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Old Aug 07, 2006, 07:35 PM
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BlueFaith BlueFaith is offline
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Today I had to take Abby (my 4 yr old daughter) to the eye doctor. She was having pain in her eyes and was complaining of seeing red spots.

The doctor looked at her eyes and told me that she's developed more scar tissue behind her eyes. The scar tissue is pressing on her optic nerves. She has a very underdeveloped optic nerve in the right eye, and I've known that since she was 4 months old. So, that means she had very little vision in that eye to begin with. But now with this newly developed scar tissue, she has absolutely no vision in that eye. And she's also losing vision in the left eye.

There are no surgeries they can do to fix this. The doctor said that it's possible that she'll go completely blind eventually.

We took her to register for kindergarten last week, and they told me that she could be in a regular kindergarten class. But after finding this out today her doctor recommended a school for the blind.

I know there are worse things that can happen. But I am heartbroken. Is God testing me to see just how much I can handle at one time? I just don't know when this is ever going to end. I don't know how to handle this.
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  #2  
Old Aug 07, 2006, 07:54 PM
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aqwww I'm so sorry for you.... but the school for the blind is a great place!!!! If she hasn't learned sign language already (hand to hand touch speaking) she will, plus she will learn how to use a braile writer (learning braile) etc...and function IRL... one of my best friends was totally blind...and he was one of the kewlest ppl I knew!!! He could tune a color tv because each color has a different tone! Who knew! He is currently a broadcast engineer for a Christian Radio station/college... sounds successful to me More Bad News

Sometimes ppl who have lost their eye sight, have other sights enhanced More Bad News

I hope her pain subsides, and this slows for her. TC
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  #3  
Old Aug 07, 2006, 08:00 PM
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January January is offline
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((((((((((((( Jenn & daughter )))))))))))))

I'm so sorry this is happening. There is no pain like a mother's pain. Sky is right about the school for the blind. They are awesome. Is there one nearby?

Try to hang in there, and remember, you have all of us sending you love and support.

Love and hugs,

Jan
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  #4  
Old Aug 07, 2006, 08:03 PM
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  #5  
Old Aug 07, 2006, 08:04 PM
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PasDeDeux PasDeDeux is offline
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(( MP)) I am very sorry . I know you know the school for the blind must be good but it would break my heart as a mom to be in your shoes.
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  #6  
Old Aug 07, 2006, 08:04 PM
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((((((Jenn&Abby)))))
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Old Aug 07, 2006, 08:05 PM
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i'm so sorry sweetie........
  #8  
Old Aug 07, 2006, 08:05 PM
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(((((((((((((Jenn)))))))))))))) I would be devastated too. You and Abby are in my prayers.

Love, Candy
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  #9  
Old Aug 07, 2006, 08:14 PM
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I am sorry to hear about your situation but I want you to know that God is not testing you. He isn't the one that is doing this but He is the One who is holding your hand while you go through this. I have never been in a situation like yours, however, I have had a rough time in the past year. I am a oboist (woodwind musician) and over the past year I have collapsed my lungs 8 times, had 3 surgeries, 8 chest tubes, and have missed weeks of school. I don't know what is going to happen from now on but you know, God has got my back. I know it may seem like hell but you can deal with it and there are lots of people here who will help you through it. God Bless you and your daughter and I wish you strength in any path your life might take
  #10  
Old Aug 07, 2006, 09:27 PM
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Christina86 Christina86 is offline
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((((Jenn)))))

((((Abby))))

I'm sorry - that sucks. More Bad News Don't know what else to say 'cept I'm thinking good thoughts for you and your daughter/family.
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  #11  
Old Aug 07, 2006, 09:33 PM
wisewoman wisewoman is offline
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Wishing yoy and Abby all of the best.
  #12  
Old Aug 07, 2006, 09:58 PM
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jen, i am sorry to hear this.... my heart breaks with you... we are here for you to help you through this ok???

((((((((((((((((((jen and abby)))))))))))))))
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  #13  
Old Aug 07, 2006, 10:00 PM
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((((Jenn)))) you are in my thoughts and prayers.
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  #14  
Old Aug 07, 2006, 10:59 PM
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((((((((((((((((((( Jenn & Abby & Famlily ))))))))))))))))))

Jenn, it's good that you can remember that you're aware worse things can happen. It's also ok to feel the pain that you do have while being appreciative. We know you appreciate what you have, but have a sadness/pain that is immense.

We're here and listeing sweetie. Let us blanket you with some warmth from our hearts right now. You are one of the most special persons I've ever met...young or old...a beautiful special person.

KD
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  #15  
Old Aug 07, 2006, 11:16 PM
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Jenn,

I have a very good friend, who went blind at about your daughter's age. She claims that being in public school was very good for her.

Hugs,

EJ
  #16  
Old Aug 07, 2006, 11:17 PM
darkeyes darkeyes is offline
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((((((((( MP )))))))))))
Oh,dear lady, I wish I had something to offer you some comfort,my heart aches for you and such challenges that may lie ahead, but know so many love and care, so please know we are all here for you.
You,abby and your family are in all our thoughts and prayers.
Love,
Roe

(((((((((( Abby and MP ))))))))
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  #17  
Old Aug 08, 2006, 02:13 AM
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So sorry MP, this is when the mothers strength has to take over all other overwhelming feeling and problems. That's what mothers are capable of . I believe your daughter will do well, even with her disability, because her body and mind will adapt, and other senses will become stronger. It's just the pain of seeing your child experience this....I understand. I don't blame you for being overwhelmed and scared, but I do believe with time, not only will your daughter adapt, but the entire family will as well. Don't look at the con's (although very difficult) try to look at the glass half full.

(((((((((((((MP)))))))))))))), it's truly going to be okay.
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  #18  
Old Aug 08, 2006, 07:45 AM
Lexicon78 Lexicon78 is offline
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(((((Jenn & Abby)))))

I'm so sorry to hear about this! It must be completely awful for both of you! But please remember that we must face each obstacle with an open mind and an open heart. We receive these tests each and every day, some more challenging than others, all for a reason. Even though it may be hard to see the positives at this point, in time I believe you will both begin to see the positive side of this in time.

May the Goddess/God bless you both!
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  #19  
Old Aug 08, 2006, 10:43 AM
hillbunnyb hillbunnyb is offline
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kids are so resilient. adaptable. it's the adjustment that is brutal. my nephew went almost totally blind very quickly right after he got his dirvers license! genetic thingy nobody knew about. he did a year at a school for the blind then back to his regular high school for his senior year.

i trust you'll know what's best as you go along this challenging path. we're with ya all the way.)))))))MP(((((((
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  #20  
Old Aug 08, 2006, 02:09 PM
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(((((((((((((MP & Abby)))))))))))))))))))),

I know it has to be hard going through the knowledge of what the end results may be. As a parent, when our children hurt, so do we. I am sure your daughter is so young that I am sure she will adapt very well the the situation she is in (being older, it seems all the harder to us). It is amazing how easily children actually deal with the reality of their lives.

It sounds like you have a good Dr for her.....I don't know if you have had any second opinions or not, but it sounds like this Dr knows what he is talking about. It seems like going to a school for the blind at this point is a good time to get her to learn what she will need to know as her vision gets worse.

I would think that the hardest part for you would be the pain that she is feeling. I would hope that there is something that can be done for her to relieve the pain that she is feeling.

I think what Zanne said is very good to realize.....God isn't the one doing this, but he is holding your hand & helping you realize the direction to go in during this rough time. The one thing we don't know at this time, but who knows what the future holds for Abby. Who knows, but with this happening, there may be something wonderful that will happen in her future that might not if this wasn't part of her future. We never know what good the future holds even though it looks real dark at the moment.

My prayers are with you & Abby,
Debbie
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  #21  
Old Aug 08, 2006, 03:12 PM
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BlueFaith BlueFaith is offline
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I think I am having a harder time with this than Abby is.. really I do. We're gonna make it, though.

I have to remember that this isn't about me. This is about Abby. God gave me this little girl, and she has a purpose in life whether she's blind or not. Yes, it hurts to know that she could lose her sight completely. But, if that happens we'll adapt.

I don't want to see anyone lose their vision.. especially not my child. I am hurt that it might happen. But, I keep telling myself that there are so many other things that can happen to a person that are way worse than this. When she was born the doctors told me that she wouldn't live past the age of 2. When she did live past the age of 2, they told me that she'd never walk or speak.

She's gotten through a lot. Many surgeries and physical therapy sessions. She's still alive, she speaks, she walks. She's very smart! Blindness will never hold her back. I'm very sure of that. We're just going to take it day by day and see what happens.

Now is not the time for me to fall apart. This is going to require strength. Thank you to everyone for your kind words, prayers, good thoughts, and everything else. I'm sure there will be some hard days, but I'll get through this with your help and support. I really couldn't ask for better friends. More Bad News

Love, Jenn
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  #22  
Old Aug 08, 2006, 03:33 PM
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((((((Jenn)))))))
  #23  
Old Aug 08, 2006, 09:18 PM
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(((((((((((((((((Jenn & Abby)))))))))))))))))
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  #24  
Old Aug 08, 2006, 09:35 PM
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(((Jenn))), sorry to hear, my dear. My prayers and best wishes.
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  #25  
Old Aug 08, 2006, 10:05 PM
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((((((((((( Jenn )))))))))) (((((((((( Abby ))))))))))))

My dear Jenn,

I often wonder if you realize how very special and wonderful you are.

Hugs,

Jan
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