Home Menu

Menu


Reply
Thread Tools Display Modes
  #1  
Old Jul 27, 2015, 05:06 PM
BeyondtheRainbow's Avatar
BeyondtheRainbow BeyondtheRainbow is offline
Legendary
 
Member Since: Apr 2015
Location: US
Posts: 10,205
The recent thread about how many meds made me curious. I'm currently on 7/8 meds (I don't know if cogentin counts) which is the most I've ever been on. I'm just interested in what the highest number is for other people. Also, if you know, how many cocktails have you tried? I'm on #67 (not counting dose adjustments). That's why I'm ok with being on so many meds, I know exactly how treatment resistant I am.
__________________
Bipolar 1, PTSD, GAD, OCD.
Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily

advertisement
  #2  
Old Jul 27, 2015, 05:11 PM
CopperStar CopperStar is offline
Poohbah
 
Member Since: Apr 2014
Location: US
Posts: 1,484
I don't feel comfortable with more than two psych meds, though I will say there is no specific reason for this. It's just a 'thing' to me, I guess. This is in addition to depo-provera, which is a form of birth control that shuts down my periods (this is actually a major help to my mental health, so I consider it a med in a way).
Thanks for this!
BeyondtheRainbow
  #3  
Old Jul 27, 2015, 05:16 PM
BeyondtheRainbow's Avatar
BeyondtheRainbow BeyondtheRainbow is offline
Legendary
 
Member Since: Apr 2015
Location: US
Posts: 10,205
But if it is a "thing" and you find nothing works in 2 med combinations would you move on? I'm also curious about this because I never really had the chance to have ground rules about "I won't gain more than _" "won't take more than _" "won't take meds from ____ class" etc. The best I had was that I was afraid of Seroquel b/c the psychiatrist where I used to work used it to snow people and I was terrified that it was what the drug did so we didn't use it until a last resort and I didn't want Zyprexa b/c my family history with diabetes is pretty scary. But then I took Seroquel and it was fine and still is (although I gained weight and have side effects but I'm also on a lot of it) and I tried Zyprexa and it did nothing for me so the diabetes wasn't an issue although it remains something we're cautious about with Seroquel. So far my blood sugars remain great and I've been on Seroquel 8 years so hopefully my genetics don't kick in and I stay free of diabetes since I don't need anything else to deal with.
__________________
Bipolar 1, PTSD, GAD, OCD.
Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily
  #4  
Old Jul 27, 2015, 05:16 PM
SillyKitty's Avatar
SillyKitty SillyKitty is offline
Veteran Member
 
Member Since: Jul 2012
Location: Louisiana
Posts: 562
The max I've been on is 11. Plus Flexaril and I have a Mirena bc. I'm down to 5 plus Flexaril and a cranberry supplement. And I still have the Mirena. Plus two PRNs.
__________________
RX and Daily meds:
Vraylar 1.5mg daily, Gabapentin 900mg daily

General Anxiety Disorder; Panic Disorder (unspecified); Borderline Personality Disorder; Schizoaffective Disorder/Bipolar Type; Fibromyalgia; Sleep Apnea

"putting on a brave face, trying to ignore the voices in the back of my head" - Gotye
Thanks for this!
BeyondtheRainbow
  #5  
Old Jul 27, 2015, 05:19 PM
SillyKitty's Avatar
SillyKitty SillyKitty is offline
Veteran Member
 
Member Since: Jul 2012
Location: Louisiana
Posts: 562
I have no idea how many cocktails I've tried. I'm med resistant, so a lot. Lamictal is the only thing I've always been on.
__________________
RX and Daily meds:
Vraylar 1.5mg daily, Gabapentin 900mg daily

General Anxiety Disorder; Panic Disorder (unspecified); Borderline Personality Disorder; Schizoaffective Disorder/Bipolar Type; Fibromyalgia; Sleep Apnea

"putting on a brave face, trying to ignore the voices in the back of my head" - Gotye
Thanks for this!
BeyondtheRainbow
  #6  
Old Jul 27, 2015, 05:20 PM
Anonymous200325
Guest
 
Posts: n/a
Yeah, the effect of monthly fluctuations in estrogen and progesterone on women's mental health could be a whole topic of its own.
  #7  
Old Jul 27, 2015, 05:27 PM
CopperStar CopperStar is offline
Poohbah
 
Member Since: Apr 2014
Location: US
Posts: 1,484
Quote:
Originally Posted by BeyondtheRainbow View Post
But if it is a "thing" and you find nothing works in 2 med combinations would you move on?
I've never been in that situation, so it's hard for me to say with conviction. I'm fairly new to trying meds after years going unmedicated (aside from a few shots at SSRIs which went horrendously). I feel like it's a "thing" for me, because I don't like the idea of not being able to tell what is coming from which med(s), be it good things or bad. On many meds I would feel like I was just being hammered in a suppression sort of way, at which point I'd feel like just give me some damned valium already and call it a day.
Thanks for this!
BeyondtheRainbow
  #8  
Old Jul 27, 2015, 05:43 PM
BeyondtheRainbow's Avatar
BeyondtheRainbow BeyondtheRainbow is offline
Legendary
 
Member Since: Apr 2015
Location: US
Posts: 10,205
Menopause and the improvement I've had from it overall (just not the last 7 months but my therapist tells me that despite adding more psychosis these 7 months are better than prior episodes) is the best thing that happened to my bipolar. The Mirena was the worst thing that ever happened to it aside from maybe SSRIs. It shouldn't have caused problems but oh the problems it caused......removing it meant a hysterectomy (ovaries left so a speeded up but natural early menopause that started long before the hysterectomy) but that was way better than the horrible things I went through with the Mirena. Ugh. But at least other bipolar women at my hospital now are getting recognized to have Mirena issues sooner than they used to because it was so extreme for me.

I am nearly through menopause now as best as I can tell and I don't miss the hormones at all. I know someone who is afraid menopause will totally destabilize; for me it was the total opposite.
Quote:
Originally Posted by jo_thorne View Post
Yeah, the effect of monthly fluctuations in estrogen and progesterone on women's mental health could be a whole topic of its own.
__________________
Bipolar 1, PTSD, GAD, OCD.
Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily
  #9  
Old Jul 27, 2015, 08:09 PM
Nammu's Avatar
Nammu Nammu is offline
Crone
 
Member Since: May 2010
Location: Some where between my inner mind and the solar system.
Posts: 76,774
I Once left the hospital with,
2 AD
2 AP
2 benzos
1 mood stabilizer
1 med for headaches
1 med for the thyroid that the lithium caused

Don't know how I was able to function, my quality of life was nil.
Now I'm I'm,
1 mood stabilizer
1 sleep med
1thyroid med

And I'm the most stable I've been in years
And yeah, I'm past menopause, that may have a lot to do with it, I love being a crone.
__________________
Nammu
…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
Desiderata Max Ehrmann



Hugs from:
gina_re
Thanks for this!
BeyondtheRainbow, Trippin2.0
  #10  
Old Jul 27, 2015, 08:22 PM
Anonymous50005
Guest
 
Posts: n/a
The most I was ever on for bipolar at once was 5 I think (a couple of those were probably PRN for sleep and anxiety). I was never very comfortable with more than 3 on a regular basis, preferably 2. I'm also someone who has found menopause an apparent blessing for my bipolar symptoms. I've been med free pretty much from the time I realized I was entering menopause. Could be coincidence, but I think it definitely helped.
Hugs from:
Nammu
Thanks for this!
BeyondtheRainbow
  #11  
Old Jul 27, 2015, 08:24 PM
Anonymous53806
Guest
 
Posts: n/a
I don't guess I really don't know what my max would be. All together psych meds and non psych meds I am taking 7 meds at the moment, many of them two times a day. However to me it is what it is, I know that this combination is working for me so I am okay with it. My total number has gone up and down over time.
Thanks for this!
BeyondtheRainbow
  #12  
Old Jul 27, 2015, 09:12 PM
gina_re's Avatar
gina_re gina_re is offline
Grand Magnate
 
Member Since: Jun 2012
Location: East Coast
Posts: 3,537
I've been on so many different cocktails, I can't remember them all. I'm currently on 3 if you include the nuvaring and another drug is prn making the total 4. I think the max I've had is 4 and I think that is more than enough.
Thanks for this!
BeyondtheRainbow
  #13  
Old Jul 27, 2015, 09:15 PM
raspberrytorte's Avatar
raspberrytorte raspberrytorte is offline
Insert Smiley Face
 
Member Since: Mar 2015
Location: USA
Posts: 6,659
I'm on the most I've ever been on right now, which is five.

I wish my new pdoc would be okay with me staying on clonazepam because than I could say three and be totally comfortable with that!
__________________
The darkest of nights is followed by the brightest of days. 😊 - anonymous

The night belongs to you. 🌙- sleep token

"What if I can't get up and stand tall,
What if the diamond days are all gone, and
Who will I be when the Empire falls?
Wake up alone and I'll be forgotten." 😢 - sleep token
Hugs from:
BeyondtheRainbow
Thanks for this!
BeyondtheRainbow
  #14  
Old Jul 27, 2015, 09:18 PM
BeyondtheRainbow's Avatar
BeyondtheRainbow BeyondtheRainbow is offline
Legendary
 
Member Since: Apr 2015
Location: US
Posts: 10,205
Now I'm feeling really medicated b/c my 7/8 only includes cogentin (8). It doesn't include thyroid, prescription and OTC for constipation, asthma med, migraine med (plus 2 PRNs for that), Nexium, or vitamins/calcium supplement. I think I'm taking 22 pills per day right now (granted loxapine is 3 of those and Seroquel is 4 of them). But it's what I need and it's temporary. Still, lots of pills....
__________________
Bipolar 1, PTSD, GAD, OCD.
Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily
Hugs from:
Nammu
  #15  
Old Jul 27, 2015, 09:24 PM
raspberrytorte's Avatar
raspberrytorte raspberrytorte is offline
Insert Smiley Face
 
Member Since: Mar 2015
Location: USA
Posts: 6,659
It always seems like more too if you have to break them up over the day, or, for me, if you have to take three 100mg pills of lamictal.

I feel like a frickin old person or something. Lol.
__________________
The darkest of nights is followed by the brightest of days. 😊 - anonymous

The night belongs to you. 🌙- sleep token

"What if I can't get up and stand tall,
What if the diamond days are all gone, and
Who will I be when the Empire falls?
Wake up alone and I'll be forgotten." 😢 - sleep token
  #16  
Old Jul 27, 2015, 09:55 PM
Anonymous50005
Guest
 
Posts: n/a
After my sister had her bone marrow transplant, she had 38 individual pills to take every day, and some of them were very time contingent. In addition, we had three IV's and several topical steroids to deal with. They literally gave her a fishing tackle box they had all divided up and labeled by day and time. It was crazy. Her entire day was spent trying to get those pills down which was a challenge because her appetite was very touchy, her gag reflex was strong. Not fun.
Hugs from:
Nammu
Thanks for this!
BeyondtheRainbow
  #17  
Old Jul 27, 2015, 10:37 PM
BeyondtheRainbow's Avatar
BeyondtheRainbow BeyondtheRainbow is offline
Legendary
 
Member Since: Apr 2015
Location: US
Posts: 10,205
Lolagrace, I can't imagine. When I was on lamictal the taste of it made me gag so I was put on the children's "chewables". Those chewables tasted horrible too so I didn't chew them but mixed them into baby food fruits (variety so I didn't just become unable to tolerate applesauce or pudding which happened quickly) and took them one at a time for 7 pills and then my other 25 pills for the day in slightly larger numbers because I gagged really easily. I remember going on websites for parents of kids with cancer to learn how to swallow pills. I can't imagine even more than that and time contingent plus with other meds to manage. It would have been a 24 hr job for me. Now I swallow huge globs of them but those days when I was new to this and learning were tough.
__________________
Bipolar 1, PTSD, GAD, OCD.
Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily
  #18  
Old Jul 27, 2015, 10:44 PM
Anonymous50005
Guest
 
Posts: n/a
Quote:
Originally Posted by BeyondtheRainbow View Post
I can't imagine even more than that and time contingent plus with other meds to manage. It would have been a 24 hr job for me. .
It was. The whole gag reflex issue I was convinced was completely psychological which ended up being confirmed. She acquired a virus that caused significant memory issues, and suddenly she had no problem swallowing pills anymore. She didn't remember that she hated taking pills. Her husband and I said we'd know her memory was returning we she started fighting the pill taking again. Unfortunately we never saw that day, but it was an interesting observation.
Hugs from:
Nammu
  #19  
Old Jul 27, 2015, 10:47 PM
BeyondtheRainbow's Avatar
BeyondtheRainbow BeyondtheRainbow is offline
Legendary
 
Member Since: Apr 2015
Location: US
Posts: 10,205
I'm sorry she went through so much. IT sounds like you were a good sister to her.
__________________
Bipolar 1, PTSD, GAD, OCD.
Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily
Reply
Views: 1047

attentionThis is an old thread. You probably should not post your reply to it, as the original poster is unlikely to see it.




All times are GMT -5. The time now is 01:27 PM.
Powered by vBulletin® — Copyright © 2000 - 2025, Jelsoft Enterprises Ltd.




 

My Support Forums

My Support Forums is the online community that was originally begun as the Psych Central Forums in 2001. It now runs as an independent self-help support group community for mental health, personality, and psychological issues and is overseen by a group of dedicated, caring volunteers from around the world.

 

Helplines and Lifelines

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider.

Always consult your doctor or mental health professional before trying anything you read here.