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#1
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I've been having a lot of hallucinations (tactile, auditory, visual, and olfactory) for the past month, and I've also been completely stable bipolar wise, so my pdoc (who is a jerk, but that's besides the point) wants me to get a brain scan, and if I don't have neurological problems then I'm most likely going to be diagnosed schizoaffective.
I think if I hadn't been on 3 mood stabilizers, 3 antipsychotics, and a bunch of other stuff for the past almost 3 years then I may have been having more hallucinations then too. Now I'm just on one antipsychotic and I still have hallucinations on a pretty daily basis. I have some paranoia, but it's not too bad, and I don't mind the hallucinations at all, because the auditory ones are usually quiet and the other ones are just kind of interesting. So I don't want to go on any more meds if my diagnosis changes. I feel more normal now than I have since I got diagnosed with bipolar and immediately got put on so many meds. We'll see what happens. But I might be joining your ranks soon.
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Diagnoses: Bipolar I, GAD, binge eating disorder (or something), substance abuse, and ADHD. “No great mind has ever existed without a touch of madness.” ― Aristotle |
![]() Atypical_Disaster, jaynedough
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#2
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That's interesting that your doctor wants a brain scan before diagnosing you. I was diagnosed right off the bat.
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#4
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I hope so too. I should find out more about the brainscan next Tuesday, if my ridiculously horrible pdoc does his homework.
__________________
Diagnoses: Bipolar I, GAD, binge eating disorder (or something), substance abuse, and ADHD. “No great mind has ever existed without a touch of madness.” ― Aristotle |
#5
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I want to ask my doctor for a brain scan since no medicine works. It makes me wonder if that's the case for me.
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#6
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I don't know what they would be looking for that would cause hallucinations, a brain tumor? That's all I can think of but surely there are other things. Maybe for me they are looking for enlarged ventricles. I'm just not sure.
But it sounds like a good idea for you to get a brain scan in case it's a neurological problem and not mental illness related. Do you get all of the symptoms of sza or just hallucinations? I don't get delusions (that I know of, if I do they are subtle enough that no one has picked up on them) I just get mania depression and hallucinations (now between episodes). I probably would have been having hallucinations before if I had ever been between episodes or it i hadn't been on 3 antipsychotics. I don't know for sure though.
__________________
Diagnoses: Bipolar I, GAD, binge eating disorder (or something), substance abuse, and ADHD. “No great mind has ever existed without a touch of madness.” ― Aristotle |
#7
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Sadly, it's not just hallucinations. I'd have more faith in trying to get a brain scan but I feel like it's kinda pointless when I know it's most likely going to come back clean and that'll just upset me more knowing it is schizophrenia and there's no AP that works for me.
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#8
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I doubt I have neurological issues either as my hallucinations started when my bipolar really kicked in at around age 21.
Have you tried every single antipsychotic? I've been on seroquel Risperidone zyprexa saphris latuda and a couple of 1st gen antipsychotics and finally found Geodon which has been working pretty well for the moods and the hallucinations are not to the point where they bother me. Have you tried clozaril? It's supposedly the best last resort schizophrenia med. My pdoc insisted that I go on it but I refused. I'm stable and fine and in a relatively good place. I'm not in last resort mode. Plus I don't want the weekly blood draws or the awful side effects. But I know it has helped a lot of people.
__________________
Diagnoses: Bipolar I, GAD, binge eating disorder (or something), substance abuse, and ADHD. “No great mind has ever existed without a touch of madness.” ― Aristotle |
#9
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Yup. Ive been working with my doctor for 6 years now. We've tried every atypical and typical. Combinations. Different dosages. Etc. I refuse to try clozaril. I'm too scared of the side effects. My doctor agrees with me on that med as well. Regardless of nothing else working, since I've experienced mostly just side effects of the AP's, my doctor doesn't want to risk it and neither do I.
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#10
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That makes sense. I will never take clozaril either and that's one of the reasons my pdoc thinks of me as a non compliant pain in the ***. He really hates me i can tell. He said he didn't want to work with me anymore when i told him I wanted to switch from his pharmacy to my old pharmacy because his pharmacy shorted me by 4 days the very first time I used it. I was in withdrawal from clonopin by the time I got my meds.
__________________
Diagnoses: Bipolar I, GAD, binge eating disorder (or something), substance abuse, and ADHD. “No great mind has ever existed without a touch of madness.” ― Aristotle |
![]() Atypical_Disaster
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#11
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Hello , dont know much about schizoafective disorder .
Resuniko Has your insomnia and waking dreams improved ? It maybe the tactile , olfactory hallucinations that are new? Certain vascular conditions cause problems upping or lessening medication |
#12
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I've been sleeping pretty well lately, for me at least. I used to get 0-4 hours a night and now I'm getting 0-11 with an average of 7 or 8.
What vascular conditions cause hallucinations? Would they pick that up on a brain scan? Is it genetic, because the only thing that runs in my family as far as I know hallucination wise is bipolar I.
__________________
Diagnoses: Bipolar I, GAD, binge eating disorder (or something), substance abuse, and ADHD. “No great mind has ever existed without a touch of madness.” ― Aristotle |
#13
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]I shouldn't have mentioned it really , its just you mentioned ventricles ? Butvyour to young for vasculitis .
It was mentioned in an article in UK press about a new health study And what role immflamation illness have with mental health problems and new treatments. Maybe the MRI scan is just the easiest way to go about thiings . ive bean reading about different physical illness ( just becuase some symptoms ive been having for years) which can sometime can cuase. Halucinations its ive just had an infection which cuased fever chills and some cognitive problems And it caused sort of not audible voices but sort whispered chatter from the days talk and TV, like what you mention, they seem to occur more when I was doing more And I've had them on meds and coming off meds , which can affect blood pressure , and had them not onmeds |
#14
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I only mentioned ventricles because I had read that people with schizophrenia often have enlarged venrricles.
I'd be curious to know what physical illnesses could cause hallucinations. I haven't been feeling sick in any way but that may not mean anything. My hallucinations don't seem to happen when I'm doing more they seem to happen when everything is quiet and calm and especially at night. Maybe they happen when it's noisier at work too and they don't register. I almost never get them in the morning though. Unless you Count the early am hours when I'm still awake from the night before.
__________________
Diagnoses: Bipolar I, GAD, binge eating disorder (or something), substance abuse, and ADHD. “No great mind has ever existed without a touch of madness.” ― Aristotle |
#15
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The artical ( i was in a uk paper either the mirror, the mail , or express)
mentioned lots of immflamatory illnesses that can be at root or may worsen mental health , simple one like flu, glandular fever , bacterial and viral things , fbromyalgia , others , that can cause mental problems or add to them. Some can have a delay/dormancy. Years ago I got an ear infection ( before my depression/anxiety) but it was horrible , felt like I had malaria or something, There was an article in USA pape r is it Forbes ? As well about meds that might be aimed at a glutanates ( or something like that) rather than at serotonin, dopamine . |
#16
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Interesting. Now that I think about it I've been having problems with my left ear getting closed up and everything sounding muffled except I can hear my breath through my ear like through my sinus. I don't know if that could be anything. I thought it was just allergies but this year is the first time it's happened and it's been going on for months. The doctor cleaned out my ear with hydrogen peroxide and water and I could hear properly again but it had clogged up again. It's always on the left side. I use wax removing drops fairly regularly but they don't help.
About the glutanates...what kinds of meds are aimed at glutanates? I'm on metformin, is that one of them?
__________________
Diagnoses: Bipolar I, GAD, binge eating disorder (or something), substance abuse, and ADHD. “No great mind has ever existed without a touch of madness.” ― Aristotle |
#17
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Your ear ?
I've been having the same as if they fill up ( like on a plane or when water gets in ) There is a thing called labrynthitis which can do this , it can also effect balance ( as if I'm drunk ) vertigo , other things , there are three types and it can cause / aggravate mental health probs The glutamate article wasn't in Forbes its was on from NPR article about new treatments for mental health, rizulole and scopolamine were mentioned , Last edited by berthegel; May 25, 2015 at 04:49 PM. |
#18
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I don't drink / or drugs , but I'm sure people think I'm drunk all the time ,especially when looking behind when crossing roads , my hayfever is going to make everything worse it makes me groggy, fatigued
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#19
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I got brain scanned before I was diagnosed psychotic when I was 14, they wanted to rule out things like epilepsy and other things that could have been causing my symptoms.
I hope that things become clear for you after you get tested. I know that having the right diagnosis is important for getting the right treatment. I've had total buttholes for psychiatrists too, by the way. I know how awful that is. ![]() |
#20
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I might make another doctor appointment for the ear thing soon. Although I've been finding that it's only a problem when I'm at work and I work on a campus with lots of flowers and flowering bushes and plants everywhere, so I really do wonder if it's just allergies. I always have a half sniffly nose that doesn't drip but is always a little sniffly. I also sneeze a lot. I'll look up labyrinthitis though.
I didn't think of epilepsy, but I've never had a seizure that I know of or any of the other symptoms that I know of. I really do want to get the right diagnosis, I just don't want my pdoc to try to force more antipsychotics on me if he does diagnose me with sza, because I feel stable and fine right now (even with the hallucinations) and am trying to lose all of the weight that APs have put on me over the past few years since I started meds. I really need to look for another pdoc, because mine is so bad. I realized yesterday that I forgot to even make my next appointment with him. I was crying because of what he did to me last appointment so I completely forgot to set an appointment at the front desk. I emailed him yesterday and told him that it doesn't make sense to meet until after I get a brain scan, so if he will refer me to get a brainscan (that's covered by my insurance) I will go do it and then when the results have been interpreted I will meet with him again one last time to sort out the diagnosis thing, and then I will ask him for several months of refills on all of my meds and then get on a waiting list to see someone better in the county I'm going to move to in a few months. I haven't even started looking for someone new yet though because I've been so swamped with school and work (and the stress from both being really chaotic and difficult right now). Atypical, your psychosis started at 14? I guess I'm lucky that mine didn't start setting in until around age 20, and it hasn't even been that bad other than a couple of mood episode related incidents, and 3 marijuana related FULL BLOWN psychotic episodes during college where I didn't even know what my body was doing and have no memory of what really happened other than what people told me I did, (i.e. speak in total word salad, act as though I was blind, (I really couldn't see the world through my own eyes, I thought I was seeing alternate dimensions and would never go back to the real world again) and I just remember thinking that the only way to communicate messages to my friends in the real world to get them to save me was to catch messages of messenger owl's legs and interpret the code written on them, and then write in the code which I didn't even understand (without a pen or paper) and then catch the owls again and tie the messages to to their legs to send to the real world. Needless to say I wasn't communicating coherently at all in the real world.) I don't touch the stuff anymore. I sometimes wonder if smoking those 3 times maybe partially triggered what I have now, or exacerbated what I already have. I'm pretty sure I had hallucinations before smoking weed though, so maybe not. Plus I haven't smoked in years and I'm still hallucinating on a near daily basis. Last night I heard cat scratches and desperate (but quiet) meows against my bedroom door. I don't have any pets. Again, didn't bother me, but I didn't exactly sleep last night either. I'm on day 3 without sleep, which has me kind of worried I'm headed back into a mood episode. No real other symptoms yet except overspending, but I always do that when I feel like I have some extra money (even though I really don't). I just suck with money. At least that's my rationalization. No euphoria or increased goal directed activity or pressured speech or anything like that. The only other thing I can think of is racing thoughts, but I always get those when I can't sleep. That's been going on my whole life. I think the reason I haven't been sleeping is one of the days I had a test the next day and was worried about it, one of the days I forgot to take my geodon, and last night I forgot to take my ambien. I remembered at like 4am when I was still laying there, but I had to get up at 5am, so I didn't take it. Now I'm just rambling. That's enough of that. What are your psychotic symptoms like Atypical? Do you still get them regularly even on meds? What meds are you on? I'm honestly not sure what the difference in treatment between bipolar and schizoaffective is other than probably a larger dose of an AP, or multiple APs, neither of which I want unless I am in an episode and really need it, but we'll see what happens.
__________________
Diagnoses: Bipolar I, GAD, binge eating disorder (or something), substance abuse, and ADHD. “No great mind has ever existed without a touch of madness.” ― Aristotle |
#21
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Youd feel dizzy and sort of drunk and tunnel visiony (excuse word) if you had labrythitis
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#22
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Pardon me for not answering you sooner!
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My psychotic symptoms range from pretty classic paranoid delusions, hearing voices and occasionally seeing things that other people can't, thought disorganization to the point of total word salad/gibberish(god that is embarrassing as all get out), and catatonic symptoms. Yes, I do still have psychotic symptoms on meds. I take Haldol for psychosis, Trileptal for mood, Ativan for catatonic symptoms, Klonopin for agitation(I am not a naturally anxious person, thank goodness), and Trazadone for sleep. If you have anymore questions for me I can answer them. And yes, the treatment protocols for Bipolar I with psychotic features and Schizoaffective Disorder Bipolar Type are almost identical but I have noticed that I am given stronger doses of antipsychotics than someone with Bipolar I with psychotic features. I am considered treatment resistant though, so keep that in mind with all of my posts. Also, my insight into my illness comes and goes. I used to have ZERO insight whatsoever and I was like that for several years. I only got insight in 2013 so this is all still pretty fresh for me to realize how "psychotic" I've been and apparently still am. And when I'm in a full-blown psychotic episode the shreds of insight I do have go straight out the window. I don't care if my psychiatrist says Schizophrenia or Schizoaffective Disorder, point is I'm schizophrenic. I think she still has Schizophrenia on my chart as she's not sure if my "manic" symptoms are the result of my PTSD flaring up or not... We just have to wait and see. Now I'm rambling, lol. |
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#23
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How often do you get the word salad thing. That's only happened to me three times and I have no memory of the experience any of the times. I am just going off what I was told by the people around me at the time. Are you able to remember after you're in word salad mode?
I really don't want to have to go on a higher dose of an AP because they all cause me massive weight gain and I'm already struggling really hard to lose the 116 lbs that APs put on me in a short amount of time. I've been able to lose 61 lbs since March but I know it's been in an unhealthy way because I've mostly stopped eating and exercise 8 hours a day 4 days a week. That sucks that your insight comes and goes. That must be frustrating. At this point I don't know if i have full insight. I can usually recognize when I've had a hallucination and know it's just my brain making things up not some mystical magical happening. But I really don't know whether a lot of my thinking is paranoia or just normal anxiety. Like whenever I hear my roommates talking I always think they're talking bad about me and how horrible I am when I have no real evidence that they don't like me. I also automatically assume my best friends have stopped liking me because I'm crazy but I have no real evidence of that. I also assume my pdoc hates me and wants to screw up my body and mind. I do feel I have evidence for that one. That one is hard to let go of rationally. I don't have alien or CIA delusions or anything like that. Just mundane stuff like I don't use my kitchen in my apartment because I'm scared of my roommates seeing what I eat. I also don't let anyone in my room because I think they'll think I'm a disgusting pig and totally out of control. I also assume I'm going to get stabbed or shot whenever I get out of my car at night and I assume anyone near me at night is following me to my apartment to kill me or something. I don't know if any of that counts as paranoia or delusions or if it's just social anxiety. I've never talked to my pdoc or therapist about any of those beliefs because they just seem normal and real to me. But when I sit and think about it afterward I know none of that is rational. What does that stuff sound like to you? Paranoia or anxiety? I'm glad you at least have insight some of the time. But that must also suck to know what you believe is wrong or messed up. I've never heard of ptsd causing manic like symptoms in a non bipolar spectrum person. Why do you think that happens? I guess we're both in wait and see mode. You're waiting to see if you have the bipolar side and I'm waiting to see if I have the schizo side of the illness. The only thing that confuses me about me potentially having schizoaffective is that I thought it was supposed to be a form of schizophrenia not a variation of bipolar if that makes sense. Like the main thing wrong in sza is the schizo side not the mood disorder side rather than like in my case where the bipolar side seems to be the main issue with just bits of psychosis thrown in that happen to occur whether I'm in a mood episode or not. I know I have the if - you-have-this-one-symptom-you-have-sza which is that I hear multiple voices talking to each other that are not real. But that seems like a weird thing that the DSM V counts having that one symptom means you have sza (with mood symptoms as well obviously). That's good that you're not a naturally anxious person. I definitely am and always have been. How well are your meds working for you lately? Do you still have hallucinations every day? What is catatonia like? I've felt what I thought was on the verge of catatonia in some of my really bad depressions where I would just sit there and not have the volition to move or think and everything slowed way down or time was passing weirdly or something and I stayed like that without moving a muscle for hours and hours. I don't know if that's similar to what you go through with your catatonia or not. Might just be a depression thing. Pretty much, I don't know what's a symptom of what for me and like today I've just been doubting that I even have mental illness at all because I've been feeling like a normal person for the past 6 weeks (just with random hallucinations that don't bother me most days but definitely not constantly. Mostly just in the evenings when things are quieter in reality). I know that doesn't add up because I can remember my last manic episode and sort of remember the hell of all the depressions I've gone through but my memory of those times seems to disappear when I'm feeling fine. I'm sorry you're considered treatment resistamt. That must be hard to live with.
__________________
Diagnoses: Bipolar I, GAD, binge eating disorder (or something), substance abuse, and ADHD. “No great mind has ever existed without a touch of madness.” ― Aristotle |
![]() spincera
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#24
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I'm pretty sure it's schizoaffective disorder bipolar type at this point, as is my psychiatrist. Quote:
For me, my main issue has always been psychosis. No matter what the exact label, my psychosis is always the primary concern. Schizoaffective Disorder is a psychotic disorder at its core with mood symptoms as a secondary concern, as opposed to Bipolar with psychotic features where mood is the primary issue and psychosis is secondary. SZA is a confusing diagnosis and it is difficult to diagnose, and it often takes people several years to get diagnosed correctly with it. That's certainly been true of me and several others I've seen who post here. Quote:
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I have heard of catatonic depression, that sounds really brutal. I almost got to that point with the depressive episode I had last year, I just didn't have any inclination to move for any reason. That episode was spectacularly bad and I got very close to taking my own life, but I did not have the energy to actually do it. Quote:
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![]() spincera
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#25
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When I get the word salad thing it's like I black out until it's over. It's weird.
I'm kind of doubtful that I have schizoaffective if it's a form of schizophrenia and not a variation of bipolar because mood is definitely my primary issue at least now and the psychosis just comes in the spurts. I don't think I've had a hallucination all week. Maybe I have and I just don't remember but obviously it couldn't have been anything too exciting if I did have anything. I've been hearing that wellbutrin can cause hallucinations and I'm on 300mg. But what I'm not sure about it whether it only causes psychosis in people with psychotic disorders to begin with or if it can happen to anyone. You're right sza is a confusing diagnosis. If my psychosis gets worse I could see the diagnosis fitting but right now it's just not that bad. You seem very coherent lol. I'm glad! Do you ever go like a week without a hallucination? Your description of catatonia sounds kind if like what happens to me when I get extremely depressed except my mind is active with self loathing guilty depressing suicidal thoughts. I can't believe you were like that for 2 whole months! Yeah I almost think the current diagnostic criteria are not adequate to describe people with as complex symptomatologies as you or maybe even me. Plus it's so hard to find a pdoc that knows what they're doing. At least for me. Oh yeah, I got a referral to get a brain scan I just have to make an appointment and go find a hospital to do it at. I read the note on my referral and it said they wanted to rule out Wilson's disease which I have like no symptoms of. But whatever.
__________________
Diagnoses: Bipolar I, GAD, binge eating disorder (or something), substance abuse, and ADHD. “No great mind has ever existed without a touch of madness.” ― Aristotle |
![]() Atypical_Disaster, spincera
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