

Gentle hugs everyone

[cakeladie]

It's been so hot here that on top of the fibro pain I have to worry about the lupus and the heat etc. I did not want to go out yesterday but I had to.

My husband came out to my truck to help me into the house. He also made me sit on the step of the poo which helped cool me off but today I feel like I have been dragged behind a truck for about 100 miles.

It's cooler today but the damage has been done. It will take me a couple of days to recover.

Then there is the fact I can not sleep. Don't ask my why. I am tired but I lay down and I can't sleep. reading usually helps butI wish I could go to bed like normal people at a normal time.

[Okaritix]

Had a seizure last night.. making pain MUCH MORE WORSE this morning.

[January]

((((( Everyone )))))
I'm so sorry you're feeling so sick. I hope each of you find solace and relief today.

I went to the GP PA yesterday. She was very nice, but I need to make some major changes in my diet and routine. She has some ideas why my fractured leg hasn't healed and the PT agreed that it set off the fibro. It's hard to exercise or be active with a broken leg and screaming fibro. I have to do something though and I'm counting my physical therapy as exercise.

[Okaritix]

Has anyone tried the Myer Cocktail for Fibro pain? I have found it helpful.

[January]

I haven't heard of it. What is it?

[Okaritix]

Originally Posted by January

I haven't heard of it. What is it?

It's an IV infusion with the following in it...

Myers Cocktail

• Vitamin C
• Magnesium
• Calcium
• Vitamin B12
• Vitamin B5
• Vitamin B6

I also get hydration therapy as well.

[January]

It sounds like it would do a world of good, but sadly, I'm afraid my state's not up to those health standards. I have begged and begged for more advanced treatments to no avail. I'm so glad you're getting the cocktail though. I hope it makes you much better.

[Okaritix]

Originally Posted by January

It sounds like it would do a world of good, but sadly, I'm afraid my state's not up to those health standards. I have begged and begged for more advanced treatments to no avail. I'm so glad you're getting the cocktail though. I hope it makes you much better.

Are you seeing a Neurologist and Rheumatologist for your Fibro? I would keep pushing at it... I'm in MI, and on medicaid, and they have only done the infusions because an ER doctor said that when he tried I seemed a lot better... it took them a lot of prodding to advance the treatment....

[Kiya]

Well, I called yet another doc for yet another opinion on my nerve pain in the arm (and numbing through entire left side of body). They got me in within the hour and asked me to try Lyrica :/ I have always avoided it because it has so many terrible side effects listed in the commercials. But I gave in.
They want me to take 50mg three times a day. I am SO med sensitive that I told her (I've never met this fill-in doc) I'd start with one a day. Glad I did - thing nearly knocked me on my butt. I literally toppled into a wall in the hallway trying to get to the main door of the apartment building. I felt totally high for several hours. Now I feel very tired and have a headache.
I also had a temperature, but the doc didn't say anything about it. I feel like Western World medicine has lost it's mind. Considering a way to do acupuncture for my arm....
Now I see a new therapist tomorrow.... a guy (We're afraid of men, as a rule), so we'll see how this goes... I'm not jumping ship until I know where I'm landing. Wish me luck... I have a feeling I'll need it. Especially being this out of it for my appointment. I'll have to take the Lyrica at about the same time tomorrow because I have to drive in the morning. At least this guy I *could* walk to if I have to. Not something I want to do; it's only 2 minutes driving time.... but walking "that far" with Fibro is no small thing - preaching to the choir, I know (thank goodness, because I know you all won't judge me for that or say I'm a wimp). I'm not sure the T would understand. "You won't even have to get in your car!" Uhhhh huhhhhh..... I have walked to my doc before on nice days (she's one minute away by car, but it took me 15 to walk there).
And if I'm this loopy, I may not be walking or driving anywhere. *shakes head*

[Kiya]

Originally Posted by Okaritix

Are you seeing a Neurologist and Rheumatologist for your Fibro? I would keep pushing at it... I'm in MI, and on medicaid, and they have only done the infusions because an ER doctor said that when he tried I seemed a lot better... it took them a lot of prodding to advance the treatment....

Sadly, Medicaid gets better medical coverage than Medicare does. Even though they say Medicare is "a better coverage", it's really crap. And more and more providers are dropping it because they don't pay. In fact, this year they pay 2% less than last year.

[Kiya]

No - but you could get that in a good multivitamin. If you can find the Vitanica brand formulated by Dr. Tori Hudson, that's a really good brand that my dr had me on (she sells direct to dr's as well). I take that brand of Iron and Chaste Tree Berry daily. When I could afford it, I took the Women's Formula Multi by her. All that stuff listed is in it.

Originally Posted by Okaritix

It's an IV infusion with the following in it...

Myers Cocktail

• Vitamin C
• Magnesium
• Calcium
• Vitamin B12
• Vitamin B5
• Vitamin B6

I also get hydration therapy as well.

[Bubbles&Buttercup]

Completely moved in and unpacked! My unit is looking super cute and I think my body is finally starting to recover after only having to do little things the last couple days.

I've got my exercise bike here and hopefully next week I'll start using it for a little bit each day, I really need to lose some weight and get fit!
Hope everyone isn't feeling too bad.

[January]

Yay Bubbles!!!!! I'm so glad you're all settled in to your new apt!

Yikes Kiya! Be careful. I don't know whether to tell you to walk or drive. It's so nice to be able to escape back to your car when things get scary or when you don't feel well. I understand that. Please be safe, dear friend. Remember, I'm a pocket rider with you, so you're not alone.

[Okaritix]

Kiya, I felt like that way the first 2-3 days on Lyrica, and every taper up (my nouro had to do very small dosages 25 mg, for 2 weeks, then every other day 50mg for 2 weeks..) and slowly get me up to 300mg. The first 2-3 days up for tapering is always the worst for me... I feel so achey, headache, and just out of it... Hopefully those side effects go away if you continue taking the med.. I don't drive so I have no idea how it affects driving.

[Okaritix]

Originally Posted by Kiya

Sadly, Medicaid gets better medical coverage than Medicare does. Even though they say Medicare is "a better coverage", it's really crap. And more and more providers are dropping it because they don't pay. In fact, this year they pay 2% less than last year.

Ahh, yeah, I heard medicare is terrible. I am on the basic Medicaid, since I had zero income.. (thank god for obama-care) and am unable to work. My aunt's friend whom is a disabled 50's got medicaid, and they like covered hardly anything.. and made him pay so much -- and so much that he couldn't get the help he needed.. they finally switched it to medicaid for hm.

[sabby]

Hi Everyone!

So sorry I've been MIA for awhile now. Rest assured, I've been thinking of all of you and sending healing thoughts your way.

Real life can be a real pain in the arse at times. I've also been avoiding lots of things because I just don't feel like dealing with them. Not a good way to be. I always get myself in trouble when I avoid things.

Fibro has been up and down and all around for the past month or so. Weather changes are such a joy. Playing with my grandchildren is great until I get up the next day and I can't really get up that well. *sigh*

So much to do and no energy or want to do it. Guess I'll have to find some way to push myself (I almost always do find the way). I think I'll go take a nap now..... :snore: LOL

[lizardlady]

Kiya, I was high as a kite for days on one does of Lyrica. It was my first, last and only dose of it. Good luck hon!

Bubbles, it's great that you are all moved in!!!

[Okaritix]

I was prescribed those liodaince patches and put one on tonight.. I am nausated, dizzy, and fainting... even the simple lot medications make me sick

[Kiya]

yeah, woke this morning to a hang over complete with bloodshot eyes and headache. today when I took the dose (at 1) I didn't take my valium until 5 (instead of 3) because I didn't want to go unconscious.
Scary.
hugs, all

[berthegel]

Hello ,do any of you have finger tremors with fybro ?

[cakeladie]

Poor Kiya, I am so sorry. They wanted me to try lyrica but after my bad experience with some lupus drugs I am very very leery about any new drugs.

I hope you feel better. Have you had a nerve test done? Most neuro doctors can do those in their office and it could hold the answers to whats going on.

Bubbles I am glad you are all moved in. Just don't over due it.

It's been real hot here which makes my lupus worse plus I have had a migraine. Today is better but now my stomach is acting up. I just can't win. So I guess I am throwing myself a pity party. Oh well.

Okarity welcome to PC and welcome to the fibro thread. We have a lot of compassionate people here. I have those patches you talked about and I use them when the pain is really bad. I also try and use a rice pack or a relax wrap that I can heat to help with the pain.

I am feeling like a caged animal. I can't go in the backyard unless someone is with me due to my seizures and almost falling into the pool after a seizure when no one was home. hubby found me in time.

I have promised if I have a seizure I will not drive for 24 hours and if I do not feel well I will stay home. So now I feel like I am in prison. So I think because I have all of these restrictions on me now that I am depressed.

I think I need to start a project and stop feeling sorry for myself.

Ok I am done.

Take care everyone

[cakeladie]

I forgot to say hi to Sabby
Glad you made it back.