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#1
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Apologies for long post. I'll try to explain as best I can.
I am the 39-yr old mother of an exceptionally special needs Autistic and Intellectually Delay child, I myself am diabetic (4 insulin shots a day), CPTSD, OCD, and severe Anxiety/Depression disorder. I care for him 24-7 on my own at home, no help available whatsoever. My son has explosive meltdowns, severe manic episodes, and gets extremely violent and aggressive. He harms himself, others, and has caused thousands of dollars worth of property damage in the last year alone. And has been hospitalized in psych care for this countless times since he was 2. And to top it all off, I have the worst narcissistic ex bf (my son's stepfather) lurking around "To help out" and despite my many attempts, he will not leave. This has been my life every day for the last 8 years. The constant meltdowns, getting beaten up by my 9-year old several times a day, my house getting destroyed, all while there is a man sitting on my couch, acting like my son and I dont even exist. (Unless he needs or wants something, of course!) Him even being here is a constant ptsd trigger, and my son's abusive behaviors trigger me as well. I'm averaging roughly 10 panic attacks per day now, and my anxiety stays so high that I am losing weight and blood sugar levels are up and down. I'm weak, exhausted, and worn down. Have been for months. I feel the need to cry, but no tears well up. So I sit in shivering silence until it passes. I can't take anymore. I have given until I have nothing left of myself. I am empty, alone, and dying inside. Trapped in this situation and falling apart. Don't know what to do. |
![]() Anonymous55397, bearguardian, Daisy Dead Petals, Fuzzybear, MtnTime2896, Nammu, newday2020, Open Eyes, Pastel Kitten, RainyDay107, reb569, Trace14, Unrigged64072835
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![]() Fedor
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#2
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This is not a healthy environment for you or your son. Could you take him to the hospital and see if they can help with medications or placement of him until you can get yourself together? We have group homes here where children with special needs stay with trained providers and caretakers. The family can come visit and spend time with them. But the main thing is they get the medication and therapy they need. Plus gives the parents a break who are totally exhausted on many levels. Finding places like this doesn't mean you don't love your child, or that you have given up on him. Just the opposite that you are trying to give him a better life and with you getting help yourself while knowing he is safe is going to give him a more healthy mom. Please look into something where you both can get to be in a healthful and safe environment.
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![]() WoundedAngel
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#3
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"Do you know what’s really scary? You want to forget something. Totally wipe it off your mind. But you never can. It can’t go away, you see. And… and it follows you around like a ghost." ~ A Tale of Two Sisters (Janghwa, Hongryeon) (2003) "I feel like an outsider, and I always will feel like one. I’ve always felt that I wasn’t a member of any particular group." ~ Anne Rice |
![]() WoundedAngel
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![]() Trace14
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#4
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I do have my son in every in-home service you could think of, and he has been hospitalized and in group homes countless times since he was 2. It seems as though every time he is put in placement, I get time to take care of myself and rest when I need to, but as soon as he comes back home, it goes right back to not being able to do what I need for myself. I literally have no life outside of my house when he is here. He is in psych placement now, but I was told he may be coming back home in a few weeks, maybe. I'm already nervous and afraid. I've had my face broken ( kicked right below the left eye, deep facial fracture), had my hair ripped out...you name it. And he has done so much property damage that we are at risk for eviction. His psychiatrist has suggested that I consider some type of long-term/permanent placement for him. Plus, the local school system has all but given up on him. I feel awful. I've done everything I can think of to help him and nothing works. I feel like a failure as a parent.
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![]() Nammu, SoupDragon, Trace14
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#5
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It doesn't sound to me, that you have failed your son in anyway. As you say, you'very done everything you can to help him, it sounds exhausting. Maybe a long term placement will help all of you. I remind myself of the emergency talks they give on airplanes, that if the oxygen masks come down, it is yours that you must put on first. If you are trying to meet the complex needs of your son 24/7, how can you even start to look after your own needs? Being in placement, doesn't mean you stop being his mum, it just means that he can get intensive specialist care and you can look after your well-being, so that when you do spend time together, you may both enjoy that time better.
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Soup |
![]() Trace14
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#6
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My aunt was having the same feelings you are. It is hard to understand and accept. But when there's absolutely nothing you can do, you have to hand this over to someone who can help him before he does something that he may be jailed for. With that I mean a mental health jail. Give it some thought. I know it's hard but I feel like you will do the right thing. We are here for you.
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#7
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Thank you all for being so understanding and supportive! I went to visit him over the weekend and yesterday (he's in psych hospital now), and as usual, he is extremely hyper, defiant, and aggressive. I literally could not keep up with him, and after a two-hour visit I was was not only a nervous wreck, but I was exhausted to the point of feeling sick.
I was given a copy of his behavior mod plan to use at home, and it is ridiculous. It was written more for hospital staff use than anything. Meaning, it would work if I had people living here with us. There is no way I can do all of this on my own! Every day I am faced with the reality that I may have to put him in some type of permanent placement, and it guts me every time. Plus Im afraid of what it would require to do that, and what such a big change would do to my son. I just wish that there were a way to help him in that way, but still be able to still be in his life. I'm terrified for us both, and have no idea what to do. ![]() |
![]() TinkModeen, Trace14
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#8
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#9
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You are not a failure, you are in a living hell afraid of your own child that "can" and "has" physically hurt you.
I am wondering if you can keep him in some kind of care because you are SO challenged with your own mental health issues. |
#10
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![]() Nammu
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#11
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I just wish I could find other parents that have been in a situation such as mine.
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#12
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#13
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Have you tried the Partners of People & Caregivers Support forum. I know they talk a lot about issues with being a caregiver. You might want to read through those posts and see if there's anyone facing the same situation.
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