Home Menu

Menu


Reply
Thread Tools Display Modes
  #1  
Old May 15, 2013, 03:27 PM
redbandit's Avatar
redbandit redbandit is offline
Grand Member
 
Member Since: Jun 2012
Location: USA
Posts: 811
This probably sounds dumb, but why take meds with all the stupid side effects, if it doesnt even help??? Maybe for others it does help significantly, but for me I cant find any to help me be stable, I just seem to get worse. I just keep searching and searching lately, reading books about ppl who have regained stability from bipolar, but I dont even find the info useful.
Sigh...sorry for the rant, just very frustrated with my treatment.
__________________
In a season of suffering, we may question God's intentions. But sometimes His plans for deliverance are greater than our desire for relief
-anonymous
Hugs from:
Arethusa, Darth Bane, notALICE, Odee, Warrioress

advertisement
  #2  
Old May 15, 2013, 03:40 PM
Warrioress's Avatar
Warrioress Warrioress is offline
Member
 
Member Since: Oct 2010
Location: Earth :D
Posts: 457
I'm sure we've all felt like that at some point, but mostly folks end up finding a combination that works and is kinda worth the side effects. I'm sorry you haven't found it yet. What are you taking at the moment?
__________________
"Monsters are real, and ghosts are real too. They live inside us, and sometimes, they win." ~Stephen King

Dx Bipolar II
Med-free for the time being
  #3  
Old May 15, 2013, 03:41 PM
middlepath's Avatar
middlepath middlepath is offline
Member
 
Member Since: Apr 2013
Location: East Coast
Posts: 413
sorry you are having a hard time. I am pretty much a meds rookie (as far as BP goes), but I have found that the meds seem to just turn down the volume on my episodes....they have not gone away totally though, and for me that is worth it enough to deal with the side effects. I hoped but didn't know if the symptoms would go away completely but they haven't. They have reduced in severity though. I hope you find what you need and want. This may be a stupid question but have you given the meds you have tried enough time to really see what they will do over the course of several months? sorry if that is a dumb question, i am sure your pdoc knows what he/she is doing...it was just a thought.
__________________
"My favorite pastime edge stretching" Alanis Morissette
  #4  
Old May 15, 2013, 03:48 PM
Warrioress's Avatar
Warrioress Warrioress is offline
Member
 
Member Since: Oct 2010
Location: Earth :D
Posts: 457
middlepath has a point. I used to believe that meds were absolutely no good and only made me slow and dull, but it was mostly because I would quit taking them before they had really started working or my my body had got used to them.
__________________
"Monsters are real, and ghosts are real too. They live inside us, and sometimes, they win." ~Stephen King

Dx Bipolar II
Med-free for the time being
  #5  
Old May 15, 2013, 03:55 PM
venusss's Avatar
venusss venusss is offline
Maidan Chick
 
Member Since: Mar 2010
Location: On the faultlines of the hybrid war
Posts: 7,139
well, some people find themselves better OFF meds. If it doesn't work for you and you find other ways to cope... please don't let yourself to be forced to stay on them just because you have this diagnosis.

there is a way. there's actually many ways. The substances are only small part of recovery anyways.
__________________
Glory to heroes!

HATEFREE CULTURE

Thanks for this!
So hopeful, Warrioress
  #6  
Old May 15, 2013, 04:03 PM
anonymous8113
Guest
 
Posts: n/a
I agree with these posts. While there are side effects, they may sometimes be related
to the acidic residue which all meds leave when they are digested. You can help to
correct that by increasing the alkalinity of fluids and tissues. Much information is available on how to do that.

Often, it takes as many as three or more efforts to obtain the right "cocktail" to get
you stabilized. The first effort is just the beginning. You have a long life ahead of you if you are pro-active in your care. That you may wish to do to make things better for yourself.

Generally, bipolar illness can become worse if it is permitted to go untreated. While
you may not feel the first effort at medication is good, ask for different ones and try
them for a while. There are literally dozens of bipolar medications that work.
Do some research yourself on how to improve symptoms of medication acidity ash (or residue).

Ask about the value of Deplin in prescribed dosage for those who can't metabolize
folic acid (vitamin B9) into folate which the brain can use because it's able to cross the
blood-brain barrier. (Current research indicates that 70% of depressed patients are lacking
the stomach enzymes necessary to make folate which the brain can use to assist with serotonin
neurotransmitters--those are the ones that give the "good feeling" tone.)

Some medication-resistant patients find Deplin to be beneficial when added to their meds schedule.

Take care of yourself.
Hugs from:
Darth Bane
  #7  
Old May 15, 2013, 04:43 PM
kimland kimland is offline
Junior Member
 
Member Since: May 2013
Location: In the Moment
Posts: 6
Try doing some research on "mindfulness". Sometimes it takes a change in how we approach the disorder and our thinking. I don't think there is a magic pill. The problem I had with medication was, as soon as I would start to feel good I would want to start to decrease dosages. Now, I very much live in the moment (mindfulness) and take quite a combo of meds, but I'm happy and stable. It took a lot of hard work and a conscious decision that I was not going to let the disorder ruin my life. I will be 38 next week, and I'm making it....I set out to "master bipolar" and I'm doing it. But it wouldn't be possible had I not learned how to practice and implement mindfulness as a way of being.

Try to think of 5 positive things right now. And in case you say there isn't any, I can help. First you have electricity, there are those without, you have internet, so you have access to as much information as you could possibly want, I'm assuming you are not standing out in the rain, so a roof over your head? Your turn. Now in this moment, what do you need? Not want, need?

I wish you nothing but happy days.

Kim
Thanks for this!
redbandit
  #8  
Old May 15, 2013, 05:30 PM
redbandit's Avatar
redbandit redbandit is offline
Grand Member
 
Member Since: Jun 2012
Location: USA
Posts: 811
Quote:
Originally Posted by middlepath View Post
sorry you are having a hard time. I am pretty much a meds rookie (as far as BP goes), but I have found that the meds seem to just turn down the volume on my episodes....they have not gone away totally though, and for me that is worth it enough to deal with the side effects. I hoped but didn't know if the symptoms would go away completely but they haven't. They have reduced in severity though. I hope you find what you need and want. This may be a stupid question but have you given the meds you have tried enough time to really see what they will do over the course of several months? sorry if that is a dumb question, i am sure your pdoc knows what he/she is doing...it was just a thought.
Yeah, I've taken them a while
__________________
In a season of suffering, we may question God's intentions. But sometimes His plans for deliverance are greater than our desire for relief
-anonymous
Hugs from:
middlepath
  #9  
Old May 15, 2013, 06:35 PM
Darth Bane's Avatar
Darth Bane Darth Bane is offline
Veteran Member
 
Member Since: Jan 2013
Location: In the galaxy far far away !!!
Posts: 380
clowns (lithium) to the left of me,
jokers (lamictal) to the right,
here i am stuck in the middle with you (bipolar)

Yes I'm stuck in the middle with you,
And I'm wondering what it is I should do
__________________
I am lost in my own mind !

Hypo-mania and Depression are alike a Knife of Dreams !

Dx - Bipolar II

I'm not feeling well ... I got pain !!! Effie, We all got pain !!!!!
Thanks for this!
notALICE
  #10  
Old May 15, 2013, 07:30 PM
Trippin2.0's Avatar
Trippin2.0 Trippin2.0 is offline
Legendary
 
Member Since: May 2010
Location: Cape Town South Africa
Posts: 11,937
I would like to touch on the perception issue raised by Kim but with a different angle...

Meds increased my symptoms for different reasons: 1. My perception of myself was different, I now had a negative connotation attached to my identity. 2. While I remember how I praised them in the beginning (both cocktails) I loathed them in the end, because they were a constant reminder of my "defect" and not to mention nightmarish side effects from cocktail 2. Who knows maybe chemically they did make me worse, idk... But I'll try to elaborate;

All of a sudden I went from "wired differently" to "sick" and I believe this helped to increase my instability, I was cycling like crazy. Then I went from decreased volume of episodes to muted, which meant not recognizing myself, my demeanor, my reactions, even my face.

Do you see what I'm saying? Even without being muted in the end, my perception of myself was now very negative. I started thinking of myself as sick, and while this works for some, because the standard medical model is suited to certain personalities, for others it increases symptoms, episodes, cycles. Its counter-productive, as "we" reinforce the illness in a sense. I am not alone in this, that's why I use "we" but do not wish to use names as the member is not online to speak for herself, but am sure there are more like us.

Since quitting the medical model, I am less symptomatic, yes I still swing and cycle, but not as often or as wildly as before when medicated. And I don't analyze every mood or every nuance as symptomatic, and by taking away that magnifying glass, for me atleast, it has now become less of a burden to bear... I am not anxiously awaiting other shoes to drop, I am not constantly on guard. That was wayyy too stressful in itself, and stress + bp don't mix. I believe it is because I changed my perception and reverted to being "wired differently" as opposed to being sick, that I now cycle less and have very few fullblown episodes.

Now I'm not saying quit your meds or hide your head in the sand like an ostrich and pretend bp is a myth, a certain amount of awareness is very helpful. Cold turkey was hell on earth for quite a while on me and I hear tapering's no walk in the park either. But if you could maybe change your mindset to work in conjuction with meds, maybe then you won't feel worse on them...

Maybe I'm right, maybe I'm talking snot, but I thought it worth mentioning anyway

Last edited by Trippin2.0; May 15, 2013 at 07:49 PM.
Thanks for this!
So hopeful
  #11  
Old May 15, 2013, 09:43 PM
cool09 cool09 is offline
Grand Poohbah
 
Member Since: Feb 2012
Location: Eastern MD
Posts: 1,514
I relate to you. I've been on over 45-50 meds since 1986 and I came to the same conclusion about ten yrs ago. I'm very sensitive to meds or either I don't respond to them. And I'm stuck in the middle because Doctors don't know what to do. They usually give me options like, "Well if it helped your mood a little and you had a small side effect wouldn't that be better than not taking it at all?" And I'm like, "No! I'm having trouble walking or I feel too lethargic on this dose and overall I'm not exactly functioning like I want to be functioning!!!" (And they kind of just have no answer.)

That's what Psychiatry is about sometimes which I learned from my Doc. I told him about schizophrenics which I've been around and how they're turned lifeless after getting treatment and my Doc told me "Well, a Doctor has to determine if a certain course of action has to be taken sometimes." Anotherwords, the medication might have some demons but there really aren't any other choices to make.
__________________
Forget the night...come live with us in forests of azure - Jim Morrison

Last edited by cool09; May 15, 2013 at 09:45 PM. Reason: add
  #12  
Old May 15, 2013, 10:05 PM
redbandit's Avatar
redbandit redbandit is offline
Grand Member
 
Member Since: Jun 2012
Location: USA
Posts: 811
Quote:
Originally Posted by Warrioress View Post
I'm sure we've all felt like that at some point, but mostly folks end up finding a combination that works and is kinda worth the side effects. I'm sorry you haven't found it yet. What are you taking at the moment?
I'm taking celexa, lamictal, lorazapam and flurazapam.
__________________
In a season of suffering, we may question God's intentions. But sometimes His plans for deliverance are greater than our desire for relief
-anonymous
  #13  
Old May 16, 2013, 05:48 AM
Anonymous53876
Guest
 
Posts: n/a
My first round of meds worked REALLY great for several months then I began having these unbelievable anxiety attacks...read the med literature...guess what one of the side affects was....anxiety attacks. Seriously?!?
So I stopped taking those and got another one...it worked really great too.
Then my medical benefits changed and I could no longer afford to go see my Pdoc and my scrip ran out.
Since then I have been reading alot, doing a lot of self help, reading and posting here on PC, and overall I think I am doing pretty good.
I am much more aware of my issues and symptoms....I push myself when I see certain triggers or situations that can cause me to relapse into panic or anxiety...I do have some days where my symptoms are my non-med side affects.
But I am really lucky that I am not worse than I am. I would never give the advice to NOT take your meds if the Pdoc thinks you should.
I am also lucky enough that any stigma associated to taking the meds does not matter to the room full of people I work with who are on or have been on similar meds for similar issues....I have talked with many of them.
Good luck on whatever path you choose. You have to do what is best for you.
  #14  
Old May 16, 2013, 06:41 AM
comicgeek007's Avatar
comicgeek007 comicgeek007 is offline
Grand Member
 
Member Since: Aug 2012
Location: The edge of my wits
Posts: 818
Quote:
Originally Posted by redbandit View Post
This probably sounds dumb, but why take meds with all the stupid side effects, if it doesnt even help??? Maybe for others it does help significantly, but for me I cant find any to help me be stable, I just seem to get worse. I just keep searching and searching lately, reading books about ppl who have regained stability from bipolar, but I dont even find the info useful.
Sigh...sorry for the rant, just very frustrated with my treatment.
I agree. I really just want to stop taking them because I hate being dependant on anything. I feel.stable ish now, though, I guess.
__________________
Bipolar 2 (in remission), anorexia (in remission), and trichotillomania, also have conversion disorder that seems to be rearing its ugly head again.

100mg Lamictal
  #15  
Old May 16, 2013, 08:49 AM
notALICE notALICE is offline
Member
 
Member Since: Mar 2013
Location: USA
Posts: 315
Funny I woke up after what seems like a 18 hour coma (had meds adjusted 2 days ago) ok sleep a bit excessive, even for the woman who puts sleep on her "I love...sleep always #1 list" but after bouncing into furniture, figuring out the coffee maker I've used a thousand times...body slowed down in a sea of molasses...
...I wonder why. I shell out lotsa money to feel like crap. I think I'm being a whiner as usual, but damn, is it worth it?

When I think back to just a few months ago where my mania had taken my short term memory, ability to drive, to sleep, to read (#2 on the "I love list"), type, to reason & to function I'll say yes. Heck - I'll say yes now, it's easy to forget how bad I was. Forget (snapping my fingers - that quick). Give me more coffee, pull the plug on the molasses, and I'll be good to go.
__________________
notALICE

MIDWAY upon the journey of our life
I found myself within a forest dark,
For the straightforward pathway had been lost.


Bipolar I

  #16  
Old May 16, 2013, 09:07 AM
notALICE notALICE is offline
Member
 
Member Since: Mar 2013
Location: USA
Posts: 315
Quote:
Originally Posted by redbandit View Post
This probably sounds dumb, but why take meds with all the stupid side effects, if it doesnt even help??? Maybe for others it does help significantly, but for me I cant find any to help me be stable, I just seem to get worse. I just keep searching and searching lately, reading books about ppl who have regained stability from bipolar, but I dont even find the info useful.
Sigh...sorry for the rant, just very frustrated with my treatment.
Those were my first thoughts this morning & was going to post on them. I really hope they find a good balance. I went on a mini rant, and then realized I don't have much to complain about. I've found much more balance than I had. Be persistent, proactive and positive about finding the right treatment. Here for ya...
__________________
notALICE

MIDWAY upon the journey of our life
I found myself within a forest dark,
For the straightforward pathway had been lost.


Bipolar I

Reply
Views: 1156

attentionThis is an old thread. You probably should not post your reply to it, as the original poster is unlikely to see it.




All times are GMT -5. The time now is 07:02 AM.
Powered by vBulletin® — Copyright © 2000 - 2025, Jelsoft Enterprises Ltd.




 

My Support Forums

My Support Forums is the online community that was originally begun as the Psych Central Forums in 2001. It now runs as an independent self-help support group community for mental health, personality, and psychological issues and is overseen by a group of dedicated, caring volunteers from around the world.

 

Helplines and Lifelines

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider.

Always consult your doctor or mental health professional before trying anything you read here.