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  #576  
Old Aug 03, 2018, 07:16 PM
yellow_fleurs yellow_fleurs is offline
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Quote:
Originally Posted by wildflowerchild25 View Post
It’s very hard but try not to analyze your moods too much. Just enjoy feeling better while you have it and don’t worry about it turning into hypomania. Maybe practice some mindfulness meditations? There’s hundreds of them on YouTube and a couple of apps like headspace.
Thanks, you're right I should just try to relax and not overthink it. I have just had my moods cycle so much recently I am really on edge about it. I have been meaning to try mindfulness meditations so this is probably a good time to try
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  #577  
Old Aug 03, 2018, 07:59 PM
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Originally Posted by Moose72 View Post
Pdoc called today to check up on me. She want to delete lithium and trileptal and raise seroquel to 450/500 but eventually replace it with Haldol. Im still hyper. All day today even with the new doses. Right now im calm after ativan and seroquel but theyll wear off by morning and i have to go to judo. Pdoc says to check in with her nurse monday since pdoc herself wont be in the office. She still says its hypomania with akathisia. What do i have to do to get diagnosed with mania- run down the street naked screaming??
Meds take awhile to work. Anyway, who cares what the exact diagnosis is, you know if you know it's some type of mania? At least your pdoc is doing something about it and seems concerned about your case. Anyway, any time I've gone full-blown manic, I've nearly torn my life apart, so I'd rather not. And I really can't, not with a kid. You could ask your pdoc about trying you on the extended release Seroquel. That might bring you down some. They can both act very differently in the same person. The extended version calmed me too much, made me want to sleep day & night. I tried the regular release version and had much better luck, makes me sleepy at bedtime along with some other meds, but I'm don't feel hungover by morning, can run quite a long distance at 4 AM in the morning (risky behavior here though, running through the streets in the dark).
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  #578  
Old Aug 03, 2018, 09:26 PM
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Standup2me Standup2me is offline
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Every day I am going to look in the mirror and tell myself three things that I like about myself.
I've been awake but half asleep when it comes to self love
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  #579  
Old Aug 03, 2018, 10:02 PM
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Victoria'smom Victoria'smom is offline
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I ran around to 3 different campuses today (NOT close to each other) to get my son's books. Just to go back to the original campus to back order it. Why they didn't do that in the first place IDK. We waited in lines for hours and got nothing. We needed the books by 4 pm today to get it on the school voucher. Yes they only let you get the books one day. We got there at 9 and they did the pre-pay around 1:30. It was a whole bunch of stress to find out they can pre-pay it on the voucher. However Everyone else said getting their books were easy. I'm glad it was just us.
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  #580  
Old Aug 04, 2018, 01:13 AM
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Cocosurviving Cocosurviving is offline
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Question is anyone else having problems with Tapatalk? It will not let me post. I’ve been having this problem for over two weeks. I’ve logged out, logged back in, deleted Tapatalk and redownloaded it. It still will not let me post it gives an error message. However if I get on my iPad or laptop no problems.
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Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
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10). Gluten sensitivity
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12). Food allergies, medication allergies and food intolerances. .
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  #581  
Old Aug 04, 2018, 01:23 AM
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Cocosurviving Cocosurviving is offline
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My mother called me yesterday crying and upset. My oldest niece just had a baby and found out he is going to be blind. I’m not one of those people that believe everyone should be like a book of stamps “exactly a like and perfect”. God made everyone different for a reason and it’s ok to have a disability. There are programs and schools available for the disabled. That’s what I told her. I told her my niece needs to focus on getting a better job so she can get private insurance for her child. The job she works now does not offer insurance for her position.
__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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  #582  
Old Aug 04, 2018, 05:27 AM
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Miss Laura Miss Laura is offline
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Hey Cocosurviving,

My friend was pregnant with twins 5 years ago. Everything was going well just keep her progress on Facebook up to date taking pictures of her bump etc. When she went into labour she posted it on Facebook. Then for a few days nothing appeared. We were all concerned but no one asked. 3 days after the birth. She post a fab post on Facebook telling us all that her twin boys were born. Happy and healthy. Then there was a however. Both boys who are identical have Downs Syndrome. She has dedicated the last 5 years to helping raise awareness for Downs in Scotland. She writes daily posts on Facebook telling us all what she, her Husband and the boys have done. She also set up a Facebook page for the boys to track their progress and all the fun and not so fun being a kid and having a disabilities brings. The boys have had a hard life in respects to their development. But are away to start school in 2 weeks time after the Summer holidays at a special school in our area. She is also part tine at uni (can't remember the exact course) and goes all over Scotland giving talks on life with Downs Syndrome. Even talking at the 2 local universities to student nurses and doctors. She is an inspiration. Your Niece doesn't need the blindness to define her child. Life has possibilities. As we all know. It's not going to be easy but yeah she will a lifetime of fun, tears and laughter with her child. Hope this helps
Quote:
Originally Posted by Cocosurviving View Post
My mother called me yesterday crying and upset. My oldest niece just had a baby and found out he is going to be blind. I’m not one of those people that believe everyone should be like a book of stamps “exactly a like and perfect”. God made everyone different for a reason and it’s ok to have a disability. There are programs and schools available for the disabled. That’s what I told her. I told her my niece needs to focus on getting a better job so she can get private insurance for her child. The job she works now does not offer insurance for her position.
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  #583  
Old Aug 04, 2018, 05:32 AM
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Blueberrybook Blueberrybook is offline
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Quote:
Originally Posted by Standup2me View Post
Every day I am going to look in the mirror and tell myself three things that I like about myself.
I've been awake but half asleep when it comes to self love
This is a wonderful idea for self affirmation. You don't even need the mirror (might give you too much body image issues). Even just think or write 3 things you like about yourself daily in a notebook. I should do that, not the mirror part, but the self-affirmation part. I have such low self-esteem.
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Bipolar 1, PTSD, anorexia, panic disorder, ADHD

Seroquel, Cymbalta, propanolol, buspirone, Trazodone, gabapentin, lamotrigine, hydroxyzine,

There's a crack in everything. That is how the light gets in.
--Leonard Cohen
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  #584  
Old Aug 04, 2018, 05:36 AM
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Miss Laura Miss Laura is offline
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I'm doing great. I'm manic but hey ho. I had a great day yesterday as it was my parents retirement party at night. My Sister and I did the catering. It was hectic but worth it. Party was great, loads of people were there from my parents work (they both work in a clothes/food store). Mum handled it so well and lasted until 11:45pm party ended at 12:30am. My parents were spoilt rotten from family, friends and colleagues.

I was up at 6am on Fri and I didn't get to sleep until 3am on Saturday. I woke at 5am and that was me awake. The mania is great but the lack of sleep is killing me.

Tonight my Sister and I are representing my parents at a family party. My little Cousin is 21 and is having her party tonight but it's also a leaving party as she is going to Italy for a year. But it is in a restaurant which is up stairs and she won't manage them. My Aunt from Glasgow came over yesterday and my Cousin is coming today with her partner and kids from Glasgow. So I plan on having a few drinks as last night I was on soft drinks.

Today is a great day :-)
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  #585  
Old Aug 04, 2018, 05:46 AM
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Blueberrybook Blueberrybook is offline
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Quote:
Originally Posted by wildflowerchild25 View Post
Went to my spine dr today. I have two herniated discs. That’s why I’m having so much pain. I’m not surprised and I’m happy to finally have an answer to what’s going on. I’m scheduled to have epidural injections next Friday. I’m hoping they help; I’m really tired of being in pain all the time.

Filled out paperwork for my job today. I never heard back from my supervisor as to whether he would be a reference but I had to complete the paperwork today so I hope he agrees bc I already put him down. I had no choice. So hopefully he won’t be a **** and will give me a good review. I’m very anxious about it though.

Other than that I’m good. Disappointed because I was hoping to see my boyfriend today but he has his son so he can’t come over. I might see him Sunday but probably not. Next chance will be Tuesday. So let’s hope! I miss him. Haven’t seen him since last Friday.

I am so sorry about your back but happy to hear about the job situation. I have a hard problem with references too. I only have 1 person from grad school on my Facebook acct. I can consult, and God knows where my advising professor went. I think he went back to Greece after teaching awhile in Californa.

I hope the injections help your back pain. My husband had a similar problem nearly 10 years ago that also stemmed into horrid sciatic pain except it was just one herniated disc in his lower back. It was right after my daughter had turned 1 year old, so it was really tough (she cruised holding on to stuff since 8 months old but only started walking on her own near 14 months old.) He got the injections, but they offered relief that didn't last long and ended up having to get back surgery. My husband can take a lot of pain, and he was crying & sometimes going outside and screaming with the pain, saying he wished he were dead (and he does not have mental health issues otherwise). He ultimately had to get back surgery, and I hope that doesn't happen to you. Luckily, the surgery only required a brief hospital stay (maybe 1 night?), and he was able to recover well at home (though he could not pick up our daughter for 6 weeks afterwards). He has not had problems since the surgery, thank God, only minor stuff that lasted a day or 2 and went away using Motrin. His problems stem from an old ice hockey injury he got in high school. He got a surgery on it while in high school, but then his surgeon went on an extended skiing vacation, and no one told him afterward that he needed to go to physical therapy afterwards until his surgeon returned for the followup in January. (I am pretty sure he got the surgery over Christmas break). He said the painkillers made him throw up, so he was in a great deal of pain. (He is very sensitive to medication for a person of 6'4".) The delay in physical therapy really gave him lifelong problems. But he was young and naive, and his parents were of the Silent Generation (Depression/WWII generation); they trusted the doctor was exactly right and questioned nothing the doctor said to them.
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Bipolar 1, PTSD, anorexia, panic disorder, ADHD

Seroquel, Cymbalta, propanolol, buspirone, Trazodone, gabapentin, lamotrigine, hydroxyzine,

There's a crack in everything. That is how the light gets in.
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  #586  
Old Aug 04, 2018, 05:58 AM
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Blueberrybook Blueberrybook is offline
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Quote:
Originally Posted by Cocosurviving View Post
My mother called me yesterday crying and upset. My oldest niece just had a baby and found out he is going to be blind. I’m not one of those people that believe everyone should be like a book of stamps “exactly a like and perfect”. God made everyone different for a reason and it’s ok to have a disability. There are programs and schools available for the disabled. That’s what I told her. I told her my niece needs to focus on getting a better job so she can get private insurance for her child. The job she works now does not offer insurance for her position.
Oh, that is tough, but they need to focus on the fact that there are blind people who can & do lead full, satisfying lives, maybe get into a support forum or group (surely something must exist for issues like that?) I agree with you about your niece needing to focus on the future and any financial help she might get. If not a better job, I believe there are benefits you can still get for disabled children. I think you are right that God makes everyone different for a reason. It might not make sense to us right now, but the baby could turn out to do something great or be a wonderful advocate for the blind. You never know.

I didn't know him well, but there was a blind boy nearly my age who attended my church growing up. I don't know his mental status exactly, of course, since he had to go to a school for the blind, but he was always a great person to be around, funny and also very supportive (finding the positive in every tough situation).
__________________
Bipolar 1, PTSD, anorexia, panic disorder, ADHD

Seroquel, Cymbalta, propanolol, buspirone, Trazodone, gabapentin, lamotrigine, hydroxyzine,

There's a crack in everything. That is how the light gets in.
--Leonard Cohen
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  #587  
Old Aug 04, 2018, 06:58 AM
yellow_fleurs yellow_fleurs is offline
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I am sleepy. Stayed up too late and have to get up to do a volunteer training thing today, but it kind of feels good to have plans and to know I will be able to help people. Also have plans with friends today. I think it will be good that I won't have too much time to think to myself.
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  #588  
Old Aug 04, 2018, 09:18 AM
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I went for a crazy long run, and my running app on my phone messed up, making me SO frustrated. I have an A Type personality, and when I run, I want to know exactly how far I run/walk. My route happened to be different from usual this morning too. Argh! It was mostly overcast, so the run was not too hard. I think it might rain soon as it is looking pretty overcast outside.

I emailed some people from church to act as job references for a resume, and all said OK. On Monday, I'm going to email the principal of my daughter's elementary school, as I've known her from PTO and other school events since my daughter was in kindergarten, and now my daughter is going into 5th grade. The principal doesn't really know my work skills in an office environment, but she does know what I have done with PTO, chaperoning field trips, and such. I think she will agree to serve as a job reference.

I got 7 hour of sleep last night according to FitBit, if it can be believed. Most nights this past week, I gotten just over 5 hours of sleep (sometimes logged by FitBit, sometimes by calculating from the clock). So yay for sleep! It tends to ground me and keep me from heading towards hypomania.
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Bipolar 1, PTSD, anorexia, panic disorder, ADHD

Seroquel, Cymbalta, propanolol, buspirone, Trazodone, gabapentin, lamotrigine, hydroxyzine,

There's a crack in everything. That is how the light gets in.
--Leonard Cohen
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  #589  
Old Aug 04, 2018, 11:47 AM
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Moose72 Moose72 is offline
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I went to judo this morning. I had a few brain farts- either the hypo dooing that or the increased meds or both don't...but one of the senseis i hadnt see for years was there and he kept getting on my case! I cant remember everything at once! Give me a *******ed break! Especially when my memory is full of artificial chemicals. That aside, it was a great session and i remembered a lot. Now Im waiting for my Saturday lunch group to show up. Im the first one here.
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  #590  
Old Aug 04, 2018, 11:58 AM
yellow_fleurs yellow_fleurs is offline
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Quote:
Originally Posted by Moose72 View Post
I went to judo this morning. I had a few brain farts- either the hypo dooing that or the increased meds or both don't...but one of the senseis i hadnt see for years was there and he kept getting on my case! I cant remember everything at once! Give me a *******ed break! Especially when my memory is full of artificial chemicals. That aside, it was a great session and i remembered a lot. Now Im waiting for my Saturday lunch group to show up. Im the first one here.
I am honestly impressed you showed up and did it at all. Does judo help your mood and mental health?
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  #591  
Old Aug 04, 2018, 12:24 PM
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Cocosurviving Cocosurviving is offline
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Quote:
Originally Posted by Miss Laura View Post
Hey Cocosurviving,

My friend was pregnant with twins 5 years ago. Everything was going well just keep her progress on Facebook up to date taking pictures of her bump etc. When she went into labour she posted it on Facebook. Then for a few days nothing appeared. We were all concerned but no one asked. 3 days after the birth. She post a fab post on Facebook telling us all that her twin boys were born. Happy and healthy. Then there was a however. Both boys who are identical have Downs Syndrome. She has dedicated the last 5 years to helping raise awareness for Downs in Scotland. She writes daily posts on Facebook telling us all what she, her Husband and the boys have done. She also set up a Facebook page for the boys to track their progress and all the fun and not so fun being a kid and having a disabilities brings. The boys have had a hard life in respects to their development. But are away to start school in 2 weeks time after the Summer holidays at a special school in our area. She is also part tine at uni (can't remember the exact course) and goes all over Scotland giving talks on life with Downs Syndrome. Even talking at the 2 local universities to student nurses and doctors. She is an inspiration. Your Niece doesn't need the blindness to define her child. Life has possibilities. As we all know. It's not going to be easy but yeah she will a lifetime of fun, tears and laughter with her child. Hope this helps
Thank you very much!
__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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  #592  
Old Aug 04, 2018, 12:33 PM
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Cocosurviving Cocosurviving is offline
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Quote:
Originally Posted by cln1812 View Post
Oh, that is tough, but they need to focus on the fact that there are blind people who can & do lead full, satisfying lives, maybe get into a support forum or group (surely something must exist for issues like that?) I agree with you about your niece needing to focus on the future and any financial help she might get. If not a better job, I believe there are benefits you can still get for disabled children. I think you are right that God makes everyone different for a reason. It might not make sense to us right now, but the baby could turn out to do something great or be a wonderful advocate for the blind. You never know.

I didn't know him well, but there was a blind boy nearly my age who attended my church growing up. I don't know his mental status exactly, of course, since he had to go to a school for the blind, but he was always a great person to be around, funny and also very supportive (finding the positive in every tough situation).
Thank you for replying it means a lot. I completely agree about the support group. My niece would definitely have to change jobs to help her son. She works at Dillard’s the money is actually not too bad but it offers no benefits for her or her child. They did not even offer maternity leave. I’m just afraid because my niece is very shy and does not like to speak up. Maybe she will think about what’s best for her baby
__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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  #593  
Old Aug 04, 2018, 01:39 PM
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Moose72 Moose72 is offline
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Quote:
Originally Posted by yellow_fleurs View Post
I am honestly impressed you showed up and did it at all. Does judo help your mood and mental health?
Yes. The endorphines make me feel well. It was still hard to not cry and yell at that sensei the way he was treating me. I realize that he just got over shingles but that's no excuse.
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Vraylar 3 mg
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Mania Sept/Oct 2024
Mania (July/August 2024)
Mania (December 2023)
Mixed episode/Hypomania (September 2023)
Depression, Anxiety and Intrusive thoughts (September 2021)
Depression & Psychosis (July/August 2021)
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  #594  
Old Aug 04, 2018, 02:15 PM
Unrigged64072835 Unrigged64072835 is offline
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Quote:
Originally Posted by cln1812 View Post
Sorry, I probably zoned out reading these posts. What did you do to hurt your talibone?

I broke my coccyx (tailbone) a couple years ago thinking I could just get right out there and roller skate when we took my daughter skating. Yeah, I was never good at my prime, and I hadn't touched a pair of skates in nearly 20 years, did an airborne flying fall and busted it right there. My sister studied physical therapy and told me even if I had broken it (which she suspected I had from the symptoms and force of the fall), there is really nothing you can do to heal it but ice and wait it out. I remember I sat on a yoga ball a lot. That seemed to help some. Probably also another time I overdid it on the NSAIDs.
I fell straight down on a concrete step several years ago. With some scoliosis and lordosis as well it's not been right. I had an RF nerve block for a while but I hurt my back again when moving my daughter out. I'll have to wait it out.
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  #595  
Old Aug 04, 2018, 02:36 PM
Unrigged64072835 Unrigged64072835 is offline
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Upstairs carpets were steam cleaned. Hope it clears up our sinuses. They almost got everything out. We're giving a carpet/floor allowance when we move anyway. Our cat was freaked out for a while but she's bouncing back.

We moved things around so my husband could rest. He ended up working on a plumbing project for the house. It wasn't something that needed to be done, either.

Daughter will be coming over tomorrow morning to practice parking. Had planned for this afternoon but it's really hot and muggy right now. She has redone her requirements for this job, so I hope she starts soon. She now has her online training certificate, so all she needs is a letter stating she has driving hours and make an appointment.

Back still hurts but I'm managing it. I'm thinking about doing the laundry Monday and spend tomorrow resting.

Mood is okay.

Hugs to everyone!
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  #596  
Old Aug 04, 2018, 05:02 PM
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Daonnachd Daonnachd is offline
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I had ECT yesterday. I was to show up at 11 for the IV so we were going to leave at 9. For some reason the friend taking me showed up at 7:30. So we left early and stopped at a huge bookstore on the way.

Otherwise, it was a smooth experience. My doc asked about memory so I admitted that there are gaps n my memory, but they're worth it considering what I was going through before.
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  #597  
Old Aug 04, 2018, 05:37 PM
Anonymous45023
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Doing alright. Cleaned and organized various areas (and currently considering a couple errands). Good to keep busy, right? But also BF's chronic pain and somewhat consequential constant sleeping gets to me and makes me sad. For but one example, I'd like to be playing some music to help motivation(!) And just break the tedious silence. Good God, the silence. How I hate it.

(Very small unit --500sqft, less when I actually measured it one time, so there's nowhere to go or way to play music without disturbing. Except phone and earbuds I guess, but it's not the same. :-/)
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  #598  
Old Aug 04, 2018, 05:55 PM
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Sunflower123 Sunflower123 is offline
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Member Since: Jan 2015
Location: USA
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Pushed myself to go out last night to a local meet up. We had a drum circle at the end of the meeting and banged on drums, tambourines and shakers and danced. At the end we howled. Seems weird but it was cathartic and I slept like a baby last night.

I think I’ll go again next month.

Sending hugs to those that are struggling.
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  #599  
Old Aug 04, 2018, 06:32 PM
Unrigged64072835 Unrigged64072835 is offline
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Quote:
Originally Posted by Jennifer 1967 View Post
Pushed myself to go out last night to a local meet up. We had a drum circle at the end of the meeting and banged on drums, tambourines and shakers and danced. At the end we howled. Seems weird but it was cathartic and I slept like a baby last night.

I think I’ll go again next month.

Sending hugs to those that are struggling.

I miss drum circles! I used to have a djembe and was pretty good with it. My cats decided to use it as a scratching post and I have just haven't got another one.
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  #600  
Old Aug 04, 2018, 11:18 PM
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wildflowerchild25 wildflowerchild25 is offline
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Member Since: Mar 2013
Location: NJ
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I had a great day today. I took my son to an indoor water park and went swimming for the first time in years. Usually the water is too cold for me so I never go but since this was indoors the temperature was regulated. I was cold in the beginning but stayed under the water and then it was fine.

Still worried about the reference thing but I figure at this point there’s nothing I can do. I already put him down. He’s a generally nice guy so I don’t think he’s ruin my chances at another job.

Other than that it was a good day.
__________________
Of course it is happening inside your head. But why on earth should that mean that it is not real?
-Albus Dumbledore

That’s life. If nothing else, that is life. It’s real. Sometimes it
f—-ing hurts. But it’s sort of all we have.
-Garden State
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