[Double]

Hi, I've been experiencing a condition that is really debilitating me, and I terribly need to get some things off my chest. This is going to be fun.

The past two weeks have been a rollercoaster. Experiencing a Migraine for the first time can be a really scary event, mine has been no different. Waking up with a panic attack for no reason, with your heart pounding, face numbed, and muscle spasms is not my idea of happy.

I have called 911 three separate times to have the paramedics over (once to have the police over), and the symptoms I gave them for migraine just weren't ringing any bells; couldn't go to ER because my parents would not allow it. I even saw my family doc, and he couldn't pick up on the migraine symptoms either. Had a self-centered dentist pull a savable tooth because I thought an infection might have been the "root" cause of the pain (pun intended), prescribing me antibiotics and pain meds which gave me awful side-effects.

In spite of all this, I've managed to disturb whatever peace was left in the family, and have seen humanities' true sides. I look at everyone with complete and utter disgust; dirt, to put it kindly. My parents have been totally misunderstanding of my condition, thinking that I was mentally crazy, to the point of threatening to send me to a mental hospital. There is no way in HELL that I'll be sent to a mental hospital for a condition I know damn well isn't psychologically related. I will kick and scream effing bloody murder before that happens, and then they'll really think I'm crazy!!! The icing on the cake? My grandparents suggested that I get on Disability, what an incredibly stupid thing to suggest.

It was only until recently that I, myself, discovered that it was a migraine, and it was only at that point, that things have started to make a whole lot more sense. I would also say that it has helped me cope a lot better than before. Everyone had been telling me--stay off the computer!!--don't diagnose yourself!! Well look at me now b****es, I'm coping fine now and it's all thanks to nobody but THE INTERNET and my search skills. Oh how the irony just kills me inside.

If I'm awake and not having a migraine, I'm sensitive to noise (Hyperacusis). If I'm having a migraine, my Hypervigilance will kick in; and all my senses become amplified by double. Any psychological "triggers" cause a migraine or cause it to worsen. My body sees unanticipated noise as a trigger, and my parents wouldn't understand this if it hit them in the face, using the "we live here too" mantra can get old really fast. They couldn't be bothered to do any research of their own to understand what a "trigger" might be, or what it's like to be "hypersensitive". I am so disgusted by their stubborn attitudes.

I've only been getting 2-3 hours of sleep at a time, waking up with a migraine nearly every time. In my sleep, it appears that I could be waking up at the REM stage, possibly with low blood pressure counts, and my teeth (may) be biting down too hard. Once I'm awake, I'm up forever it seems. Drinking Vitamin C seems to help calm the migraine down pretty well, also putting something cold on the back of the neck. A warm bath and shower helps too, of course none of this really matters--because as soon as I fall asleep, I'll awaken with a migraine once again.

I have an appointment to see a neurologist 5 days from now (Tuesday), but this appointment is taking forever to get here. The receptionists can't get me in a timely fashion, it's all a gameshow to them. They have all responded to the emergencies I was having as if it didn't even matter. I am expected to wait at least 2 weeks for any hope of an appointment or DIE LIKE A B****. It's sad, and frustrating doesn't even come close to describe it.

I'm exhausted. Throughout this whole experience, I have been totally alone, which is a normal feeling for me. I'm as lonely as they come.

When all of this is said and done, I want to get away. I can't trust anyone, not anymore.

[gayleggg]

I'm glad you are going to be checked out by a neurologist. There are medications that can help migraines. Hopefully, once diagnosed you can get a prescription for something that will help. Sounds like you are in a lot of pain and that you are not getting much sleep. You may not be a alone as you think, you are just pushing people away with your anger, which could come from not getting enough sleep. I hope the doctor can figure out what is wrong with and get you some relief.

[Double]

Yes.. lack of sleep is definitely having its effect on me. I barely called the neurologist this morning to see if there were any cancellations between now and Tuesday, the receptionist mentioned that "there is always the hospital"... she is being such a hussy

[kirby777]

Originally Posted by Double

Yes.. lack of sleep is definitely having its effect on me. I barely called the neurologist this morning to see if there were any cancellations between now and Tuesday, the receptionist mentioned that "there is always the hospital"... she is being such a hussy

Do you still have the migraine?? I went through a week of migraine hell once. My neuro called in a medrol dose pack.
Is there a walk -in place that your parents would allow you to go to? They could give you an injection of toradol and a prescription for the nausea.

I am sick of "go to the ER, there is always the hospital". AS IF the receptionist would actually SIT IN the ER and wait.

[(JD)]

I suffer from a few different types/caused migraines...

the first thing I think of when you say you WAKE with a migraine is your jaw. TMJ / TMJD is when the jaw is out of alignment (even a smidgeon) and it can cause unbelievable migraine pain. You'll need a DDS or DMD dentist who is trained in fixing this... but in the meantime, buy one of those sport teeth protectors (not too thick, moldable to your mouth) and try sleeping with it a few nights and see... it could be your jaw is off and you're grinding your teeth (maybe due to stress??? ) and causing the migraines...

Just my thoughts... few people, few doctors, even think about the jaw is what I'm saying!

[Double]

Originally Posted by kirby777

I am sick of "go to the ER, there is always the hospital". AS IF the receptionist would actually SIT IN the ER and wait.

MY THOUGHTS EXACTLY!

I recently saw the neurologist and after describing my symptoms, he mentioned that I was missing one thing---the severe headache that most people typically have with a migraine. I was having the muscle spasms in the head, insomnia, waking up with tachycardia every 2hrs, and shaking like a leaf.. but I was missing the headache part.

He concluded I might have actually have a Generalized Anxiety Disorder, he also mentioned that he has a friend with the same problems and so he was able to relate. He insisted I see a psychiatrist, and it seems to be the one doctor everyone is leaning towards. I've called around and have managed to setup an appointment, but the appointment is about a month away.

Anyway, at least I feel like I'm finally on the right path. I think I'm going to create another thread in the anxiety section to hopefully straighten myself out in the meantime. Thanks for your comments guys!

[inchronicpain]

Originally Posted by (JD)

I suffer from a few different types/caused migraines...

the first thing I think of when you say you WAKE with a migraine is your jaw. TMJ / TMJD is when the jaw is out of alignment (even a smidgeon) and it can cause unbelievable migraine pain. You'll need a DDS or DMD dentist who is trained in fixing this... but in the meantime, buy one of those sport teeth protectors (not too thick, moldable to your mouth) and try sleeping with it a few nights and see... it could be your jaw is off and you're grinding your teeth (maybe due to stress??? ) and causing the migraines...

Just my thoughts... few people, few doctors, even think about the jaw is what I'm saying!

i have TMJ in my jaw and its unbearable and that may also be why i get migraines all the time and my jaw is also out of alignment thsts why i am hurting so bad and why its so unbearable i am just trying to find a dentist that deals with TMJ and will fix it.

i am having no luck finding a dentist that will take my ins so all i can do for now is suffer with this TMJ pain the best i can nothing is helping me

[inchronicpain]

Originally Posted by Double

Hi, I've been experiencing a condition that is really debilitating me, and I terribly need to get some things off my chest. This is going to be fun.

The past two weeks have been a rollercoaster. Experiencing a Migraine for the first time can be a really scary event, mine has been no different. Waking up with a panic attack for no reason, with your heart pounding, face numbed, and muscle spasms is not my idea of happy.

I have called 911 three separate times to have the paramedics over (once to have the police over), and the symptoms I gave them for migraine just weren't ringing any bells; couldn't go to ER because my parents would not allow it. I even saw my family doc, and he couldn't pick up on the migraine symptoms either. Had a self-centered dentist pull a savable tooth because I thought an infection might have been the "root" cause of the pain (pun intended), prescribing me antibiotics and pain meds which gave me awful side-effects.

In spite of all this, I've managed to disturb whatever peace was left in the family, and have seen humanities' true sides. I look at everyone with complete and utter disgust; dirt, to put it kindly. My parents have been totally misunderstanding of my condition, thinking that I was mentally crazy, to the point of threatening to send me to a mental hospital. There is no way in HELL that I'll be sent to a mental hospital for a condition I know damn well isn't psychologically related. I will kick and scream effing bloody murder before that happens, and then they'll really think I'm crazy!!! The icing on the cake? My grandparents suggested that I get on Disability, what an incredibly stupid thing to suggest.

It was only until recently that I, myself, discovered that it was a migraine, and it was only at that point, that things have started to make a whole lot more sense. I would also say that it has helped me cope a lot better than before. Everyone had been telling me--stay off the computer!!--don't diagnose yourself!! Well look at me now b****es, I'm coping fine now and it's all thanks to nobody but THE INTERNET and my search skills. Oh how the irony just kills me inside.

If I'm awake and not having a migraine, I'm sensitive to noise (Hyperacusis). If I'm having a migraine, my Hypervigilance will kick in; and all my senses become amplified by double. Any psychological "triggers" cause a migraine or cause it to worsen. My body sees unanticipated noise as a trigger, and my parents wouldn't understand this if it hit them in the face, using the "we live here too" mantra can get old really fast. They couldn't be bothered to do any research of their own to understand what a "trigger" might be, or what it's like to be "hypersensitive". I am so disgusted by their stubborn attitudes.

I've only been getting 2-3 hours of sleep at a time, waking up with a migraine nearly every time. In my sleep, it appears that I could be waking up at the REM stage, possibly with low blood pressure counts, and my teeth (may) be biting down too hard. Once I'm awake, I'm up forever it seems. Drinking Vitamin C seems to help calm the migraine down pretty well, also putting something cold on the back of the neck. A warm bath and shower helps too, of course none of this really matters--because as soon as I fall asleep, I'll awaken with a migraine once again.

I have an appointment to see a neurologist 5 days from now (Tuesday), but this appointment is taking forever to get here. The receptionists can't get me in a timely fashion, it's all a gameshow to them. They have all responded to the emergencies I was having as if it didn't even matter. I am expected to wait at least 2 weeks for any hope of an appointment or DIE LIKE A B****. It's sad, and frustrating doesn't even come close to describe it.

I'm exhausted. Throughout this whole experience, I have been totally alone, which is a normal feeling for me. I'm as lonely as they come.

When all of this is said and done, I want to get away. I can't trust anyone, not anymore.

double i get migraines all the time to they will last for days or even a weeks hang in there i am here to listen if you need to talk hugs add me as a friend or send me a message

[(JD)]

Originally Posted by inchronicpain

i have TMJ in my jaw and its unbearable and that may also be why i get migraines all the time and my jaw is also out of alignment thsts why i am hurting so bad and why its so unbearable i am just trying to find a dentist that deals with TMJ and will fix it.

i am having no luck finding a dentist that will take my ins so all i can do for now is suffer with this TMJ pain the best i can nothing is helping me

oh no! Ok... get a splint ...either a sports mouth piece or I think in some pharmacies they sell a thinner one... you need to try and rest the jaw at night and if it's out of place the muscles won't rest ... and eventually the joint will wear and you'll need surgery.

Don't chew chewy foods... limit your foods (my jaw was off it's hinges for 2 years after my accident before they approved surgery...and it took another year of physical therapy before the surgeon could do the surgery I learned the dominant color in a blender was green! ) I still cannot do really hard foods, candies, and "foods that chew back" meaning those that are strong spongey that bounce back to be chewed more (like some meats, and soft bread crust of all things) ugh! Too much on the jaw.

Can you use ice? I still do ice massages at times.... ice packs are nice but to really numb the jaw joints (do both sides) I fill a paper cup half full of water and then peal the top down and sitting with a towel or in the tub.. slowly rub the ice on the jaw joints (TMJs)... be careful not to rub it with the paper (or styrofoam) cup as it will really tear your skin. It feels like a cold burn...push through that (I did as it was the same level as the jaw pain anyway) and then you'll have relief from (because of) the numbness.

If you have someone who has a TENS unit, see if they will help you try it out... even 15 minutes of being pain-free are worth it.... if it helps then maybe you can get your doctor to help you get one? Wonderful invention.

Do jaw exercises...and massage those muscles as well. I cannot do this as I cannot open my mouth far and the PT has to do this for me generally. But the outside muscles I can exercise. Facial Exercises for TMJ | Your Healthy Body - Jillian Michaels
See if you can find some videos on how to do this properly...

it will all help....

Now about treating the migraines you still get... ginger works well--in any form. The first I heard of this all we had was the spice of ground ginger and we made a tea... (someone had stolen my pain med at the airport and my SIL called her mom for a remedy)... the ginger didn't dissolve much but I drank the tea and the pain was so limited I slept for a bit and rested. I still carry ginger capsules in my purse, just in case I forget to bring my zomig zmt med.

You might also look up calming herbs... valerian, passion flower to name two. These will help ease the muscle tension. Call your doctor and tell them what you want to try...

I pray you'll find a dentist that will help you.

[Jolisse]

You should be able to get some meds for the pain, while you're waiting to see a Dr.
I also suffer from severe headaches, due to my anxiety. I've had many tests and have been to numerous doctors.
I have pain meds put aside for when my headaches are severe. There's no way I'm going to suffer horrific pain, when I don't have to. I think you need to be more "pro active" with your doctor.

[inchronicpain]

Originally Posted by (JD)

oh no! Ok... get a splint ...either a sports mouth piece or I think in some pharmacies they sell a thinner one... you need to try and rest the jaw at night and if it's out of place the muscles won't rest ... and eventually the joint will wear and you'll need surgery.

Don't chew chewy foods... limit your foods (my jaw was off it's hinges for 2 years after my accident before they approved surgery...and it took another year of physical therapy before the surgeon could do the surgery I learned the dominant color in a blender was green! ) I still cannot do really hard foods, candies, and "foods that chew back" meaning those that are strong spongey that bounce back to be chewed more (like some meats, and soft bread crust of all things) ugh! Too much on the jaw.

Can you use ice? I still do ice massages at times.... ice packs are nice but to really numb the jaw joints (do both sides) I fill a paper cup half full of water and then peal the top down and sitting with a towel or in the tub.. slowly rub the ice on the jaw joints (TMJs)... be careful not to rub it with the paper (or styrofoam) cup as it will really tear your skin. It feels like a cold burn...push through that (I did as it was the same level as the jaw pain anyway) and then you'll have relief from (because of) the numbness.

If you have someone who has a TENS unit, see if they will help you try it out... even 15 minutes of being pain-free are worth it.... if it helps then maybe you can get your doctor to help you get one? Wonderful invention.

Do jaw exercises...and massage those muscles as well. I cannot do this as I cannot open my mouth far and the PT has to do this for me generally. But the outside muscles I can exercise. Facial Exercises for TMJ | Your Healthy Body - Jillian Michaels
See if you can find some videos on how to do this properly...

it will all help....

Now about treating the migraines you still get... ginger works well--in any form. The first I heard of this all we had was the spice of ground ginger and we made a tea... (someone had stolen my pain med at the airport and my SIL called her mom for a remedy)... the ginger didn't dissolve much but I drank the tea and the pain was so limited I slept for a bit and rested. I still carry ginger capsules in my purse, just in case I forget to bring my zomig zmt med.

You might also look up calming herbs... valerian, passion flower to name two. These will help ease the muscle tension. Call your doctor and tell them what you want to try...

I pray you'll find a dentist that will help you.

I can barly open my mouth its so bad the ENT doctor said my jaw joints are rubbing together when I open my mouth and when I close it I cant open my mouth very far eather .

I am not eating much it hurts to much to eat and I know I am loseing weight because of it

[inchronicpain]

I will I go to my reg doctor on Monday and I will see if she will give me something for the pain till I find one I been looking online and calling dentist and not one of them take my ins I been looking for 2 days now.

[icinggurl]

There is something called a silent migraine. It's all the other symptoms minus the headache pain. I have a book called The Migraine Brain that's great. I didn't know that technically migraines don't fall into the headache category. They are vascular or result of cortical depression (not referring to psych depression btw). Keep trying different docs til you find a good one cuz there are a TON of bad ones, and if they find out someone is a psych patient, we tend to get dismissed. You should still tell them your background though. Pain like that plus sleep deprivation can make a person seriously lose it. Been there before! The parent thing sucks too and my fam was the same way. Once they took me to the ER against my will due to violence and psychosis, they realized this wasn't just me being overly dramatic. Too bad I was 36 by then . Just stay on the forums and vent. That's why we r here.

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