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Old Apr 28, 2014, 05:14 PM
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peeps757 peeps757 is offline
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For the first time in probably 2 years I went almost 8 whole days with a "stable" mood. I wasn't Manic or depressed... everything was how i see what other people go through day to day... it was like i was normal. I was even sleeping at night. Like 7 hours a night. it was great. Then last night I woke up at 11 pm and i've been up since... I got maybe 2 hours of sleep. My moods are going everywhere again and I don't know where i'm going to end up next with them. I started dissociating again. I know some of this is from lack of sleep, but i was doing so good. I did what I said I wouldn't and I got my hopes up... i'm just tired of doing this. I'm tired of not knowing what i'm going to be like next, and I don't want to get as bad as I usually do.. it's exhausting and seems like i'm fighting a battle that can't be won.
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  #2  
Old Apr 28, 2014, 05:37 PM
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kaliope kaliope is offline
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gosh, you really take me back to life before finding the right meds. it can be different if you are persistent and patient and work hard to find the right med combo. it took me over 2 1/2 years but I finally found the right meds and now I lead a stable life for four years now. it can be done. drove my pdoc up the wall refusing to stay on meds that just weren't cutting it, I refused to up dosages on meds that weren't working. I made him change them. I wanted immediate relief. if they were working in a couple of months, I changed them until I found something that did work. and it paid off. drugs that work without side effects. you can have a stable life too. advocate for yourself. be persistent. it will pay off. take care.
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Thanks for this!
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  #3  
Old Apr 28, 2014, 05:43 PM
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peeps757 peeps757 is offline
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Quote:
Originally Posted by kaliope View Post
gosh, you really take me back to life before finding the right meds. it can be different if you are persistent and patient and work hard to find the right med combo. it took me over 2 1/2 years but I finally found the right meds and now I lead a stable life for four years now. it can be done. drove my pdoc up the wall refusing to stay on meds that just weren't cutting it, I refused to up dosages on meds that weren't working. I made him change them. I wanted immediate relief. if they were working in a couple of months, I changed them until I found something that did work. and it paid off. drugs that work without side effects. you can have a stable life too. advocate for yourself. be persistent. it will pay off. take care.
Thanks, and I'm trying. I have problems with giving up on them all a lot. but i was doing really well.. I thought they were too. I feel like i've been on so many of all different dosages! I just really want/need for something to work. I'm glad you've had a stable life for four years now!
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  #4  
Old Apr 28, 2014, 07:02 PM
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littlemiss44 littlemiss44 is offline
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It really sucks what yr going thru! It took me about 2 years to find the right combo. I still can only work pt do to my illness and my instability. Even tho I'm medicated my bp and anxiety still act up which is why I can only work pt and on ssd. You say that you give up on them alot. Maybe you should give the meds more time to work before giving up on them...oh but you said you've tried diff dosages. Hum... I'm on geodon and.it really works good. I'm on 80mg twice a day. Have you tried that one? Or a new one called latuda? Latuda has stabilized me which is great. It kinda numbs me out a bit but at least my bipolar depression has gone for now and I'm thankful. I'm not hypo manic either. Have you talked to yr pdoc about increasing the doses of what yr.on? If you can't get an appt you can leave a msg for them to call you back. Since you know what yr on works, then maybe you just need a little increase. I had to do that with my geodon. I went up twice then got at the right level. I'm so sorry it's going this way for you. Whenever I have good days I am always thanking God cause I so appreciate them. Then it won't last and it's disappointing do I understand how yr feeling. Take care of yr self. Be kind to yr self.

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Thanks for this!
peeps757
  #5  
Old Apr 28, 2014, 07:15 PM
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peeps757 peeps757 is offline
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Originally Posted by littlemiss44 View Post
It really sucks what yr going thru! It took me about 2 years to find the right combo. I still can only work pt do to my illness and my instability. Even tho I'm medicated my bp and anxiety still act up which is why I can only work pt and on ssd. You say that you give up on them alot. Maybe you should give the meds more time to work before giving up on them...oh but you said you've tried diff dosages. Hum... I'm on geodon and.it really works good. I'm on 80mg twice a day. Have you tried that one? Or a new one called latuda? Latuda has stabilized me which is great. It kinda numbs me out a bit but at least my bipolar depression has gone for now and I'm thankful. I'm not hypo manic either. Have you talked to yr pdoc about increasing the doses of what yr.on? If you can't get an appt you can leave a msg for them to call you back. Since you know what yr on works, then maybe you just need a little increase. I had to do that with my geodon. I went up twice then got at the right level. I'm so sorry it's going this way for you. Whenever I have good days I am always thanking God cause I so appreciate them. Then it won't last and it's disappointing do I understand how yr feeling. Take care of yr self. Be kind to yr self.

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Geodon is one of the medicines i'm on. I take 80 mg at night. It makes me extremely tired which is a good reason why im on it because when i'm manic i can go days without sleeping, but I have to keep my full time job, i don't know how i've managed to do so but i have and with that I have to be up and at work early and I take the geodon about an hour and 15 min after i get off work so i can be able to function enough to drive into work the next morning for the drive at 6 am. my life is work and bed with the exception of my doctors appt every week. the mixture of meds that i was on, the lithium, depakote, and geodon was doing really well for that last week but my guess is it's time to up everything again or figure out what's causing the instability all over again. everything is working against each other with the different illnesses. i was happy to have those few days I just had.
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  #6  
Old Apr 28, 2014, 07:25 PM
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littlemiss44 littlemiss44 is offline
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How long have you been on the geodon? I started out being extremely tired also. But my pdoc said that side affect can wear off for alot of people..it totally wore off for me which is why I can handle taking it in am and pm. Sounds like more of it would really help you. In sorry you get so tired on it. Maybe you could take the geodon right when you get home from work? That way if yr pdoc does increase it you can still just take it at night but doing so when you get home from work. Sleep is vital for you since you work ft. But then again maybe another one of yr meds could be increased? I just know how life changing the geodon has been for me which is why I lean toward that one. But I'm not a pdoc so I'd call him to talk unless you can get into see him or her really soon.

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  #7  
Old Apr 28, 2014, 07:33 PM
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peeps757 peeps757 is offline
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At one point in time... probably a year ago i was on 120 mg at night. but the sleep has wore off a lot on me. i took it 3 hours ago and i'm still not asleep... actually i've been up since 11 pm last night. so if that's saying anything. i know it probably sounds silly but i get tired of the medicines and i just want to be better.... that's why i stop them.. i start doing okay and i stop or i give up because i feel like nothing is working. I see her tomorrow. I'm just frustrated at this point. and I don't know how long i've been on geodon this time. I have been trying very hard this time at keeping on my medicines and trying to get better.
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  #8  
Old Apr 29, 2014, 12:11 AM
r010159 r010159 is offline
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Quote:
Originally Posted by littlemiss44 View Post
It really sucks what yr going thru! It took me about 2 years to find the right combo.

[snip]

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It took me at least 3 years to find the right combo for treatment resistant depression. Then it took my doctor several years to give me a mood stabilizer which is what I needed all along. Look at all the time that has gone by with only a few months reprieve from time to time.
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  #9  
Old Apr 29, 2014, 12:40 AM
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nbritton nbritton is offline
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Quote:
Originally Posted by peeps757 View Post
For the first time in probably 2 years I went almost 8 whole days with a "stable" mood. I wasn't Manic or depressed... everything was how i see what other people go through day to day... it was like i was normal. I was even sleeping at night. Like 7 hours a night. it was great. Then last night I woke up at 11 pm and i've been up since... I got maybe 2 hours of sleep. My moods are going everywhere again and I don't know where i'm going to end up next with them. I started dissociating again. I know some of this is from lack of sleep, but i was doing so good. I did what I said I wouldn't and I got my hopes up... i'm just tired of doing this. I'm tired of not knowing what i'm going to be like next, and I don't want to get as bad as I usually do.. it's exhausting and seems like i'm fighting a battle that can't be won.
Don't you have anything to control your sleep? I've always found that controlling my sleep / wake cycle is of the utmost importance to my stability. If I let it get out of whack I'm screwed, so I keep around upwards of eight different kinds of sleeping pills and go pills so that I can tightly regulate my sleep / wake schedule.

The extreme moods will go away if you can keep yourself on a rigid sleep / wake cycle. Set a bedtime, say 11pm, and take or drink whatever you need to to make sure your head is on the pillow by 11pm. If you do this enough times your body adjusts and it gets easier, eventually you'll be able to back off the sleep meds entirely.

My morning starts in the same manner, with ritalin, nuvigil, and an expresso to keep me from napping. I also have meds (prednisone) that make me sleep only half a night, they come in handy for resetting the cycle and adjustments.

A well regulated sleep / wake cycle should be the foundation of your treatment plan.

Last edited by nbritton; Apr 29, 2014 at 01:00 AM.
  #10  
Old Apr 29, 2014, 01:04 AM
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PoorPrincess PoorPrincess is offline
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My morning starts in the same manner, with ritalin, nuvigil, and an expresso.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~<

Priceless. Thank you nbritton for sharing. Ya made me chuckle.
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Traveling west back toward Eden (interestingly the wise men in the Gospel account of Jesus' birth came from the East), has been full of confrontation with
the trials and tribulations of living outside the Garden.
She is an artist without doubt disappointed that paradise was not as close in 1969 as she and so many others hoped it was. Her work is now filled with the reality of humanity's failure to achieve the prophetic dream of her song, but never without the hope that that day will yet come.
  #11  
Old Apr 30, 2014, 02:10 AM
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peeps757 peeps757 is offline
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Member Since: Apr 2014
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Quote:
Originally Posted by nbritton View Post
Don't you have anything to control your sleep? I've always found that controlling my sleep / wake cycle is of the utmost importance to my stability. If I let it get out of whack I'm screwed, so I keep around upwards of eight different kinds of sleeping pills and go pills so that I can tightly regulate my sleep / wake schedule.

The extreme moods will go away if you can keep yourself on a rigid sleep / wake cycle. Set a bedtime, say 11pm, and take or drink whatever you need to to make sure your head is on the pillow by 11pm. If you do this enough times your body adjusts and it gets easier, eventually you'll be able to back off the sleep meds entirely.

My morning starts in the same manner, with ritalin, nuvigil, and an expresso to keep me from napping. I also have meds (prednisone) that make me sleep only half a night, they come in handy for resetting the cycle and adjustments.

A well regulated sleep / wake cycle should be the foundation of your treatment plan.
Geodon is what we've been utilizing to make me sleep and since I have to wake up at 0345 I have the Focalin xr to help with the waking up. I have a strict time I have to take Geodon or it's like i'm unable to function in the morning, but I think my body is getting used to it because I'm able to stay up later than than I was.
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  #12  
Old Apr 30, 2014, 03:59 AM
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Flummixed Flummixed is offline
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I agree on the sleep schedule. Unfortunately my work hours prevent this from happening. I work an alternative 12 hour schedule so for 2 to 3 days in a row I wake up at 1AM to be to work by 3. Then on days off I sleep till about 5 or 6 so that messes with me quite a bit.
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  #13  
Old May 01, 2014, 06:31 PM
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peeps757 peeps757 is offline
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Originally Posted by Flummixed View Post
I agree on the sleep schedule. Unfortunately my work hours prevent this from happening. I work an alternative 12 hour schedule so for 2 to 3 days in a row I wake up at 1AM to be to work by 3. Then on days off I sleep till about 5 or 6 so that messes with me quite a bit.
It wasn't until a few months ago that I even worked a job where I could somewhat make a sleep schedule. I know I can now, it's just depressing to know that I have to take my medicine so early and go to bed so early so i can get up and function for work. There isn't anytime for anything else, and yet my doctor and 2 friends keep saying i need to change my routine up and add something to my life so i'm not doing the same thing everyday. Frustrating, and i agree with your quote. lol
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