[Guiness187055]

Originally Posted by BeyondtheRainbow

Dramatic pdoc visit today. I've been on patient assistance for Emsam (my AD) for years. For months now we've been contacting them about renewal and have done paperwork twice but no meds have come; nor have any letters telling me I was dismissed from the program. So I assumed when I got there today that they'd have my meds.

Instead they had nothing. I commented to my pdoc that this was getting scary because I only have so many more months stockpiled (somehow I built up a supply over time, thank God) and it's almost 3 years since I was IP and I'd hate to have to go in for a med change which would be needed to get me off Emsam safely.

So they called and my pdoc talked to several people at the company and kept being told that I was being disqualified for having Part D insurance even though they've provided them med while I've had Part D for years because it is so expensive that I couldn't afford it even with the minimal coverage I'd get with it. Finally she talked to someone who vaguely remembered "that application" and they'd been confused that a new application was sent in (despite being told to do that by someone there) and that I did actually qualify. So they are shipping tomorrow and I can relax after a very stressful 15 minutes.

At least it took up enough time and stress that my pdoc never got upset with me for my multiple med errors lately.

The 2.5 hour drive was in bad trafffic and snowy/rainy stuff so it took 3 hours and I'm tired now. I have to eat some soup and get to bed.

Sounds like you avoided a nightmare. Glad things worked out for you.

[BeyondtheRainbow]

Thanks Guinness. Having my Emsam cut off would be a huge nightmare. There are a couple of ADs that I haven't tried (Vibriid, Cymbalta and Trintellix (sp?) but since MAOIs work for me we'd probably stick with that. And the hospital only stocks the MAOI I don't want the most because it causes weight gain. Both MAOI options would be hard as I am terrible at taking AM meds and both require multiple dosing. So I don't know what we'd decide but I'm so glad we don't have to worry about it.

[TheSeaCat]

Originally Posted by BeyondtheRainbow

Thanks Guinness. Having my Emsam cut off would be a huge nightmare. There are a couple of ADs that I haven't tried (Vibriid, Cymbalta and Trintellix (sp?) but since MAOIs work for me we'd probably stick with that. And the hospital only stocks the MAOI I don't want the most because it causes weight gain. Both MAOI options would be hard as I am terrible at taking AM meds and both require multiple dosing. So I don't know what we'd decide but I'm so glad we don't have to worry about it.

That sounds like it would be a terrible nightmare having a medication that helps cut off. I'm glad that it looks like the company is still going to cover the cost. How is Charlie and Abby I haven't seen an update on them in a while.

I'm not sure Demon is doing well on his Prozac he's still acting like a giant brat when I'm not home. I think it was you who asked about him most recently.

[wildflowerchild25]

I can’t sleep for the second night in a row. I’m not happy.

[Guiness187055]

Originally Posted by wildflowerchild25

I can’t sleep for the second night in a row. I’m not happy.

Welcome to my life

[TheSeaCat]

Originally Posted by wildflowerchild25

I can’t sleep for the second night in a row. I’m not happy.

I'm sorry dear, and I am also sorry to hear that the girl you work with has to go to the hospital and that your position is up in the air. I really hope they are able to utilize your talent elsewhere while she is healing. Sending warm your way.

[Wild Coyote]

Originally Posted by BeyondtheRainbow

Dramatic pdoc visit today. I've been on patient assistance for Emsam (my AD) for years. For months now we've been contacting them about renewal and have done paperwork twice but no meds have come; nor have any letters telling me I was dismissed from the program. So I assumed when I got there today that they'd have my meds.

Instead they had nothing. I commented to my pdoc that this was getting scary because I only have so many more months stockpiled (somehow I built up a supply over time, thank God) and it's almost 3 years since I was IP and I'd hate to have to go in for a med change which would be needed to get me off Emsam safely.

So they called and my pdoc talked to several people at the company and kept being told that I was being disqualified for having Part D insurance even though they've provided them med while I've had Part D for years because it is so expensive that I couldn't afford it even with the minimal coverage I'd get with it. Finally she talked to someone who vaguely remembered "that application" and they'd been confused that a new application was sent in (despite being told to do that by someone there) and that I did actually qualify. So they are shipping tomorrow and I can relax after a very stressful 15 minutes.

At least it took up enough time and stress that my pdoc never got upset with me for my multiple med errors lately.

The 2.5 hour drive was in bad trafffic and snowy/rainy stuff so it took 3 hours and I'm tired now. I have to eat some soup and get to bed.

Wow. Am so glad this worked out for you!

WC

[Wild Coyote]

Originally Posted by wildflowerchild25

So the student I work with is going to be in the hospital for at least a couple of weeks I am so worried about her. All we know is her swallow study “didn’t go well”. I don’t know what that means. I know the speech therapist was advocating for a feeding tube. I’m also worried about that for selfish reasons. If she gets a feeding tube, she will have a nurse with her instead of me, and I’m afraid I’ll be put out of a job. But I’m trying not to worry about that since I honestly don’t know what will happen. I definitely have my job for at least another two weeks. I’ll just be shuffled around to different classrooms every day. Not ideal. I get nervous going into other classrooms.

I meant to get to the gym today but I didn’t fall asleep until late last night and It was pouring my the time I got out of work so I said screw it and went home and took a nap. It was a great nap. I hope I’ll sleep tonight. I’ve been struggling with insomnia off and on for a couple of weeks now. It’s not every night, I’d say every other night. I’m up until after midnight. I don’t know why. I have no other mood symptoms and I’m not particularly stressed out so who knows. I’ll just keep taking my melatonin and valerian root and hope it helps.

I see pdoc tomorrow. I’m going to ask to lower the haldol. I only get psychotic in mood episodes and I haven’t had an episode in seven months. I’d like to see how I do on a lower dose. It’s fast acting so if things start getting hairy it’ll be easy to go back up and even out. At least that’s what I hope.

I truly hope this works out for you!

WC

[~Christina]

Originally Posted by Jennifer 1967

I just feel rough. I’ve had a chest cold and a sore throat since Wednesday but my Ritalin kept me going. Now I’m just fatigued, I hurt all over and my chest is on fire. Going to the doctor at 1:45. I really hope it’s not pneumonia again. I can’t afford the down time. Fingers crossed.


Hugs to all.

So sorry to hear your feeling so horrible. Especially this time of year seems to make things harder.

Did your Doctor help ? Hope it’s not pneumonia.

((( hugs )))

[~Christina]

Originally Posted by Nammu

Back to waking often all night. Still slept some last night, weird dream about somebody named Vicky, she was a character on a soap many many years ago.


Feel disengaged and separate from real life......ill drink my chai and wake up fully and be fine.

Feeling any better as the day progressed?

[Nammu]

Yes, thanks. My daughter called needing a babysitter as her daughter had a fever yesterday and couldn't go to day care. Granddaughter is 1 1/2 and has a way of making small things smaller and the world in general a much more fun place to be. Of course not being her caretaker 24/7 makes her so much more fun!

[~Christina]

Originally Posted by wildflowerchild25

So the student I work with is going to be in the hospital for at least a couple of weeks I am so worried about her. All we know is her swallow study “didn’t go well”. I don’t know what that means. I know the speech therapist was advocating for a feeding tube. I’m also worried about that for selfish reasons. If she gets a feeding tube, she will have a nurse with her instead of me, and I’m afraid I’ll be put out of a job. But I’m trying not to worry about that since I honestly don’t know what will happen. I definitely have my job for at least another two weeks. I’ll just be shuffled around to different classrooms every day. Not ideal. I get nervous going into other classrooms.


I meant to get to the gym today but I didn’t fall asleep until late last night and It was pouring my the time I got out of work so I said screw it and went home and took a nap. It was a great nap. I hope I’ll sleep tonight. I’ve been struggling with insomnia off and on for a couple of weeks now. It’s not every night, I’d say every other night. I’m up until after midnight. I don’t know why. I have no other mood symptoms and I’m not particularly stressed out so who knows. I’ll just keep taking my melatonin and valerian root and hope it helps.


I see pdoc tomorrow. I’m going to ask to lower the haldol. I only get psychotic in mood episodes and I haven’t had an episode in seven months. I’d like to see how I do on a lower dose. It’s fast acting so if things start getting hairy it’ll be easy to go back up and even out. At least that’s what I hope.

I hope things work out so that you can continue with her.

I think dropping your haldol down a bit and see how it goes.

Insomnia sucks , I’m tired of it. Had it all my life , too many hours in a day when your wide awake

[~Christina]

Originally Posted by Nammu

Yes, thanks. My daughter called needing a babysitter as her daughter had a fever yesterday and couldn't go to day care. Granddaughter is 1 1/2 and has a way of making small things smaller and the world in general a much more fun place to be. Of course not being her caretaker 24/7 makes her so much more fun!

Great news !!!!

Yeah I couldn’t handle kids 24/7 for sure lol

Originally Posted by wildflowerchild25

So the student I work with is going to be in the hospital for at least a couple of weeks I am so worried about her. All we know is her swallow study “didn’t go well”. I don’t know what that means. I know the speech therapist was advocating for a feeding tube. I’m also worried about that for selfish reasons. If she gets a feeding tube, she will have a nurse with her instead of me, and I’m afraid I’ll be put out of a job. But I’m trying not to worry about that since I honestly don’t know what will happen. I definitely have my job for at least another two weeks. I’ll just be shuffled around to different classrooms every day. Not ideal. I get nervous going into other classrooms.

It likely means that they did a video fluoroscopic exam (it’s like a video x-ray) of her swallowing different textures of food. They can see how the tongue manipulates the food, how well the food is passed back in the mouth, and they see how it is transported to the esophagus. When something “doesn’t go well” in these studies, it is usually because 1) there was penetration and/or aspiration of food/liquid into the airway, which can happen for a number of reasons, but I’m assuming with your student it would be due to neuromuscular and/or weakness issues, or 2) there is a lot of food residue left in the mouth and throat after the swallow, because the muscles just aren’t strong enough to generate enough pressure to fully strip the food. Or I suppose it is also possible that 3) her chewing and swallow are so inefficient and laborsome that the act of eating is actually a detriment to her getting proper nutrition.

Is she on puréed food or a special soft diet now? This has to be so hard for her family.

You have a very important job. Even if she gets a full-time nurse, there will always be other kids that need this same level of support. There will be another kid somewhere waiting for someone like you. They may even be sitting in those rooms you are nervous to go into.

[Wild Coyote]

I was overly stimulated today. Does not take much! Cannot sleep again!
Sleep study in just 2 weeks!

WC

[Tryingtobehappy5]

I keep saying Im fine to everyone when they say they are worried I say nothing can be wrong because Im still sleeping so well. My libido has been steadily increasing every day though(I mean Im not complaining at all! But at 3 times a day I start to worry a little) and tonight I woke up after 4hrs with lots of energy. Guess we will see what happens over the next few nights. I have been spending more time paying attention to my kids which has been a major positive and yesterday I went to a friends house for coffee and got invited to stay for lunch. By the time I left I had been there for almost 4hrs! That was very different, Im not even sure the last time I hung out with anyone but at least a year.

I feel good so still holding out hope I can just stay alright like this.

[pirilin]

It's a cold day here. In the low 60s. If it hits 52, I'll stay home.
I need to go to Home Depot. For my favorite activity. Returning.

Cheers.

[Moose72]

Originally Posted by ~Christina

Insomnia sucks , I’m tired of it.

That's very funny.

I HATE MY £%#<#}>€!!!! JOB!!!!!!!
Too much to go into, I'm already fit be tied. If I thought I could just stroll into a new job, I'd walk out. Yeah, THAT'S how much. Everything recently has just been changed to nightmares. And they want me to get behind this nonsense to teach others?! I think not. That's only one reason I've never done any managerial crap. I call BS BS. Oh, I am SO PO'd!

[Wild Coyote]

It's a truly beautiful snowy day here today!
The snow is heavy. Thousands are without power.
I am grateful we have power and we are warm!

I hope everyone has a decent day!

WC

[Nammu]

I'm glad you're warm too.

I finally got dressed at 1:45 pm. I'm glad I finally did.


I'm not exactly depressed, but feel incapable of doing much of anything. I'm even dreading having to cook dinner and it's only 2 pm. The house was cleaned and tidy yesterday, but now it looks messy. Hubby is not feeling well either, but working again. His birthday is coming and I have nothing for him but a card. He has made reservations for us to go into the city on his birthday, but I kind of dread it. I have to be excited.

It's hard to type this because my parrot is standing on part of my keyboard, predo
m
inat
ely on the delete, backspace, and Enter keys.


It's too sad to put him in his cage.

[Moose72]

Originally Posted by Tryingtobehappy5

I keep saying Im fine to everyone when they say they are worried I say nothing can be wrong because Im still sleeping so well. My libido has been steadily increasing every day though(I mean Im not complaining at all! But at 3 times a day I start to worry a little) and tonight I woke up after 4hrs with lots of energy. Guess we will see what happens over the next few nights. I have been spending more time paying attention to my kids which has been a major positive and yesterday I went to a friends house for coffee and got invited to stay for lunch. By the time I left I had been there for almost 4hrs! That was very different, Im not even sure the last time I hung out with anyone but at least a year.

I feel good so still holding out hope I can just stay alright like this.

Three times a day? I thought I was a sex fiend!

[Blueberrybook]

Up down kind of day today, ran half of what I usually run, made the ED thoughts worse, especially after eating a brownie besides my regular meals. Manicky things followed by depressing things again and again like a record.

I see the T in about half an hour. I think we are going to work more on relaxation techniques since deep breathing didn't go well, though she told me to keep practicing it.

At least, the refrigerator is hanging on for now.

[Wild Coyote]

Originally Posted by Innerzone

I HATE MY £%#<#}>€!!!! JOB!!!!!!!
Too much to go into, I'm already fit be tied. If I thought I could just stroll into a new job, I'd walk out. Yeah, THAT'S how much. Everything recently has just been changed to nightmares. And they want me to get behind this nonsense to teach others?! I think not. That's only one reason I've never done any managerial crap. I call BS BS. Oh, I am SO PO'd!

What a bummer!
Thinking of you!

WC