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#1
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Today I had to take Abby (my 4 yr old daughter) to the eye doctor. She was having pain in her eyes and was complaining of seeing red spots.
The doctor looked at her eyes and told me that she's developed more scar tissue behind her eyes. The scar tissue is pressing on her optic nerves. She has a very underdeveloped optic nerve in the right eye, and I've known that since she was 4 months old. So, that means she had very little vision in that eye to begin with. But now with this newly developed scar tissue, she has absolutely no vision in that eye. And she's also losing vision in the left eye. There are no surgeries they can do to fix this. The doctor said that it's possible that she'll go completely blind eventually. We took her to register for kindergarten last week, and they told me that she could be in a regular kindergarten class. But after finding this out today her doctor recommended a school for the blind. I know there are worse things that can happen. But I am heartbroken. Is God testing me to see just how much I can handle at one time? I just don't know when this is ever going to end. I don't know how to handle this.
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"There are things we need to forget and forgive, Sometimes we have to try and shed the damage we don't need." Silverchair- All Across The World |
#2
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aqwww I'm so sorry for you.... but the school for the blind is a great place!!!! If she hasn't learned sign language already (hand to hand touch speaking) she will, plus she will learn how to use a braile writer (learning braile) etc...and function IRL... one of my best friends was totally blind...and he was one of the kewlest ppl I knew!!! He could tune a color tv because each color has a different tone! Who knew! He is currently a broadcast engineer for a Christian Radio station/college... sounds successful to me
![]() Sometimes ppl who have lost their eye sight, have other sights enhanced ![]() I hope her pain subsides, and this slows for her. TC
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#3
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((((((((((((( Jenn & daughter )))))))))))))
I'm so sorry this is happening. There is no pain like a mother's pain. Sky is right about the school for the blind. They are awesome. Is there one nearby? Try to hang in there, and remember, you have all of us sending you love and support. Love and hugs, Jan
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I still dream and I still hope, therefore I can take what comes today. Jan is in Lothlorien reading 'neath a mallorn tree. My avatar and signature were created for my use only and may not be copied or used by anyone else. |
#4
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#5
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(( MP)) I am very sorry . I know you know the school for the blind must be good but it would break my heart as a mom to be in your shoes.
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The optimist sees the glass of water as half full, the pessimist sees the glass of water as half empty, the pragmatist drink the water because they are thirsty |
#6
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((((((Jenn&Abby)))))
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#7
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i'm so sorry sweetie........
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#8
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(((((((((((((Jenn)))))))))))))) I would be devastated too. You and Abby are in my prayers.
Love, Candy |
#9
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I am sorry to hear about your situation but I want you to know that God is not testing you. He isn't the one that is doing this but He is the One who is holding your hand while you go through this. I have never been in a situation like yours, however, I have had a rough time in the past year. I am a oboist (woodwind musician) and over the past year I have collapsed my lungs 8 times, had 3 surgeries, 8 chest tubes, and have missed weeks of school. I don't know what is going to happen from now on but you know, God has got my back. I know it may seem like hell but you can deal with it and there are lots of people here who will help you through it. God Bless you and your daughter and I wish you strength in any path your life might take
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#10
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((((Jenn)))))
((((Abby)))) I'm sorry - that sucks. ![]()
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#11
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Wishing yoy and Abby all of the best.
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#12
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jen, i am sorry to hear this.... my heart breaks with you... we are here for you to help you through this ok???
((((((((((((((((((jen and abby)))))))))))))))
__________________
Live life passionately, love unconditionally. Hope for the best, laugh your heart out. Cry when you need to, learn from the past. And remember what is meant to be will find its way. |
#13
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((((Jenn)))) you are in my thoughts and prayers.
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He who angers you controls you! |
#14
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((((((((((((((((((( Jenn & Abby & Famlily ))))))))))))))))))
Jenn, it's good that you can remember that you're aware worse things can happen. It's also ok to feel the pain that you do have while being appreciative. We know you appreciate what you have, but have a sadness/pain that is immense. We're here and listeing sweetie. Let us blanket you with some warmth from our hearts right now. You are one of the most special persons I've ever met...young or old...a beautiful special person. KD
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#15
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Jenn,
I have a very good friend, who went blind at about your daughter's age. She claims that being in public school was very good for her. Hugs, EJ |
#16
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((((((((( MP )))))))))))
Oh,dear lady, I wish I had something to offer you some comfort,my heart aches for you and such challenges that may lie ahead, but know so many love and care, so please know we are all here for you. You,abby and your family are in all our thoughts and prayers. Love, Roe (((((((((( Abby and MP ))))))))
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#17
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So sorry MP, this is when the mothers strength has to take over all other overwhelming feeling and problems. That's what mothers are capable of . I believe your daughter will do well, even with her disability, because her body and mind will adapt, and other senses will become stronger. It's just the pain of seeing your child experience this....I understand. I don't blame you for being overwhelmed and scared, but I do believe with time, not only will your daughter adapt, but the entire family will as well. Don't look at the con's (although very difficult) try to look at the glass half full.
(((((((((((((MP)))))))))))))), it's truly going to be okay.
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#18
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(((((Jenn & Abby)))))
I'm so sorry to hear about this! It must be completely awful for both of you! But please remember that we must face each obstacle with an open mind and an open heart. We receive these tests each and every day, some more challenging than others, all for a reason. Even though it may be hard to see the positives at this point, in time I believe you will both begin to see the positive side of this in time. May the Goddess/God bless you both!
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"When they discover the center of the universe, a lot of people will be disappointed to discover they are not it." -Bernard Bailey |
#19
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kids are so resilient. adaptable. it's the adjustment that is brutal. my nephew went almost totally blind very quickly right after he got his dirvers license! genetic thingy nobody knew about. he did a year at a school for the blind then back to his regular high school for his senior year.
i trust you'll know what's best as you go along this challenging path. we're with ya all the way.)))))))MP(((((((
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#20
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(((((((((((((MP & Abby)))))))))))))))))))),
I know it has to be hard going through the knowledge of what the end results may be. As a parent, when our children hurt, so do we. I am sure your daughter is so young that I am sure she will adapt very well the the situation she is in (being older, it seems all the harder to us). It is amazing how easily children actually deal with the reality of their lives. It sounds like you have a good Dr for her.....I don't know if you have had any second opinions or not, but it sounds like this Dr knows what he is talking about. It seems like going to a school for the blind at this point is a good time to get her to learn what she will need to know as her vision gets worse. I would think that the hardest part for you would be the pain that she is feeling. I would hope that there is something that can be done for her to relieve the pain that she is feeling. I think what Zanne said is very good to realize.....God isn't the one doing this, but he is holding your hand & helping you realize the direction to go in during this rough time. The one thing we don't know at this time, but who knows what the future holds for Abby. Who knows, but with this happening, there may be something wonderful that will happen in her future that might not if this wasn't part of her future. We never know what good the future holds even though it looks real dark at the moment. My prayers are with you & Abby, Debbie
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![]() Leo's favorite place was in the passenger seat of my truck. We went everywhere together like this. Leo my soulmate will live in my heart FOREVER Nov 1, 2002 - Dec 16, 2018 |
#21
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I think I am having a harder time with this than Abby is.. really I do. We're gonna make it, though.
I have to remember that this isn't about me. This is about Abby. God gave me this little girl, and she has a purpose in life whether she's blind or not. Yes, it hurts to know that she could lose her sight completely. But, if that happens we'll adapt. I don't want to see anyone lose their vision.. especially not my child. I am hurt that it might happen. But, I keep telling myself that there are so many other things that can happen to a person that are way worse than this. When she was born the doctors told me that she wouldn't live past the age of 2. When she did live past the age of 2, they told me that she'd never walk or speak. She's gotten through a lot. Many surgeries and physical therapy sessions. She's still alive, she speaks, she walks. She's very smart! Blindness will never hold her back. I'm very sure of that. We're just going to take it day by day and see what happens. Now is not the time for me to fall apart. This is going to require strength. Thank you to everyone for your kind words, prayers, good thoughts, and everything else. I'm sure there will be some hard days, but I'll get through this with your help and support. I really couldn't ask for better friends. ![]() Love, Jenn
__________________
"There are things we need to forget and forgive, Sometimes we have to try and shed the damage we don't need." Silverchair- All Across The World |
#22
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((((((Jenn)))))))
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#23
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(((((((((((((((((Jenn & Abby)))))))))))))))))
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#24
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(((Jenn))), sorry to hear, my dear. My prayers and best wishes.
__________________
Believe you can and you're halfway there.
--Theodore Roosevelt |
#25
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((((((((((( Jenn )))))))))) (((((((((( Abby ))))))))))))
My dear Jenn, I often wonder if you realize how very special and wonderful you are. Hugs, Jan
__________________
I still dream and I still hope, therefore I can take what comes today. Jan is in Lothlorien reading 'neath a mallorn tree. My avatar and signature were created for my use only and may not be copied or used by anyone else. |
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