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  #451  
Old Jan 23, 2015, 07:19 PM
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Angelique67 Angelique67 is offline
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Originally Posted by Atypical_Disaster View Post
Thank you for your supportive and insightful post Willow!

I'm just going to be honest with all of you here:

The mood aspect bothers me a lot because I feel like the emotions I feel particularly when I'm depressed make me weak. I think any emotion or mood good or bad makes me weak. I had a really rough childhood and I learned early that expressing emotion is not okay. So I've done everything in my power to stuff my feelings. But when I'm having a mood episode they all come out and it's intolerable for me because I built up this entire false persona of having no emotions at all. When I have a mood episode it shatters my false self and I'm left emotionally crippled by it all and it takes me a long time to recover. I would rather have a sz diagnosis because psychosis doesn't involve your emotions. Does that make sense? I know I've gone back and forth about this a lot and I've probably driven you all crazy by now and it doesn't help that I've had a lot of other contributing factors that have made diagnosing me properly a challenge. I've been diagnosed with BP I, sza, and sz before. It's crazy making, because the doctors can't seem to figure me out too.

But taking everyone else out of it and taking an honest look at myself, my mood swings are very extreme and when I'm really up or mixed I get psychotic and completely out of control unless someone steps in and helps me. And my depressions are terrible, truly terrible. I end up completely nonfunctional and just wanting to die. I don't admit to having had suicidal ideation but I do have it when I'm in a severe depressive episode.

So that's the gist of it. It also doesn't help that sz was my original diagnosis nine years ago and I spent YEARS working on accepting that and then later on I got told oh wait you have bipolar I with psychotic features or sza BP type. It threw me for a loop and I couldn't believe it and I didn't want to accept that me, who sees herself as perfect, could have a severe mood disorder(yes in my twisted head being psychotic is okay but having bipolar isn't, gah I've got serious issues lol). But as much as I've denied it, I do have severe mood problems and it's obviously bipolar/sza. It's not going away. I need to take some practical steps to accept this. If anyone has any suggestions for me I would love to hear them.

If you actually read all of this, thank you for listening.
I'm sorry you're dealing with all this, Atypical. I understand what you're saying. I don't have a good answer but I see why you're upset. Lots of hugs, if that's all right.

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  #452  
Old Jan 23, 2015, 07:28 PM
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I'm sorry you're dealing with all this, Atypical. I understand what you're saying. I don't have a good answer but I see why you're upset. Lots of hugs, if that's all right.

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  #453  
Old Jan 23, 2015, 07:40 PM
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i read all of what you said atypical. *hugs* too.
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  #454  
Old Jan 23, 2015, 07:48 PM
Anonymous59893
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Originally Posted by Atypical_Disaster View Post
Thank you for your supportive and insightful post Willow!

I'm just going to be honest with all of you here:

The mood aspect bothers me a lot because I feel like the emotions I feel particularly when I'm depressed make me weak. I think any emotion or mood good or bad makes me weak. I had a really rough childhood and I learned early that expressing emotion is not okay. So I've done everything in my power to stuff my feelings. But when I'm having a mood episode they all come out and it's intolerable for me because I built up this entire false persona of having no emotions at all. When I have a mood episode it shatters my false self and I'm left emotionally crippled by it all and it takes me a long time to recover. I would rather have a sz diagnosis because psychosis doesn't involve your emotions. Does that make sense? I know I've gone back and forth about this a lot and I've probably driven you all crazy by now and it doesn't help that I've had a lot of other contributing factors that have made diagnosing me properly a challenge. I've been diagnosed with BP I, sza, and sz before. It's crazy making, because the doctors can't seem to figure me out too.

But taking everyone else out of it and taking an honest look at myself, my mood swings are very extreme and when I'm really up or mixed I get psychotic and completely out of control unless someone steps in and helps me. And my depressions are terrible, truly terrible. I end up completely nonfunctional and just wanting to die. I don't admit to having had suicidal ideation but I do have it when I'm in a severe depressive episode.

So that's the gist of it. It also doesn't help that sz was my original diagnosis nine years ago and I spent YEARS working on accepting that and then later on I got told oh wait you have bipolar I with psychotic features or sza BP type. It threw me for a loop and I couldn't believe it and I didn't want to accept that me, who sees herself as perfect, could have a severe mood disorder(yes in my twisted head being psychotic is okay but having bipolar isn't, gah I've got serious issues lol). But as much as I've denied it, I do have severe mood problems and it's obviously bipolar/sza. It's not going away. I need to take some practical steps to accept this. If anyone has any suggestions for me I would love to hear them.

If you actually read all of this, thank you for listening.
Atypical I can relate to a lot of what you wrote. I don't claim to have had anywhere near as rough a childhood as I suspect you did from what little you've shared [ETA: seriously my childhood was fine, I'm just overly sensitive to everyday stuff], but emotions weren't ok growing up and so I suppressed them as much as possible too. I did have them but they were quite minimal/superficial feelings. Then all of a sudden they started kicking my arse and I couldn't stuff them away any more, or force myself to power through. I can ignore voices and I can overcome anxiety, but I have yet to power through apathy (whether that's depression or negative stuff), and I *hate* it! I feel so lazy and I scream at myself to DO IT ANYWAY...but it doesn't work, fizzling out after a few weeks or 6 months absolute maximum. In my head, all I need to do is try harder. It's so simple! Why can't I do it?! So I understand feeling weak for not controlling emotions when I've been their master for ¾ of my life.

I also understand the confusion over the diagnostic BS. I was furious when Uni Pdoc said I had sza bipolar - how dare he say I'm that sick! But then I started to make my peace with it: it made sense and meant I wasn't weak for letting my life turn to crap. Then the idiots here said I was faking it and turned everything on its head. I still don't know which way is up. North is still lost. I don't know what to think or how to accept that this is my life. Tbh I DON'T WANT to accept this: it is NOT OK that I am 28 and have nothing to show for it! I don't have any answers for you, I really wish that I did! For both of us! But I do understand what you are saying and why you struggle so much with it, and I hope that knowing that helps even just a little

*Willow*

Last edited by Anonymous59893; Jan 23, 2015 at 08:09 PM. Reason: Clarification
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  #455  
Old Jan 23, 2015, 08:04 PM
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i read all of what you said atypical. *hugs* too.
Thank you so much newtus.

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Originally Posted by WeepingWillow23 View Post
Atypical I can relate to a lot of what you wrote. I don't claim to have had anywhere near as rough a childhood as I suspect you did from what little you've shared, but emotions weren't ok growing up and so I suppressed them as much as possible too. I did have them but they were quite minimal/superficial feelings. Then all of a sudden they started kicking my arse and I couldn't stuff them away any more, or force myself to power through. I can ignore voices and I can overcome anxiety, but I have yet to power through apathy (whether that's depression or negative stuff), and I *hate* it! I feel so lazy and I scream at myself to DO IT ANYWAY...but it doesn't work, fizzling out after a few weeks or 6 months absolute maximum. In my head, all I need to do is try harder. It's so simple! Why can't I do it?! So I understand feeling weak for not controlling emotions when I've been their master for ¾ of my life.

I also understand the confusion over the diagnostic BS. I was furious when Uni Pdoc said I had sza bipolar - how dare he say I'm that sick! But then I started to make my peace with it: it made sense and meant I wasn't weak for letting my life turn to crap. Then the idiots here said I was faking it and turned everything on its head. I still don't know which way is up. North is still lost. I don't know what to think or how to accept that this is my life. Tbh I DON'T WANT to accept this: it is NOT OK that I am 28 and have nothing to show for it! I don't have any answers for you, I really wish that I did! For both of us! But I do understand what you are saying and why you struggle so much with it, and I hope that knowing that helps even just a little

*Willow*
Thank you for sharing your experiences, I'm sorry you can relate. Mood issues are really hard. Thank you for the empathy, it's much appreciated.

I knew you'd be able to relate to the diagnostic BS all too well. I don't always know what to say but I read all your posts and my god I can relate. I haven't been called a faker to the level you have but I can completely relate to not knowing which way is up anymore and being so mixed up that you want to just scream until you lose your voice.
  #456  
Old Jan 23, 2015, 08:21 PM
Anonymous59893
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Thank you Atypical

Did your pdoc have any ideas for treating the mixed episode? All I have to suggest is waiting it out and reminding myself that I'm not an impulsive person. Pacing helps sometimes if physically restless too until I can pass out. Avoiding people so I minimise my irritability & nastiness. Loud music through headphones is more socially acceptable than screaming. Telling myself that it won't last forever. They're all pretty crap suggestions really considering how awful it is and how it can last weeks, but it's all I've had treating myself.

*Willow*
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  #457  
Old Jan 23, 2015, 08:49 PM
Anonymous100173
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Every time I had a severe mixed episode I'd knock myself out with risperidone which happened 4-5 times a week. (Don't do that it didn't help I needed more)

Tbh I'm in a slight mixed episode right now cuz the concerta wore off it doesn't last long enough but I won't use risperidone anymore it just means that I need to increase abilify ..

I haven't eaten I forgot again. I can see my rib cage

As long as I'm not having any symptoms of psychosis what so ever is my new rule. But I mean, every time it got bad, I took a prn but it isn't that bad right now could get worse but I should be tired soon unless ..
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  #458  
Old Jan 23, 2015, 08:53 PM
Anonymous100173
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Now I know why my psychiatrist told me to lower the abilify to wake me up before increasing the concerta because of the energy which is what I was going to do if I didn't get anymore concerta..
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  #459  
Old Jan 23, 2015, 08:59 PM
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Originally Posted by Atypical_Disaster View Post
Thank you for your supportive and insightful post Willow!

I'm just going to be honest with all of you here:

The mood aspect bothers me a lot because I feel like the emotions I feel particularly when I'm depressed make me weak. I think any emotion or mood good or bad makes me weak. I had a really rough childhood and I learned early that expressing emotion is not okay. So I've done everything in my power to stuff my feelings. But when I'm having a mood episode they all come out and it's intolerable for me because I built up this entire false persona of having no emotions at all. When I have a mood episode it shatters my false self and I'm left emotionally crippled by it all and it takes me a long time to recover. I would rather have a sz diagnosis because psychosis doesn't involve your emotions. Does that make sense? I know I've gone back and forth about this a lot and I've probably driven you all crazy by now and it doesn't help that I've had a lot of other contributing factors that have made diagnosing me properly a challenge. I've been diagnosed with BP I, sza, and sz before. It's crazy making, because the doctors can't seem to figure me out too.

But taking everyone else out of it and taking an honest look at myself, my mood swings are very extreme and when I'm really up or mixed I get psychotic and completely out of control unless someone steps in and helps me. And my depressions are terrible, truly terrible. I end up completely nonfunctional and just wanting to die. I don't admit to having had suicidal ideation but I do have it when I'm in a severe depressive episode.

So that's the gist of it. It also doesn't help that sz was my original diagnosis nine years ago and I spent YEARS working on accepting that and then later on I got told oh wait you have bipolar I with psychotic features or sza BP type. It threw me for a loop and I couldn't believe it and I didn't want to accept that me, who sees herself as perfect, could have a severe mood disorder(yes in my twisted head being psychotic is okay but having bipolar isn't, gah I've got serious issues lol). But as much as I've denied it, I do have severe mood problems and it's obviously bipolar/sza. It's not going away. I need to take some practical steps to accept this. If anyone has any suggestions for me I would love to hear them.

If you actually read all of this, thank you for listening.
I read what you said. I have sza bipolar type and it took me forever to accept even being bipolar at the time and being in denial about constant hallucinations/delusions. I finally accept my illness and am honest about how I am with my medical providers.

To be honest, I hate the mood component because that's what really make me dysfunctional. I can hallucinate and have delusions yet still go to work and school, but if I'm manic or depressed it just makes life so much harder and usually makes me less successful.
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  #460  
Old Jan 23, 2015, 09:00 PM
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Thank you Atypical

Did your pdoc have any ideas for treating the mixed episode? All I have to suggest is waiting it out and reminding myself that I'm not an impulsive person. Pacing helps sometimes if physically restless too until I can pass out. Avoiding people so I minimise my irritability & nastiness. Loud music through headphones is more socially acceptable than screaming. Telling myself that it won't last forever. They're all pretty crap suggestions really considering how awful it is and how it can last weeks, but it's all I've had treating myself.

*Willow*
Well nothing besides meds, she wants me back on the Latuda which I'm fine with as it gave me no side effects and actually helped me a lot. Thank you for the suggestions. Pacing is my saving grace when I'm this wound up, seems to take the edge off a bit. I had forgotten about that since my mind has been so chaotic, thanks for reminding me!
  #461  
Old Jan 23, 2015, 09:01 PM
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Like right now I'm hallucinating, but I'm calm and still doing work related things on my own time (job searching for a second job), but if I was manic I would be probably breaking things or if I was depressed I'd be crying in bed right now.
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  #462  
Old Jan 23, 2015, 09:10 PM
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I tried to be funny on yik yak, but autism and humour don't always go hand in hand.
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  #463  
Old Jan 23, 2015, 09:16 PM
Anonymous100173
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I'm searing for a job as well. The economy relies heavily on oil so idk if they'll say yes they already laid off like half of their workers.

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  #464  
Old Jan 23, 2015, 09:17 PM
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you know what i dont exercise but i play drums almost everyday and i sweat from it. i play them for an hour or two sometimes more some days. every limb is doing a different thing. i mean a completely different thing. its like playing 4 easy instruments with each limb and then putting them all together. at the same time. people bash drummers and say that drums are the easiest instrument. no its not. its not the hardest either. its just as equally as hard as any other instrument out there.

but wait a min. what im getting at lol is that i dont exercise doing typical stuff but i sweat moving my limbs and exercising my muscles on my drums. so that kinda counts as exercising right?
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  #465  
Old Jan 23, 2015, 09:23 PM
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I read what you said. I have sza bipolar type and it took me forever to accept even being bipolar at the time and being in denial about constant hallucinations/delusions. I finally accept my illness and am honest about how I am with my medical providers.

To be honest, I hate the mood component because that's what really make me dysfunctional. I can hallucinate and have delusions yet still go to work and school, but if I'm manic or depressed it just makes life so much harder and usually makes me less successful.
Thank you for reading and for responding, I know we haven't really talked on here so I appreciate you taking the time considering we're basically strangers.

I think that like anything else accepting this will be a process for me. I've been struggling with it for awhile now, ask any of the regulars on roll call lol. But seriously this struggle has really taken it out of me.

I can relate to what you said about the mood component too, that's what makes me the most dysfunctional in the grand scheme of things. When I'm manic or mixed I'm so out of control and nonfunctional and when I'm depressed I can't get out of bed so again nonfunctional. Psychosis goes with my mood episodes too, which is obviously pretty bad.

My psychosis can be equally as debilitating but it doesn't happen as often as my mood episodes do. I had a bad spell of psychosis in 2013 that completely crippled me but that was unusual and honestly I might have been in a manic state for at least part of that time but I'm not entirely sure. It's all a blur I was so screwed up.
  #466  
Old Jan 23, 2015, 09:28 PM
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you know what i dont exercise but i play drums almost everyday and i sweat from it. i play them for an hour or two sometimes more some days. every limb is doing a different thing. i mean a completely different thing. its like playing 4 easy instruments with each limb and then putting them all together. at the same time. people bash drummers and say that drums are the easiest instrument. no its not. its not the hardest either. its just as equally as hard as any other instrument out there.

but wait a min. what im getting at lol is that i dont exercise doing typical stuff but i sweat moving my limbs and exercising my muscles on my drums. so that kinda counts as exercising right?
I think it's so cool that you play drums. I play the piano and sing. I love music and I really like music that has a lot of percussion in it.

Drumming is actually pretty physically demanding if you're playing difficult stuff I'd imagine. I mean seriously at rock concerts and such the drummers are always sweating like crazy lol.
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  #467  
Old Jan 23, 2015, 09:28 PM
Anonymous100205
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Thank you for your supportive and insightful post Willow!

I'm just going to be honest with all of you here:

The mood aspect bothers me a lot because I feel like the emotions I feel particularly when I'm depressed make me weak. I think any emotion or mood good or bad makes me weak. I had a really rough childhood and I learned early that expressing emotion is not okay. So I've done everything in my power to stuff my feelings. But when I'm having a mood episode they all come out and it's intolerable for me because I built up this entire false persona of having no emotions at all. When I have a mood episode it shatters my false self and I'm left emotionally crippled by it all and it takes me a long time to recover. I would rather have a sz diagnosis because psychosis doesn't involve your emotions. Does that make sense? I know I've gone back and forth about this a lot and I've probably driven you all crazy by now and it doesn't help that I've had a lot of other contributing factors that have made diagnosing me properly a challenge. I've been diagnosed with BP I, sza, and sz before. It's crazy making, because the doctors can't seem to figure me out too.

But taking everyone else out of it and taking an honest look at myself, my mood swings are very extreme and when I'm really up or mixed I get psychotic and completely out of control unless someone steps in and helps me. And my depressions are terrible, truly terrible. I end up completely nonfunctional and just wanting to die. I don't admit to having had suicidal ideation but I do have it when I'm in a severe depressive episode.

So that's the gist of it. It also doesn't help that sz was my original diagnosis nine years ago and I spent YEARS working on accepting that and then later on I got told oh wait you have bipolar I with psychotic features or sza BP type. It threw me for a loop and I couldn't believe it and I didn't want to accept that me, who sees herself as perfect, could have a severe mood disorder(yes in my twisted head being psychotic is okay but having bipolar isn't, gah I've got serious issues lol). But as much as I've denied it, I do have severe mood problems and it's obviously bipolar/sza. It's not going away. I need to take some practical steps to accept this. If anyone has any suggestions for me I would love to hear them.

If you actually read all of this, thank you for listening.
Well I'm still working to a degree on accepting that I have bp. But just bc of stigma. I like feeling things deeply. I'm not afraid of emotions really. Except rage, anger, being vulnerable and severe self hate that I get in deep dark depressions. Idk, it sounds like you don't want to lose control. Which is understandable considering what you've been through.

I hope you can learn to embrace your emotions.
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  #468  
Old Jan 23, 2015, 09:41 PM
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Saw my therapist. Was in a great mood and she pointed out that I seemed much more calm and not as paranoid. I've been on the zyprexa 5 days now. Last night I pigged out so freaking bad...Ugh. I'm at that place. Weight gain and stability or continue losing weight and never leave the house and deal with irritability, anger and depression.

Anyway, went to get some meds and had to wait forever, my back and knee started really hurting from standing. Got me all worked up...
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  #469  
Old Jan 23, 2015, 09:54 PM
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Well I'm still working to a degree on accepting that I have bp. But just bc of stigma. I like feeling things deeply. I'm not afraid of emotions really. Except rage, anger, being vulnerable and severe self hate that I get in deep dark depressions. Idk, it sounds like you don't want to lose control. Which is understandable considering what you've been through.

I hope you can learn to embrace your emotions.
Thank you for your support. You're right that I don't want to lose control, and when I have a mood episode I always do lose control unless I get a med adjustment that stops it before I end up doing something really stupid and ending up in the hospital or whatever. Losing control scares me, when I developed BP I was so angry because I knew I was losing it I just didn't know it was BP at the time.

I think it's great that you like feeling things deeply, it's so different than me. I have a lot to learn from you and I'm sure others here as well. I want to get better at embracing my feelings but it's a long road ahead as you know because of another condition I have. I appreciate your reply, it means a lot.
  #470  
Old Jan 23, 2015, 10:16 PM
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Thank you for your support. You're right that I don't want to lose control, and when I have a mood episode I always do lose control unless I get a med adjustment that stops it before I end up doing something really stupid and ending up in the hospital or whatever. Losing control scares me, when I developed BP I was so angry because I knew I was losing it I just didn't know it was BP at the time.

I think it's great that you like feeling things deeply, it's so different than me. I have a lot to learn from you and I'm sure others here as well. I want to get better at embracing my feelings but it's a long road ahead as you know because of another condition I have. I appreciate your reply, it means a lot.
I think for me I'm used of being on an emotional rollercoaster, lol. I was medicated with ads and sleep meds since I was 21, but not mood stabilizers and aps until 36. So I've lived a pretty chaotic life. Then add in the abuse and trauma and it was nutty, lol. But I was used to nutty. I feel bad that my son has had to deal with the negative side of bp. But he's told me that he'd rather have me, who can be over emotional than my sister who is completely non emotional. He lived with her when my mom passed away for about a yr, (I was completely non functional) and he would call me crying, begging to come home. He felt very alone there, my sister and her family pretty much never talk.

Bc, yes there's the negative stuff but there's also the deep connection, happiness, love, connecting over music, movies. Talking about our dreams, where we want to go, what we're passionate about. Now that he's older he's pulled back, but we are still very close.

I hope you can get there too. And you're so incredibly intelligent I know you can.

My son just says, you're so emotional when I cry now, lol. I've taught him, it's ok to be emotional, that it's just a feeling.
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  #471  
Old Jan 23, 2015, 10:26 PM
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I think I've decided I'm only having one cup of coffee a day. I had a cup of coffee at my therapists office, and feel very anxious. I have decaf. I need to stock up on some decaffeinated teas. Very broke though now...
  #472  
Old Jan 23, 2015, 10:28 PM
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*falls a sleepy*

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  #473  
Old Jan 23, 2015, 10:32 PM
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immmmm gonna swiiinng from the chandelierrr
from the chandelierrrr

immm gonnaa live like tomorrow doesnt exissst
like it doesnt exiiiist
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  #474  
Old Jan 23, 2015, 10:34 PM
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Ssh ssh it ok newtus *injects with Ativan* have good sleep.
  #475  
Old Jan 23, 2015, 10:42 PM
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I think I've decided I'm only having one cup of coffee a day. I had a cup of coffee at my therapists office, and feel very anxious. I have decaf. I need to stock up on some decaffeinated teas. Very broke though now...
Rooibos the red tea is naturally decaf....I have a rooibos chai that's excellent although it's store brand....I hear trader joes makes a good one too. Highly recommend.
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My Support Forums

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