Liver

They portal messaged me. Said they found a spot on my liver yesterday with the ultrasound. It might just be fat but they want me to have an MRI. It’s scheduled for the very end of July, arrival time 10:15 pm. Yes pm! Start time 11:15. Last time my liver doctor ordered an MRI of my liver, my insurance wouldn’t pay! It’s $7,000! I certainly can’t pay that so it got cancelled. So we may have to do a prior authorization. I dunno. This is scary. On top of that, I’m going to have to get my piercings changed to plastic temporarily because you can’t have metal in an MRI. That will cost me a few dollars. I got drenched in the downpour this afternoon. My Liver Dr wanted me to get my hemoglobin tested because I’ve been feeling dizzy. We’ll see what that says. My psych nurse wants to decrease my Klonopin in the a.m. because she thinks the gabapentin and Klonopin work on the same brain receptors although she said it should go away once my body gets used to the higher gabapentin doses. Hmm. I told her I’d let her know about the hemoglobin before we changed my Klonopin. Otherwise, I’m feeling pretty good after my shower and putting on clean dry clothes. Side is sore but not bad. I can take 500 of Tylenol every six hours for side pain. So yeah. That's really all for now

My hemoglobin levels are normal. No concern for bleeding my liver NP said!

I just got the pathology report in my portal but before looking up all the medical terms I lost the report! I can’t find it again! So I asked my liver NP to explain it to me.

I found it! It doesn’t seem to say much???

My liver NP called today. Not much has changed since 2019’s biopsy. Minimal scarring but there’s a med for it that she’s going try to get approved for me. Still fatty liver but she said insurance may cover wegovy etc for fatty liver specifically but not until next year. But that’s hopeful at least.

I start Gabapentin 600 tonight. We’ll see how I feel on that.

They’re working on getting my MRI approved for July 28th.

My peer support girl wants to get together mid July. Guess that’s better than nothing. I take the cat to the vet on the 7th for her yearly check up then see my primary on the 10th for a check up.

My liver NP wants me to get a CT scan as I’m having upper abdominal pain off and on all day. The biopsy site is bruised but not sore. They want me to go in today. Meanwhile I’m still nauseated from the gabapentin which I have not taken the new double dose yet thank goodness! That’s a bedtime med.

I'm sorry hope they can figure it out.

Had the CT scan. Home now waiting for my Dr to call

Dr never called. Results not in portal. I hope my liver Np contacts me Monday with the results. I portal messaged her.

My pdoc’s on call nurse said I should take 200 gabapentin instead of the scheduled 600 my Pdoc ordered. Unsure if the dizziness and nausea are from my liver condition or the gabapentin.

Talked with the on call liver Dr to get my ct scan results as they never showed up in my portal. They were looking for internal bleeding because I had upper right quadrant pain which is where part of your liver is. But there is no internal bleeding and my liver NP will call me on Monday. Now I’m having rectal bleeding but only on the toilet paper.

My liver doctor called. They found a blood clot in my lung! Dunno if it's just one? That could make you feel dizzy! So I'm doubling my blood thinner and seeing my primary dr hopefully Monday. It never ends, does it? This is why I'm on blood thinners 24/7- because I've had PEs in 2005 and 2008. Going off them for two or actually 3 days plus surgery produced favorable conditions for another one.

Time for lunch!

I’m so tired! Exhaustion is one sign of a PE. Guess I should sleep.

Just up from a long nap!

Just saw my whole cT scan report in my portal. Some good but some bad. Guess all I can do is wait for my dr to go over it with me.

Having a coffee at Panera alone. My friend refuses to join me. Says the coffee is too expensive but it’s way cheaper than Starbucks or Tim Hortons and there are free refills!

I woke up with my back and middle sore., But I’m getting a new bed! The neighbors next to my mom don’t have room for a crib with the bed so they’re giving me the bed! Queen size! My current bed is broken and only a full. Had it for 10+ years! It was my grandmother’s before that.

I never napped! I drove to Christine’s and felt dizzy and nauseated all the way! Same at her apartment. So I called the nurse line who said go to ER because of my having a PE. Christine drove me. They gave me a room right away! That never happens here! Got an IV port and an EKG. Bloodwork going. Dr coming in at some point! My head is starting to hurt. That’s all I know. Dizzy when I walk but in bed here I feel better. I’ll keep you updated as long as I have battery and signal!

Waiting on bloodwork. I’m still dizzy. Waiting on zofran for nausea. Got an IV port but nothing hooked up. No idea how I’m getting home.

They are doing a CT. They tried to flush my HAND IV very quickly and I screamed in pain- twice! So I had to get another iv in my arm and now CT is busy so I’m waiting again- indefinitely! They did an ultrasound but no word on results. They talked about admitting me but I’m stuck in the ER waiting for CT.

Waiting for CT scan results. Had them check my blood sugar. 76. I have normal blood sugar and 76 is low so they gave me a tiny box of apple juice. They were debating if they were admitting me. It’s shift change. Got a new Dr. haven’t seen them yet. They’re probably waiting until my cT results come back.

I guess they are waiting to see if being back on the warfarin is handling the PE. Im glad they are keeping an eye on you.

I haven’t had my blood thinner tonight.

My mom went back to sleep! I called her for a ride as I’m being discharged. The dr finally came by. They’re going to feed me and give me my blood thinner. I have an infection in my lung and the blood clot. They are discharging me though. They want me to see my primary dr in 3 days.

Getting picked up. Been discharged.