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  #776  
Old Aug 28, 2020, 06:03 AM
lizardlady's Avatar
lizardlady lizardlady is online now
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(*(*(*(*Christina*)*)*)*)

Talk as much, or as little, as you want hon.
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~Christina

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  #777  
Old Aug 28, 2020, 07:33 AM
Anonymous41006
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Pfrog's having a pflare or something!

I've put the pedal machine away, it's messing with my knees something awful.

I was hoping that it would be a good source of low impact workout, but evidentally not!

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lizardlady, ~Christina
Thanks for this!
~Christina
  #778  
Old Aug 28, 2020, 10:48 AM
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Cocosurviving Cocosurviving is offline
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My thoughts are with everyone impacted by Hurricane Laura. I have family in areas of Texas and Louisiana. I have reached out to check on them. I was able to get moved to my temporary location until my residence is ready. My area has received a lot of rain 🌧 from Hurricane Laura. Rain is very good for Mother Earth 🌍 however not a friend to my immune system. I’ve been very symptomatic the last few days dealing with a fever, fatigue and other symptoms commonly associated with my multiple chronic illness flare ups. I’ll be doing a lot of self care...drinking a lot of herbal teas, supplements, vitamins, essential oils, fresh fruits and vegetables. Stay safe and hydrated everyone!
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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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~Christina
  #779  
Old Aug 29, 2020, 04:54 AM
Anonymous32451
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pain, pain, and pain.

full stomach thanks to having a mcdonalds, but the rest of me is in utter agony
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  #780  
Old Aug 29, 2020, 07:48 AM
lizardlady's Avatar
lizardlady lizardlady is online now
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Quote:
Originally Posted by Pfrog View Post
Pfrog's having a pflare or something!

I've put the pedal machine away, it's messing with my knees something awful.

I was hoping that it would be a good source of low impact workout, but evidentally not!

Pfrog, what about yoga? It's no impact, gently stretches and helps with balance.
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  #781  
Old Aug 29, 2020, 10:02 AM
Anonymous41006
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It's worth checking into @lizardlady ...

If it requires getting down on the floor, though, it's a no go.

I'd never be able to get myself back up!

  #782  
Old Aug 29, 2020, 01:12 PM
Anonymous41006
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I googled flare and this came up ...

Fibromyalgia Check-In Thread #5 ...

It's for Rheumatoid Arthritis, but I believe it applicable here as well, and ...

Sometimes a little humor helps!

  #783  
Old Aug 29, 2020, 07:14 PM
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Quote:
Originally Posted by Pfrog View Post
It's worth checking into @lizardlady ...

If it requires getting down on the floor, though, it's a no go.

I'd never be able to get myself back up!

Yoga positions can be modified so you have to get down on the floor. I've seen videos of yoga done sitting in a chair.
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  #784  
Old Aug 29, 2020, 07:15 PM
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Love the chart pfrog. You find the best funnies.
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  #785  
Old Aug 30, 2020, 06:29 AM
Anonymous32451
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pain isn't worse today, but certainly isn't better either

ow
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  #786  
Old Aug 30, 2020, 06:31 AM
Anonymous32451
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Quote:
Originally Posted by lizardlady View Post


Yoga positions can be modified so you have to get down on the floor. I've seen videos of yoga done sitting in a chair.


I'd worry about getting down on the floor

not sure I'd be able to get back up again without assistance

even with my grabber for when I drop things, it's hard
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  #787  
Old Aug 31, 2020, 05:57 AM
Anonymous32451
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up all night with the pain

not got any less since friday (it's no worse, but certainly not better)
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  #788  
Old Aug 31, 2020, 08:06 AM
Anonymous41006
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After sleeping on it and speaking with a couple of the administrators, I've decided to not close my account.

I am very overwhelmed right now and not thinking too straight.

It would be pfoolish to leave a place that offers encouragement and support right now.

Thank y'all for caring about me ...

Hugs from:
lizardlady, ~Christina
Thanks for this!
~Christina
  #789  
Old Aug 31, 2020, 08:51 AM
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  #790  
Old Aug 31, 2020, 11:05 AM
Anonymous41006
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Thank you, @lizardlady ...

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  #791  
Old Sep 01, 2020, 04:41 AM
Anonymous32451
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it's not bheen good!.

yesterday, (after my small and unfilling meal), my overeating went through the roof.

didn't sleep because of the agony in my body, today I had a panic attack (making 6 this week), and I am honestly beyond depressed.

I am meant to be watching a programme about emergency services in the UK. honestly I don't really want to, but, it's that or focus on how emotionally broken/ ugly/ bad I feel.

and I choose the show.

plus: yesterday I did so little (sit on a chair and cry for most of it), watching a show is quite a big step I guess
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  #792  
Old Sep 02, 2020, 10:19 AM
Anonymous41006
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Boom Straight To The Moon!

That's how rapidly my pain levels escalate when these stinkin' lesions (biopsy confirmed psoriasis) appear on my body.

Never more than 3 - 5 at the time (this time an extremely painful one in my right nostril, a nasty looking one on the back of my right hand, and another one on my left cheek back where the hinge of the jaw intersects near the ear and sideburns).

The pain, stiffness and brittleness I feel in my joints and all over the rest of my body is incredible!

Then as those little bastids start to fade away, the pain levels return to what I consider "normal", but "normal" is no walk in the park either.

Hugs from:
Cocosurviving, lizardlady
  #793  
Old Sep 02, 2020, 03:46 PM
Anonymous32451
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I have been in so much pain today.

so much so that I've been unable to log in (until now), it really sucks, especially as I know that rest is good for you and will help the pain, but I can't rest so double annoying

but I wanted to post here and let everyone know I'm around.. not sure I could live with myself if I didn't post an update
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  #794  
Old Sep 03, 2020, 03:18 AM
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Cocosurviving Cocosurviving is offline
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Location: Muscogee (Creek) Nation Reservation
Posts: 5,920
Yesterday (Wednesday) was definitely not a good day. My atopic dermatitis, chronic idiopathic urticaria decided to flare up at 3 AM CST. My face was even flared up with urticaria. I took my emergency 🚨 medication which put me to sleep. At 9 AM CST my baby (my dog) 🐕 was vomiting. I was trying to speak to her veterinarian while medicated (very drowsy).

With Covid19 I had to sit in my car the veterinarian waiting area is closed. My Fibromyalgia (legs, shoulders and torso pain) was flaring up. I had to leave and tell them to call me. When I received the call with the total cost I was ready to panic. I have an appointment today (Thursday) with my dermatologist.
__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Anonymous41006, lizardlady
  #795  
Old Sep 03, 2020, 05:00 AM
Anonymous32451
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feeling a little better (still in pain, but a little better)

what helped me a little today was putting my laundry basket on the bed before putting the clothes in it

still: that's my next investment, a laundry bag that can actually stay upright

I am finding that I need more and more things to help with the pain daily.

I hope to eat better too today. yesterday I was in so much pain, the only thing I could really eat was 2 burgers- and when I couldn't eat the other 2 I felt really depressed about it.

I hate food waste.
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Anonymous41006
  #796  
Old Sep 03, 2020, 12:59 PM
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~Christina ~Christina is offline
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Member Since: Jul 2011
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Posts: 22,450
YAYAYAYYAYAYA Pfrog
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Helping others gets me out of my own head ~
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  #797  
Old Sep 03, 2020, 04:43 PM
Anonymous41006
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Thank you, @~Christina ...

Thanks for this!
~Christina
  #798  
Old Sep 04, 2020, 03:33 AM
Anonymous32451
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had my friday shower today.

90 percent painfull, and had to stop

just did the bits that wern't painful. not going to put myself through it. honestly not worth it
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  #799  
Old Sep 05, 2020, 09:19 AM
Anonymous32451
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I have so many threads in this subforum it is actually embarrassing (at least it is to me)

just my random observation for the day.. I've quite a bit of content in this forum

(and I should be content with a check-in thread. *sighs*)
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  #800  
Old Sep 05, 2020, 09:20 AM
Anonymous32451
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oh yeah: and simply because I've not said it yet, my mcdonalds last night was awesome. I really enjoyed it.
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