[lizardlady]

Coco, welcome back.

[childofchaos831]

Just stopping by... Still hurting, as usual.

[~Christina]

ChildofChaos I am so sorry that you are hurting But I am glad you are voicing it.. Often it helps to just be heard when we struggle with chronic pain...

I've been in a massive flare for 3 months now and I dont think it will ever ease any.. I am binge watching ER and falling in to show allows me a bit of an escape.. I also have a book series I love, Distractions ....

Is there anything you can do that offers you any kind of relief even if just temporary? Sometimes a bath is nice or a shower or doing gentle stretches.. Im still looking for something to help me, If I find something else to try I will let you know so you may want to try

[childofchaos831]

Mostly we try to distract, like you said... We have medicine, but we don't like taking it all the time because it's an NSAID so it can cause stomach problems. However, thinking we're going to take it tonight. With our muscle relaxer.

[~Christina]

ChildOf Chaos. I hope that you found some relief and got some much needed sleep

Happy Pfriday To My Chronic Pain Pals!

Yesterday's storm chasing venture yielded ...



I captured that shot at Smithonia, Georgia. More info on Smithonia available here:
Smithona Farm | History

Watson Mill Bridge State Park, home of the longest covered bridge in the state of Georgia, was also a part of yesterday's chase ...





I'm rather pleased with the results and hope y'all enjoy them too!

[lizardlady]

Thanks for the vids Pfrog. Love the bridge! Have you heard anything more about going back to work?

Thanks, @lizardlady!

That bright bubble that's falling near the beginning of the first video is a raindrop!

Haven't heard anything about work yet.

Phase 1 of reopening starts on 06/15, but that's for the movers and shakers.

We've been instructed to not come to campus until explicitly told to do so which could be another month or so off.

Maybe I'll be one of the last ones called or even be assigned to work from home a little longer.

I have consistently proven to be responsible with that!

As soon as I hear something I'll let y'all know ...

How have you been doing lately?

[lizardlady]

Sounds like your employer is being very sensible about taking care of y'all.

In terms of fibro I'm doing okay. In other areas I'm not doing so great. I don't like the way I've gotten to be - negative, judgemental, angry a lot of the time, depressed and cutting myself off from the world. I know it's all a reaction to what's going on in the world. My coping skills are overwhelmed. I know I need to change my thinking. I know the things I ought to be doing to feel better. I just don't have it in me to do those things.

I hear you @lizardlady ...

It is sometimes just too much!

Try to be extra patient, gentle & kind with yourself (even though that can be hard too)!

[Cocosurviving]

Thank you all for the responses. I’ve been gone so long I can’t remember how to work the features. Lol
I’m still in Oklahoma right now. Yesterday was really stressful because I was sent messages about fires in Nashville. I’m oldest son and I have other family in Nashville too. It took a while before I was able to reach some of them. All the situations that are unfolding further prevent me and my teenage daughter from being able to return to Nashville.

With the many autoimmune illnesses that I have it was actually recommended I no longer live in Oklahoma because of the environmental toxins. Also this state lacks a lot of resources and getting into see specialists take months.

I messaged one of my best friends that workers at Vanderbilt Medical Center. I was having an emotional moment. May 31st, 2012 was the last day I worked. I was just so flooded with memories and how my life has changed. Thinking about all the medical mismanagement, medical redlining and medical gaslighting.
Over the last two years I have had all my medical records and labs mailed from Nashville, Tennessee to Oklahoma.
I was seeking answers and I was not ready for the outcome. The healthcare field let me down and many others. My medical records and labs clearly had indicators of the multiple chronic illnesses that it took me years to get correctly diagnosed with. Which the lack of “correct” treatment exacerbated my symptoms.
It has been a wild roller coaster 🎢 many days filled with tears, frustration, depression and exhaustion.
Many, many hospital and urgent care trips.
I had to learn to seek my information to research from whoever had it regardless of the state or country they lived in.

[lizardlady]

Coco, I believe many here can relate to it taking years to get the correct diagnosis. I've probably had fibro and CFS most of my life, but was in mid40s when finally diagnosed.

[lizardlady]

Spent Sunday climbing up and down ladders finishing painting Mom's house. My left knee was kind of cranky yesterday. It is blown up like a balloon and hurts like hades today. Whine, whine, whine...

[~Christina]

Coco... Yeah Nashville has alot of shyt going on as does the whole nation. Things just have to change

I am so glad that you finally got some much needed answers to explain what was really going on with you

I am surprised with how little pain I am in, seeing as it is now thursday and I'm still doing quite good

usually by now I ache like hell

I am thankful to the fibro gods or who ever is making it easy on me

[~Christina]

I saw my Doctor last week for annual exam.

I have been on Flexiril for probably 11-12 years? I honestly dont think it was helping anything. I asked about Baclofen 10 mg... I can take it up to 4 times a day... I have a friend that it was a huge help but had breathing issues so she had to stop. I am so hoping that it will help me. I also want to give Metformin another try I do not have diabetes, But it can help losing psych med weight gain..

Gentle hugs

I hope the Baclofen helps @~Christina, and gentle hugs to you too ...

I posted this at another thread here earlier this week, but I think it fits here too.



The bewildered expression on the face of that bear as he watches his body disintegrating right before his very eyes!

It captures so much of what I'm feeling but often can't find the words to express!

[~Christina]

that fits 100% Pfrog

struggling a lot with pain this week

this afternoon I watched an australian drama on tv, and it just felt good to be doing absolutely nothing- just watching the show

I mean: it would have been even nicer if I could relax, but like that was going to happen: relaxation just doesn't happen for me

I quit taking that Meloxicam ...

There isn't enough water in the Mississippi River to pfix how dried out (dehydrated) it was making me!

Originally Posted by Pfrog

I quit taking that Meloxicam ...

There isn't enough water in the Mississippi River to pfix how dried out (dehydrated) it was making me!

not fun.

I hate dry mouth...

I feel like my life is virtually over.

last night I found out that my online support group for incontinence sufferers was closing, meaning that I have lost over 90 percent of my friends (most of my friends I made through that group), and I am now back to a laughing stock- rather than having people that understand what I go through, people look at me now and are like.. wow, really?. that's gross!. and I'm actually feeling really bitter about it I just want to lie their and smell. but I showered today (even though it caused me great pain), and I had a fresh fruit salad- which like I've said before I try to eat more to have a healthy start to the day. but I am doing nothing today, I have no plans, and I generally feel like a big part of my life has just been ripped away

I'm sorry you lost your group support, @raging vortex ...

A lot of people just don't understand how badly these kinds of losses impact other human beings.

And to make fun of those suffering incontinent issues is a disgrace!

It's just plain cruel and has no place in society.

Sadly society just doesn't seem to give a damn anymore!

An update on my work situation ...

Spoke with the Good Egg today, and he's still on it. We also talked about the disability process a little bit in case the other doesn't work out.

I really hope the other does work out as I really don't want to lose my retirement less than a year away from being vested.



And, here's a little humor because sometimes a little humor helps ...

Originally Posted by Pfrog

I'm sorry you lost your group support, @raging vortex ...

A lot of people just don't understand how badly these kinds of losses impact other human beings.

And to make fun of those suffering incontinent issues is a disgrace!

It's just plain cruel and has no place in society.

Sadly society just doesn't seem to give a damn anymore!

I couldn't agree more, frog.

thank you for your post. it means a lot

still feeling I don't really belong anywhere, but that's only because of how much that group meant to me