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  #376  
Old Feb 17, 2020, 10:35 PM
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Nammu Nammu is offline
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Originally Posted by ~Christina View Post
I would be blunt , I’d say ... since you don’t call me back I felt my only choice was to decrease Med since increased Inderal has done nothing to help. Why can I not speak to MY Pdoc about Cogentin ?? I have researched it and it has little side effects it will either help or not .... I need a plan today. I have suffered enough. So ....
Blue, this!
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  #377  
Old Feb 17, 2020, 10:36 PM
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~Christina ~Christina is offline
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Well we get results of my husbands MRI’s tomorrow. My nerves are just fried.

Our weather from 60’s then 18-20 by am ... it literally is killing me and certainly question what is the point at times.
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  #378  
Old Feb 17, 2020, 10:39 PM
*Beth* *Beth* is offline
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Quote:
Originally Posted by ~Christina View Post
I would be blunt , I’d say ... since you don’t call me back I felt my only choice was to decrease Med since increased Inderal has done nothing to help. Why can I not speak to MY Pdoc about Cogentin ?? I have researched it and it has little side effects it will either help or not .... I need a plan today. I have suffered enough. So ....

^^^ Agree!
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  #379  
Old Feb 17, 2020, 10:42 PM
*Beth* *Beth* is offline
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Quote:
Originally Posted by ~Christina View Post
Well we get results of my husbands MRI’s tomorrow. My nerves are just fried.

Our weather from 60’s then 18-20 by am ... it literally is killing me and certainly question what is the point at times.

Hi Christina, is it that the weather causes your pain level to increase?

I truly hope that the MRI results are all good.
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  #380  
Old Feb 17, 2020, 11:17 PM
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Well hello! Long time no chat, I couldn't tell you the last time I posted an update here. In fact if I had to guess you all probably thought I fell off the face of the forums. Which I did; I typically hang out in the chatrooms. I have a lot to update you all on actually.

M and I celebrated our one year of dating in January! We actually celebrated it while on vacation with our nieces. Our families actually had a mutual Thanksgiving last year so all our families were able to meet each other. He and I just got back from our yearly Valentine's Day getaway. It's always nice to getaway even if just for the weekend.

Work is going fantastically. I celebrated a year with this organization in October. I'm still working with the CEO so I must be doing something right. I still love my job even though someday's it leaves me feeling a little frustrated. I ended up taking a gap year between my Bachelor's Degree and my Master's Degree. I start Master's level coursework in the Fall.

Medication wise that hasn't changed since my last update. Still on Trintellix still has made a hell of difference with my depression. Really I haven't noticed my depression trying to come back into my life. Anxiety wise I'm good; I actually went back to two Buspar's a day instead of three. Heart wise minus a slight little issue in January, but other than that the heart has been fine. Heart rate is better than it ever has been.

In other news my cat turned 5 over the weekend.

Things are really good in my life and I just wanted to check in since someone reminded me that they hadn't seen me post in a while.

I hope all you wonderful people are doing fantastic. Yes I will try and get better at checking in even if it just once a week.

Lots of hugs and love to all of you
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  #381  
Old Feb 17, 2020, 11:28 PM
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Nammu Nammu is offline
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Indeed SeaCat, long time. Hija, glad things are going so well.
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…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
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  #382  
Old Feb 18, 2020, 01:05 AM
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~Christina ~Christina is offline
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Quote:
Originally Posted by BethRags View Post


Hi Christina, is it that the weather causes your pain level to increase?

I truly hope that the MRI results are all good.


Thanks

When our temps go from 60 to 20 everyone I know with Fibro is like a barometer. We sense changes before the news reports it. The drastic temp changes up or down is likely to cause a flare. Flares can last days to weeks to months , it just sucks all the way around.

My PsA pain ? Well I started Xeljanz almost 3 weeks ago and it can take a month to 3 months to see if it’s helping. Unlike Fibro , there is no test for. PsA on the other hand can be measured by the rate of imflammation rate in or our body. So it’s a wait and see if I get joint pain relief or if it stays the same or progressive. This medication is in pill form my previous meds have been injections.

So ...hurry up and wait

Im glad you have gotten relief from your injection
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  #383  
Old Feb 18, 2020, 04:59 AM
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TheSeaCat, it's nice to see you back! What lovely things you describe.
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  #384  
Old Feb 18, 2020, 05:24 AM
*Beth* *Beth* is offline
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Quote:
Originally Posted by ~Christina View Post
Thanks

When our temps go from 60 to 20 everyone I know with Fibro is like a barometer. We sense changes before the news reports it. The drastic temp changes up or down is likely to cause a flare. Flares can last days to weeks to months , it just sucks all the way around.

My PsA pain ? Well I started Xeljanz almost 3 weeks ago and it can take a month to 3 months to see if it’s helping. Unlike Fibro , there is no test for. PsA on the other hand can be measured by the rate of imflammation rate in or our body. So it’s a wait and see if I get joint pain relief or if it stays the same or progressive. This medication is in pill form my previous meds have been injections.

So ...hurry up and wait

Im glad you have gotten relief from your injection

I'm so sorry that you have to cope with so much pain. It can drag you down and beat you. But your attitude is inspiring.
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  #385  
Old Feb 18, 2020, 05:26 AM
*Beth* *Beth* is offline
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Aww, a very happy birthday to your cat
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  #386  
Old Feb 18, 2020, 06:39 AM
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Quote:
Originally Posted by ~Christina View Post
I would be blunt , I’d say ... since you don’t call me back I felt my only choice was to decrease Med since increased Inderal has done nothing to help. Why can I not speak to MY Pdoc about Cogentin ?? I have researched it and it has little side effects it will either help or not .... I need a plan today. I have suffered enough. So ....
Yeah, I can try that. I doubt she'll let me talk to him, though. I tried that once and his (former) assistant said, "Sorry, but he's busy all day everyday. That's what I am here for." B_tch!

I can try again, but I expect the same canned response. I also asked this current lady if she was a doctor or nurse, and she blatantly ignored my question. "What is going on?" she said instead of answering my question. So I'm guessing that's a no to her being a medical person. So I don't think she "gets it" with this akathisia crap. Then again, maybe my pdoc doesn't get it either since he keeps brushing me off.

I would get a new pdoc, but the waiting lists are long everywhere. It's frustrating when you have to go without a pdoc for 6 months like I had to. Never again!
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  #387  
Old Feb 18, 2020, 07:40 AM
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bluebicyle, when do you finally get to see your pdoc face-to-face? I truly think he must know this entire story. His office system is clearly not working properly.
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  #388  
Old Feb 18, 2020, 08:36 AM
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Victoria'smom Victoria'smom is offline
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Blue I'd start looking for a new dr. This is an ongoing issue.
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  #389  
Old Feb 18, 2020, 08:46 AM
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I printed out a list of symptoms to give to pdoc. I don't think she'll want to change anything but we'll see. My AP is pretty high already and she usually wants to reduce it.
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  #390  
Old Feb 18, 2020, 09:02 AM
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Please keep me in your thoughts and/or prayers. I’m having so much difficulty right now it’s overwhelming and crippling. I’m on a verge of a panic attack 24/7 and it’s causing immense problems in my life. Please send good vibes my way. Please, I’m desperate for any help at this point .
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  #391  
Old Feb 18, 2020, 09:11 AM
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Originally Posted by MarcusAurelius View Post
Please keep me in your thoughts and/or prayers. I’m having so much difficulty right now it’s overwhelming and crippling. I’m on a verge of a panic attack 24/7 and it’s causing immense problems in my life. Please send good vibes my way. Please, I’m desperate for any help at this point .
Sending good vibes your way, MarcusAuelius. 🌈🌄
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  #392  
Old Feb 18, 2020, 09:53 AM
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Sunflower123 Sunflower123 is offline
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Originally Posted by MarcusAurelius View Post
Please keep me in your thoughts and/or prayers. I’m having so much difficulty right now it’s overwhelming and crippling. I’m on a verge of a panic attack 24/7 and it’s causing immense problems in my life. Please send good vibes my way. Please, I’m desperate for any help at this point .
You are in my thoughts and prayers. I hope things get better soon.
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  #393  
Old Feb 18, 2020, 09:57 AM
Gabyunbound Gabyunbound is offline
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Me too, actually. I was put on propranolol which helped immensely, but then had to cut it in half because it lowered my blood pressure and heart rate to dangerous levels. But I'm lucky, this dose has still kept the tremors at bay.
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  #394  
Old Feb 18, 2020, 10:04 AM
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Today I have my usual weekly therapy session. I also have my French class, which is held every Tuesday evening (for about 8 weeks). I only started to review the materials this morning (day of the class). That's not good. I should be reviewing at least a few days before the class. The instructor only sent the review and worksheet assignment this Saturday (a long weekend for hubby). I wish he'd sent it earlier. I just put French review/study appointments on my calendar for two other days of the week.

I'm not sure what I'll talk about in therapy today. I'm not up to starting anything new. This past week has been uneventful, other than my French class, which went well. I will go out to lunch with my sister on Thursday. I really look forward to that. I think she does, too. We'll meet at a restaurant half-way between our houses. We agreed not to talk about our dad that day. It should be a "sisters day".

Last edited by Anonymous46341; Feb 18, 2020 at 10:59 AM.
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  #395  
Old Feb 18, 2020, 10:21 AM
*Beth* *Beth* is offline
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Originally Posted by MarcusAurelius View Post
Please keep me in your thoughts and/or prayers. I’m having so much difficulty right now it’s overwhelming and crippling. I’m on a verge of a panic attack 24/7 and it’s causing immense problems in my life. Please send good vibes my way. Please, I’m desperate for any help at this point .

You're in my prayers, MA. Hang in there!
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  #396  
Old Feb 18, 2020, 10:23 AM
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My in-laws came with food to have a birthday supper with us for my son last night. Without saying anything to me about it my FIL sent me a list of job openings after he got home. He frustrates me with this because I already have a job, one that fits me fairly well; low demand; time off for ECT; understanding boss.
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  #397  
Old Feb 18, 2020, 10:23 AM
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Suffering from a severe cold. Didn’t get out of bed Sunday and Monday at all except to shower briefly. Couldn’t fall asleep last night because I was in severe sinus pain/pressure. My whole face hurt. Finally an hour after taking Sudafed and Advil it cleared up enough to sleep. Woke up this morning with the Advil having worn off so my throat was on fire. I decided to take off from work even though we just had a four day weekend. I couldn’t fathom making it through, even with medication. I hope that if I sleep for awhile today and then sleep well tonight I will feel well enough to go tomorrow. I got a dr note for today and tomorrow just in case. Ugh. I’ve had colds before but this one takes the cake. I’m just glad it’s not the flu.
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  #398  
Old Feb 18, 2020, 10:36 AM
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Well, second time in what? A year? A governmental agency that I used to deal with wrote to say they'd lost all my private info to thievery. <Insert major league expletives here.> This time it was apparently the physical theft of a computer chock full of info. What's more ridiculous is that it happened to an associated company THAT I NEVER EVEN USED!! So why the **** had they even given them my info?! For all the good of this "we don't share your info" BS they all spout, I might as well just stand on the street passing it out!

This stuff REALLY pisses me off.


Also, I really don't want to get up today.
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  #399  
Old Feb 18, 2020, 10:44 AM
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Daonnachd Daonnachd is offline
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Well, second time in what? A year? A governmental agency that I used to deal with wrote to say they'd lost all my private info to thievery. <Insert major league expletives here.> This time it was apparently the physical theft of a computer chock full of info. What's more ridiculous is that it happened to an associated company THAT I NEVER EVEN USED!! So why the **** had they even given them my info?! For all the good of this "were don't share your info" BS they all spout, I might as well just stand on the street passing it out!

This stuff REALLY pisses me off.
I'm sorry, IZ. That really does make ones blood boil.
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  #400  
Old Feb 18, 2020, 11:52 AM
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Moose72 Moose72 is offline
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Quote:
Originally Posted by MarcusAurelius View Post
Please keep me in your thoughts and/or prayers. I’m having so much difficulty right now it’s overwhelming and crippling. I’m on a verge of a panic attack 24/7 and it’s causing immense problems in my life. Please send good vibes my way. Please, I’m desperate for any help at this point .
Thinking happy thoughts and sending them via telepathy straight to you! I hope things get better.
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