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Old Jan 12, 2009, 11:06 PM
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A question for people with heart problems / issues....
What kind of symptoms do you tend to suffer from when your heart acts up? - mild to severe symptoms, please list them all.

Thank you.

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  #2  
Old Jan 15, 2009, 01:02 PM
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- No Heart Patient willing to share their experiences? ? ? ? ? ?

* * * * *

Ok - I will share my symptoms:

Chest Pain (mostly right side)
Chest Pain (dead center)
Shortness of Breath
Numbness in face and lips
Back & Jaw Pain
Nausea with headaches and chest pains
Palpitations (flutters, thumps, pauses/stops)
  #3  
Old Jan 15, 2009, 01:10 PM
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Yowza! The jaw pain is worrisome. Nothing down the arm or in the shoulder blades? Weren't you going to be wearing an event monitor?
When mine is pain it's a gasping, sucked my air away pain that is mid-to left side, down the left arm, around to my back, shortness of breath. I've had a cath and everything looks good.

When my IST (inappropriate sinus tachycardia) acts up, that makes my heart race--180-190 just sitting is not unusual. My heart beats excessively hard, through a turtleneck and sweater you can see it beat if you're sitting across from me. My ears plug up and I go from super hot to not. It also gets hard to breathe.
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Question for People with Heart Problems
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Old Jan 15, 2009, 01:27 PM
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Quote:
Originally Posted by cantstopcrying View Post
Weren't you going to be wearing an event monitor?
Yes... and I am wearing it now (called: Kings of Heart) - but as usual I am having to help the doctors figure out what is actually wrong with me. *big sigh* - but I don't mind doing my own research while the doctors are running their test... this way we can compare when we meet in the office again.
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Old Jan 15, 2009, 01:29 PM
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Is it a "trigger" monitor? (meaning you have to trigger it when you feel a symptom) or is it a continuous read? Either way sometimes I feel those are useless. For me it showed that yep, my heart rate really does go up that high and the palpitations were a few pvc's and pac's, long run of sinus tach. I know there are instances where they are very helpful, so I guess I shouldn't say that. Do you get any syncopal episodes--feeling faint and dizzy? I sure hope they find something concrete soon!
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Question for People with Heart Problems
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Old Jan 15, 2009, 01:37 PM
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Quote:
Originally Posted by cantstopcrying View Post
Is it a "trigger" monitor? (meaning you have to trigger it when you feel a symptom) or is it a continuous read?

Do you get any syncopal episodes--feeling faint and dizzy? I sure hope they find something concrete soon!

Yes - it is a trigger monitor..... I push a button and it records 45 seconds of what is happening at the moment, with 15 seconds of what the heart was doing before the incident and 15 seconds after the incident.

I get dizzy at times, but I have not fainted in years..... my main complaints are the chest pain / headaches that stay around most days and the palpitations / thumps that disturb my ability to get to sleep.
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Old Jan 15, 2009, 05:11 PM
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for the palpitations try lying on your left side. I find that when my heart is thumping that hard I just move to that side and it subsides within a few minutes.
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Old Jan 15, 2009, 05:43 PM
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Quote:
Originally Posted by Rhapsody View Post
- No Heart Patient willing to share their experiences? ? ? ? ? ?

* * * * *

Ok - I will share my symptoms:

Chest Pain (mostly right side)
Chest Pain (dead center)
Shortness of Breath
Numbness in face and lips
Back & Jaw Pain
Nausea with headaches and chest pains
Palpitations (flutters, thumps, pauses/stops)
i'm not a doc but it sounds like classic symptoms of a heart attack.
mitral valve prolapse can also cause palpitations like you describe. have they checked that? ..but the other stuff could be caused by a blockage somewhere. i have blockage in my carotids but most of the symptoms sound like my first answer.
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  #9  
Old Jan 16, 2009, 04:09 AM
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Originally Posted by madisgram View Post
i'm not a doc but it sounds like classic symptoms of a heart attack. mitral valve prolapse can also cause palpitations like you describe. have they checked that?
Yes it sure does sound as though I could have a heart attack or stroke any day now.... and yet the doctors are still trying to figure out what all my test results are saying about my heart.

I was told some time with the last ten years (forgot when and from whom due to my DID) but any how I was told that I have a heart valve problem that needs watching for it will probably need to be replaces one day when I am older..... but right now they have me wearing the Kings of Heart to determine if I need a pacemaker put in or not.

I just dont want to end up like a dear friend of mine that was just 52 when he started complaining of heart problem to his doctor... and while they did all the test on him that have been done on me, and he wore the same monitor I am wearing after he got out of the hospital his doctors were not able to pin point his problem.... and three months later he died at home with his wife on what seemed to be any other normal day... the autopsy stated electrical as the cause of death.

How did they miss that with all their test?
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Old Jan 18, 2009, 11:37 AM
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I will be taking the monitor back on Wednesday and I am slightly disappointed in the thought that while they have many many readings that says I am having something going one with my heart (they already knew this) - I have yet to have any good readings of my Flutters, Thumps and Stops that the doctor needs to see to determine if I require a Pacemaker or not.......

I sure would hate to die while the doctors try to figure put the problem. *sigh*
  #11  
Old Jan 20, 2009, 11:30 PM
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MAD - PISSED (and) CRYING
............................................. I need some Relief.
  #12  
Old Jan 21, 2009, 03:27 AM
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If the monitor shows nothing, request an EP study, which means if your caediologist is not an EP doc, you'll need to see one. EP is electrophysiology--EP docs are the body's electricians. http://www.hrspatients.org/patients/...logy_study.asp
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Question for People with Heart Problems
  #13  
Old Jan 21, 2009, 08:07 AM
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Thank you - I will request that procedure if the King of Hearts shows nothing... as it was the electrical part of the heart that went bad on my friend then took his life at 52 years old.
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Old Jan 21, 2009, 08:59 AM
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oh dear hon. I am going to have to wear one for a month starting next week! yuck!
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Old Jan 21, 2009, 11:41 AM
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They are uncomfortable after a while. I had an EPS done a couple years and darn it if my heart wouldn't do it, even with stimulation! However, as I work closely with an EP, I know they are very effective ways of finding electrical problems. That whole HRS website is very informative. One of the problems with wearing the monitor is it is anxiety-causing, therefore it is not a normal scenario. They also have what they call "loop recorders" that are implanted, much like a pacemaker, except they don't give any therapy. It records the ekg and is left in for approximately a year (or until there is a diagnosis).
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Question for People with Heart Problems
  #16  
Old Jan 22, 2009, 10:17 AM
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Quote:
Originally Posted by bebop View Post
I am going to have to wear one for a month starting next week! yuck!
Sorry to hear that you are going through heart issue as well.... I pray the month goes fast.

I should know something within the next week... one way or the other.
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Old Jan 22, 2009, 10:24 AM
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that part is almost over for you right hon? woo hoo!

they are doing testing on my heart since I had that TIA last week. also my heart skips beats quite a bit. in december it did it for 2 hrs. like every 4th or 5 beat! it was freaky. good luck with yours hon!
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