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  #1  
Old Feb 01, 2008, 07:57 PM
wisewoman wisewoman is offline
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I am now offficially disabled. Got the news today. It feels bizzare. Now lots of questions and adjustments. But I got it first time out of the gate. Disability. Wow.

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  #2  
Old Feb 01, 2008, 07:58 PM
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lenjan lenjan is offline
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I'm not sure this is the sort of thing congratulations are in order for, but I'm glad you've been heard and will be getting some assistance. ((((((WW)))))
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  #3  
Old Feb 01, 2008, 08:03 PM
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bebop bebop is offline
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congrats! I know how you are feeling. I just got mine back in november! it sure feels good to know there is money coming in. did you just get your letter today? if I can help answer questions just ask hon
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  #4  
Old Feb 01, 2008, 08:17 PM
wisewoman wisewoman is offline
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Thanks a lot guys. so , I just don't know about medicare D. I left my job before I learned a lot about it. Otherwise I know a bit about the whole thing. It's just weird.
  #5  
Old Feb 01, 2008, 08:33 PM
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bebop bebop is offline
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how far are they going back? you can't get the medicare for 24 months from the time they deem you disabled. mine won't kick in until July this year. at that time they will be taking 96 a month from my check for a and b. I will have to decide about the D part. not sure how much that is. does you hubby have insurance at work on you?
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  #6  
Old Feb 01, 2008, 08:40 PM
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Excellent. I think disability funds and assistance will help you have a wee bit less worries which is always good news. I am happy for you!
  #7  
Old Feb 01, 2008, 09:50 PM
freewill
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That is good news.... ((((hugs)))
  #8  
Old Feb 01, 2008, 10:44 PM
wisewoman wisewoman is offline
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I have been disabled since Dec 05. I will be eligible no problem. Just decisions and worries. Isn't that silly? I get disability and I worry. I need to figure out hubby's insurance and Mine. We have been on state insurance for 98 a month. I will definitely buy D since it's meds, just have to speak with 2 people who can guide me. I wonder if my income will get eaten up by premiums and drug co-pays. Wish I had all of the information I needed right now so I could relax. Silly anxiety. Thanks everyone.
  #9  
Old Feb 02, 2008, 12:42 AM
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it's such a pain in the rear...so when your finally approved it is an accomplishment...congrats to you.
  #10  
Old Feb 02, 2008, 12:54 AM
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Raynaadi Raynaadi is offline
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Congrats WW!! I hope you get everything figured out and get all your medical covered with at least something left over!!! Keep us posted.

Disability approved
Rayna
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  #11  
Old Feb 02, 2008, 02:34 AM
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hon go to your local social security office. they have all the booklets and you can also talk to a worker there about it. they will send you some in the mail if they did not already. I am trying not to think alot about it til June or right before that.
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  #12  
Old Feb 02, 2008, 02:35 AM
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(((WW)))

Congrats Disability approved
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  #13  
Old Feb 02, 2008, 12:32 PM
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Perna Perna is offline
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Glad you got some help. I'm glad you have knowledgeable people you can talk about D with too; I do like the ads on TV about the kindly pharmacists :-) My husband and I found the State insurance was less expensive than others actually. Hope you don't find the Medicare more expensive.
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  #14  
Old Feb 02, 2008, 10:27 PM
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1oxbowgirl 1oxbowgirl is offline
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I am very happy for you. I just won mine in December. I got medicare A & B. Still working out all the details. I am looking at AARP for the part D, but have not decided for sure yet. My first checks start this month sometime. It is a cause for being happy, though I understand the way you feel of trying to be believe that it is really true and not a dream. I waited four years for mine, and it was a real struggle to manage without a income.
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All my life I have know that I am different. I have trouble with my thinking and processing information. I have trouble in keeping close friends. I am afraid of living, and I don't really know why. I am good at pretending everything is all right, by just gritting my teeth and just charging ahead and getting through the rough spots, but inside I am afraid of failure and getting critized for things I do. I am hoping someone can help me, or at least understand me.
  #15  
Old Feb 02, 2008, 11:56 PM
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bebop bebop is offline
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I told my husband that the money did not help my pain one little bit. Disability approved but it sure helps the feeling of nothing. I still look at big trucks with that wonderlust feeling. wishing so much I could get back in and just go again.
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  #16  
Old Feb 03, 2008, 02:11 AM
wisewoman wisewoman is offline
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Oh bebop I do know of what you speak. My pain is outrageous. Last little bit I think I have wanted to go mad. Now dear youngest daughter tells me I am different back on meds. She says I seem tired. I started the neurontin this past week after speaking with State's best doc in this field. Daughter days it seems to make me tired. Oh yeah, and the pain does what? I asked her to get off her Royal rear so we could do errands, for her today. She is home till tomorrow. Alas she wouldn't go. I was sleepy and tried open windows etc. I am also very tired, in pain, confued. It hurt me because she means I am ugly. If she only knew what was inside of me. I am ill with it all right now. Better for chronic pain forum. Sick going back on neurontin, sick from pain med. Just sick. Sick to my tummy.
  #17  
Old Feb 03, 2008, 02:36 AM
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Rhapsody Rhapsody is offline
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Good for YOU - I am glad you will be compensated financial now.

If I may ask? - How long did the entire process take.
  #18  
Old Feb 04, 2008, 02:28 AM
wisewoman wisewoman is offline
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where do I belong? It is perhaps no secret that I am having very real problems with increased pain over the last few months. (chronic pain) It seems the pain keeps climbing. Then there is something that happened in my brain about getting disability. It's the cement on the knowing that a phase in my life has past. (survivors of abuse) Then there is the knowing that my dear friend Jane (grief) is the one that even opened the door for me to have a bit of normal working life to use my knowing pain and suffering to help others. So I worked and made a difference but it cost me a lot more inside. I knew all of the debth of the human experience before I was old enough to speak of such things. I touched angels and evil and true beauty. was allowed to know all of these things too early.

So I lived and worked my life and I crashed and burned to the ground. My body, for lack of better understanding I can only say my body felt all of this too. and so I live with such crippling pain with odd labels that don't fit together. But they must fit together for the people who gave me the decision of disability. But what of the pain that keeps me up? That makes me sleep to much? I am going to the Doc Thurs a.m. and will try to bring T or a friend. If it doesn't work with Doc I will interview another. But he is known as one of the best. Is it just my head? My head that makes it so I can't hear him and he can't hear me? So many questions and you see I could not chop them up and throw them into different forums.
  #19  
Old Feb 04, 2008, 02:54 AM
wisewoman wisewoman is offline
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Rhap, sorry dear, I started in Sept and ended here. That is by far not average but I had recent testing on every part of my body from a big teaching hospital. People come here from all over the world. It's a two hour trek for me but I did it. That's what helped me the most I believe.
  #20  
Old Feb 04, 2008, 09:45 AM
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bebop bebop is offline
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when I got mine I finally felt validated. the pain was still there and still is but to me in my little pee brain it said volumes. it told the rest of the people I know that I really can't do anything. I really can't work. I felt no one believed me as they were always suggesting jobs for me. now they don't do that thank goodness.
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  #21  
Old Feb 05, 2008, 03:58 AM
wisewoman wisewoman is offline
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Well bebop, It is speaking volumes for me too, just different ones. I feel crazy from the meds. I feel so much pain and then there is an element of not being here, being far away. I am to a great extent, nuts. I can't explain any better then above.

I went to chiropractor today and he helped me a lot.
  #22  
Old Feb 05, 2008, 04:23 AM
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mrsmoggles mrsmoggles is offline
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when you started or restarted neurontin, whatdid it do to you??? I have started that and cymbalta and nortriptyline and cannot distinguish which is doing what to me. (((ww))))gentle hugs to you hun, the full impact of that label is hard...i am going to try again and if i cant get help i will have no choice but to go to work again...it is scary since I dont think mentally or physically i will be able to do it...but oh well, we all deal and somehow we find the strength to go on...melanie
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  #23  
Old Feb 09, 2008, 10:47 AM
wisewoman wisewoman is offline
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Hi Melanie, I realized that I have been very ill for three weeks. Funny that we just keep on keeping on when our bodies are screaming. Neurontin can make me dizzyish when I look up in the beginning as I am getting used to it. Another poster here also said that somewhere here. It has to help, it has a lot in the past.

As for working. I was sick then too but I kept on everyday with a distraction that I must work. I believe that we can do whatever we have to but I hope you don't have to with your pain.

I have something systemic going on. It is not just this and that but my whole body is cussing me out here. I have decided that I need to find a way to by pass some rules and have the big hospital treat me exclusively. At least that way they could coordinate my care. In the mean time I am in the place of take all the drugs available for pain and sleep.

My knees are so crunchy and full of ouch. I don't have a lot to offer you except be persistent. Get pain relief. You deserve it.

The reason the disability hit me so hard is cause it made it real. yes, I am quite disabled, But can't I too get adequate treatment and pain management?
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