[cakeladie]

I am almost afraid to post. I posted a couple of things and got in trouble and my post were taken down. I kinda felt like I wasn't wanted here. So I am now just sticking to a few areas this thread and a couple of others. I also check in on my friends to make sure they are ok. It's really sad I thought and felt like this was "home" but not so much anymore

[January]

((((( Cake )))))

You are loved and welcome here. This is home. Everyone has an "off" post now and then. Don't worry about it and know that you are special and surrounded by friends.

[lizardlady]

Cake, I'm sorry that happened. I know it's bothered me when it happened to me.

[Septembersrain]

They're talking about me possibly getting a pacemaker. I guess fibromyalgia is the least of my concerns right now. =(

Sent from S6 Edge using Tapatalk.

[cakeladie]

A pace maker could be a good thing why do they want to put one in ?

[January]

((((( September ))))) Please keep us posted on what's happening with you. We really care.

[January]

I saw my rheumatologist yesterday. She thinks I have RA. My Dad had it and he suffered so much. I don't want it.

[cakeladie]

Jan I have it and it's no fun I am so sorry

[Septembersrain]

Aww, RA is so painful I've heard. Is there any way to at least slow its progression?

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[Kiya]

(((((((((((( September - I'll be thinking of you and hoping for the best! ))))))))))))))

(((((((Jan - Oh goodness, please keep updating me/us. Also hoping for the best!))))))

((((((((( Cake - I, too, have had posts removed and been warned. Totally bites and I felt unwanted, uncared for and angry. You know you are wanted here and everything you say here is ok!!!! I hope you will be ok!!! ))))))))))))))

Me... eh... My body aches are stronger right now than usual - might be all the rain and temp drop; snow level is lower (but not to me). Noticed I can barely turn my neck to drive (will have to do my neck exercises) and that my shoulder is all locked up. I am finally keeping food in again, but body has high inflammation levels Not fun. And eating comfort food hasn't been helping. I had a run-in Thursday (visiting my gran) with my dad where he tried to force me to hug him and then she (his mom) died Sunday. It's complicated. Both were abusive to me, but of course he is the primary, and had threatened her. Maybe some of my pain is from my emotional state. But I'm not in hospital! 6 months ago, this would have put me in.

Thinking of you all!

[cakeladie]

(((((Kiya)))))it's so good to see you on the forum. I have missed you. My inflammation levels are really high to. 112 my doctor asked if I was trying for a record I said no I just want to feel better.

I still have my migraine it was a little better today then my daughter called and it went right back to where it was.

Having RA really sucks and making mine worse is the fact that my vitamin D is dangerously low. I can hardly use my right arm so I am trying to use my left more but it's really hard.

I see my rhemy tomorrow. Not sure if another shot is in my near future or not. My right hand has no Cartlidge left. My carpal tunnel keeps getting worse and that shocks me

I am 45 years old I should not feel like I am 90 + my grandmother is 89 years old she will be 90 in January and walks over 5 mikes a day. Sad

Ok my pity party is almost over.

Take care everyone I miss you guys. Christina I hope you are doing better.

Hugs to all

[January]

Cake, I get Vitamin D3 5000 IU from Puritan's Pride. You can find it on the internet. I take 3 a day and it keeps my D levels up to where they need to be. My levels are dangerously low without it. It's affordable and without it, I have zero energy. Please try it. It works better for me than the green prescription pearl.

I'm so sorry you're in so much pain. I wish I could wave my magic wand and fix it for you. You are special and a dear friend. Don't ever forget that.

[cakeladie]

So my rhemy thinks I have nerve damage in my right arm and I am right handed. She is calling my neurologist to see about getting me in next week.

But the migraines I have been getting she said it's because of the fibro. That was news to me. I didn't think fibro could cause migraines but I was wrong.

I made it to the pharmacy and I am home now. I are and took my meds early because I am in so much pain it's night funny.

This nightmare just keeps getting worse and worse

[lizardlady]

Cake, I get headaches from fibro, not sure if they are migraines or "just" killer headaches. They make me want to cut my head off to end the pain.

I hope they can do something for the nerve damage problem.

[January]

(((((( Cake )))))) Hang in there, Cake. We are all pulling for you.

[cakeladie]

I fell in the garage today and landed on my bad arm and shoulder. Hubby was at work but my son was home. My husband really needs to clean out the garage.

Has a kid he was really really poor and did not have anything and very little to eat. Now he collects things. He is not a hoarder but the garage is filled plus we have all of my daughters stuff in there from when she moved out.

So I took my meds early and a full dose of my pain meds but I hurt really bad. I am afraid to tell him since he had to work 12 hours today and more then likely will have to work it tomorrow to.

[lizardlady]

There's a cold front coming. Combine the change in barometric pressure with walking around in cold rain today and I'm a hurting pup tonight.

Cake, you need to tell your husband you fell in the garage. You especially need to tell him if you fell because you fell over his "stuff" in the garage.

[Kiya]

(((((((Cake)))))))) Oh i'm sorry you fell on your bad arm gotta have your family help make your home safe! Like Jan, I also take Vit D. It is super important. I take it in dry pill form - think it is also 5000 iu's a day.

((((((Liz)))))) yeah the weather changes can just knock us flat.

So can food with preservatives (pre-prepared junk). I did myself in this time with Fritos and cheese sauce spent all day in bed, and it was such a lovely day; 68 degrees! Unheard of for this time of year. It's usually 45 and pouring/hailing (like all last week and all of next). I just lay there and watched the people walking and running... too weak to read or blink. Sucky. Tonight I am up and moving, thanks to coffee. Each time I say I will do better, I do worse. Anyone else with that problem?

hugs to you all!

[January]

((((( Cake ))))) Are you sure you didn't break something when you fell? Please tell hubby you had an accident. He needs to clean up his mess.

((((( Liz )))) I so understand the pain from a weather change. I hope you start to feel better. The weather is supposed to change back to sunny and warm by Wed., and maybe we'll both feel better.

((((( Kiya ))))) The only junk food I can eat is Cheetos. If you put one on your tongue, it melts and when I do that, I feel sick. You'd think I'd learn. I so understand being inside watching people outside having fun. I hope you feel better very soon.

[lizardlady]

Folks I just gotta whine I hurt so dammed bad today! Everything hurts. I swear even my toenails hurt.

+++++++
added later....

When I hurt this much I lack patience. The dog is barking his head off at yet another gopher (tortoise). I hauled him off the gopher and tied him up. Will hide the gopher from him until I can move it. He is continuing to bark his head off though. Abby, one of the cats, keeps getting on the desktop, walking on the keyboard, stroping her tail under my nose. I know she's just being loving and wants attention, but I wish she would just leave me the hell alone! I know they are just doing what critters do, but I'd like to throttle them. No worries. I won't hurt them. I just wish they'd leave me alone.

[cakeladie]

I don't think it's broken but my shoulder is killing me. Hubby knows but he worked 12 hours yesterday and is working 12 hours today

[cakeladie]

Also when I landed I landed on a bag of my dads clothes but it sacred the hell out of me and it hurt. For a minute I thought I had popped my shoulder out of it's socket. Hopefully my rhemy can talk to my neuro doctor and get me in soon

[Kiya]

((((( Liz, Cake )))))

Thinking of you both today! Understanding what it is to have Ted's when you're in pain. Mine bit me this morning because I wasn't getting up soon enough for breakfast.

[Kiya]

My head is just throbbing today… I don't know if I'm fighting a cold or if this is still part of the fibro flair. I did have to take Sudafed today for congestion that was making my face pound. It is cold and rainy here today, which is not helping at all. I sound pretty whiny, don't I? The cold really contributes to Fibro misery. I've been in bed all day with layers upon layers including my electric blanket. I have errands to run that are not going to get done today. I headache is finally eased up enough that it doesn't pound and make me sick when I stand up – thank you coffee.
I hope that you will get a reprieve some point soon from your pain.

[cakeladie]

We got a lot of rain then it was in the 70's now it's pouring again. I have had a head ache for over a week. I am so tired of it.

Question. Do you think that your family would be better off with out you? Sometimes I think mine would