Finally after years of asking the doc what I'm dealing with and having x-rays of my hips and him telling me there was nothing wrong at least I know why I'm having pain and trouble after vacuuming, cleaning etc.

If anyone thinks Canadians are lucky for "free" healthcare, well, maybe some are, but I'm not! I must just have bad luck with doctors. I have pointed where it hurts to him for years, and NOW he finally tells me what it is... and nothing but keep going, walking and resting, either walking will help or aggravate it more. hmmm so helpful....
just vented

Totally feel you on this ... I was diagnosed with SJD and arthritis (spine, lower back and sacrum, hips, shoulders, etc.) last year. At that time the pain had become so bad I was ready to request euthanasia!

It's some better now, but I've had to make drastic modifications to my lifestyle and have learned to limit activities that aggravate it - saving that kind of exertion for only those things I feel it's worth being in excruciating pain by the end of the day for.

Three of those things are:

1. Casual stroll at local botanical gardens a few times a month.

2. My weekly psychotherapy appointment (Her office is upstairs).

3. Occasional outings with good friends a handful of times a year.

I'm sorry that you are struggling with this issue too as few people can understand exactly how painful it is and how out of kilter your whole body feels because of it!

When I'm feeling more humorous about it I liken it to Rice Krispies but instead of going snap, crackle, pop, it goes grate, grind & crunch!

And a comparison I use to describe it to others is those push button puppets because sometimes it feels just like they look when you've depressed that button and they fall all akimbo then when you release it they stand back up!

Gentle Hugs To You!

I'm sorry you have all that pain Pfrog, thanks for your reply. Whatever he did to manipulate my legs on Thurs, and then sitting in a car most of the day, then cutting hair today, I'm in a lot more pain suddenly.

I guess I'll have to figure out what to do about it. He said I could have physio maybe so I don't know, if they have exercise to help it, because by the sounds of it it is a joint that can't be fixed, and now my hips hurt too.

Some times it doesn't hurt for days. guess it depends on what I'm doing. And he said a good mattress....well that is out of the question, I have to save first for my son to get a decent bed. Thanks for your reply, and I'm sorry for your pain. My sister had arthritis much earlier in her life, so I'll be thankful I'm not dealing with as much as her. She found a medication "humira' I think, that helps a lot but she works to keep up with the paying for it...

You do have a sense of humor... snap crackle pop.....grind crunch grate,,,,yes that is more like it! take care, hugs

[SnakeCharmer]

I have this, too, but only on one side of the joint. I was in a severe accident that caused some permanent damage on that entire side of the body. I can tell you what works for me and has been working for a few years now.

First, of course, was getting the diagnosis. That took a long time.

I've had cortisone shots into that side of the joint four times, about 6-9 months apart. That was the key ingredient in my recovery because it drastically improved the swelling, inflammation and bracing in the surrounding soft tissue.

When it was at its very worst about 3 years ago, I went to physical therapy for two months. A big part of that was teaching me things I could do on my own at the very first sign of it returning. Which is happening right now. Just on the one side. The pain is in the low back, hip, groin and down the leg to the knee.

If it does not improve within the week, I'll go back to the doc for another cortisone shot. I don't get the shot directly into the joint. That usually requires being guided by x-ray or other expensive high tech tools. It's a big deal. We found out that if the shot is in the general area of the joint it works. One of the problems is that all the muscles and ligaments brace and that causes pain and presses on nerves. The area right above my tailbone gets red and swollen when I'm having an attack, but the shot is given over on the side, about at the halfway point between spine and edge of hip. The area above the tailbone is red and swollen right now, so an attack is beginning.

Nothing physical triggers an attack. For me, it's usually some sort of emotional stress. Which has been really high recently. I don't know exactly how that triggers an attack, put the pattern is very clear. For me, an attack lasts indefinitely without treatment. I sometimes have painful days or nights from something I've done, but I don't call it "an attack" or seek treatment unless it's on-going, without let-up.

I also use a TENS machine. My insurance paid for it. It's slightly bigger than a cell phone. Instead of putting the pads directly on the most painful area, I put them directly on the spine right above my buttocks, as low on the spine as I can go before my glutes get in the way. Then I'll read a good book and I'll zap myself with the electrical stimulation for several hours. It helps tremendously. Doing it one treatment at a time doesn't help me. A treatment lasts between 20-30 minutes. It takes at least two hours to have a real effect.

The problem in the joint causes something called sacroiliitis to be triggered in me. That's basically inflammation of the entire sacroiliac area, the soft tissue and joints. It is extremely painful. If I lay flat without moving, it's just sore, but I can't stand up without extreme pain. I can't sit in a chair or ride in a car or stand for more than a few minutes without excruciating pain. The cortisone shot helps that within about three days and it lasts for months.

The cortisone goes in with lidocaine and that immediately helps the pain. What most people do is ... everything. Suddenly the pain is gone and they do too much. My doctor told me he wouldn't give me the shot unless I promised to go directly home and take it easy for three days -- no housework, yard work, shopping, gym, nothing. Three days, or I'd hurt myself worse and the shot wouldn't work. I followed his instructions and also used the TENS unit and did physical therapy. I got my life back.

Some people find cortisone shots painful. I don't. A little burning for a minute or two. The pain of the shot is a thousand times less than the pain of the ailment. For me. Other people say otherwise. It just proves that we can't really judge anyone else's pain levels according to our own. For me, a cortisone shot is easy and simple.

I now have long periods of time when I am pain free. I can walk, sit, even run. I'm a dedicated gym rat and I work out hard. But the hardest thing I do at the gym is climbing the one flight of stairs to the second floor. I have to stop and rest. It's still painful, almost impossible, my leg goes numb while climbing stairs, even when I'm pain-free in every other activity. I can walk downstairs with no problem. Just not upstairs.

Writing this has been helpful. I think I'll call the doc for an appointment ASAP to get another shot. Thinking about the pain, when it's bad ... well, you know ... it's really bad and interferes with everything, even using the bathroom. There were days when I had to have help even with that. No fun!

But with proper treatment, I am pain-free, active, hiking, lifting weights, doing it all, except climbing stairs. That'll probably always remain a problem.

I wish you the best and hope you can find some relief. It's not permanent, but months without pain after suffering, it's a pretty good deal.

edited to add: I also have degenerative disc disease in the lower back and arthritis in the area. The above treatment program helps with the pain of that, too, for me anyway.

[thickntired]

My xray just showed damage which is bad. Eight yrs ago my MRI showed 3 herniated discs, spinal stenosis, degenerative discuss disease, and some other stuff like lumbar degeneration. Also, my sciatica pain is getting worse; it used to be my left rear and hip now my foot goes numb. Last week the xray showed bone spurs on my spine which means it's progressing. This is all from a car wreck in 1995!! Doctors thought I was pill seeking because old injuries rarely continue to cause damage. Now I'm having severe abdominal pain which is a major red flag. This can cause a loss of control of bowels, and I probably need surgery asap. I'm only 44 years old!

Regarding exercise - yes absolutely and laying in bed or sitting is bad. But, I gained 60 lbs on seroquel. In desperation to lose the weight I got up to walking 2 hrs a day/26 miles a week while obese. I'm pretty sure this is what caused my new problems. Extra weight is horrible for my lumbar, but I was stupid to be so extreme on exercising.

Originally Posted by thickntired

My xray just showed damage which is bad. Eight yrs ago my MRI showed 3 herniated discs, spinal stenosis, degenerative discuss disease, and some other stuff like lumbar degeneration. Also, my sciatica pain is getting worse; it used to be my left rear and hip now my foot goes numb. Last week the xray showed bone spurs on my spine which means it's progressing. This is all from a car wreck in 1995!! Doctors thought I was pill seeking because old injuries rarely continue to cause damage. Now I'm having severe abdominal pain which is a major red flag. This can cause a loss of control of bowels, and I probably need surgery asap. I'm only 44 years old!

Regarding exercise - yes absolutely and laying in bed or sitting is bad. But, I gained 60 lbs on seroquel. In desperation to lose the weight I got up to walking 2 hrs a day/26 miles a week while obese. I'm pretty sure this is what caused my new problems. Extra weight is horrible for my lumbar, but I was stupid to be so extreme on exercising.

Hello thickntired, I'm sorry for your problems. I'm in my 40s too. I gained a lot of weight on seroquel but the last few years had gotten 70 pounds off because of stress. I recently gained 15 back, decided I needed the sugar (I'm diabetic and shouldn't)...but completely reversed my stress response to overeating again.

Anyways, for me, I had two VERY large babies, thinking back my diabetes wasn't diagnosed at the time and probably had that. Ever since my second one, who was just short of 11 pounds (I really resent that obstetrician, I remember telling him I was worried my baby was getting too big, and he patted me on the back and said "no worries, women have had 13 pound babies before) ***, anyways, ever since then I've had trouble with everything. They also screwed up my epidural and didn't tell me until the next day when I had complained how severe my headache was. I also :embarrassed: have trouble with my bowels the last few years.

I think my doctors stink, and don't take me seriously because I've been a "mental" patient for many years. I'm now like a 90 yr old in a 40 something body.

I've never known where to look until he told me about that particular joint, why didn't he tell me sooner? I tell him about my bowels, my intense abdominal pain, many other things, and I think he just doesn't even write down my complaints.

I haven't had an mri and I'm going to insist on one. I just don't know if it is too late since after having my second baby that stupid obstetrican said "yeah I think your cervix fell a bit but no concern to you".

Thanks for letting me vent. I'm sore after being on my feet for just a few hours now.

Originally Posted by SnakeCharmer

I have this, too, but only on one side of the joint. I was in a severe accident that caused some permanent damage on that entire side of the body. I can tell you what works for me and has been working for a few years now.

First, of course, was getting the diagnosis. That took a long time.

I've had cortisone shots into that side of the joint four times, about 6-9 months apart. That was the key ingredient in my recovery because it drastically improved the swelling, inflammation and bracing in the surrounding soft tissue.

When it was at its very worst about 3 years ago, I went to physical therapy for two months. A big part of that was teaching me things I could do on my own at the very first sign of it returning. Which is happening right now. Just on the one side. The pain is in the low back, hip, groin and down the leg to the knee.

If it does not improve within the week, I'll go back to the doc for another cortisone shot. I don't get the shot directly into the joint. That usually requires being guided by x-ray or other expensive high tech tools. It's a big deal. We found out that if the shot is in the general area of the joint it works. One of the problems is that all the muscles and ligaments brace and that causes pain and presses on nerves. The area right above my tailbone gets red and swollen when I'm having an attack, but the shot is given over on the side, about at the halfway point between spine and edge of hip. The area above the tailbone is red and swollen right now, so an attack is beginning.

Nothing physical triggers an attack. For me, it's usually some sort of emotional stress. Which has been really high recently. I don't know exactly how that triggers an attack, put the pattern is very clear. For me, an attack lasts indefinitely without treatment. I sometimes have painful days or nights from something I've done, but I don't call it "an attack" or seek treatment unless it's on-going, without let-up.

I also use a TENS machine. My insurance paid for it. It's slightly bigger than a cell phone. Instead of putting the pads directly on the most painful area, I put them directly on the spine right above my buttocks, as low on the spine as I can go before my glutes get in the way. Then I'll read a good book and I'll zap myself with the electrical stimulation for several hours. It helps tremendously. Doing it one treatment at a time doesn't help me. A treatment lasts between 20-30 minutes. It takes at least two hours to have a real effect.

The problem in the joint causes something called sacroiliitis to be triggered in me. That's basically inflammation of the entire sacroiliac area, the soft tissue and joints. It is extremely painful. If I lay flat without moving, it's just sore, but I can't stand up without extreme pain. I can't sit in a chair or ride in a car or stand for more than a few minutes without excruciating pain. The cortisone shot helps that within about three days and it lasts for months.

The cortisone goes in with lidocaine and that immediately helps the pain. What most people do is ... everything. Suddenly the pain is gone and they do too much. My doctor told me he wouldn't give me the shot unless I promised to go directly home and take it easy for three days -- no housework, yard work, shopping, gym, nothing. Three days, or I'd hurt myself worse and the shot wouldn't work. I followed his instructions and also used the TENS unit and did physical therapy. I got my life back.

Some people find cortisone shots painful. I don't. A little burning for a minute or two. The pain of the shot is a thousand times less than the pain of the ailment. For me. Other people say otherwise. It just proves that we can't really judge anyone else's pain levels according to our own. For me, a cortisone shot is easy and simple.

I now have long periods of time when I am pain free. I can walk, sit, even run. I'm a dedicated gym rat and I work out hard. But the hardest thing I do at the gym is climbing the one flight of stairs to the second floor. I have to stop and rest. It's still painful, almost impossible, my leg goes numb while climbing stairs, even when I'm pain-free in every other activity. I can walk downstairs with no problem. Just not upstairs.

Writing this has been helpful. I think I'll call the doc for an appointment ASAP to get another shot. Thinking about the pain, when it's bad ... well, you know ... it's really bad and interferes with everything, even using the bathroom. There were days when I had to have help even with that. No fun!

But with proper treatment, I am pain-free, active, hiking, lifting weights, doing it all, except climbing stairs. That'll probably always remain a problem.

I wish you the best and hope you can find some relief. It's not permanent, but months without pain after suffering, it's a pretty good deal.

edited to add: I also have degenerative disc disease in the lower back and arthritis in the area. The above treatment program helps with the pain of that, too, for me anyway.

Thank you SnakeCharmer,
I hope that he sets me up with physio. At this point I'm hoping that will be enough but I'm not sure. Any twisting, even walking, is causing me big problems.
This was very insightful, I think the Tens thing might help... I'll keep everything you've said here in mind.
Sorry for your pains but I'm glad you've found something that helps.

[thickntired]

Originally Posted by needarealitycheck

Hello thickntired, I'm sorry for your problems. I'm in my 40s too. I gained a lot of weight on seroquel but the last few years had gotten 70 pounds off because of stress. I recently gained 15 back, decided I needed the sugar (I'm diabetic and shouldn't)...but completely reversed my stress response to overeating again.

Anyways, for me, I had two VERY large babies, thinking back my diabetes wasn't diagnosed at the time and probably had that. Ever since my second one, who was just short of 11 pounds (I really resent that obstetrician, I remember telling him I was worried my baby was getting too big, and he patted me on the back and said "no worries, women have had 13 pound babies before) ***, anyways, ever since then I've had trouble with everything. They also screwed up my epidural and didn't tell me until the next day when I had complained how severe my headache was. I also :embarrassed: have trouble with my bowels the last few years.

I think my doctors stink, and don't take me seriously because I've been a "mental" patient for many years. I'm now like a 90 yr old in a 40 something body.

I've never known where to look until he told me about that particular joint, why didn't he tell me sooner? I tell him about my bowels, my intense abdominal pain, many other things, and I think he just doesn't even write down my complaints.

I haven't had an mri and I'm going to insist on one. I just don't know if it is too late since after having my second baby that stupid obstetrican said "yeah I think your cervix fell a bit but no concern to you".

Thanks for letting me vent. I'm sore after being on my feet for just a few hours now.

I'm so sorry you are also dealing with knuckle heads! How did you lose 70 lbs? Are you able to exercise? Way to go. A friend had gestational diabetes when pregnant with twins and now is testing positive for diabetes. Besides if your cervix fell that's no light hearted matter and can need surgery! My MRI had all kinds of fun new stuff. The scariest was a clumping of nerve root at L4-5 and L5-S1. This is characteristic of Arachnoiditis. It's a serious condition that has symptoms of abdominal pain. I also had a begin tumor on my spine, synovial cyst, ligament breakdown, annular tears and some other stuff. All is irreversible and progressive. Get a good Dr and a MRI asap!

Hi thickntired, yeah I feel like my doctors have mostly been knuckleheads. But I wish I had been smarter and done some research on things myself. Still, doctors should care about their patients.
I lost the weight as a combination of stress and yes i was more mobile and walking more. Moving here I have to walk to the stores and carry everything. I wasn't bad really with pain this spring come to think of it, but recently I think my body just is retaliating at me overeating and gaining weight. I am still going to insist on a mri, because this just isn't normal losing control of bowels (told him months ago), and the extreme pain after any walking or anything.
Thanks for listening.
You've been through so much after that car accident. Have you had any surgeries? I'm guessing most of those things surgery wouldn't help or it is too risky.
Yes I think walking with this extra weight on really made things worse too. I could blame myself for being heavy for too many years but that doesn't help. Meds and not having good doctors had alot to do with it.

Whatever I have is getting worse really fast. I don't know why I'm posting this but I'm feeling mad at my family doctor for not listening to me for all these years. Yesterday I would never end a visit with anyone but it was so bad I couldn't stand or sit anymore, my ankle was even giving out. This morning I felt like my abdomen was going to explode, but I've had that in the past and told the doctor. Of course x-rays aren't going to show things in the outside hip area if that is not what is going on. I don't think my cervix fell much, he called it something else at the time, something with the uterus, but same idea. I'm just frustrated, everything hurts and I can barely walk .... I don't know if I want to wait to get back in to the doctor. He hasn't helped me for years, so I might just go to the hospital and tell a doctor there how bad it is getting. I'll wait until this visit I have is over. I'm worried about where my son will go but I guess if I'm ready for someone to take me seriously, I'll have to arrange something.
Funny how life is, just when my depression seems better after hard work and therapy, I'm getting a feeling this is something that cant just be fixed with physiotherapy

[thickntired]

You need to get a new Dr asap!! The one you have is probably afraid of losing his license for prescribing pain pills. That is very common. The hip pain is most likely sciatica. I had a hystorectomy so I'm not sure, but you should see a gyno for an endoscopic appt. It's also hard because the pain is constant but can be unbearable or tolerable.

I'm depressed because my house is a mess and husband is lucky to get dinner. I can't imagine if I had babies. You poor thing. I am more freaking angry and fed up. Will anyone help me with this crap?!

On Friday I got a percocet script for 30 pills when I told him twice I take 3 a day. I've been taking percocet for years and it doesn't work. I talked to the receptionist right after my appt to see if I brought in my script could he increase the quantity. She said I'll ask don't SELL the script!!!??? So, now I'm a drug dealer. I am livid.

I can't get a new doctor, there is a shortage where I live and in canada if you have a doctor you can't get another one. (i tried and none are accepting patients, and the first thing they ask is if you have a doctor currently).

No my family doctor hasn't prescribed any pain pills. I just started taking advil for it and it helps but I don't want to take that too much it can cause problems with my other meds for blood pressure and diabetes. This doctor once made me go to the psychiatrist again (hadn't seen one for a few years), because I ran out of lorazepam, I over did it by 3 pills (1 mg.) and I needed it for sleep and anxiety.

I remember sitting there telling him I hadn't been able to sleep for 3 nights, please just give me 3 pills until I can get my prescription refilled again. He refused. I cried from anxiety and told him when I can't sleep that is when my psychosis could kick in. 3 pills! That is all I asked for. I had been very good for years with the lorazepam and was in a very stressful situation with my ex, and he made a big deal about it and made me suffer for another 3 days.

I since then have that psychiatrist, and thank goodness he understands and I've never abused a pill again. He trusts me, which is nice. This family doctor, several years back, I had pain in my back, said to me "I will never prescribe you narcotics, ever". I hadn't even asked

So, I will need to see a specialist or if he gets me the mri, and I'm insisting or going to the hospital in town here, then he will see I'm not kidding about any of the things I've told him for years.

I'm also going to ask whatever doctor or specialist I'm assuming I'll see after the mri, to check if the family doctor had written all my symptoms down for the last several years. Not that that would accomplish anything.

That is good you mentioned a gyno, because I haven't had any exam since my son here was born. (my fault but I have a thing about having those pap smears done) and I just don't like my doctor doing that himself, so I'll ask if he can get me a female obgyn or someone to do it.

Thanks for your post thickntired. I'm really sorry you are experiencing so much pain. Does anti-inflammatory medication help?
I hope you get the help and meds you need!

[thickntired]

Originally Posted by needarealitycheck

I can't get a new doctor, there is a shortage where I live and in canada if you have a doctor you can't get another one. (i tried and none are accepting patients, and the first thing they ask is if you have a doctor currently).

No my family doctor hasn't prescribed any pain pills. I just started taking advil for it and it helps but I don't want to take that too much it can cause problems with my other meds for blood pressure and diabetes. This doctor once made me go to the psychiatrist again (hadn't seen one for a few years), because I ran out of lorazepam, I over did it by 3 pills (1 mg.) and I needed it for sleep and anxiety.

I remember sitting there telling him I hadn't been able to sleep for 3 nights, please just give me 3 pills until I can get my prescription refilled again. He refused. I cried from anxiety and told him when I can't sleep that is when my psychosis could kick in. 3 pills! That is all I asked for. I had been very good for years with the lorazepam and was in a very stressful situation with my ex, and he made a big deal about it and made me suffer for another 3 days.

I since then have that psychiatrist, and thank goodness he understands and I've never abused a pill again. He trusts me, which is nice. This family doctor, several years back, I had pain in my back, said to me "I will never prescribe you narcotics, ever". I hadn't even asked

So, I will need to see a specialist or if he gets me the mri, and I'm insisting or going to the hospital in town here, then he will see I'm not kidding about any of the things I've told him for years.

I'm also going to ask whatever doctor or specialist I'm assuming I'll see after the mri, to check if the family doctor had written all my symptoms down for the last several years. Not that that would accomplish anything.

That is good you mentioned a gyno, because I haven't had any exam since my son here was born. (my fault but I have a thing about having those pap smears done) and I just don't like my doctor doing that himself, so I'll ask if he can get me a female obgyn or someone to do it.

Thanks for your post thickntired. I'm really sorry you are experiencing so much pain. Does anti-inflammatory medication help?
I hope you get the help and meds you need!

I just noticed you mentioned your psychosis. I'm really worried because I read an article that said steroids can induce mania in bipolar people. That may not apply to you, but I posted a thread about it in chronic pain to see if anyone has experienced this issue.

I haven't had psychosis for more than 10 yrs, I'm guessing around that so not worried about that. The seroquel has been at 25 to 50 mgs for 8 yrs. Tried a higher dose for a short time, didn't feel good on it. It is to help me sleep. I only get told I have major depression, and my therapist thinks I might have BPD.

Anyways, I got my x-ray, and the secretary said it was negative. Meaning they didn't see anything on it? But the pain is real. It is better the less I do but I want to keep active.
As the day goes on, it gets worse, and then sitting for a little bit, getting up really hurts in the right hip area. So I've looked some more and maybe it is a large muscle. I don't know. Have an mri coming in about a month. My feet and ankles often feel like they kink up and then leave me aching.

Hopefully I will get some answers how to address the issue. Exercise isn't really possible. I do my housework, barely, and I'm done in and my legs tremble and feel weak.

I'm wondering if the quetiapine has anything to do with it. I read somewhere that it affects muscles. Also diazepam has muscle relaxant in it, but I take it at bedtime. Wonder if it makes my muscles tense and weaker during the day. idk.

[thickntired]

I'm in so much pain when sedentary but too much pain to exercise and do household chores. I completely relate to these posts. It's really hard to stay in bed and recoup. I'm starting physical therapy again and not taking a pain mng referral that uses narcotics. I take a few percocet, but my tolerance is too high for them to help. Nerve damage is impossible to stretch or numb it's so annoying. I did find this great stuff called "Max-Freeze" at Walmart. It is a spray can and the menthol smell disappears. It's better than biofreeze. I take aleeve because it's much easier on the stomach and has pain killers plus anti-inflammatory. A doctor recommended it.

I'm sorry you are hurting so much... not fair, life isn't fair. I hope physical therapy helps for you, me too. I don't know... I already said that moving and sitting makes it worse. But any lifting, like I did yesterday, with bottled water, puts me in pain. I could just lay around but not really.
I get that nerve pain is bad. I'm hoping that is not what I have. My muscles are very sore down my legs and hips and buttocks. Seems to matter what I do, but I can't just sit here. I'd like to be as active as I was this spring. Walking a fair bit.
I guess pain management isn't an option for you? Tolerance, I wouldn't want that either. Already tolerant to my sleep meds. I guess Aleve would be the best choice for me. I'm already not hungry because of the diabetes meds and anxiety, so I don't want the sore stomach I'm getting from Advil. Thanks for replying and I hope you get help. I hear ya.

[thickntired]

Originally Posted by needarealitycheck

I'm sorry you are hurting so much... not fair, life isn't fair. I hope physical therapy helps for you, me too. I don't know... I already said that moving and sitting makes it worse. But any lifting, like I did yesterday, with bottled water, puts me in pain. I could just lay around but not really.
I get that nerve pain is bad. I'm hoping that is not what I have. My muscles are very sore down my legs and hips and buttocks. Seems to matter what I do, but I can't just sit here. I'd like to be as active as I was this spring. Walking a fair bit.
I guess pain management isn't an option for you? Tolerance, I wouldn't want that either. Already tolerant to my sleep meds. I guess Aleve would be the best choice for me. I'm already not hungry because of the diabetes meds and anxiety, so I don't want the sore stomach I'm getting from Advil. Thanks for replying and I hope you get help. I hear ya.

I know what you mean. I can't fill my water filter for lifting it out of the fridge. Pain mgt is best put off for as many years as possible for me. Especially because this is progressing. Advil is bad and aleve has pain killer & anti-inflammatory. You mentioned anxiety. I'm under extreme stress right mow which is hurting my entire body. My pdoc is sending me to a chronic pain therapist.

I thought I had given you hugs, sorry (((((((thickntired))))))
I'm sorry to know you hurt so much. I'm not sure this muscle problem and joint problem will get better. I tried some things to help but it doesn't. I really wonder what it is and if I've gotten good care.
Lately I'm thinking the thyroid could be to blame for the start of all my problems around my early 20's....
Pain is making me short tempered and grumpy with people. Wish I knew how to get over that, sometimes it just comes out. And no one I know understands, but if anyone tells me they are in pain, at least I can empathize better. Thanks for replying!

[thickntired]

Originally Posted by needarealitycheck

I thought I had given you hugs, sorry (((((((thickntired))))))
I'm sorry to know you hurt so much. I'm not sure this muscle problem and joint problem will get better. I tried some things to help but it doesn't. I really wonder what it is and if I've gotten good care.
Lately I'm thinking the thyroid could be to blame for the start of all my problems around my early 20's....
Pain is making me short tempered and grumpy with people. Wish I knew how to get over that, sometimes it just comes out. And no one I know understands, but if anyone tells me they are in pain, at least I can empathize better. Thanks for replying!

Hugs back at you sister
I'm going to see a therapist for chronic pain. I think this is under control until I get overwhelmed in life. Everyday I take 2 percocet, 4 aleeve (anti-inflammatory) and spray on max-freeze. My MD drug tests me, we have a pain contract and I only get a refill after one visit each month. I start physical therapy (again) in a week but am sticking with it. The most pain is from being sedentary, so I have to work back up to walking and limited pilates. My seroquel weight gain also puts extreme pressure on my joints, so I have to get a handle on my emotional eating. Pain has such a profound impact on our entire bodies and mental health. I hope you get to a point where you're able to find some relief and make peace with the situation.

Just an update, I have seen a chiropractor to have some "adjustments"... I don't know what they really call it. Alot of popping or cracking noises, and some manipulation of the sacroiliac area. It aches after, but I'm able to walk and do more before it hurts too badly. I had a migraine after yesterday. My sister was annoyed with me, she thinks chiropractors are dangerous. She said "don't let him snap your neck again". Well I did yesterday afternoon. It sometimes cracks on its own. My neck is out of alignment but I knew that for years. Its the lower back and hips that hurt.
Anyways, tomorrow is my appt. for an mri. It will take weeks to find results. It could be arthritis. My sister has psoriatic arthritis for years. It isn't genetic though. So here's hoping it is just good ol deterioration.