ulcers... I can eat almost nothing now. Its excruciating and very depressing

Hi
2 years ago I had an ulcer. I could not eat most foods. But still I could eat enough foods so it was okay. I got through just fine. It took about 4 months to heal. It was a small ulcer. But I have a lot of acid so it took a long time. I do not respond to PPIs they do not work for me.

10 days ago I was in intense pain. 2 ulcers. One of them really bad. The really bad one is in the small intestine. I will not go into details. But the pain is significant.

I cannot eat anything but water and miso paste with over cooked white rice with pureed carrot. and a drink made from egg protein powder. Today I tried a little bit of cod fish in the water. But I could not handle it. The pain was too much.

I am being treated for H-Pylori. But I had huge amounts of acid for years when I didnt have H-Pylori. So when the bacteria is gone, there still will be the acid slowing down the healing of the ulcer. I have tried everything over the years for the acid. Naturopaths, MDs Homeopaths. Tried it all. all the cures. nothing helps much. Although I am taking a ton of things now. Okay now that I got that out of the way,

I am so deeply depressed. Cant stop crying for long. its been 10 days eating that horrible stuff. I lost my only comfort. My only friend. Agoraphobic. no one calls. No one cares. and I am all alone eating this horrible stuff twice a day.

If someone told me I could eat sweet potatoes I would not do it. Because it is fattning. And I will not eat any of my trigger foods. I worked too hard to lose the weight. I know how depressed I will get if I gain much more weight. Oh yes,. I am eating practially nothing and gaining. or if I am very very careful I am maintaining at what I gained. the doctor tested thyroid and the TSH level is just fine. She will not test further.

So I am eating very very little. And I have gained a few pounds. And I can have none of the foods I even like. I am becoming more and more depressed every day. I told my brother I was very sick. This is before I was diagnosed. and the pain was through the roof. Because I didnt know that I could not have chicken bouillon. He knew i was in horrible pain and was in the process of being diagnosed. but he never bothered to call me to ask how I was. And I told him more than a week ago. Same thing with a so called friend. Same thing with another friend. no one irl cares. Thats the way it is. no one even cares.

I am feeling so depressed. A summer without raw food. A summer without dairy, chicken. No lemon, no chocolate. nothing that helped me make it from day to day. nothing. I just keep crying. I am increasingly depressed each day. Not even my food for comfort anymore. Cant even have a bite of something. It would make me very sick. As I said even a small amount of cod in my water with carrot puree today caused too much pain.

Thank you for reading this. I am distraught.

if you are ok with over boiled rice, you may be ok with rice milk, it is basically the milky water that most people throw away that you get from boiling rice.

often when a person is ill others do not know what to say, so opt for saying nothing, this does not always mean they do not care, simply that they are scared of upsetting or exhausting you.

Hugs...I'm so sorry, I hear you, to feel so ill then to feel no one is there for you, it's truly terrible. Can someone not just pick the phone up to see if we are okay? it hurts, I understand.

I would think your Dr would be very concerned, sounds as though you would benefit from seeing a specialist, you can't live that way, the Dr should be helping you.
Mind you, mine doesn't understand what I'm going through

I notice you mentioned agoraphobia, I had that when I was younger, you are going through so much.
I do not live near my family but they also never understood and were never there when I needed them so honestly after crying and crying for so long about them, I thought I'm not doing it anymore, I put them on the back burner because it was an unhealthy relationship, sounds awful but I felt better just trying to do healthy things for myself and always telling myself...because I'm worth it!!

The thing is, you're there all by yourself, I know how hard that it, torture at times...I want you to know I am here for you (not being some crazy person off the internet)

Something has to change to help you, not sure where you are, i'm in the States, can you tell your Dr you'd like to go see a specialist, what other foods you can eat, how to treat what you are going through.

Also, can you change Drs? you are important and you are worthy, period.
I'm at the point of changing mine and am ready to run in to anyone's office to say I need help with this, what can we do???

Just want you to know I understand, am trying to get help for myself but always know you are not alone, please look after yourself.

So sorry, I'm not sure what to say?

I've read that scent is tied to the sense of taste as well. Can you treat yourself in another way? Candles? Luxurious bath products with nice scents?

Maybe something else would feel good to another sense, like touch, massage?

So sorry- it sounds excruciating.

Thanks, I do appreciat it. Good idea about the rice milk.
Thank you so much for that caring response !! Things have changed since I wrote that. Thank God I now have a naturopath who muscle tests (kinesiology). She has me on products that should help. She figured out why I was gaining weight... When I knew I had an ulcer, I went off some of the suppliments I was taking. One of them included a suppliment I was taking for cortisol. She said its related to T3 and T4 in Thyroid. I went back on the suppliment and things have quickly reversed. Her services are not covered by insurance. But I would spend my last dime to get the medical support I need. And she has that.

I am better now with my family not calling me. and I am not sure I even cried at all yesterday. I have to make peace, for now, with eating woefully little until I can see the naturopath again. She could not fit everything into the first apt. But she did a brilliant job trying. My next apt is on thursday. She will check progress and do further muscle testing. And on wednesday I have an apt with someone else who may be able to help a bit with that. The most important thing is that I am losing weight, as it should be. Considering what I am eating.

I still do feel hurt about my brothers. But the real pain and crying has stopped. Thank you again for that totally compassionate response.

thanks for your caring response. You are so right. Touch would help. I blew a wad on a special kind of chiropractic called Network. The practitoners are like healers. I cant afford to do it much. Especally considering all my other expenses right now. I am spending all of the savings I have on things. But touch is what would be great. just the money issue. I will be going back to the network chiropractor next week. And then that may be it for a month. Thank you again !!

I'm sorry it's been so tough for you, sunsun. You can message me anytime. I know it's not the same as irl phone calls and the primary people in your life showing they care about you, that they notice you're in pain...but I am here.

Thank you wonderful spondiferous. I so appreciate your post to me. Today I cried much of the day. No foods I enjoy to take the pain away. All alone. But something good has happened. I got a scholorship to a healer. I can go there twice a month. she is a network chiropractor. And she is very good. She saw my situation when I went there out of despiration. I had not been there in a year because I could not afford it. When she saw and heard what condition i was in, she reached out to help me. So twice a month i get help.

re the food, All I want is some comfort. The comfort I was getting from food. Not overeating. Just foods that comfort. Foods that have flovor. Lemon protein drink. Cocoa powder. Cheese, of course. Chicken. Yes, I cannot eat chicken or fish right now. They hurt my stomach, Food is usually the only comfort I have in a day. But someday I will have them again. When I got home from the chiropractor, i got a call from someone thanking me for saving her life years ago. That made me feel so good. She is someone who to me is like a daughter. And I did help her for years. But really I never would think I saved her life. She did that I just helped. Anyway, I miss my foods, so deeply. But today I had caring people. And you are included. Thank you.

I am so happy that you got that scholarship! I really hope the healing helps you. I wish more of that stuff was available on a regular basis. The mainstream medical system is a joke.

♥♥♥♥♥♥♥♥

I hear ya. For so many, the mainstream medical system is important and irreplacable. However if I was to use just the mainstream medical system I would not be in good shape at all. I went to my MD as a formality. But if she had it her way, I would still be without treatment awaiting the results of a test. And the allopathic medical treatment for H-Pylori is so intense I am not sure how my gut could survive it.

I remember telling my doctor that I was having panic attacks all the time. She listened and suggested chammomile tea or something like that, along with the klonapin and buspar she has me on. An alternative person told me to take B12 cream. Because people with bad digestive systems cannot absorb B12 well. 2 days after using the vitamin B12 cream the painc attacks stopped and never returnd.

I have so many stories like this. I even have it medically proven that a healer fixed a valve problem in my heart that the doctors were worried about. After several doctors office visits over 6 months with no change in the increased mumor, They wanted me to go for an echocardiogram. Because the murmor was so pronounced. I asked the doctor to give me time to go to a healer I know can fix certain things. The healer said yes. "they say they can work on this". She assured me that it would be made better. Next time I went to the doctor I told her it was better. That was probably 4 years ago. The pronounced murmor has never returned.

I have many stories. If and when I have to, I do go through the medical model. But I prefer muscle testing and alternative suppliments for treatment. And a channeled guide who has helped me for more than 20 years. I say it is he who has kept me alive. And this is true

OMG, thank you. That was the nicest message ever !!!!!!!!!

The naturopath was clear when she did kineasology, none of the foods i want and emotionally need, are foods that will be okay for the ulcers to heal. Between ulcer diet, thyroid diet ( foods I am not supposed to eat because of hypothyroidism ) and the trigger foods I have to abstain from due to the compulsive eating disorder, I am left with nothing I can eat that I like and calm me. It was all good before I was diagnosed with and began treatment for the ulcers.

I find myself going into horrible places after 3 weeks of this. I had a breakdown yesterday because of it. When I get upset acid starts pumping. I ended up getting a sore on my lip and a big messy blood blister in my mouth from the acid my body was spurting because of the upset. The blood blister was big and made a mess of one area of my mouth when it broke. So I am damned if I do and damned if I dont eat foods that keep me calm but dont put on weight. I refuse to eat the trigger foods. I know how easy it would be to fall off the (very rickety) wagon and start gaining again. Becoming overweight is always just a breath away. I do eat healthfully though. miso paste, avacado, pureed carrot, protein powder, greenbeans, peeled cucumber and a bit of oil. But they are not foods I need to keep my ed calmed. Although they are on the list of ulcer foods i can eat. I know that today as I am spurting acid from the upset of not being able to have any foods that I like (and are not ed trigger foods). I am beside myself with upset, every day. Its horrible. I could eat what i wanted. But then would the ulcers heal. (retorical question) I know I cannot make another apt with the naturopath who did kinesiology to come up with this list of ulcer foods. But truthfully, I already knew the foods from the last ulcer i had. And I had never been to that naturopath back then. Thanks for listening.

i dont know if you remember us? used to be called trinitydancer but had our name changed ♥

of course I remember you. How are you all doing? how are things going?? Please tell me

Hang in there, sunsun.
It sounds awful what you are going through. I will send prayers and energy your way so that you may find peace and the strength to do what you need to take care of yourself.

Thank you Spondiferous. At another forum I belong to, I posted my whining tale of woe. Someone sent me a pm telling me about a rx he took for a significant ulcer in the small intensine. He said that in a matter of days he could eat what he wanted. Other people who take allopathic medication have no idea why I cant eat what I want. So perhaps i am on the wrong treatment boat here, lol.

I emailed my naturopath today telling her I want to get a rx for the medication. Hope she doesnt get upset. I also emailed my MD telling her the same. She said she will happily write a script for the medication I want. But she wants to see me first. So I will do that as soon as I can get a same day apt by calling at exactly when they open in the morning and nabbing one of the "same day" apt slots. Just have to have fast fingers to call at exactly the right time. guess I know what i will be doing at 8:15 tomorrow morning Thanks for all the amazing caring support. you are such a wonderful woman. I hope things are going well for you. And glowing well for you also

our lives have changed very very very drastically-much too much to share here or on your thread but maybe we can send you a PM if you want us to? ♥

pm would be great !! ♥

Good luck with it, sunsun. I really hope you find a resolution for this.

Thanks, Spondiferous. Turns out every ulcer may have a silver lining. Because there are so few foods I can eat. three of them of them not being cheese, cocoa powder or chicken sausage. So it has made it much easier to keep off the weight I lost. The excruciating pain of dieting is not there now.

I was hoping to get clearance to eat cheese on my birthday. But I still have inflamation caused by the ulcer and H-Pylori. So dairy would not have been a very smart idea. For now the cravings are not acute. Because it has been so long since I have had any great tasting foods. So the ulcers do have their silver lining after all .

sorry I didn't see this before ((((( SunSun ))))) Pink fairy sends you healing and love