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  #726  
Old Aug 15, 2020, 03:48 AM
Anonymous41006
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  #727  
Old Aug 15, 2020, 04:37 AM
Anonymous32451
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yesterday I had a mcdonalds. it was lovely, in fact: the best meal I've had all week (sad really, but that's how it is)

feeling mainly depressed today, but the good bits are that it's a lot cooler (the heatwave is weakening which is great news for my pain), and I've done some self-care. eat fruit salad, drink water, clean clothes..
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  #728  
Old Aug 16, 2020, 04:03 AM
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I have 2 wasps in the house today.

it is very disturbing, because I am alergic to wasp stings (I go in to shock)

thankfully, they are behind a closed door (I made sure they stayed in the lounge with the window open so they can fly out)

it is still scary though

had a shower today, my fruit salad, currently drinking some flavoured water (orange and peach flavour)

feeling okay (with the obvious acception of the wasps)
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  #729  
Old Aug 16, 2020, 05:06 AM
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Fibromyalgia Check-In Thread #5 ...

I keep telling myself everything is going to be okay.

Just wish I believed it ...

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  #730  
Old Aug 16, 2020, 05:42 AM
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Quote:
Originally Posted by Pfrog View Post
Fibromyalgia Check-In Thread #5 ...

I keep telling myself everything is going to be okay.

Just wish I believed it ...



they will be, because you have us

and a problem shared is a problem halved..
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  #731  
Old Aug 16, 2020, 07:59 AM
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  #732  
Old Aug 16, 2020, 09:09 AM
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Thank you @raging vortex & @lizardlady ...

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  #733  
Old Aug 17, 2020, 04:00 AM
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update on the wasp situation: they are still very much alive!.

when I walked in to the lounge this morning, I couldn't see them or hear them, but when I turned on the light I saw that they were hiding in the light switch!. I ran out their as fast as I could go. such a scary situation!. and I generally thought they had gone yesterday

new week, same ****

plans for today: nothing, and unless anything changes, it's that all week.
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  #734  
Old Aug 18, 2020, 04:55 AM
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Cocosurviving Cocosurviving is offline
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Yesterday: Monday, I felt very fatigued and did a lot of sleeping throughout the day. I woke up at 11 PM CST and started being productive.
I’m very productive in the wee hours of the morning. I did some cleaning, walking my dog for 20 minutes, cooked dinner for this evening, walked 45 minutes and took a shower. I double checked the time of the autoimmune diseases webinar today. It starts at 12 EST. I’m going to practice a language lesson, make my to-do-list for the week and a food menu for the week. With me having insomnia my basic sleep 💤 routine is the same as when I worked graveyard shift.
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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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  #735  
Old Aug 18, 2020, 06:35 AM
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the wasps are gone.

yesterday it rained, and of course: wasps hate the rain (wasps are also quite stupid)

so they flew out of the window soaking their wings

ah well: at least they are gone, and I think that's the last I'll see of any for a while (we're meant to be getting early fall storms!)

nothing today, though I probably don't need to say that. this is my life we're talking about.
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  #736  
Old Aug 18, 2020, 06:55 AM
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Fibromyalgia Check-In Thread #5 ...

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Thanks for this!
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  #737  
Old Aug 18, 2020, 05:40 PM
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Looks like me when I crawled out of bed this morning.
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  #738  
Old Aug 18, 2020, 07:47 PM
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I posted a version of this in the current events forum. I wanted to get input from folks here since y'all have an understanding of my fear related to this damn virus.

I work in the school system as a counselor for at risk kids. When the schools moved to distance learning in March we started providing services virtually. Well, students are going back to school. The agency I work for is fine with us continuing to "see" kids virtually. I hit three high risk categories.

Part of me wants to continue virtually. Kids are walking germ factories and have horrible personal hygiene.

An equally sized part of me wants to go into the schools and see my kids face to face. I haven't seen them in person for five months.

Other considerations....
Staff at some of the schools is terrible about social distancing and wearing masks. Kids are not required to wear masks. My state is a current hotbed for the virus. Because of the shutdown the agency is not meeting its contract requirements which puts our jobs at risk. We need to make contact with school personnel to generate referrals and income.

Here is the plan I've come up with. Tell me what you think. The first couple of weeks of any new school year are crazy. This year is worse than usual. I've been reaching out to school contacts by phone and email to let them know I am available. I plan on physically going to the schools the second week of classes. The chaos should be somewhat under control by then. I'll assess whether kids and staff are social distancing, wear masks etc. If things look safe I'll continue school visits. If not it's back to virtual. If things look outlandishly noncompliant I'm going to turn around and leave the building.

Sorry this is so long. Thoughts anyone?
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  #739  
Old Aug 19, 2020, 04:25 AM
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If I could continue fulfilling requirements by being virtual, I would take that route @lizardlady.

In our state, a lot of schools that reopened had to shut back down immediately due to a sudden surge in cases.

That's why I'd stick to virtual if at all possible because once exposed and infected, there's no undoing that.

You mentioned being at high risk on three levels, and I think your health is most important

Tough decision for sure, but reducing risk of exposure is paramount!

Thanks for this!
lizardlady
  #740  
Old Aug 19, 2020, 05:17 AM
Anonymous32451
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I have just finished responding to a survey for a friend's course she is doing

it really tested my patience... it was over 100 questions, and by question 10 or 11, I was like why am I doing this?

but I did do it and so now she has my response

today it is raining, and trust me, we really need it after the heatwave we've been having (yes guys, england has heatwaves too. lol)

doing.... absolutely nothing

currently on the forum, emails open, listening to music
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  #741  
Old Aug 20, 2020, 05:35 AM
Anonymous32451
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what never fails to amaze me is the sounds that come out of me when I'm in pain

today I sounded like a bird trapped in a tree while getting dressed. the pain is lessened by the colder/ wetter weather, but is still their
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  #742  
Old Aug 20, 2020, 02:13 PM
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We (Me, My Psychologist & My PCP) are trying to get me in to be seen by an orthopedic surgeon.

Scared Chitless!

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  #743  
Old Aug 20, 2020, 06:59 PM
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  #744  
Old Aug 21, 2020, 01:44 AM
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Cocosurviving Cocosurviving is offline
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Yesterday was very busy. Lots of packing, preparing and trillions of phone calls. 🙄🙃 I was able to get a 25 walk in. I hope I can remain sane the next month. I’ve been doing a lot of sleeping 💤. I checked the weather and thought a change was going to happen. Fatigue and sinus pressure pain have been a throne in my side. Then IBS decided to join in. I’ve been making sure I don’t forget to take my vitamins, supplements and medications. Our new place is not ready and we will be staying with my brother until our next apartment is ready. Our dog 🐕 will be in boarding. I’m going to miss her so much. I’ll definitely be sure we can go visit her.
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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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  #745  
Old Aug 21, 2020, 05:17 AM
Anonymous32451
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today while I was showering, I couldn't help thinking that the shower chair I was sitting on was about to break.

fat and ugly!. I so hate my appearance, and if showers don't make you realise that and that you hate yourself, I don't know what will.

seriously: it's like the only time I look at myself. I don't use them irror. don't want shrek staring back
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  #746  
Old Aug 21, 2020, 09:51 PM
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~Christina ~Christina is offline
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Hey Pfrog Thanks for checking on me

I have been dealing with absolute rage lately.. Meds arent touching it... My Pdoc knows I cant go IP even tho he thinks I should due to my not being able to leave my husband alone..

Gentle hugs everyone
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  #747  
Old Aug 22, 2020, 04:20 AM
Anonymous32451
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getting ready for the day was agony, absolute agony

feeling depressed mostly. weekend, everyone doing stuff apart from me!

now where have I come across that before. hmmm

oh yeah. I remember. every ****ing weekend
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  #748  
Old Aug 22, 2020, 07:23 AM
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Would letting yourself give into the rage for a bit help? Some times it helps me to just let go, rant, rave, pitch a hussy fit.
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  #749  
Old Aug 22, 2020, 07:42 AM
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Cocosurviving Cocosurviving is offline
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Morning everyone! It’s 7:30 AM CST and I’ve been up since 11:30 PM CST doing more packing. I’m already over 5,000 steps and my body feels like a walking bruise. 😜 I ate a last of leftovers for breakfast so there will be less food to transport in the hot summer heat. I’m glad I do have a few ice chest. After doing a lot of thinking 🤔 me and my teenage daughter don’t think it’s a good idea to have our dog 🐕 in boarding for so long. She’s never been away from us more than one week. I will keep everyone that’s struggling in my thoughts. I’m going to take a nap 💤 before my stepdad arrives to take my bed 🛌 down.
__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Anonymous41006, lizardlady
  #750  
Old Aug 22, 2020, 08:41 AM
Anonymous41006
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You're welcome @~Christina ...

Raging is Okay ... Sometimes it's all we've got -

Dammit!

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Thanks for this!
lizardlady, ~Christina
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