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  #451  
Old Sep 03, 2019, 11:17 AM
fern46 fern46 is offline
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I'm still mourning the vacation we were supposed to have. We jumped right back into our usual school and work schedule today, but we should be at the beach enjoying family time. I went ahead with my workout to see if it would help lift my spirits. I feel a little better now.

I suppose if there is one benefit to being home it is that I can eat healthier. We only ate out twice while we were away, so I was able to stay on track. Silver linings...
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  #452  
Old Sep 03, 2019, 11:55 AM
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knees still very painful. wearing my braces. no cancellations yet at my knee doctor so I still have to wait till next week. the walking we did at niagara falls state park did me in, unfortunately. just resting today. not feeling very productive at the moment, but I did eat, take my meds and washed up. little victories, I suppose. just watching travel channel and messing around on my laptop.
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  #453  
Old Sep 03, 2019, 04:25 PM
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took my PM meds. knees r a bit better. just sore. had dinner (left over sandwich from the market deli we go to). took a gabapentin for my head and neck discomfort. usually helps. just watching TV now after a short nap I took because I was feeling lethargic earlier and needed some ZZZZ's.
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  #454  
Old Sep 03, 2019, 04:50 PM
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I am sorry you are so uncomfortable so often.
I hope this changes somehow and you will be able to find a place of comfort.
I am sorry you are unwell; yet, am glad you are here!
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  #455  
Old Sep 03, 2019, 04:55 PM
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Quote:
Originally Posted by fern46 View Post
I'm still mourning the vacation we were supposed to have. We jumped right back into our usual school and work schedule today, but we should be at the beach enjoying family time. I went ahead with my workout to see if it would help lift my spirits. I feel a little better now.

I suppose if there is one benefit to being home it is that I can eat healthier. We only ate out twice while we were away, so I was able to stay on track. Silver linings...
I just LOVE your ability to see silver linings!

It does seem like you were cheated out of a vacation.

You teach us all a lot about tuning in to the postive. I am grateful!
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  #456  
Old Sep 03, 2019, 05:15 PM
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It has been quite a day! I have been all over the map. I was extremely ill at 4 am; however, I did recover enough to spend quality time with company.

Here is what I have learned today: There is a "body therapy" called "Block Therapy." As I understand this, it is used to help people with painful conditions, especially those conditions that have a "myofascial"component. I had a hands-on lesson in Block Therapy today by one of the very few authorized instructors in the U.S.! Lucky me! It's fascinating and I am going to look into it further.

I mention this here because this is the physical check-in thread, this is a very physical approach/method, and I wonder if this approach might be helpful to anyone else?
Welcome to Block Therapy > Block Therapy

My day had started off all wrong (at 4am) and I could have called off meeting with company today; instead I was given quite a gift for just showing up!
Many times, I find, I reap benefits if I make sure I just "show up," as opposed to isolating, feeling overwhelmed, etc.

Love to All!
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  #457  
Old Sep 04, 2019, 09:28 AM
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wearing my knee braces today. they are still sore from our recent walking trip to the Falls. slept ok, but taking a "me" day today and doing nerdy things like watching superhero movies. my daughter is off so no driving today. tomorrow I have my first appt. with my new Endo. I'll keep everyone posted. hope everyone is doing well. hugs!
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Meds: Zoloft, Latuda, Gabapentin & Depakote.
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  #458  
Old Sep 04, 2019, 12:53 PM
fern46 fern46 is offline
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I got my workout in today and my eating is on track despite taking my little one out for a donut treat this morning.

I want to take the kids outside to play, but it is 95 degrees today and we don't have much shade in the back yard. We're planning to salvage some of our vacation week tomorrow with a mini camping trip. We hope to get a spot on the lake with plenty of shade. It should be fun. We used to camp all the time, but we've never taken the kids.
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  #459  
Old Sep 04, 2019, 02:11 PM
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I've definitely not been dieting, lately. However, I could be eating more and worse things. For now, I'll just be easy on myself. I'll be tougher later I've mentioned this before here, and perhaps elsewhere, but I have an odd tendency to see myself as thinner than I likely am. It's as if some other people are looking at the carnival fun house mirror that makes them look wider, and I look at the one that makes me look taller and thinner. The scale and cholesterol test results doesn't lie, though. Unless I've got some mystery tumor the size of a soccer ball in me, I am overweight. I often use my big bones and residual ballet leg muscles as an excuse, but I need to moderate this thinking a little bit. I suppose I'm lucky to have my kind of problem than the opposite, though.

I hope no one throws any virtual tomatoes at me, but I am very fortunate that pain is only ever a mild and fleeting problem for me. [Hopefully, I won't hex myself by writing this.] To report on my pain level today, I'd have to say "Not only none, but the opposite." I saw my psychiatrist just an hour ago. I was bragging about how absolutely stable I am right now, but still way beyond. I feel so capable, like I'm on the jumping board ready to dive into sea of productivity. I'm standing there waiting with a smile on my face. I told him that I'm not "racy", but that my energy levels are not just normal, but like the high peak of normal. My thinking seems so crisp and clear.

On my way to my psychiatrist's office, I was listening to Lynyrd Skynyrd's song "Free Bird". I felt free as a bird. I still do right now. I've got to leave this place for a better place for yet an even better place where I'm even freer yet. You can't change this bird that I am. She lives as she lived when she was young, as a young chick flying high with fresh wings. My wings are getting fresher again. Dead skins of cocoons are nearly off.

I told pdoc that if he wanted to, he could push my next appointment forward more than two weeks from now. Though I love to see him, someone in a more dire state may need that time. He almost did it, but kept it the same. I know what he's thinking. Though I spoke slowly and succinctly, I came across as too happy and satisfied. He doesn't think too satisfied is safe, but he's going to have to learn. I did recommend keeping my Seroquel XR dose the same. There's no sense making any change right now. Why mess with perfection? He obviously agreed.
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  #460  
Old Sep 04, 2019, 09:59 PM
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Quote:
Originally Posted by BirdDancer View Post
I've definitely not been dieting, lately. However, I could be eating more and worse things. For now, I'll just be easy on myself. I'll be tougher later I've mentioned this before here, and perhaps elsewhere, but I have an odd tendency to see myself as thinner than I likely am. It's as if some other people are looking at the carnival fun house mirror that makes them look wider, and I look at the one that makes me look taller and thinner. The scale and cholesterol test results doesn't lie, though. Unless I've got some mystery tumor the size of a soccer ball in me, I am overweight. I often use my big bones and residual ballet leg muscles as an excuse, but I need to moderate this thinking a little bit. I suppose I'm lucky to have my kind of problem than the opposite, though.

I hope no one throws any virtual tomatoes at me, but I am very fortunate that pain is only ever a mild and fleeting problem for me. [Hopefully, I won't hex myself by writing this.] To report on my pain level today, I'd have to say "Not only none, but the opposite." I saw my psychiatrist just an hour ago. I was bragging about how absolutely stable I am right now, but still way beyond. I feel so capable, like I'm on the jumping board ready to dive into sea of productivity. I'm standing there waiting with a smile on my face. I told him that I'm not "racy", but that my energy levels are not just normal, but like the high peak of normal. My thinking seems so crisp and clear.

On my way to my psychiatrist's office, I was listening to Lynyrd Skynyrd's song "Free Bird". I felt free as a bird. I still do right now. I've got to leave this place for a better place for yet an even better place where I'm even freer yet. You can't change this bird that I am. She lives as she lived when she was young, as a young chick flying high with fresh wings. My wings are getting fresher again. Dead skins of cocoons are nearly off.

I told pdoc that if he wanted to, he could push my next appointment forward more than two weeks from now. Though I love to see him, someone in a more dire state may need that time. He almost did it, but kept it the same. I know what he's thinking. Though I spoke slowly and succinctly, I came across as too happy and satisfied. He doesn't think too satisfied is safe, but he's going to have to learn. I did recommend keeping my Seroquel XR dose the same. There's no sense making any change right now. Why mess with perfection? He obviously agreed.
Superb!!!
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  #461  
Old Sep 04, 2019, 10:15 PM
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I am not able to write anything as eloquent as the posts our Dear BirdDancer writes!

I've had a very busy, very productive day. It's been a very long day. I DID NOT do a great job of getting any exercise today. I was very busy with calls and with paperwork. i simply MUST remember to get a walk in, or something, even on days like today!

I DO wish I had a block here today. I'd been introduced to Block Therapy this past weekend. Although I'd had limited eposure to it, I'd found it really helped with some pain in my shoulders. It felt like it feels when someone in -the- know is working on myofascial trigger points when I'd used the block. It was quite painful, yet the helpful type of pain. If one wants to work through myofacial pain, it always takes some pain tolerance. Releasing most myofascial trigger points is usually quite painful . At least one knows the pain associated with release is leading one towards healing. I am looking forward to getting my own "block" in a few days.
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  #462  
Old Sep 04, 2019, 10:54 PM
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So I’ve managed to finally get an appointment with a cardiologist regarding my ECG changes from taking Seroquel. It’s not until Nov but it was the earliest I could get. A cardiologist will be able to tell me if a mild increase in the QTC interval is anything to worry about or if I need to come off the Seroquel. I really hope that my meds can stay put. I’m feeling really well mentally.
I also need a stress test.
Oh well no point in worrying about it until after my appointment. In the meantime I’m going to put it into my “ **** I don’t need to deal with right now.”
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  #463  
Old Sep 05, 2019, 02:43 PM
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I had a physical day at the campsite. We set up our tents and got everything in order and played. We had to come back home for a while for soccer practice, so I am enjoying a few moments in the air conditioning before we leave for that.

It is dreadfully hot, but we had a lot of shade from the trees. We didn't get a spot by the water like we hoped, but there is a beach area we can use that we plan to hit up tomorrow.

It was easy to stay on track food-wise today. I had to pack everything ahead of time and could only eat what I brought. Easy peasy!

I hope everyone is having a healthful week. Love and support to all!
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  #464  
Old Sep 05, 2019, 02:59 PM
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Have fun camping Fern46!
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  #465  
Old Sep 05, 2019, 03:12 PM
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Quote:
Originally Posted by fern46 View Post
I had a physical day at the campsite. We set up our tents and got everything in order and played. We had to come back home for a while for soccer practice, so I am enjoying a few moments in the air conditioning before we leave for that.

It is dreadfully hot, but we had a lot of shade from the trees. We didn't get a spot by the water like we hoped, but there is a beach area we can use that we plan to hit up tomorrow.

It was easy to stay on track food-wise today. I had to pack everything ahead of time and could only eat what I brought. Easy peasy!

I hope everyone is having a healthful week. Love and support to all!
I am having FUN just reading about your adventure!
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  #466  
Old Sep 05, 2019, 03:26 PM
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I'm trying to walk more. I'd like to get another membership to the gym I used to go to, might be able to do that in November.

Have been having to be careful with how fast I get up and bending down cause the thorazine makes me super dizzy and lightheaded when I do that too quick
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  #467  
Old Sep 05, 2019, 07:34 PM
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Quote:
Originally Posted by BirdDancer View Post
I've definitely not been dieting, lately. However, I could be eating more and worse things. For now, I'll just be easy on myself. I'll be tougher later I've mentioned this before here, and perhaps elsewhere, but I have an odd tendency to see myself as thinner than I likely am. It's as if some other people are looking at the carnival fun house mirror that makes them look wider, and I look at the one that makes me look taller and thinner. The scale and cholesterol test results doesn't lie, though.
Me too!!
I look in the mirror and go “not half bad for a middle aged woman who’s been through a couple of harrowing pregnancies and a whole lot of sickness”. 😁Meanwhile my doctors are all yelling quietly “you are now obese so you must try to lose weight”.
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  #468  
Old Sep 07, 2019, 07:41 PM
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My doctors are really pushing for me to lose weight. My response is “take me off Seroquel and watch the weight drop off”. I put on weight when my dosage is over 200mg.
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Psych meds: Saphris, Seroquel XR, regular Seroquel.
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  #469  
Old Sep 07, 2019, 08:24 PM
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I'm sending in the paperwork this week to join the YMCA so I can use their elliptical machines and stationary bikes. I gained so much weight while on Seroquel that I'm in chronic pain. Since walking is painful, I'm hoping the machines will help me drop some weight so I can break the cycle of weight gain=pain issues=can't exercise=weight gain.
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  #470  
Old Sep 07, 2019, 08:31 PM
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Originally Posted by BethRags View Post
I'm sending in the paperwork this week to join the YMCA so I can use their elliptical machines and stationary bikes. I gained so much weight while on Seroquel that I'm in chronic pain. Since walking is painful, I'm hoping the machines will help me drop some weight so I can break the cycle of weight gain=pain issues=can't exercise=weight gain.
That sounds like a really good plan. I hope you're able to find a few comfortable options that work for you. I'm looking forward to hearing how it goes.
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  #471  
Old Sep 08, 2019, 10:46 AM
fern46 fern46 is offline
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It is day one of my taper off of Geodon. I didn't sleep well last night. I kept popping in and out of dreams and waking in between. My sleep was very interrupted. I imagine this might be the case for a while as the Geodon is very sedating for me.

I feel hungover and tired today. I wanted to work out, but I am going to listen to my body and rest.
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  #472  
Old Sep 08, 2019, 11:08 AM
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It is day one of my taper off of Geodon. I didn't sleep well last night. I kept popping in and out of dreams and waking in between. My sleep was very interrupted. I imagine this might be the case for a while as the Geodon is very sedating for me.

I feel hungover and tired today. I wanted to work out, but I am going to listen to my body and rest.
I am sorry you are already having symptoms from tapering the medication.
Great idea to listen to your body. I hope you have a good day anyway.
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  #473  
Old Sep 08, 2019, 11:14 AM
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I am wiped out today. I had started a taper off of low dose Seroquel. My sleep was very disturbed. Tossing and turning all night long. Barely slept at all.
I cannot override the exhaustion today. I might have to try to sleep awhile in order to think straight.
Love to All!
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  #474  
Old Sep 08, 2019, 11:20 AM
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Quote:
Originally Posted by BethRags View Post
I'm sending in the paperwork this week to join the YMCA so I can use their elliptical machines and stationary bikes. I gained so much weight while on Seroquel that I'm in chronic pain. Since walking is painful, I'm hoping the machines will help me drop some weight so I can break the cycle of weight gain=pain issues=can't exercise=weight gain.
Great!
I have heard that some YMCA locations give discounted/free memberships to anyone disabled. You have identified a great resource for people!

I have also gained weight on Seroquel. It is time to drop the weight.

I wish you well!
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  #475  
Old Sep 08, 2019, 11:30 AM
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Originally Posted by Pookyl View Post
My doctors are really pushing for me to lose weight. My response is “take me off Seroquel and watch the weight drop off”. I put on weight when my dosage is over 200mg.
I have gained weight on Seroquel as well. I have never heard of anyone who hasn't. People say things like: It makes me want to eat the walls. It makes me want to eat the couch. Etc.

I think Seroquel might be the worst AP med for weight gain. (?)

I have seen several people lose wieight on other meds.. My H lost 30 pounds on Geodon; yet, he'd gained 30 pounds on Depakote.

Any chance of your doctor taking you off Seroquel?
Last night was my first night of a taper and it is a tough day today. I did not sleep last night and am exhausted..

Good luck with losing weight.
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