[Pierro]

Hey guys, new thread.. Same pain. Snuggled under my heated blanket. I don't know why I got up this morning, should have stayed in bed. I am of no use to anyone anymore.

[LettinG0]

Hugs to Everyone..........

Christina so sorry your pain shot back up and you have to deal with crap!

Hope everyone touches base soon again.......I've gotten behind and lost over the holiday

[cakeladie]

Not right we had to start a new thread

[lizardlady]

Cake, I was surprised the other thread lasted as long as it did. Usually threads get closed when they hit 1000 posts. I PM'd a mod to ask if the original thread could remain as a sticky so we can reference it if we want.

[lizardlady]

My check in is going to sound like a broken record. Still trying to cough up a lung.

For those who commented on what the boss told me Monday about not pushing myself, then giving me a project that meant working late. Happens all the time. She says one thing, then requires the opposite. I've worked late every night this week.

On top of the cough/asthma stuff there's a cold fron moving through. I hurt like crazy.

hmmm, I had a chees sandwich for dinner. Now I have the whine to go with it!

[~Christina]

Liz .. I hope your on the mend soon and that cough should just go the hell away !!!!

Cake.... how was your trip? Did you have fun?

Gentle hugs to everyone

Wandering back to " rantville"

[January]

Liz, Tussin cough medicine from the Dollar Store helped me more than the prescription kind. Get some if you can. I think it will help. I sure hope you feel better soon.

Everyone, take care of yourselves. Pierro, you are not useless, you are wonderful! I think it was very nice of The Well to sticky our thread for us. I can't remember who asked for that to happen, but thank you.

I go back to the dentist today, so here goes! My panic is running full tilt, in high gear.

[cakeladie]

Not much fun family left me stranded at a place I did not know how to get to our hotel. I sat there and cried for a couple of hours but I asked for help and made it back

My daughter is doing everything in her power to make this a terrible trip it's working I can't take much more. I have done 16 loads of laundry in our room today at 6 am I was mopping the floor in the bathroom because they said my son had peed on it. I have mopped it 3 times 2 times with bleach and today is my birthday so I am sure she is going to make it extra hard on me. We leave Saturday to go home

Hope everyone is doing ok

Hugs

[LettinG0]

Oh, Cake! So sorry the trip is so bad.........

Happy Birthday! We love you very much!

[lizardlady]

Cake, hand your son the mop and tell him to clean up his own damned mess!

Stop doing laundry for the lazy bums. If they can't wash their own damned clothes let 'em wear dirty clothes!

Tell your daughter that if she can't act like a civil human being she can find her own damned way back to California and cash in her ticket!

Sorry to sound so harsh, but enough already! They are misusing/abusing you. Please stand up for yourself.

How about when they fly back to CA you stay behind and have your very own private vacation in Florida?

[January]

I agree with Liz. Stand up for yourself. You are such a dear, sweet person. I hate to see you used and abused.

[Travelinglady]

Yes, liz. Take care of yourself, dear one.

Yesterday and last night I had terrible pain. Everything hurt. I am thankful to say I am almost pain free today.

A gentle to you all.

[Bubbles&Buttercup]

Found the new thread.
Got a new phone I'm still trying to work out and I'm just constantly exhausted.

Just checking in to say I'm alive and that I hope you all have some low pain days soon!

Sent from my SM-N9005 using Tapatalk

[~Christina]

Nothing but a rant

Okay so the pain clinic wont increase my Lyrica because I have a history of self harm ( cutting) its been over 3 years They said talk to you GP ,( he is the one actually prescribing me the Lyrica)

So I go see my GP and he said he can't do anything because I'm being seen at the pain clinic and he cant make any changes . Also he was trying to set up something at the hospital ( with my pdoc and T's urging ) that if my pain spiked to the point I was feeling suicidal I could go there and get some kind of pain med .. I am sick of my pain causing me to become suicidal and then I just have to go IP .. You all know what happens when you go to the ER because of Fibro pain and your Bipolar .. Bam!!!!! You are looked at sideways and there is no help to be found . Welll...... He said that is not possible the hospital yacked on about liability and bullshyt..

So ... If my pain spikes and it goes on for days and I cant stand it and wanna find a bridge , my only option is going IP to be safe and yeah,,, they dont address my pain or do anything about it ..

I am really really sad and disappointed that once again I feel backed in a corner and no one will address the pain... again .. I have an IV infusion of Lidocaine set for Tuesday.. My husband wants me to go ... Yes it did drop my pain , but it hasnt lasted long enough.. I still haven't gotten a bill for that yet,.. I am sure I won't beable to continue them , even if they help due to the cost..

Would be cheaper for me to die to be honest( no I am not suicidal) just saying.

Sorry for being a whining ranter ... I am just fed up !


***** Cake !!!!!!!!!!!!!!!!!!!!!!!!**** Hun put down the mop , ***** doing laundry. Shame on your family for treating you like this , You were just left???? Wtf ???? No No No No No. Hell No! Please Please be kind to yourself, Its time for you to just stop ,, stop doing anything for anyone , Its total bullshyt ! Right now.. your family sucks and they don't deserve you, at all !!! Stop Stop Stop... Take care of you and only you. Please do this for yourself .. they can all piss off . Be good to YOURSELF !

[January]

(((((((( Christina ))))))))

I don't know what to say but I'm so sorry this is happening to you again. Please stay safe. Please know we all love you and care about you immensely.

Gentle hugs,

Jan

[cakeladie]

((((Christina)))) I worry about you. Go for the infusion I know there are ways to keep the cost down. The first new lupus drug in 50 years turns out to be an infusion that cost alotnof money but there is programs that help keep the cost way down.

Liz I hope you are feeling better.

I am in bed right now we fly home tomorrow. Last night was a nightmare. My stomach started to roll and I ended up in the bathroom at Magic kingdom for over an hour I made it back to our table in time for fireworks but it was so cold and it was raining. Savannah and I went back to the hotel but the whole way back I prayed I would make it I barely made it. Ken was not that upset but then this morning my stomach started again and ken said oh I guess she is sick really really like I would make that up after we spent all that money please. So he agreed that I could rest all day has long has i go in tonight to the fireworks dessert party which I have begged him to cancell but ok I will go.

I asked for a late check out and they told me no. They said since we are in our time share we can't have a late check out i told them that if they check their records they will see that I have had to ask for extra TP and request that they not come in our room to clean because someone has had an upset stomach since we have been here. They said they could put us in another room for a couple of hours. How is that going to help really I just don't get it. We fly out at 5pm EST tomorrow. I can't wait to get home

[cakeladie]

Bubbles it's good to see you

[Calamity Jane.]

Cake, I agree with Liz, don't be a doormat for everyone letting them walk all over you.
Make them take responsibility for their selves and if they don't then let them suffer the consequences. Take care of yourself and let them do the same.

[cakeladie]

Just wanted to let you guys know I am home I will post more tomorrow
Sending hugs

[January]

Yay, you're home!!!!!!!!!! I'm so glad!!!!!!

[cakeladie]

Ok warning venting here. I made extra effort to get up early hide my pain and stiffness has much has I could so this would be a good trip for my grandmother and uncle and my family

When we finely arrived and I have to give it to southwest they got us in early way early which was nice. But when it came to Disney god lord almighty the magic was gone. It took them close to 3 hours to get us to our hotel then when we got there they said it wasn't the right hotel. Excuse me. The guy working the power lift did not even know how to work the lift. Then we go inside and they said no we are at the right hotel. Because I looked at the guy and said if you are going to tell me I have the wrong hotel I have about 10 email confirmations. Then they put my grandmother and uncle on the other end of the hotel and down a floor. They were supposed to be next to me. Then savannah wanted to go home 30 minutes after arriving. Everyone went down to dinner but me and her I told her fine try and go home make your own arrangements. Her purse got a little banged up that's why she wanted to go home.

That was the theme for the whole trip. What she would do was text me mean nasty stuff but then look nice then she would blow up

We got home really late now my grandmother is sick so I took Mikey in this morning and stopped and got her some soup and Mikey some food. I called my uncle and let him know.

Every inch of me hurts and there is so much here to do

[Bubbles&Buttercup]

I'm supposed to have an assessment for a pain management program tomorrow and I really can't be bothered. I've already accepted that I'm going to be in pain forever and I don't take pain meds all the time. I don't know if there's any point or if it's just a waste of my time.

Sent from my SM-N9005 using Tapatalk

[cakeladie]

Bubbles do it you never know what can come out of it. I can also make you some pice packs that you heat up and put on your sore spots and they really do help. I have no problem making them and sending them to you. They really do help

Take care sending gentle hugs

[January]

Bubbles, please try it. It can't hurt to go see what they say.

[Bubbles&Buttercup]

I've bailed on the appointment tomorrow, but I have organised to reschedule it. I really just wasn't feeling up to focusing on my pain and what I can't do right now.

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