Planing for the future

Victoria'smom · Oct 06, 2024, 01:16 PM

Usually my review is every 7 years. I just had a review 20 months ago because I moved states. They're currently reviewing my stuff to add my husband. I have not been asked for any information other than what they have. My therapist notes and pdoc notes say I'm in training. But they also say I'm psychotic, having trouble with daily living skills and not sleeping while doing a med change.

Victoria'smom · Oct 06, 2024, 01:20 PM

I can't cut the potato or dress it up. I can do frozen vegetables. Maybe they have pre cut potatoes as frozen vegetables. The problem is we only get so much on EBT and it's not enough for my needs. With the SDit we would have gotten more EBT and more housing assistance but I don't have the SDit anymore.

SquarePegGuy · Oct 06, 2024, 01:42 PM

Quote:

Originally Posted by unaluna

Well, i think you are putting the cart before the horse. I worked in Information Technology for 30 years and never made it to Project Manager. And i was the fastest and most accurate computer programmer every place i worked at. No brag, just fact. I always got the most difficult assignments, and did in one day what took others a week.-snip-

You were too valuable to waste on a management position.

Victoria'smom · Oct 06, 2024, 01:43 PM

I understand you guys are saying there should be better services but reality is there is not. I loose much more than $1,300 a month if I do this. I loose my disability status. Which is not easy to get back. Unfortunately I have to risk it to pay for my disability. No one is going to hand me more money.

Blueberrybook · Oct 06, 2024, 02:26 PM

Weren't you having psychotic thoughts while taking care of a toddler less than a month ago? Unless I'm mistaken & that was someone else? I'd say no, you are NOT in a stable place yet & it's crazy to start down a road that can disrupt and/or lose you benefits and stress you out. I'd say your care team is absolutely correct in their assumptions that you need to relax right now, get in a good, stable place mentally before starting down a stressful, life-altering path and making these decisions.

Victoria'smom · Oct 06, 2024, 02:34 PM

I never said i was stable. I'm still psychotic, not keeping my meds down, not sleeping, changing meds. But that doesn't stop me from talking classes 4 hours a day.

raspberrytorte · Oct 06, 2024, 02:37 PM

Are you on disability for your physical disability as well?

Also, what Blueberrybook said.

Victoria'smom · Oct 06, 2024, 02:39 PM

I was originally on disability for my physical disability.. my mental disability got added later.

divine1966 · Oct 06, 2024, 02:58 PM

Quote:

Originally Posted by Victoria'smom

I don't think I could get a loan either but that is an option.

can't boil because I can't lift the pan of water, or drain the water. Even a small pan. My right side is effected by cerebral palsy. So I can't lift my leg high enough for the shower. I only have use of 1 arm and can't hold things with the other.

The degrees are in preparation for the job if I can't consistently spend 4 hours a day working for at least 8 months I can't hold a job permanently. And the degree gives me access to 6 months internships @ $32/hr. If I can't do the internship then I can't do the job.

I'm good at IT. Honestly all I need for IT is to update my portfolio but the degrees are for me, imposter syndrome and internships.

The only thing I got from the DR is a letter saying what's required to be in my next apartment.

We've each taken youscience exams.

My plan takes 2 years and provides money at 22 months.

I'll call VR but it's a 3 month waiting time just for a case manager. 3 months is a long time to sit on your hands when I can be getting an education.

It’s despicable you have to wait 3 months. Here you are eligible much sooner. But honestly even if you have to wait 3 months. It’s better than not getting any vocational support

divine1966 · Oct 06, 2024, 04:11 PM

Can you use egg cooker? Rice cooker? There are equipments that you can use without much lifting.

Victoria'smom · Oct 06, 2024, 08:00 PM

So I'm done. We are looking at a housing loan for accessibility that goes off my SSI payment. I don't care if it's in this state. My sister has a dentist that will work with her instead of just pulling teeth. If I can find a place in that state I'll drive there.

Nammu · Oct 06, 2024, 08:14 PM

You really need to be stable to be making these life changing decisions. Just impulsively deciding this or that hasn’t worked for you or your family. You’ve moved a number of times and each time it seems worse. You say this is the best state yet compared to your past posts you were better off before you moved.

Victoria'smom · Oct 06, 2024, 08:23 PM

Oh this state is by far better $400 extra a month, lower rent, medical for all.

Victoria'smom · Oct 06, 2024, 08:28 PM

We've never impulsively moved.

divine1966 · Oct 06, 2024, 08:56 PM

Quote:

Originally Posted by Victoria'smom

Oh this state is by far better $400 extra a month, lower rent, medical for all.

It’s higher cost of living state so that’s why it’s 400 more. It’s not a mystery. You’d be getting Medicaid everywhere since you are all disabled. The place isn’t livable. Of course it’s low rent. Rat infested and not suitable for physical disability. Rats????Person with cerebral palsy has a tub she can’t climb into? In a place that is supposed to be for disabled?

Social services are non existent. No government help. Vocational rehab way worse than all of us have in our states. Overall the area you described is awful. Assistance you are receiving is minimal. Can’t even get dentures when people in other states get that covered.

I am sure there are worse places but the place you are at sounds horrible. I don’t know how you can say it’s a good place when you consistently described it as a he$$ on Earth

divine1966 · Oct 06, 2024, 08:59 PM

Housing loan? You can’t get a loan with no income.

Victoria'smom · Oct 06, 2024, 10:38 PM

Yes as disabled I get medical. My family doesn't in most states. They are classified by the state not federally. We would loose their assistance moving.

Yes, I qualify it's for people on disability. So I would pay about $200 a month.

Victoria'smom · Oct 06, 2024, 11:02 PM

Yes it is better here. I see pdoc every 2 weeks vs 3 months. I have a therapist now. I've never lived in an assessable unit. I don't have people trying to break into my house. I have a bus system. There's no cockroachs. Where we have always lived has been miserable. But we have a home. We have food. We have medical. Things that ALL the other states failed.

Victoria'smom · Oct 06, 2024, 11:31 PM

I understand I don't have high standards but this is what poverty in America looks like. I can either move and try yet again or rely on myself.

Blueberrybook · Oct 07, 2024, 07:49 AM

I don't see why it is impossible to cook things like rice, boiled eggs, pasta if your husband is home. It sounds like he doesn't work? And I assume he doesn't have the physical disabilities you do? Why can't he use a knife to cut, boil & cook rice, pasta, potatoes, etc.?

Victoria'smom · Oct 07, 2024, 08:18 AM

That's the thing, if I'm hungry and he's sleeping I have to wake him up. If he's really sick I'm ****ed. He was in bed for a week, we lived off cereal bars and almost got evicted because I couldn't take care of the place. My mom had to fly in. Then there was the time he was in the hospital for a week. Victoria help me through that but she's moving. Then there was the time my nephew needed help for two months. I did sponge baths then. Without Victoria I wouldn't be able to do it and even then it wasn't good.

I need a place I can:
Do laundry (in unit w/d)
Shower (walk in shower)
Do dishes ( double sink)
Cook basic meals ( straight line open kitchen)
Limited stairs
First floor
Garbage on same floor

It's not a lot I'm asking for. I just need a place I can modify.

Victoria'smom · Oct 07, 2024, 08:26 AM

I'm also scared if something happens to him what happens to me. He has heart failure. His dad had his first heart attack at 45. Is only in his 60 an in and out of the hospital. I need to succeed and move so I don't get institutionalized.

Victoria'smom · Oct 08, 2024, 09:06 AM

So we're taking the week, talking to our therapists and then going after a home loan that's special for disabled people. We would move a couple hours away but stay in the same state so we keep our Drs and services. I'd go after a PCA immediately in the new county. We'd continue classes at our pace. The only bad thing is we would be paying $300 more a month than right now. But we would pass our section 8 to Victoria. So basically we'd be paying for 2 places with that $300. We'd remodel the bathroom before moving in.

divine1966 · Oct 08, 2024, 09:27 AM

Quote:

Originally Posted by Victoria'smom

So we're taking the week, talking to our therapists and then going after a home loan that's special for disabled people. We would move a couple hours away but stay in the same state so we keep our Drs and services. I'd go after a PCA immediately in the new county. We'd continue classes at our pace. The only bad thing is we would be paying $300 more a month than right now. But we would pass our section 8 to Victoria. So basically we'd be paying for 2 places with that $300. We'd remodel the bathroom before moving in.

Remodeling the bathroom costs thousands of dollars. Just be careful

Victoria'smom · Oct 08, 2024, 09:51 AM

There's a $10k grant and then a $40k loan if you need more. I'm going to look up how much it costs now.

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