[Marylin]

So I had a hysteroscopy on the 18th August and they did a biopsy and today they told me I have precancerous cells and possibly stage 1 cancer.They said I am to have a hysterectomy on the 4th Oct, I am terrified actually but they said it is ok it isn't advanced they caught it early and it is curable and I have to have the op.

I was at the hospital today four hours,they did a preop assessment,took blood,did an ECG and took my blood pressure,and I had a chest x ray which seemed to be clear.I have to have an MRI scan which really scares me,I hate being in that machine,but I will have to cos he said that will give him the best information if there is any cancer spread to the pelvic area kidneys etc

I have to have a stress echo to check if I have angina too before the op and I have lots to arrange and organize before the op.I will be in hospital 4 days they said.I have to arrange after care and care for my pets will I am in hospital.They want to do the removal by keyhole surgery if it is possible which I prefer to them cutting me open but it depends on if they can do that.I have to find someone to bring me home from the hospital and sit with me.

I told my mum she will support me all she can she said ,she is helping financially with costs for my pets and after care.Which is good of her really though I don't expect emotional support cos being a narcissist she isn't good at that.I don't really know if she cares or not or if she secretly wants me dead like my narcissist sister.But she doesn't have to pretend to care does she she doesn't get anything out of it she would turn her back completely if she didn't care some,there is nothing in it for her to support me and give me money?

I am very tired it has been a long day.I have too much on my mind to sleep yet though.I think the worst,lots of what if's,what if I die on the op table,what if it comes back somewhere else the cancer after the op?
Did I cause it by eating the wrong foods,I blame myself but others have said you can't be to blame cos people who eat healthy and have none of the risk factors get it too,we can't lead perfect lives and,we just have to let it be,accept it and love ourselves.So I have been told to do all I can to keep things simple and peaceful and to nourish and nurture myself.
Can't help feeling sad tonight.I plan to get up shower and have plenty of rest tomorrow,just do the must do chores.Any support appreciated.Thanks.Marylinx

[Yours_Truly]

I'm so sorry you have to go through all of this but thankfully it's operable. I'm so glad your mom said she'd be there for you. I'd hate to think of you doing it all alone. I will be sending you positive thoughts.

[Fresia]

I am so sorry to hear of the diagnosis and what you are facing; you are pursuing great treatment options and know that you are not alone no matter what. Please check this out:

Hysterectomy - HysterSisters

You are stronger than you think and help is out there as well. Do what you need to take good care of you during this process. You will be in my thoughts. Hang in there.

[Unrigged64072835]

I had a keyhole hysterectomy in 2013. I didn't need that much time to recover (only about a couple of weeks). I didn't have cancer but because of my family history I was a cancer risk.

[BeyondtheRainbow]

Same as Fharraige only a year later. Mine was laparoscopic but they did cut the cervix out and removed everything intact through that hole.

I did need help at first and stayed with my mom for a while. My recovery was a bit slower but that was partly related to being extremely limited in what I could take for pain so that I was on vicodin longer than typical.

Hystersisters is very helpful

One of the things that I remember being told that helped a lot was to buy Vasserrette support underwear at walmart. they are very cheap there and were more comfortable with the extra support in the early days.

I hope you get some good rest and feel less overwhelmed.

[~Christina]

I had mine almost 14 years ago, I had cancer. Due to a softball size fibroid tumor I also had I had to have a ole fashioned cut from hip to hip basically, it gave my doctor the ability to get a good look at
everything and take many biopsies

Post op ? I was in the hospital 3 days, went home and just followed the restrictions of very limited lifting etc , I slept with lots of pillows to support everything. My mom had planned to stay for a week , wasn't necessary . I made dinner second night home . I do have a high tolerance to pain.

One bit of advice my Doctor gave me was stand straight up as soon as your up walking after surgery which for me was 4 hours (by choice) I refused to hunch over , best advice he gave me.

If you haven't found the web site " hystersisters" go there fabulous support and I made many friends there that we still keep in touch.

I hope your surgery goes smoothly and will take care of any cancer ❤️

[Marylin]

Hi all,
I had a scan last Saturday and MRI cos my doctor wanted the information to work out the stage cancer I had he initially thought a grade 1.Well can you believe it the good news is there is no cancer outside the womb and absolutely none inside the womb either.the results came back that the only cancer I had was on the polyp they removed at the hysteroscopy and did the biopsy on.I am cancer free now cos they removed that!Wow!brilliant news.

I am still being advised to have the hysteroscopy cos the polyp had precancerous cells and they can grow back and there is a 50% chance they will do that, in my case that could mean cancer that spreads this time so not taking chances,the womb is being removed.

I am booked in for Tuesday 4th October providing there is a bed available when I turn up otherwise it will be cancelled and resheduled.That is so long as all goes well with the anaesthetist tomorrow morning and he okays the surgery to go ahead!I really hope it is possible to do the surgery via keyhole and that will mean less pain,less mess and shorter recovery times.I also get to be brought home by someone from Age UK hospital after care service and get free after care support with my chores twice a week.

I guess that is good for an outcome and my prognosis is good!

[Marylin]

So I saw the anaesthetist today for my preop assessment.She said there were possibilities for complications for the operation and for my recovery.She said cos I had sleep apnea the risk of a heart attacks and breathing difficulties were high,and cos of my diabetes the risk of infection was high too.I will probably need an oxygen mask after the surgery.So in light of all that I will be taken to the High Dependency Unit after the surgery for 24 hours.She said if the issue hadn't been as urgent as cancer they would not be agreeing to do the hysterectomy.So when she said that I said,that makes me think and feel that I am going to die on the operating table.She said you are not going to die but there will be difficulties that we have to be aware of....not feeling very happy about any of it but I have to have the operation so I am going to try and be as positive as I can.
I still don't know in my own mind though if I will survive the operation or whether I will not have anything serious happen to me after that might mean severe disability rather than just the chronic stuff I deal with everyday right now,we will see!

[Marylin]

So I got very upset yesterday after the anaesthetist said if the surgery wasn't urgent I wouldn't allow this operation because you are not fit.So I thought long and hard and did not actually want the surgery I didn't want it from the beginning,so I decided I wouldn't allow them to operate on me.I cancelled the operation myself.

First of all I am now cancer free,the MRI and biopsies showed that.So why is a hysterectomy urgent.There was from the beginning a question mark over whether I had cancer but the consultant practically ordered me to have a hysterectomy.This upset and angered me.Surely there is the option to monitor me regularly and first sign of precancerous cells do a D&C scrape to remove them,why force a seriously ill and unfit woman to have major surgery that is dangerous for her to go through.

The more I thought about how they had painted a blacker picture than was actually the case to get me into the operating theatre the more angry and upset I got.

So I wrote a letter of complaint to the hospital saying I refuse to have a hysterectomy and I refuse to see this consultant again cos he didn't give me a chance to decide and review my options,he didn't even tell me I had other options not even after the MRI scan showed I was cancer free.So I've asked for copies of test results and to be informed in writing I am cancer free that there is no urgent need for a hysterectomy and that there are other options.
I asked for a woman consultant to oversee my monitoring and a different MacMillian Nurse cos this one lied to me.

I feel I have been messed about and put under unnecessary stress and caused me distress,I am furious to be made to feel unless I have a hysterectomy I am going to die then to be told I have no cancer and still be made to feel the cancer could come back and kill me and that there is no time to lose the womb has to come out.****ing butcher doctor!And nurses!I hate them,they are unfeeling ****s.

So now I have to look after my body and make myself fit.Eat healthy,lose weight and exercise.I was and still am taking medical cannabis and I think if I had extensive precancerous cells that is what got rid of them,You can't tell the doctors that they don't listen or want to know.**** them.

[Marylin]

I have relaxed and calmed down but them saying I had cancer and rushing to get me into surgery and lying to make me go through with it and then them finding there is no cancer in the womb only precancer on a polyp that they removed but still saying I have to have a hysterectomy operation urgently,that distress me a lot and my mental health deteriorated from the shock,fear and distress they caused me.Totally misinformed and lied to I was.I wonder how much more they get paid for operation rather than other treatments cos this surgeon didn't mess about he saw the words precancer and immediately after talking to me for 10 mins and breaking the news got me to sigh a consent form for hysterectomy,he said I had to have it!

As it turns out as you know the MRI showed no cancer is the womb,we have a precancerous polyp that they removed from me and precancer cells when they appear take 10 year approx to become cancer so removing the womb is urgent,I think not!

The prospect of a major operation when I am so ill was causing me to fear and worry a lot,sure as hell wasn't going to go ahead with it when the anaesethetist said normally she wouldn't allow the operation cos I am not fit for it,I mean did she think I was so stupid I'd let them cut me open after that!She must of thought they had frightened me enough to make me do that and she herself was pushing all my fear buttons,panicking,saying it was urgent cos it's cancer it could come back and kill me so it must go ahead.

I am really settled back down now after all the upset and I am glad I was able to take control.My fer being cos of my mental health if they tried to take it to court and force me to have the operation.They can't do that though cos I am discharged from the CMHT and don't see a psychiatrist and am seen as competent and able to make decisions.You can understand though it was very distressing and worrying and confusing to be told I have cancer then told I haven't got it and still they want to do the same treatment for both,put me under the knife.I keep going over and over it cos it was traumatic.Lucky it hasn't triggered PTSD symptoms but it can do and I am getting fear of dying thoughts which can happed with PTSD when you have been severely abused and are in shock,which I was traumatized by being lied to by a nurse and thinking I was going to lose my womb.

I am trying to rest and relax now as I say I have recovered somewhat but I am still ill and unfit.

Marylinxxx

[Marylin]

So my GP rang today and gave me a massive injection of fear, and despondency,he tried to convince me I did have cancer and had to have the hysterectomy,he said I didn't have much time and needed to be seen urgently,I told him he had the wrong information and what the nurse said about the MRI and me not having any signs of cancer in the womb.I made him go into the hospital computer for the lab results he conceded they were clear and that all they found was precancerous cells on a polyp that had been removed.He then said it was still in the womb I said they biopsied the lining and it was clear,yes he said it was clear but that is only a small piece of the womb,the rest could still have cancer.I said could you don't know for sure,he said I advise you to get retested and soon.He brought my morale right down he called me dear, and said, No, you do have cancer dear!He was so emotionally abusive and patronizing.To insist I have cancer and make me feel it was going to spread and kill me when I don't have cancer is emotionally abusive.I have felt low and been wanting to cry all day but I am all hurt and blocked emotionally inside,there are tears there but I can't get them out and I know a good cry would help!

I am just going to have to keep challenging them and fighting for the truth and my own corner...THE MEDICAL MAFIA are on my case,

[Marylin]

So they want me to go to a different hospital and see a different consultant and have a D&C to harvest more tissue to do another biopsy cos they are now saying the biopsy they did on the endometrial tissue was an inconclusive result,they can't say there was cancer and they can't say there wasn't but some changes to the cells was detected.Also they are now saying the polyp they removed from me had actual grade 1 cancer cells on it not precancerous cells.I don't trust them they have told me three contradictory results now and I don't know whether to believe them If they lie they can make money out of giving me treatments I don't need.

I heard today of a blood test they can do to find out if I have cancer one way or another,it is called the circulating cancer cell test and it will tell me what I need to know without having to have a D&C.So I will have that done if I can get it done in the UK.It is new and it is said to be extremely accurate.

[Marylin]

I can't have the new test circulating cancer cell test cos the doctor that is going to arrange it wants to charge me £550 not only that but he had the cheek to say it might be more it might be less than that.I can't afford it so will have to see the doctors at NHS where I don't have to pay it might be more painful and distressing but what can I do.I am going to have to do it to see if I do have cancer or not.
I am trying to stay positive cos they did say they couldn't say there was still cancer in the womb and they couldn't say there wasn't so I need to try not to imagine the worst and scare myself.So I am having my one month break then going back to the doctor to get sorted.

[healingme4me]

just saw your other post in coffeehouse and directed myself over to this subforum to see what's going on with your health. Distressing, for sure and to make you wait even worse.

[Szegwy]

I'm so sorry the doctor has given you so many stories you don't know what to believe. I also understand not wanting the surgery and doing everything you can to keep your organs. Have you gotten a 2nd opinion yet? From a doctor at a different hospital. Find out who the best gynecologic cancer specialist is near you and try to see them.

[Marylin]

I have been off this forum for a couple of months.So I was referred to the other hospital 30 miles away and had tissue taken for another biopsy.before this I was taking CBD capsules and following an anti cancer diet with vitamin supplements.The biopsy came back clear and they said I was cancer free.This was in December.Last monday 16/1/17 I had another polyp removed and another biopsy,I am waiting for the results of those biopsies now.

The bad news is though I may be cancer free now my mum had post menopausal bleeding and had a biopsy and she has grade 2 cancer.I rushed to buy her CBD and vitamins and we put her on an anti cancer diet,her MRI result came back that the cancer hasn't spread outside the womb.She has agreed to a hysterectomy and it is going ahead her operation within the next three weeks.It could happen at short notice.
Everything has been a worry.I have been upset and unsettled worrying that whatever I eat will make the cancer come back.
I am upset tonight for other reasons I will post somewhere else about that.

[Marylin]

I had polyps removed and another biopsy on January 16th.I got the results today.No cancer on the polyps but abnormal cells in the womb which could go on to become cancer if untreated.The doctor said he knows I am keen to avoid conventional treatments so will monitor me doing another biopsy in six months time.

I am now going back on my strict anti cancer diet which I had let go,back on it with lots of diet food and anti cancer foods and vitamins plus aim to lose at least six stones in weight if not more and do daily exercise.

My niece has been reassuring me,she said while it isn't the best news it isn't as bad as it could be and I am to stay calm and do what I did last time and got a no cancer result.She sent me a big kiss and hug and a heart emoji.She is in London at university.I blame myself for neglecting myself,eating junk again and running round after mum instead of making myself a priority.

I am not going to worry just take better care of myself.

[Marylin]

I was depressed about my latest results showing abnormal cells today,I couldn't focus and was distracted all day.

Also I got the news my mum's hysterectomy is going ahead on Tuesday next week,they had a cancellation so mum's turn is up.I am going to visit her on Monday.I am worried but that won't solve anything will it?

[Marylin]

I have managed to get my diet 60% healthy foods but am still having unhealthy stuff like cake and chocolate 40% of the time.I am losing weight which is one of my goals so that is good.I don't know if I will develop cancer,I believe that if I clean up my diet 100% I can prevent that,I am going to try really hard.I am considering starting to do yoga.
I am optimistic I can get rid of the abnormal cells and prevent cancer.
I appreciate having this forum where I can express myself and how I feel and let it all out about what is happening.It is better than having someone to talk to cos I can read it back and reflect in how I felt when I wrote it and how differently and more confident I am now reading it back.
I hope and pray I can get my health back on track and even improve it on what it was!

[Marylin]

So I am just awakening to how serious things are concerning this cancer scare and me having abnormal cells.40% of my diet these last two months has been cakes,bread,chocolate,crisps and forbidden junk.I basically went into denial and buried my head in the sand.As far as humans go I am a complicated creature and my relationship with food has been complex all my life,I have had an undiagnosed eating disorder one of being an overweight overeater and for the last 10 years morbidly obese.

So no wonder my body is unfit and in desperate need of sensible, wholesome healthy eating,if diabetes and hypothyroidism and sleep apnea isn't enough of a warning,cancer is the loudest wake up call of all.

It is my birthday tomorrow so I am treating myself to a final treat meal at the pub,steak and chips.Then I will be back to no meat at all except the occasional fish meal.I will be eating mostly raw,salads,and cooked vegetables.I will try stay off the cheese,at the moment I am allowing myself Goat's cheese but when I have eaten what I've got I will cut that out,no cows dairy produce,and I will finally stop meat and sugary drinks from the pub and cafe.I think God is empowering me with knowledge on how to heal my body it would be a sin to ignore it.I signed up for Chris Warks square one cancer treatment modules and one of the things he says is to juice and drink it 8 times a day and to eat raw salad twice a day and eat as much fruit of any fruit that I like.So I have ordered myself a juicer machine and will be on a strict raw salad diet for the foreseeable.I have ten stone in weight to lose that is 140 pounds to lose and then I will weigh 140 pounds.
There literally has to be half of me left.

I am armed with a list of anti cancer foods,supplements and juice recipes so bring it on and hopefully I can convert that result of abnormal cells to the all clear again.My next biopsy is on July 17th this year,2017.I am optimistic that I can do it this time,eating more vegetables helps my depression too so it is the best route to go.A good dose of self love and discipline is what is needed and taking care of my body I have recently understood is a part of that,so I will be doing gentle exercises and maybe take up yoga.I am turning over a new leaf and starting a new chapter in my life where caring and self love is also about what I feed my bodyThanks for listening and responding if you do!

[Marylin]

Diet has been so so,partly really good but some not so good foods have been consummed.
I am not going to worry about it,I am doing my best to stick to healthy foods.I am losing weight which is something I must do so that is ok.......not going to be anxious and worry myself to death about dying from cancer.

My next biopsy is not until July 17th.I am enjoying Easter Sunday today,I know I am loved by both God and Jesus and that they will guide me to do what is right and good for me...I will rest in their loving arms if it comes to it and am to pass over!I will be ok whatever.