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  #101  
Old Feb 10, 2020, 11:22 PM
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BeyondtheRainbow BeyondtheRainbow is offline
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So I need input. Tomorrow is my Bible study group. I want to go but someone is bringing food, food unspecified. However when she's brought food before it's always been pizza. Regardless it's likely to be junk or even healthy stuff I can't eat yet. My diet is much better but a surprising amount of foods are still off limits.

I want to go but the food may be torture. I'm good at not being upset by my mom eating in front of me but this is likely to have junk food and mom keeps the junk food I can eat hidden so I don't have to deal with seeing that. But a whole bunch of food (most people bring something) that I can't eat sounds frustrating at best, intolerable at worst.

What do you think?

Should I do it and white knuckle through it? Or just keep my break longer?
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  #102  
Old Feb 10, 2020, 11:29 PM
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Originally Posted by BeyondtheRainbow View Post
So I need input. Tomorrow is my Bible study group. I want to go but someone is bringing food, food unspecified. However when she's brought food before it's always been pizza. Regardless it's likely to be junk or even healthy stuff I can't eat yet. My diet is much better but a surprising amount of foods are still off limits.

I want to go but the food may be torture. I'm good at not being upset by my mom eating in front of me but this is likely to have junk food and mom keeps the junk food I can eat hidden so I don't have to deal with seeing that. But a whole bunch of food (most people bring something) that I can't eat sounds frustrating at best, intolerable at worst.

What do you think?

Should I do it and white knuckle through it? Or just keep my break longer?
Can you eat a meal ahead of time?
bizi
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  #103  
Old Feb 10, 2020, 11:35 PM
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Originally Posted by bizi View Post
Can you eat a meal ahead of time?
bizi
I could but it's the intense cravings for things I can't have that make me worry I'd go to the group and then find myself desperately either crying or blowing my diet. I can't begin to tell you how much I want pizza and pancakes right now and I can't get into both because of flour and milk in the ingredients. It's like going to spend 3 hours drooing over things I can't have but really want.
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  #104  
Old Feb 10, 2020, 11:39 PM
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Originally Posted by BirdDancer View Post
I'll try to be brief, for a change. I visited my father today. I thought about doing it today, but was almost skipping out until he called, asking me to come. So I went. I actually had the best visit with him that I've had in a very long time. He was attentive and seemed not only better than recently, but better than I can even remember. He spoke frankly about his fears and concerns. We had a real serious conversation, but also reminisced about pleasant times, too. I wasn't nervous during the visit, and when I departed, he seemed so happy that I came. I sent my sister an email about today. I didn't mention to her that I told my father how wonderful, brave, and strong she (my sister) has been this past year. Honestly, I don't know how my family would have managed without the leading role my sister has taken.

On a lighter note, I've developed a silly habit of pressing my finger against an area above (to the left of) my chin. I do this so much, without realizing, that a red irritation has developed. I put some cream on it, but I have to stop the habit. I guess it's a pretty piddly issue, comparatively. I used to grind my teeth all of the time, so badly that I eventually needed two root canals, and my front teeth are much shorter than in my youth. The teeth grinding has stopped...at least for now. There's always something!
I am so happy you had this good time together!!!!!
bizi
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multi vit,, vit c, at noon, tumeric, caffeine
Remeron at night,
zyprexa,
requip2-4mg





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  #105  
Old Feb 10, 2020, 11:40 PM
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Originally Posted by BeyondtheRainbow View Post
I could but it's the intense cravings for things I can't have that make me worry I'd go to the group and then find myself desperately either crying or blowing my diet. I can't begin to tell you how much I want pizza and pancakes right now and I can't get into both because of flour and milk in the ingredients. It's like going to spend 3 hours drooing over things I can't have but really want.
Don't go.
((((((HUGS)))))
you are allowed to say no, I am not feeling well.
bizi
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lamictal 2x a day
haldol 2x a day
cogentin 2x a day
klonipin , 1mg at night,
fish oil coq10
multi vit,, vit c, at noon, tumeric, caffeine
Remeron at night,
zyprexa,
requip2-4mg





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  #106  
Old Feb 10, 2020, 11:45 PM
yellow_fleurs yellow_fleurs is offline
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Originally Posted by BeyondtheRainbow View Post
I could but it's the intense cravings for things I can't have that make me worry I'd go to the group and then find myself desperately either crying or blowing my diet. I can't begin to tell you how much I want pizza and pancakes right now and I can't get into both because of flour and milk in the ingredients. It's like going to spend 3 hours drooing over things I can't have but really want.
On a related note, it might not taste as good, but there are vegan/gluten free pizzas you can buy. Have you tried any? Also there are some pretty decent mixes for pancakes that are gluten free, and buckwheat works well (if it's the gluten free type). I used to eat gluten and dairy free after an allergy test suggested I was allergic. I have since resumed eating both and it seems like I might not have an allergy. I got used to living without both of those things and it's hard, but got easier and I found things I enjoyed. I found focusing on food from countries that don't typically use a lot of wheat/dairy helped, such as Thai food or Mexican food (minus the dairy).
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  #107  
Old Feb 10, 2020, 11:58 PM
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Polibeth, I hope your husband will be OK.
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  #108  
Old Feb 11, 2020, 12:10 AM
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Originally Posted by Polibeth View Post
Husband was admitted to the hospital for observation. He was having dizziness and shortness of breath and called me from work to pick him up and take him to the hospital. He's having a stress test tomorrow and he's stressing about it (no pun intended).

Anyway, now I'm taking care of the whole house and our son. It's not overwhelming - but I literally just started recovering from an episode.
Keep us posted about your hubby.
You will be just fine running the house.....
(((((HUGS)))))
bizi
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haldol 2x a day
cogentin 2x a day
klonipin , 1mg at night,
fish oil coq10
multi vit,, vit c, at noon, tumeric, caffeine
Remeron at night,
zyprexa,
requip2-4mg





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  #109  
Old Feb 11, 2020, 12:46 AM
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Originally Posted by BeyondtheRainbow View Post
I could but it's the intense cravings for things I can't have that make me worry I'd go to the group and then find myself desperately either crying or blowing my diet. I can't begin to tell you how much I want pizza and pancakes right now and I can't get into both because of flour and milk in the ingredients. It's like going to spend 3 hours drooing over things I can't have but really want.


I know you want to go. What do you think of staying home?
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  #110  
Old Feb 11, 2020, 12:49 AM
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Originally Posted by ~Christina View Post
Whew ~~~~

Busy busy forum tonight. I think I got caught up lol

Slept good but it was almost 6 am when I finally was able to sleep , we had more nasty storms blow through. We lost a damn tree to lightening.. it was smoking. Maybe 300 feet away from the house.. we felt the electricity and the thunder literally shook the entire house so bad the dogs freaked along with us.

One jumped on me (they both weight 60/70 lbs each ) and literally just shook and cried while trying to climb into me. Poor guy our other dog was freaking out and barking and growling like crazy running from room to room.

We are very surprised we didn’t have any windows break.

Tomorrow more rain but no real bad waves. Wednesday however has another chance of nasty storms. Such a wet thunderstorm winter with a tornado last week.

Hugs and cookies ~
Glad you are all ok!
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  #111  
Old Feb 11, 2020, 12:53 AM
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Originally Posted by Jester's Rags View Post
I had my first therapy appointment today. This is the first time in about 15 years for me. I hope she’ll be able to provide some guidance or good techniques. I plan on going to 3 or 4 sessions before I decide if i think therapy is for me.
It sounds like you are being quite fair in considering its helpfulness. Did you identify any goals yet?

I've had pdocs/therapists I thought were really not a good match. They turned out to be great!

I hope you find whatever you need.
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  #112  
Old Feb 11, 2020, 01:17 AM
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Originally Posted by Polibeth View Post
Husband was admitted to the hospital for observation. He was having dizziness and shortness of breath and called me from work to pick him up and take him to the hospital. He's having a stress test tomorrow and he's stressing about it (no pun intended).

Anyway, now I'm taking care of the whole house and our son. It's not overwhelming - but I literally just started recovering from an episode.
This must be a bit stressful. I know I'd be concerned about my spouse. I hope all turns out well. Please do let us know?

Love and Prayers
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  #113  
Old Feb 11, 2020, 02:23 AM
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Originally Posted by ~Christina View Post
Why would a person be under state supervision to take meds ?!!
Either due to a protracted civil commitment and subsequent court ruling by Med Court requiring meds as a condition of being released from the hospital, as a requirement for preparation for dealng with potential criminal charges, so called aid and assist people, or if one has pled insanity to something, in which case an entity called the Psychiatric Secuirty Review Board is in charge of their lives for a fixed period of time. But if you do great off meds, that all goes away. And of course, the only place they will permit you to stop your meds is in the hospital. Crazy system. Just nuts.
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Last edited by bpcyclist; Feb 11, 2020 at 03:30 AM.
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  #114  
Old Feb 11, 2020, 02:29 AM
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~Christina ~Christina is offline
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Originally Posted by Polibeth View Post
Husband was admitted to the hospital for observation. He was having dizziness and shortness of breath and called me from work to pick him up and take him to the hospital. He's having a stress test tomorrow and he's stressing about it (no pun intended).


Anyway, now I'm taking care of the whole house and our son. It's not overwhelming - but I literally just started recovering from an episode.


Oh how scary, my husband was in the hospital on August , out of the blue also .. I hope they find out what’s going on quickly and get him back on his feet and feeling well

You are both in my thoughts
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  #115  
Old Feb 11, 2020, 02:32 AM
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Originally Posted by BeyondtheRainbow View Post
So I need input. Tomorrow is my Bible study group. I want to go but someone is bringing food, food unspecified. However when she's brought food before it's always been pizza. Regardless it's likely to be junk or even healthy stuff I can't eat yet. My diet is much better but a surprising amount of foods are still off limits.


I want to go but the food may be torture. I'm good at not being upset by my mom eating in front of me but this is likely to have junk food and mom keeps the junk food I can eat hidden so I don't have to deal with seeing that. But a whole bunch of food (most people bring something) that I can't eat sounds frustrating at best, intolerable at worst.


What do you think?


Should I do it and white knuckle through it? Or just keep my break longer?


Can you fix yourself some good foods you can eat to take that you can have, yeah will suck not being able to eat things they usually have but I’m sure they will all understand and not make a big deal out of it ... I know you have been missing bible study.
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  #116  
Old Feb 11, 2020, 02:42 AM
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Originally Posted by bpcyclist View Post
Either due to a protracted civil commitment and subsequent court ruling by Med Court requiring meds as a condition of being released from the hospital, as a requirement for preparation for dealng with potential criminal charges, so called aid and assist people, or if one has pled insanity to something, in which case an entity called the Psychiatric Secuirty Review Board is in charge of their lives for a fixed period of time. But if you do great off meds, that all goes away. And of coure, the only place they will permit you to stop your meds is in the hospital. Crazy system. Just nuts.


Okay that makes sense if there’s criminal charges where a defense lawyer could claim its possible mental illness being part of the reason for breaking laws.

I thought you meant just random people could be court ordered to stay on meds. We had a member here once that made an attempt and they were ordered to stay in there county, had to be on meds that blood test could prove they were being taken because they made an attempt.. I never understood that... like it’s a persons right to punch there ticket if they really want to .... isn’t it ??!!
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  #117  
Old Feb 11, 2020, 03:36 AM
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Originally Posted by ~Christina View Post
Okay that makes sense if there’s criminal charges where a defense lawyer could claim its possible mental illness being part of the reason for breaking laws.

I thought you meant just random people could be court ordered to stay on meds. We had a member here once that made an attempt and they were ordered to stay in there county, had to be on meds that blood test could prove they were being taken because they made an attempt.. I never understood that... like it’s a persons right to punch there ticket if they really want to .... isn’t it ??!!
Yeah, I agree with you. Patients ought to have a big say in whether they take meds or not. We have a quite busy Med Court system in this state and patients win their cases there all the time, I am happy to report. Not really sure how it works in other states.
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  #118  
Old Feb 11, 2020, 07:13 AM
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Originally Posted by ~Christina View Post
Call them... personally I’d try cogentin I know in the past it’s been a miracle when I just can’t sit still. I used the Indural and cogentin and everything settled down after a couple doses.

I hope you find relief ASAP !!!!
Thanks. I'll ask for Cogentin. I desperately need something -- anything!

I'm willing to increase my propranolol dose if that helps, but I wish my pdoc would have let me choose which med to try because I would have opted for Cogentin in the first place (based on what people said in my akathisia/RLS thread). But no, his assistant called me back, refused me an appt, and said I'm now going to take propranolol. I had no input.

@bizi: I left a voicemail just now.
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  #119  
Old Feb 11, 2020, 09:57 AM
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Originally Posted by bluebicycle View Post
Thanks. I'll ask for Cogentin. I desperately need something -- anything!

I'm willing to increase my propranolol dose if that helps, but I wish my pdoc would have let me choose which med to try because I would have opted for Cogentin in the first place (based on what people said in my akathisia/RLS thread). But no, his assistant called me back, refused me an appt, and said I'm now going to take propranolol. I had no input.

@bizi: I left a voicemail just now.
I do not understand why his assistant has so much power?

Have you had the opportunity to discuss this with him?

Akathisia is serious business. It can push people over the edge. Seriously.
We are here for you, Blue,
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  #120  
Old Feb 11, 2020, 10:11 AM
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Originally Posted by bpcyclist View Post
Yeah, I agree with you. Patients ought to have a big say in whether they take meds or not. We have a quite busy Med Court system in this state and patients win their cases there all the time, I am happy to report. Not really sure how it works in other states.
Patients are assured the right to not take meds in this state. There is a huge advocacy group for this.

I generally agree. However, this is causing a huge problems within our newly built, thoughtfully staffed state hospital. The staff have all been seriously injured, are out on WC/ LTD/SSDI now and we keep it staffed by importing traveling nurses, etc. This provides zero consistency in the care, treatment and discharge planning for patients interested in stabilizing and returning to the community.

What to do?
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Last edited by Wild Coyote; Feb 11, 2020 at 10:38 AM.
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  #121  
Old Feb 11, 2020, 10:23 AM
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Back at the library again to just not do anything self-injurious. Emotions all over the place. I'm sick of this. The increase in Risperdal got rid of my mild psychosis, but it's doing nothing for my mood. I can't decide if I'll go to group or not. They haven't been very helpful lately.
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  #122  
Old Feb 11, 2020, 10:25 AM
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I got up at 4:30 this morning to watch Rosencrantz and Guildenstern Are Dead with my son before taking him to school. That was fun. It had been more than 15 years since last seeing it, if I remember correctly.

In addition to that I'm experiencing serious pain in my lower back. It makes it very difficult to put on or take off my shoes and socks.
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  #123  
Old Feb 11, 2020, 11:18 AM
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Originally Posted by Wild Coyote View Post
Patients are assured the right to not take meds in this state. There is a huge advocacy group for this.

I generally agree. However, this is causing a huge problems within our newly built, thoughtfully staffed state hospital. The staff have all been seriously injured, are out on WC/ LTD/SSDI now and we keep it staffed by importing traveling nurses, etc. This provides zero consistency in the care, treatment and discharge planning for patients interested in stabilizing and returning to the community.

What to do?
I can imagine that is a bit tough.

I know that most people in the psychiatric hospitals are not violent, but some can be. Or even if not violent to staff or other patients, manic and/or psychotic behavior can be scary for other patients to witness. I think that in those cases, if they're not being medicated/sedated, they need isolation or in very severe cases, be restrained. Some of such patients will complain about that, but what else can be done? Are they supposed to run around the wards terrorizing all of the other patients (and even staff) or damaging property? I see sedation as a much better alternative, personally, and I'm speaking as a former psych hospital patient that needed isolation/restraint to GET sedating medications administered and calm down.

Of course I believe there is a line between being physically abused by staff, in a psych ward, and having necessary isolation/restraint. But the fact is, if a person is acting in a violent way, simply asking "Joey, may we escort you to a quieter room?" is not gonna cut the mustard! Joey's butt might need to be dragged there (with him kicking, screaming, fighting and maybe biting), at the very least. And if he's not restrained with straps, he might start slamming his head into a cinder block wall. It's not always pretty! And Joey is likely not a bad guy. He's just a sick guy.

[I just randomly chose the name Joey. Sorry if anyone's name is Joey, here.]

Last edited by Anonymous46341; Feb 11, 2020 at 11:46 AM.
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  #124  
Old Feb 11, 2020, 12:24 PM
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I do not understand why his assistant has so much power?

Have you had the opportunity to discuss this with him?

Akathisia is serious business. It can push people over the edge. Seriously.
We are here for you, Blue,
I was wondering this too. Wasn't their assistant just fired for overstepping and playing doctor? Or am I not remembering correctly?

Regardless, I hope you can get some relief soon.
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  #125  
Old Feb 11, 2020, 12:29 PM
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I can imagine that is a bit tough.

I know that most people in the psychiatric hospitals are not violent, but some can be. Or even if not violent to staff or other patients, manic and/or psychotic behavior can be scary for other patients to witness. I think that in those cases, if they're not being medicated/sedated, they need isolation or in very severe cases, be restrained. Some of such patients will complain about that, but what else can be done? Are they supposed to run around the wards terrorizing all of the other patients (and even staff) or damaging property? I see sedation as a much better alternative, personally, and I'm speaking as a former psych hospital patient that needed isolation/restraint to GET sedating medications administered and calm down.

Of course I believe there is a line between being physically abused by staff, in a psych ward, and having necessary isolation/restraint. But the fact is, if a person is acting in a violent way, simply asking "Joey, may we escort you to a quieter room?" is not gonna cut the mustard! Joey's butt might need to be dragged there (with him kicking, screaming, fighting and maybe biting), at the very least. And if he's not restrained with straps, he might start slamming his head into a cinder block wall. It's not always pretty! And Joey is likely not a bad guy. He's just a sick guy.

[I just randomly chose the name Joey. Sorry if anyone's name is Joey, here.]
Thanks, BirdDancer!

We've replaced an ancient, dark, hopeless and understaffed mess with a brand new state of the art state hospital unit. This unit was also carefully staffed. Employees did not necessarily get hired on simply because they were staff at the former unit. I believe it houses 20 patients at max. In some ways, it was not the best planning, as the demand for beds there is much higher. At the same time, 50% of the beds are shut down due to the ongoing violence and shortage of staff.

The state had excellent intentions.

A law allowing sedation, under certain circumstances, is under consideration.

We have a duty to uphold the laws which allow for the refusal of meds.
We also have a duty to provide a safe environment for all, both patients and staff.

We will see what transpires.
__________________
May we each fully claim the courage to live from our hearts, to allow Love, Faith and Hope to enLighten our paths.
Hugs from:
bizi, bpcyclist, Sunflower123
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