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  #901  
Old Jun 20, 2022, 04:15 PM
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Aurelius710 Aurelius710 is offline
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Quote:
Originally Posted by convalescence View Post
Ok, so… a few things

1. Ever since being on Depakote I’ve felt better. A lot better. I don’t know what it is, why it is. My new psychiatrist has me way better pegged than my previous NP.

2. Why does EVERY NP wanna shove antipsychotics down your throat? (IME) I don’t respond well to them usually and they make me more anxious than not. Still not understanding that.

3. I saw my old NP and she put in that I had major depression even though I clearly told her about my manic episode and that my therapist and pdoc both said that it was mania. Every time I’ve been on mono therapy with an antidepressant I notice no real improvement.

Make. It. Make. Sense.

Idk I’m just really irate about my old NP & how my life got so messed up over this & being treated for the wrong condition.
I totally get it. I had hypomania brought on by antidepressants while I was inpatient. Under the care of doctors and nurses. They saw me switch, in the course of twelve hours, from down in the basement and then some DOWN to (if I was physically able) doing cartwheels in the day room pumped and excited UP and thought, "Huh." I didn't get diagnosed until two years later

Glad you're feeling better. Finding a med that works is a crapshoot sometimes. I know it was a crapshoot for me. I don't how my doctors and I found what works, but I'll take this even mind and run with it!
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I will permit it to pass over me and through me.
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Where the fear has gone there will be nothing. Only I will remain."
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  #902  
Old Jun 20, 2022, 06:02 PM
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My sister is going to fly all the way across the country to get Dad's power of attorney and start the ball rolling. They're going to put him in ICU. He's also got a groin infection. Maybe that's where his pain was coming from. I don't envy my sister. I don't think I could do what she's doing. I'd be so lost! She's getting a quote on cleaning up his condo- hopefully Dad pays for that. It's people who work on hoarders and the like not just a regular cleaning service. They're trying to get him a bed in the ICU. I'm not sure if that's because of the blood clots or just his general presentation. But everyone agrees that he can't go back to living in his condo- ever. I'm sure once he's feeling better he may have something to say about that. That's why my sister needs to get power of attorney.
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  #903  
Old Jun 20, 2022, 06:10 PM
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Just an fyi…if you’re on ssdi and govt offers to write off your student loans (mine was only $2k)… dont do it!!!

What they don’t tell you is you’re now ineligible for any student loans!! I have no idea how I’ll afford school after this fall.
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  #904  
Old Jun 20, 2022, 06:29 PM
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Quote:
Originally Posted by HALLIEBETH87 View Post
Just an fyi…if you’re on ssdi and govt offers to write off your student loans (mine was only $2k)… dont do it!!!

What they don’t tell you is you’re now ineligible for any student loans!! I have no idea how I’ll afford school after this fall.
Yikes! I'm on SSI but thanks for the warning.
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  #905  
Old Jun 20, 2022, 06:44 PM
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Yeah, I figured that was the catch. Sorry. I applied for it about 3 years ago. When I finally accepted I can't do school. Can you try to get it overturned? How much school do you have left? Are you still eligible for pell or no?
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  #906  
Old Jun 20, 2022, 06:52 PM
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I still got a grant and state level grant. Wasnt enough.
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  #907  
Old Jun 20, 2022, 06:53 PM
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I have two semesters for bachelors
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  #908  
Old Jun 20, 2022, 07:00 PM
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Oh no. I'm so sorry.
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  #909  
Old Jun 20, 2022, 07:38 PM
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My sister flies out at 3 am my dad's time on Wednesday morning to go deal with our dad. She's got an hour and a half layover because there were no direct flights. She said she might fly me out if necessary but I'm confident that she can do this on her own. I told her I'm glad it's her going and not me and she said "That's fair". I really hope she gets there before they discharge him because there are some services that can be taken advantage of while he's still in the hospital that my sister should be present for. He's in the ICU on a bipap because he has emphysema. That's good. I use a bipap. It's basically a CPAP but CPAP stands for continuous positive airway pressure and bipap has two different pressures- one when you breath in and one when you breathe out. He has a bacterial infection in his groin and they are giving him antibiotics. I am confident that my sister can do this! If I have to go then so be it. She is going to take his car and use it to get around while she's there. She asked me to say a prayer for her. There's some important paperwork that she will have to deal with in addition to getting the power of attorney. I can't remember what it's called at the moment.
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  #910  
Old Jun 20, 2022, 08:06 PM
*Beth* *Beth* is offline
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Quote:
Originally Posted by Nammu View Post
Oooo Beth you were with Van Gogh! What a great Person to share a dream with!

Yes, it was. I've been interested in, and studied, his life since I was quite young. I've been truly blessed to see his paintings in Los Angeles (an extensive art show event featuring most of his work), NYC, and Paris. His work in person is so magnificent, if there's a God Vincent channeled It. The very sad part, though, is that most of his paintings were done on small canvases. He could seldom afford larger canvases. Something I saw in person was his fingerprints where he'd painted with his fingers, instead of with a brush. That was such a spiritual experience for me. At the L.A. exhibit there were grown men in business suits with tears running down their faces while looking at Vincent's art work.

Anyway, yes - the dream held a lot of meaning for me.
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  #911  
Old Jun 20, 2022, 08:34 PM
*Beth* *Beth* is offline
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Originally Posted by *Beth* View Post

I was on 12.5mg for a year or so, then 25mg for a few months. A while ago, for 7 years, I was on a higher dose of Seroquel. I had plenty of side effects, but no benefits - except good sleep.

unlived - I meant to explain that in very low doses Seroquel is used for insomnia in people who have a major mental illness.
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  #912  
Old Jun 20, 2022, 08:39 PM
*Beth* *Beth* is offline
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Quote:
Originally Posted by Blue_Bird View Post
Have a dentist appointment today, actually have 3 dentist appointments this week. Sucks. Two of them are for fillings and one of them is for a root canal. This is my own fault though for having used to purge due to my eating disorder, I really screwed up my teeth.

Mustachio had her last dose of pain meds yesterday morning. She seems to be doing well. She woke me up this morning purring and cuddling with me. That’s the best way to wake up.

I also am meeting with my care manager today to fill out the part-time job application for the library. It will be my first job. The only time I ever really worked was a temp job for 2 weeks when I was like 19. But I ended up having to get on disability eventually because of my bipolar/schizoaffective getting bad (it started when getting bad when I was 14). So if I get this job it will be my first real job. That’s embarrassing to admit because I’m 28 but I just was never stable enough to even work part-time, was always in and out of the hospital, but now I am and I definitely want to see how it goes.

I hope everyone has a peaceful day

Sent from my iPhone using Tapatalk

I am so sorry about you having to undergo all that dental work

Hurray for Miss M.!

Sweetie...there is nothing to be embarrassed about. I feel so happy for you, to be applying for a library job. Please be proud!
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  #913  
Old Jun 20, 2022, 08:46 PM
*Beth* *Beth* is offline
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Quote:
Originally Posted by Aurelius710 View Post
Managed to get a month of colestipol filled and picked up. It cost me $30 I couldn't afford, but at least it wasn't $50 I couldn't afford? Greatest health care system in the world, right? Pfizer gets their money, I get a one month reprieve and nothing is solved in the long term. At least my stomach is starting to get back to normal.

Speaking about long term, something's gotta give financially. Either my former employer has got to stop fighting giving me unemployment (They're on the hook for a couple grand at this point.), SSI/SSDI becomes a immediately viable option, I win the lottery, or I get good, close and stable employment (That is not hard labor, because, you know, blood clots?) very soon.

If I can get some regular cash flow coming in, I can at least try and address some of these health issues. Just an aside, I've had more than one person this past week tell me the old pre-Obamacare canard, "Just go to the ER if you don't have insurance!" The ER plugs holes. They don't manage chronic ailments. If a chronic ailment (like say blood clots in the brain) becomes a "hole" to plug, the cost of treatment just became exponentially higher. Stroke treatment and rehabilitation is more expensive than an MRI and some statins, but one wonders, is this a bug or a feature? I know this: It's not long term thinking.

I have a big packet from the law firm I'm exploring SSI/SSDI with. I'm going to open it up and go over it with them on the phone. I'm also going to see if I can something for my cat's stomach. She been puking more often lately. Apart from the hairballs, no other signs of distress. She's older, so I'm going to see about special diets, and any extras I can giver her to calm her stomach. I have a therapy appointment, where (Story of my life nowadays) I've got to talk finances. Basically, figure out an arrangement where I can keep seeing him and he gets some portion of money. Finally, the lawn. I've been putting it off, but if I let it grow any further, I won't be able to address it. I just have to decide how to do that. Fun day.

I'm so glad to know that you have the colestipol for a month.

OH YEAH...our healthcare system is just divine!

Sounds like your cat may have a food intolerance issue going on. A different diet can work wonders.
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  #914  
Old Jun 20, 2022, 08:56 PM
*Beth* *Beth* is offline
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Originally Posted by wildflowerchild25 View Post
I. Feel. Horrible. I got sick after eating a chicken skewer on Saturday night and I’ve been extremely nauseous with intestinal distress since then. I don’t know if it’s food poisoning or my general GI distress x1000. My boys didn’t get sick from the chicken but I do seem to remember picking the skewer that I thought was cooked but it maybe wasn’t thoroughly thinking at least it’ll be me who gets food poisoning not my boys so maybe I was right! Ugh I wish I had zofran or something to stop the intense nausea. I can’t even eat plain brown rice or saltines without nausea.

I’m supposed to work my second job today but I’m almost certain that’s not happening. I wish I had Gatorade but I literally can’t leave the house! There’s a convenience store 3 minutes away but I can’t be sure they have it and I can’t take the chance of driving, especially if they don’t.

Anyway I officially resigned from my job today but my boss said my contract is through the summer so he’s not going to say anything just yet, that way I’ll still get my summer pay and I’ll have the chance to change my mind and return. He’s very nice.

Ugh, how horrible to feel sick like that. Are you feeling any better?

If not, some thoughts...do you have Doordash or Uber, some kind of delivery service, that can bring you Gatorade? Those services are a rip-off, but can be helpful when in dire need.

Dramamine (either regular or non-drowsy) can stop nausea. Ginger (tea or in any form)...ginger tea and peppermint tea brewed together. Hot or iced, whatever feels right. Also, those teas mixed with carbonated water - La Croix or any carbonated water.

Of course, all of these require shopping. Is there anyone to shop for you?

Good for your boss - and good for you, for taking such a big and healthy step
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  #915  
Old Jun 20, 2022, 08:58 PM
*Beth* *Beth* is offline
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Originally Posted by Jennifer 1967 View Post
I’m not sleeping well and it’s catching up with me. I also can’t shake this respiratory illness I brought home from Florida (it’s been 9 days). I agreed to take a COVID test today and call the doctor about the congestion in my head and lungs. Mom tearfully told me she couldn’t handle losing 2 children. I felt bad. It’s not like I brought this on myself or asked for it.

Grieving is a tough gig. I made it to 4:00 yesterday before I couldn’t take anymore and wanted to curl up in a little ball. Progress I think. One day at a time. One minute at a time some days.

Today we’re taking mom to the movies and eating out. I think I may try to go float. I’m really not feeling well in a lot of ways. The Zoloft has unpleasant side effects but it is working to help take the edge of.

The street that connects our neighborhood to the main thoroughfare is closed today from 8-4 for paving. What a pain. Instead of 1 mile to get to the CVS for the COVID test, I’ll have to drive 5 miles the back way through a maze of roads.

I hope everybody has a peaceful day. Hugs to all.

(((((BIG hug)))))
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  #916  
Old Jun 20, 2022, 09:00 PM
*Beth* *Beth* is offline
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Originally Posted by Mountaindewed View Post
Last night was tough. I was a bit heavy on the melatonin and way way too low on food. I got a little bit less then 4 hours of sleep. Then I was up for a lot of the night after midnight but I managed a bit more sleep around 2:30. But I was so anxious because I was hungry. I couldn't fix anything in the microwave though because my mom was sleeping in the living room. I ate an Oreo and a donut though. Finally I got back to sleep a bit more at 5 and I woke up at 6:15 and at 9 I went to Taco Bell and got a crap ton of food. And yeah, I for sure needed to eat. I feel so much better now. I had a cheesy roll up, a gordita crunch, a burrito supreme, and chips and cheese dip. Plus a medium fruit punch Gatorade. But actually eating something is what I needed to help me. I've barely eaten in days. My gallbladder seems ok from everything.

My nephews are still over. My sister and brother in law left early this morning and my sister just texted and hasn't heard from the plumber yet. She has her appointment in a bit so I'm not sure whats going on at the moment.

Update: As of now my nephews are still here. My sister made it to her appointment ok. The plumber is just getting to their house. No clue how long it will take. I still have more Taco Bell left for dinner. The other day someone supposedly leaked an episode of Seasme Street from the 70's that was pulled for being too scary. I had been following the story for years so I spent the afternoon watching the episode and reading the Reddit and lost media wiki comments.

Hahaha, what was the 70's Ses episode about?
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  #917  
Old Jun 20, 2022, 09:05 PM
*Beth* *Beth* is offline
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Originally Posted by Moose72 View Post
Update:. My dad's hip doesn't appear to be broken which is good because they don't know with his lungs whether he'd make it through surgery. However, they did a complete work up on him and his d-dimer is positive meaning that he's got blood clots somewhere. They are going to x-ray his lungs.

I've read your posts and I understand how majorly stressful it is to have a parent in the situation your dad is in. Without a doubt, he needs to be in assisted living. Many elderly people fight against assisted living, but the truth is...it can be wonderful in many ways.

You know I/we are here for you, Moose
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  #918  
Old Jun 20, 2022, 09:09 PM
*Beth* *Beth* is offline
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Originally Posted by Aurelius710 View Post
...Then he doused it with gasoline and set it on fire. Alrighty then.

...

Uhh. Umm. Yeeahh...that is a bit, just a bit, extreme
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  #919  
Old Jun 20, 2022, 09:18 PM
*Beth* *Beth* is offline
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Quote:
Originally Posted by Jennifer 1967 View Post
I’m too sick to go out to the movie today. I can feel that I’ve taken a turn for the worse. Hopefully I can get some help today from my doctor.

How're you doing?
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  #920  
Old Jun 20, 2022, 09:20 PM
*Beth* *Beth* is offline
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Originally Posted by Nammu View Post
I still think of them as little sweet hamburgers! What does that say about me, ugly American?

Nah, I think they secretly are little sweet hamburgers. French ones. And truth be told, the French stole macrons from the Italians.
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  #921  
Old Jun 20, 2022, 09:21 PM
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I'm adjitatated hope I didn't put us in another $2.5k in debt because I talked to a breeder and she put me on a list for a puppy in November. She said no obligation. I really want the dog. I love my current dog but I would like a service dog. My conditions are getting worse. So having a dog full trained but I don't have $100 extra dollars a month for another dog especially now. So hope I can figure it out by then. I got Approved!!! I don't know what that means but next step when I am READY is to put a deposit down. I'm not going to do that. I have to talk to everyone first.
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  #922  
Old Jun 20, 2022, 09:26 PM
*Beth* *Beth* is offline
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Originally Posted by convalescence View Post
Ok, so… a few things

1. Ever since being on Depakote I’ve felt better. A lot better. I don’t know what it is, why it is. My new psychiatrist has me way better pegged than my previous NP.

2. Why does EVERY NP wanna shove antipsychotics down your throat? (IME) I don’t respond well to them usually and they make me more anxious than not. Still not understanding that.

3. I saw my old NP and she put in that I had major depression even though I clearly told her about my manic episode and that my therapist and pdoc both said that it was mania. Every time I’ve been on mono therapy with an antidepressant I notice no real improvement.

Make. It. Make. Sense.

Idk I’m just really irate about my old NP & how my life got so messed up over this & being treated for the wrong condition.

I have lost faith in psychiatry and psychotherapy to the point at which I don't think I'll ever truly trust those people again. No more "miss nice." Uh-uh.

That said, it is wonderful that your current pdoc gets it, and that Depakote is helping you! It does help a lot of people.

I am beginning to suspect that they push for AP's so their patients will be quiet and cooperative.
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  #923  
Old Jun 20, 2022, 09:36 PM
*Beth* *Beth* is offline
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Originally Posted by Moose72 View Post
My sister is going to fly all the way across the country to get Dad's power of attorney and start the ball rolling. They're going to put him in ICU. He's also got a groin infection. Maybe that's where his pain was coming from. I don't envy my sister. I don't think I could do what she's doing. I'd be so lost! She's getting a quote on cleaning up his condo- hopefully Dad pays for that. It's people who work on hoarders and the like not just a regular cleaning service. They're trying to get him a bed in the ICU. I'm not sure if that's because of the blood clots or just his general presentation. But everyone agrees that he can't go back to living in his condo- ever. I'm sure once he's feeling better he may have something to say about that. That's why my sister needs to get power of attorney.

Yep, your sis has it right about your dad needing someone to have PofA.
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  #924  
Old Jun 20, 2022, 09:42 PM
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Originally Posted by *Beth* View Post


Ugh, how horrible to feel sick like that. Are you feeling any better?

If not, some thoughts...do you have Doordash or Uber, some kind of delivery service, that can bring you Gatorade? Those services are a rip-off, but can be helpful when in dire need.

Dramamine (either regular or non-drowsy) can stop nausea. Ginger (tea or in any form)...ginger tea and peppermint tea brewed together. Hot or iced, whatever feels right. Also, those teas mixed with carbonated water - La Croix or any carbonated water.

Of course, all of these require shopping. Is there anyone to shop for you?

Good for your boss - and good for you, for taking such a big and healthy step
I did end up ordering Gatorade through Grubhub. I felt sick until about 11:45 and then chanced Corn Pops with soy milk because I was STARVING. That didn’t make me sick, and then I was craving salt so I made air fryer French fries. I was iffy about those but they didn’t bother me either. BUT I tried to eat plain egg noodles right before work and I felt awful! I don’t understand! It was too late to call out so I went in and then by the time I got there (I had RS drive me) I was ok. Like as soon as the egg noodles traveled out I was fine? It’s so bizarre and definitely a bit worrying.

I had a garden salad for dinner because what could be safer than veggies and I feel ok. I dunno. I just want to get the endoscopy done to either prove or disprove an ulcer and then move on from there.

Thanks for all the suggestions, I MUST go grocery shopping tomorrow so I’ll be sure to grab some peppermint tea. I remember ginger wasn’t so great for me.
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  #925  
Old Jun 20, 2022, 10:08 PM
*Beth* *Beth* is offline
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Listening to the BeeGees and skating! I swear, when my skates are on my feet I feel like I own my soul and spirit, like they've been returned to me.

I saw a t-shirt. I want it. It says, "I don't need therapy, I just need to go roller skating." The best, the best.

So my 3rd Caplyta dose was last night. I don't know what glitched, but I couldn't fall asleep for over an hour. I hope it works better tonight.

I awoke during the night and had flashing colorful zig-zags whether my eyes were opened or closed. That was kinda creepy, but it wasn't happening the next time I woke up.

My thinking is very slowed down and less noisy. In a way, it's a relief. In another way I can't hold thoughts well, can't remember my thoughts. My responses are slow, so driving is a bit risky because I can't respond as carefully as I like to.

I do not have dizziness, which is fantastic. Some sense of being off balance, but not too bad. I put my skates on and said the hell with it.

Something interesting - I've been experiencing mild nausea for many months. Don't know why; I assume it's the Gabapentin. But the Caplyta makes the queasiness go away. That is such a relief.

I do have some waves of feeling ridiculously hungry, but I'm really watching it. Been drinking La Croix and orange juice to make my stomach feel full.

So the jury is still out on Caplyta. I'll definitely hang with it until I have my PA appointment in 9 days.

I have an appointment with Dr. B. tomorrow, late afternoon. Then 2 more sessions before he leaves. Supposedly Mary will return to work (if she remembers where it is) on 7/7. We'll see. I sure have a sh*tload to dump on her. I will never be as nice and cooperative again as I always was with her - which is probably to my advantage.

~ Sweet love to each and all ~ warm hugs~**~**~***
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