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Default Nov 10, 2019 at 03:23 PM
  #741
Quote:
Originally Posted by ~Christina View Post
Well I was up until after 7am, was busy reading. About 10 am I woke up to that “ Omg I think I am going to die kind of acid reflux! “

Ugh ugh ugh ! I have tried to lay down but yet I can’t despite the acid pills and liquid medications.. I think today will just have my stomach feeling terrible, ugh

I’m a little hurt/annoyed/sad/ annoyed with my husband.

It resolves around multiple medical problems and testing I’m having done.

I see my rheumatologist on the 14 th for our regular 6 week followup , which we have to decide what to do now that my pulmonary Doctor feels the Humira is what is causing me the problems. I have an appt on the 19th for a full Pulmonary functions test, both of those are appts 1.5 hours away. The 15th I have my liver ultrasound in my town, “well if your blood work shows fatty liver why do you need the US?? To compare to US done in Florida ,,

If your Pulmonary Doctor feels it’s Humira why do the pft? Unmmm because I need a baseline and I’ll likely need extra meds to help my ability to breath while the Humira leaves my system ?

This just infuriated me, god knows we are so strapped money wise but my liver and breathing are not something I can just ignore.

He’s told me before when he gets freaked out over my medical care and he has to find out how to pay for it I’m to just ignore him , well it’s really hard to ignore it !! 9/10 times I’m in the bathroom crying as quietly as I can.

Humira half life is 3-6 months !! I’m hoping my rheumatologist can assure me the SOB symptoms goes away quickly. * fingers crossed*

I’m done trying to explain to my husband that psoriatic arthritis (PsA ) is not just a normal aging process. It’s an auto immune disorder that is just going to keep destroying my joints and needs treatment to yes hopefully help with the pain but it’s more so about stopping further damage. The X-rays of my feet already show moderate to severe damage, id really like to continue to be able to walk for as long as I can. I’m only 52 for crying out loud..

I do not enjoying having to see doctors or having testing, but none of this can just be ignored. This amount of chronic shortness of breath can lead to irreversible damage to my lungs more than my asthma already does.

It’s just so damn upsetting !

I’m just going to go binge some ER and hopefully get my mind off this shyt!

Hope everyone has a good Sunday

Hugs and cookies~
Thinking of you and sending hugs and supportive vibes.
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Heart Nov 10, 2019 at 03:24 PM
  #742
It is heartbreaking to hear of you crying in your bathroom alone.
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Smile Nov 10, 2019 at 03:32 PM
  #743
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Originally Posted by BirdDancer View Post
He's from Czech Republic.
We visited Prague a while ago. Seeing the jewish quarters and cemetery was something else., all of those tombstones on top of each other.
I liked the potato dumplings....we stayed in touristy spots and were there 3 nights. Getting back to the airport from our hotel was a night mere. Our lift driver did not speak any english and kept wanting to drop us off at the wrong location....finally using an english translator on our phones he dropped us off close enough we just walked the way to where we needed to be.
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Default Nov 10, 2019 at 04:35 PM
  #744
Ugh I'm too full
Had champagne brunch this am for my daughter's bridal shower, them drove to our church where mum wanted to go to the meatball luncheon. They were just too close together. Was a nice shower.

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Default Nov 10, 2019 at 04:35 PM
  #745
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Originally Posted by bizi View Post
We visited Prague a while ago. Seeing the jewish quarters and cemetery was something else., all of those tombstones on top of each other.
I liked the potato dumplings....we stayed in touristy spots and were there 3 nights. Getting back to the airport from our hotel was a night mere. Our lift driver did not speak any english and kept wanting to drop us off at the wrong location....finally using an english translator on our phones he dropped us off close enough we just walked the way to where we needed to be.
bizi
I remember you went to Prague. Yes, the Jewish section of Prague is a very unique section. Prague has the oldest synagogue and Jewish cemetery in Europe.It's lucky that they were not destroyed during WWII.

There are many types of dumplings made in CZ. Dumplings are called "knedliky" in Czech. There are even different preparations for potato dumplings. If you would like a recipe for the most common type of Czech potato dumplings, just let me know. I have made them a number of times. I believe they do require a special Czech flour to make, but there is a way to make up for that with a product available in most US grocery stores.
 
 
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Default Nov 10, 2019 at 04:48 PM
  #746
Christina Sorry h doesn't understand and your going through all this medical ****.

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Red face Nov 10, 2019 at 05:07 PM
  #747
Quote:
Originally Posted by BirdDancer View Post
I remember you went to Prague. Yes, the Jewish section of Prague is a very unique section. Prague has the oldest synagogue and Jewish cemetery in Europe.It's lucky that they were not destroyed during WWII.

There are many types of dumplings made in CZ. Dumplings are called "knedliky" in Czech. There are even different preparations for potato dumplings. If you would like a recipe for the most common type of Czech potato dumplings, just let me know. I have made them a number of times. I believe they do require a special Czech flour to make, but there is a way to make up for that with a product available in most US grocery stores.
From what I understand Hitler keep the quarters unharmed because he wanted to make a museum of an extinct race....;(

Thanks for the offer...I will not be eating any potatoes for quite some time. Not on my diet. But thanks for the offer

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haldol 5mg 2x a day
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Default Nov 10, 2019 at 05:13 PM
  #748
I've been too busy to slow down enough to actually contribute anything lately. Now here I am, having just made peach cobbler with my son. So I've got a few minutes while it's in the oven baking.

Hello, all. I wish you well. I feel like I'm riding an hypomanic wave. ...and there we go. That's enough news from me.

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Default Nov 10, 2019 at 05:14 PM
  #749
Quote:
Originally Posted by ~Christina View Post
Well I was up until after 7am, was busy reading. About 10 am I woke up to that “ Omg I think I am going to die kind of acid reflux! “

Ugh ugh ugh ! I have tried to lay down but yet I can’t despite the acid pills and liquid medications.. I think today will just have my stomach feeling terrible, ugh

I’m a little hurt/annoyed/sad/ annoyed with my husband.

It revolves around multiple medical problems and testing I’m having done.

I see my rheumatologist on the 14 th for our regular 6 week followup , which we have to decide what to do now that my pulmonary Doctor feels the Humira is what is causing me the problems. I have an appt on the 19th for a full Pulmonary functions test, both of those are appts 1.5 hours away. The 15th I have my liver ultrasound in my town, “well if your blood work shows fatty liver why do you need the US?? To compare to US done in Florida ,,

If your Pulmonary Doctor feels it’s Humira why do the pft? Unmmm because I need a baseline and I’ll likely need extra meds to help my ability to breath while the Humira leaves my system ?

This just infuriated me, god knows we are so strapped money wise but my liver and breathing are not something I can just ignore.

He’s told me before when he gets freaked out over my medical care and he has to find out how to pay for it I’m to just ignore him , well it’s really hard to ignore it !! 9/10 times I’m in the bathroom crying as quietly as I can.

Humira half life is 3-6 months !! I’m hoping my rheumatologist can assure me the SOB symptoms goes away quickly. * fingers crossed*

I’m done trying to explain to my husband that psoriatic arthritis (PsA ) is not just a normal aging process. It’s an auto immune disorder that is just going to keep destroying my joints and needs treatment to yes hopefully help with the pain but it’s more so about stopping further damage. The X-rays of my feet already show moderate to severe damage, id really like to continue to be able to walk for as long as I can. I’m only 52 for crying out loud..

I do not enjoy having to see doctors or having testing, but none of this can just be ignored. This amount of chronic shortness of breath can lead to irreversible damage to my lungs more than my asthma already does.

It’s just so damn upsetting !

I’m just going to go binge some ER and hopefully get my mind off this shyt!

Hope everyone has a good Sunday

Hugs and cookies~
I hope there is some helpful solution soon, Christina. You don't deserve to be suffering with all of this...and so long.
 
 
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Default Nov 10, 2019 at 05:21 PM
  #750
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Originally Posted by ~Christina View Post
Ohhhh your cookies !!! Since you first started talk of your cookies again , I swear I always go through the bakery area at my grocery store and they just have plain ordinary things, and most I’ve tried at some point of another and they all tasted really awful.

Part of me wishes there was an actual bakery here in town but I’m also really happy there isn’t ! Lol

Happy baking !
I am not nearly as happy with the batch I made today compared to the same cookies I made last year. I made them a little differently today. They're more exactly as my mother-in-law described. I'm going back to last year's (my choices). I might even add a little more color to make them more holiday-like. They call for slivered almonds and chopped candied orange peel. I'm going to make them with a combo of sliced almonds, walnuts, the orange peel, and either chopped craisins or chopped candied cherries. Yes, I'm going to make them again sometime this week. I haven't told my hubby that, though.
 
 
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Default Nov 10, 2019 at 06:53 PM
  #751
Quote:
Originally Posted by BirdDancer View Post
I am not nearly as happy with the batch I made today compared to the same cookies I made last year. I made them a little differently today. They're more exactly as my mother-in-law described. I'm going back to last year's (my choices). I might even add a little more color to make them more holiday-like. They call for slivered almonds and chopped candied orange peel. I'm going to make them with a combo of sliced almonds, walnuts, the orange peel, and either chopped craisins or chopped candied cherries. Yes, I'm going to make them again sometime this week. I haven't told my hubby that, though.


All of it sounds just so amazing, the different flavors and textures. You put so much time and effort into it

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Default Nov 10, 2019 at 07:10 PM
  #752
My boss basically texted me this morning asking me to call in sick today. I'm still dealing with this bronchitis crap - and I went to work yesterday and couldn't walk 10 feet without becoming short of breath. My co-workers were concerned that they would have to call a medical emergency cold and admit me to the ER. Tomorrow's probably not looking so good either but I can't really afford to miss this much work. Ugh. The prednisone doesn't seem to be touching it although who knows how bad I'd be without it.
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Default Nov 10, 2019 at 07:33 PM
  #753
Thanks everyone for the support I am just so stressed.

I am very blessed to have my husband and normally he is always supportive and loving

As for all things medical ??

Our childhoods were much different... his parents simply didn’t believe in going to the doctor, you get cold/bronchitis your body will take care of it. In junior high once my husband had been sick for over 8 months she finally took him to the doctor and was scolded pretty severe about allowing him to be sick for so long he had pneumonia!! He was in a horrible car accident at age 16, someone hit him and his buddies head on. No seatbelts back then, he was lucky but in a lot of pain, he Rome numerous facial bones and his back, his mom gave him a couple days of pain meds and flushed them.

For me .. I was born 3 months premature so I had crappy lungs I weight 2lbs 13 ounces , but dropped to barely 2 lbs. this was back in 1967 so it’s surprising I made it to be honest. I never got a “ cold” it was always bronchitis or pneumonia “ to go along with it I always had ear infections, despite being seen by doctors and given meds I would be sick for weeks and weeks, to be honest my ear drums have ruptured at least 25-30 times each over the years , most recently last year. I have 50% hearing loss in one ear and just over 30 in the others. I had at least 25 sorts of tubes put in . Last pair I was 43-44 years old.

My parents had no choice but at the first sign of anything I was in the car headed to the doctor.

So much husband with his small experience you go to see doctor X and they give you a Med and no tests the med just fixes things.

Well now a days you see a specialist they need testing to determine exactly what’s going on before they just toss a “ cure all” pill.

He got very lucky with his 3 boys , they got sick a couple times a year , there mother know a couple nurses and they would get antibiotics for them. A few random broken hands or arm leg etc they were all in sports.

Now my daughter ... she unfortunately although full term gets sick like me , constant chronic ear infections. She’s also never had a cold it’s always bronchitis etc.

Our GP is willing to treat my husbands neuropathy and emphysema... because he’s doing well on the meds but if he doesn’t respond to an antibiotic etc he will refer him out. But so far he’s been lucky.

After 6 weeks of my junky lungs and doing all the standard things , there was no way to avoid seeing a specialist. The liver issue also.

I do easily get my feelings hurt and I feel like a burden... so when he can’t understand why I need seen by a specialists and having testing I’ll often wind up crying.

We just had a talk about this like 6 or so weeks ago” just ignore me when I freak out figuring how to pay for doctor bills “ we also were dragged to court over a hospital bill of his from 4-5 days ago we could never pay.

But right now ??? I just don’t want to have to “ ignore” the next time this happens I will likely stop and say “ hey ! I know it’s hard to find ways to pay for my Doctors but how about you go stress out in the bathroom so I can sit here in my comfortable chair and cry instead of being on the bathroom floor.”

It seriously would be cheaper for me to just die

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Default Nov 10, 2019 at 07:34 PM
  #754
Quote:
Originally Posted by Wild Coyote View Post
Here you are!
It's so funny, when I am about to write a note, asking how you are doing, you show up!
I hope your hypomania settles down asap.
Congrats on your daughter's engagement!

How is hubby these days?
I think of you both often!
Lovely to read an update!
Much Love to You!
Yeah funny how that works!

Hubster is doing well. He’s seeing neurologist next month I think. Last MRI report mentioned new activity but that’s for them to discuss.

The racing mind seems to have calmed for now. I have Seroquel PRN for sleep as needed.

Sorry to hear you’re hurting though. Hope there’s a resolution for that soon.

Much love to you too!
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Default Nov 10, 2019 at 07:59 PM
  #755
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Originally Posted by ~Christina View Post
Thanks everyone for the support I am just so stressed.

I am very blessed to have my husband and normally he is always supportive and loving

As for all things medical ??

Our childhoods were much different... his parents simply didn’t believe in going to the doctor, you get cold/bronchitis your body will take care of it. In junior high once my husband had been sick for over 8 months she finally took him to the doctor and was scolded pretty severe about allowing him to be sick for so long he had pneumonia!! He was in a horrible car accident at age 16, someone hit him and his buddies head on. No seatbelts back then, he was lucky but in a lot of pain, he Rome numerous facial bones and his back, his mom gave him a couple days of pain meds and flushed them.

For me .. I was born 3 months premature so I had crappy lungs I weight 2lbs 13 ounces , but dropped to barely 2 lbs. this was back in 1967 so it’s surprising I made it to be honest. I never got a “ cold” it was always bronchitis or pneumonia “ to go along with it I always had ear infections, despite being seen by doctors and given meds I would be sick for weeks and weeks, to be honest my ear drums have ruptured at least 25-30 times each over the years , most recently last year. I have 50% hearing loss in one ear and just over 30 in the others. I had at least 25 sorts of tubes put in . Last pair I was 43-44 years old.

My parents had no choice but at the first sign of anything I was in the car headed to the doctor.

So much husband with his small experience you go to see doctor X and they give you a Med and no tests the med just fixes things.

Well now a days you see a specialist they need testing to determine exactly what’s going on before they just toss a “ cure all” pill.

He got very lucky with his 3 boys , they got sick a couple times a year , there mother know a couple nurses and they would get antibiotics for them. A few random broken hands or arm leg etc they were all in sports.

Now my daughter ... she unfortunately although full term gets sick like me , constant chronic ear infections. She’s also never had a cold it’s always bronchitis etc.

Our GP is willing to treat my husbands neuropathy and emphysema... because he’s doing well on the meds but if he doesn’t respond to an antibiotic etc he will refer him out. But so far he’s been lucky.

After 6 weeks of my junky lungs and doing all the standard things , there was no way to avoid seeing a specialist. The liver issue also.

I do easily get my feelings hurt and I feel like a burden... so when he can’t understand why I need seen by a specialists and having testing I’ll often wind up crying.

We just had a talk about this like 6 or so weeks ago” just ignore me when I freak out figuring how to pay for doctor bills “ we also were dragged to court over a hospital bill of his from 4-5 days ago we could never pay.

But right now ??? I just don’t want to have to “ ignore” the next time this happens I will likely stop and say “ hey ! I know it’s hard to find ways to pay for my Doctors but how about you go stress out in the bathroom so I can sit here in my comfortable chair and cry instead of being on the bathroom floor.”

It seriously would be cheaper for me to just die
I don’t know what to say right now to help you feel better but it’s not for lack of wanting to help in any way I can. I know you have lots of friends to talk to but I’m here if you ever need me. I humbly don’t think it would be cheaper for you to just die and it definitely would leave the world a sadder, worse off place. I hope things start looking up for you soon. In the meantime, I’m here and I care.
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Heart Nov 10, 2019 at 08:04 PM
  #756
@~Christina know that you are needed and loved by many.
Your life has great value.
((((((HUGS))))))
bizi

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haldol 5mg 2x a day
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4-5 peri-colace for chronic constipation


multi vit,, vit c, at noon, tumeric, caffeine at noon
PRN Remeron 15mg at night,
zyprexa10mg under tongue,
requip2mg.





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Default Nov 10, 2019 at 08:05 PM
  #757
Quote:
Originally Posted by ~Christina View Post
Well I was up until after 7am, was busy reading. About 10 am I woke up to that “ Omg I think I am going to die kind of acid reflux! “

Ugh ugh ugh ! I have tried to lay down but yet I can’t despite the acid pills and liquid medications.. I think today will just have my stomach feeling terrible, ugh

I’m a little hurt/annoyed/sad/ annoyed with my husband.

It revolves around multiple medical problems and testing I’m having done.

I see my rheumatologist on the 14 th for our regular 6 week followup , which we have to decide what to do now that my pulmonary Doctor feels the Humira is what is causing me the problems. I have an appt on the 19th for a full Pulmonary functions test, both of those are appts 1.5 hours away. The 15th I have my liver ultrasound in my town, “well if your blood work shows fatty liver why do you need the US?? To compare to US done in Florida ,,

If your Pulmonary Doctor feels it’s Humira why do the pft? Unmmm because I need a baseline and I’ll likely need extra meds to help my ability to breath while the Humira leaves my system ?

This just infuriated me, god knows we are so strapped money wise but my liver and breathing are not something I can just ignore.

He’s told me before when he gets freaked out over my medical care and he has to find out how to pay for it I’m to just ignore him , well it’s really hard to ignore it !! 9/10 times I’m in the bathroom crying as quietly as I can.

Humira half life is 3-6 months !! I’m hoping my rheumatologist can assure me the SOB symptoms goes away quickly. * fingers crossed*

I’m done trying to explain to my husband that psoriatic arthritis (PsA ) is not just a normal aging process. It’s an auto immune disorder that is just going to keep destroying my joints and needs treatment to yes hopefully help with the pain but it’s more so about stopping further damage. The X-rays of my feet already show moderate to severe damage, id really like to continue to be able to walk for as long as I can. I’m only 52 for crying out loud..

I do not enjoy having to see doctors or having testing, but none of this can just be ignored. This amount of chronic shortness of breath can lead to irreversible damage to my lungs more than my asthma already does.

It’s just so damn upsetting !

I’m just going to go binge some ER and hopefully get my mind off this shyt!

Hope everyone has a good Sunday

Hugs and cookies~
Can understand about the acid reflux. I don’t even bother laying down, just sit straight up and try to sleep that way. Yeah right. One of the hardest parts is that my nighttime meds can cause it too.

Sorry your husband is giving you grief for the testing.

I do hope you have some resolution soon, and breathe easier.
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Default Nov 10, 2019 at 08:05 PM
  #758
Quote:
Originally Posted by Fharraige View Post
Can understand about the acid reflux. I don’t even bother laying down, just sit straight up and try to sleep that way. Yeah right. One of the hardest parts is that my nighttime meds can cause it too.


Sorry your husband is giving you grief for the testing.


I do hope you have some resolution soon, and breathe easier.


Thanks

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Default Nov 10, 2019 at 08:06 PM
  #759
Quote:
Originally Posted by bizi View Post
@~Christina know that you are needed and loved by many.
Your life has great value.
((((((HUGS))))))
bizi


Thanks so much

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Helping others gets me out of my own head ~
~Christina is offline  
 
Hugs from:
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Thanks for this!
bizi
~Christina
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Member Since Jul 2011
Location: Tennessee
Posts: 22,450 (SuperPoster!)
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Default Nov 10, 2019 at 08:07 PM
  #760
Quote:
Originally Posted by Jennifer 1967 View Post
I don’t know what to say right now to help you feel better but it’s not for lack of wanting to help in any way I can. I know you have lots of friends to talk to but I’m here if you ever need me. I humbly don’t think it would be cheaper for you to just die and it definitely would leave the world a sadder, worse off place. I hope things start looking up for you soon. In the meantime, I’m here and I care.


Thanks so much

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