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  #151  
Old Jan 01, 2018, 02:35 AM
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Rose76 Rose76 is offline
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I'm not coping well. I have to change something.
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  #152  
Old Jan 01, 2018, 06:16 PM
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Crypts_Of_The_Mind Crypts_Of_The_Mind is offline
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Do you want to talk about it?
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  #153  
Old Jan 02, 2018, 02:41 AM
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Rose76 Rose76 is offline
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I'm just tired of going from one health crisis to another with my guy. This was never a marriage for good reason. I know I don't owe him this. His needs pretty much consume all my time and energies. I have some help, but not help that can take over for me. He was in the hospital for three days right after Christmas. He is quite sick now with 3 separate infections. Tomorrow the home attendant will come by. I'll send her to the laundromat and, maybe, to the store for a few things. But much of the hands on care I will do because he is so sick.

Actually, I feel much better this evening compared to real early yesterday when I wrote that, above. He was well enough for me to run out to Walmart's for an hour. That is my main get-away that I enjoy. Shopping refreshes me. I had to gather up some sources of clear liquids for him: jello, broth, popsicles, Italian Ice. He's not tolerating solids. Right now he's asleep in bed, which gives me a nice break. I can pit what I want on the TV.

My own problem has been a chaotic sleep pattern and morning depression every single morning. To try and manage that, while having to tend to him gets tough. I can't just sleep when I want.

I guess I was stressed out because of his recent downturn, necessitating him being hospitalized. Then it seemed like they discharged him too soon. He got sicker the day after coming home. Every time I turn around, they are asking him about living wills and what does he want done if he goes into cardiac arrest. People need to think about those things, but younger people don't get asked over and over and over. His family stays "loosely" in touch . . . and I do mean loosely. I post very succinct bulletins on facebook to which they give a thumbs up, or a very brief comment. They have better things to do than talk on the phone with me. Neither of my two sisters called me for Christmas, which kind of surprised me. No cards, no calls. I'm getting to where I care less and less. I have cousins who make way more effort.

Last year I doubted he'ld make it to another Christmas, but here we are. At times I've been happy about it. I wish he wasn't so sick. I'll forever more give a lot more credit to those who care for a chronically ill family member. It's more draining than I expected it to be. I feel for mothers with special needs children. I don't know how they do it. I've been at this for 3 years.

Time to watch TV.
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  #154  
Old Jan 03, 2018, 01:09 AM
lark265 lark265 is offline
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Member Since: Sep 2013
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Quote:
Originally Posted by Rose76 View Post
I am sliding and sliding down. I want to ask for help, but I don't expect there to be any. In the past, when I've gone to the local psych facility, they'll say, "So what is it you think we can do for you?" It sounds more like, "Whada u want from us?" So I haven't gone there in a few years. Probably not in four years.

I take Elavil 50 mg every evening. It's a tricyclic and about the only thing that ever helped. I tried a dozen different drugs back around 2010 - 2012. Went in-patient, etc. I gave up on all that and just went back on taking only the Elavil. I take some Vicodin for moderate soreness of various bodily aches and pains. That seems to actually help my mental state as well.

My sleeping is screwed up. My eating is screwed up. I'm awful tired. Every morning I wake up deep in the quagmire. It can take the whole day to get out of it. Today I never got out of it.

I'm desperate to shake this off. I think maybe if I was ordered a stimulant in the morning. I don't have any real faith that anything is going to help. But it couldn't hurt to try something.

I have frequent bouts of feeling well. When I feel well, I feel quite well. I go into that state on a regular basis. Yesterday I was trimming the rose bushes outside. So I was doing pretty good just last night. But I keep sliding down. I'm neglecting things . . . like I haven't looked at my mail in weeks.

I'm being irresponsible. There's stuff in that mail that's important.

Even just to talk to someone who'ld understand. Not that I want therapy. I did that to death for many years.

I feel like, "What's the use? No one is going to understand or want to try anything with me."

I'm tired of the TV on from dawn to midnight daily. But my bf watched it all the time. If I tell him I am not doing well, he'll just say, "You'll be fine." Living feels miserable like this.
thanks for posting....I relate. everything seems to be "token." Like if I go see my psychiatrist she will always take it back to the medications. I hurt, bleeding inside....so I go see a doctor. The kind of doctor I think could help. Nope. I think the only thing that does help is talking with others just like me. Like on this site. Kind of wish we could all hang out tomorrow......that might give validation. I don't know. Maybe.
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Thanks for this!
Rose76
  #155  
Old Jan 03, 2018, 01:53 AM
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Rose76 Rose76 is offline
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Thanks, lark. I have found that peer support is what has helped me the most.
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