Hi friends! I need some support

You're kidding!?

He might be using the trip as a way to assure himself that he'll be well. In reality, however, he may have a ways to go...

We see our Doctor the 7th... I’m not sure what he will advise to be honest

He’s on Doxicycline which is the correct medication for tick borne illness to start with. So far tick titer came back negative when in fact it can be positive. So multiple testing over a few months is needed.

His potassium, sodium, vit K electrolytes were all totally off and liver enzymes very very high, creatin a mess too !

He honestly doesn’t remember much of this whole week. He was a medical train wreck. But he’s really upset about not remembering. I just tried to reassure him he didn’t miss anything fun that’s for sure.

His blood pressure is back up in the healthy range , was scary low last night. No temp.

This bloody trip .... while discharge orders where being written and he started talking about leaving for Florida even earlier??? I flipped and said So ...okay I’ll just not start my Humira injection and also deal with running out of the few much needed physical meds while we are gone, and you trying to breath Florida air in August is going to be horrific!!!

Because it will be too early to fill them, my medication insurance only covers a Med once every 30 days no exceptions, filling while in Florida is a nightmare I have needed to do it in the past but my insurance always kicked it back numerous times, it’s just hell for 2-3 days.

Plus my Humira must be refrigerated hard to do while traveling, a few degrees to cold or hot renders the medication useless. Meanwhile I’m hobbling around because the PsA is so bad in my feet and ankles.

So the stress of him so ill and this trip has me overwhelmed, partially frantic and equally rage-y

I guess we will have to see the Doctor and go from there , I see my rheumatologist the 8th, he won’t be pleased if I tell him I’ll have to delay the twice monthly injection until I get back.

Ugh ugh ugh ugh !

Christina, I hope things smooth out for you. You seem to hate Florida trips in general.

7-10 day trips I can manage.

4 weeks !?!?!?!? It’s just far too long.

Strange beds, living out of a suitcase and my poor dogs will always been on a leash, they have a whole secure fenced pasture to romp in here and do there business. While gone they will be on a leash all the time, it does stress them out. They don’t understand it.

It’s just the timing of my husbands class reunion and the granddaughters birthday that leaves us the 3 week “lay over” for lack of a better word.

I know I sound ridiculous and whiney, so many people would be thrilled to take a trip to Florida, but I lived there until I was 36, I don’t give a rats asp about beaches. It’s August and September you can cut the air with a knife.

With my husband becoming so ill starting last weekend and needing to be hospitalized and not knowing exactly what caused that to all happen is scary. So the thought of leaving in 10 days ??? Yeah....

13 days is long enough.
I can fill a pill box for 14 days then have wiggle room one day of meds.
I am sorry that you are looking at that long of a trip.
sigh
bizi

~Christina, I am so very sorry you both have to deal with this and with other challenges right now.

Would it make any difference to your H if the treating doctor wrote a prescription for H to stay home to heal? Some people will listen to a doctor when they will not listen to anyone else. And... what if your doctor -- rheumatologist/other -- writes for you to stay home to heal? It seems logical to to prioritize healing for you both; yet, I realize there are a lot of feelings about this trip, which often overrides logic, for all of us at times. I do understand that you'd like to see your daughter, to, as a part of your trip, too.

I hope the particulars all fall into place according to what is best for both of you.
Love Ya... bunches.

We are back at the hospital for more blood work as advised

I’m checking blood pressure every 2 hours it’s stable and acceptable, no fever , but he’s just not doing well. SOB with walking outside and back in.

I asked him on the way here ... so you think you can handle even the 14 hour drive alone to Florida right now????? he admitted he could not.

He sees our Doctor the 7th or sooner depending on blood work and just my gut instinct.

I told him going to Florida while this ill and we don’t even know why this all happened is reckless and plain stupid and I’ll fight him over it.

(((((( ~Christina and H ))))))

Big Hugs and Much Love ~

He is still very ill, said he almost asked me to take him back to the hospital this morning.

His blood pressure is stable and no temp. But he can’t remember much of the last 2 weeks.

I am watching in very closely, if anything odd happens or his vitals head wonky again I’m taking him right back.

I’m handling everything like I always do when the **** hits the fan. I’m bone deep weary mentally and physically.

We just need answers and a break.

For anyone that smokes .. my husband has emphysema.... 2 years ago he was put on oxygen at night because his oxygen level drops into the 80’s with out it at night.

He will always have to be on guard and catch anything lung wise as soon as a sign of infection shows up.

Emphysema is a terminal illness.

So please don’t think smoking or vaping is safe and that something bad “ will never happen to you”

We didn’t think that we would both be so ill in our 50’s and there be no way to really become better, healthier it’s all about trying to maintain at this point.

I am VERY concerned about both of you! I wish I could do something -- anything -- truly helpful!
I am here for you in any way you find helpful. Just let me know of anything I can do for you.
I HATE this stuff happening to you both.
Much Love ~

Sending my love....

I wonder if this crisis has made him even more determined to "see" everyone one more time?

Sending thoughts of wellness to you and your husband. I can only imagine how drained you must feel. You are a warrior with the heart of a truly loving wife. I hope you are able to find your way to rest tonight even if it is only for a few hours.

My T and I have talked about this in the past. He’s always been hell bent on any time off work we truly just used for making trips to Florida. In April we went to Savannah for 4 days. And about 11 years ago we took a 4 day trip to Chattanooga. Those are the only 2 trips we have ever gone together that weren’t just to Florida and seeing all the grown kids.

I don’t think he has some self awareness that he will die soon. His life has just changed, he’s not invincible anymore.

But he’s always been hell bent on making these trips to Florida. Don’t get me wrong I love and really miss my daughter I’m just more realistic.

We lived in Florida for 8 months and his 3 boys just never made much of an effort to spend time with him. We felt like we were intruding just wanting to see his granddaughter 4-5 times a month.

I just wish things will settle down. He’s had 3 lung infection this year already.

Yeah its a big mind set change to tell yourself that you are not physically able to do the things you used to do. Often other people dont realize that you have become physically limited.

It doesnt sound like he is in any shape to travel. Travel is stressful in the best of times.

Good Morning!

I hope you both have gotten some rest/sleep.
I hope all is looking up!
Love and Prayers ~

Thinking of you @~Christina ! Warm hugs!

How is he doing today? Any better? I hope you've gotten some rest and are both feeling better.

He was able to get some sleep last night.

He now has a productive cough and he it’s certainly from an infection but he is on Doxicycline already so hope that will be the correct one for the specific bacteria he has. It took 2 .. 10 day doses to finally clear it all out last time.

I’m calling his Doctor first thing in the morning to see if he wants to add a culture to the labs for tomorrow. I am grateful we have no place we need to go today.

I’m just getting caught up on laundry and cleaning etc.

I take my first Humira injection today so I hope that there is no reaction.

Thank you all so much for all the support and listening to my panic filled whines beginning with the trip and then my husbands health crisis.

Hugs to everyone

I'm glad he got some sleep. I hope that means you did, too.

Sounds like things are calming down- that's great!

Well have given myself Humira shot, it’s not terrible pain but it did hurt.

I could feel it spreading through my body. It feels warm and I’m very very tired which is one of the main common side effect, but I’m needing to watch my Husband.

He thinks he will be fine to go on the trip. I just can’t think about it. I’m reaching my limit of holding it all together I think. I can’t fall apart.

Christina, I'm sorry that you have to be pressured about a trip that you don't want to take. I would feel frustrated and anxious, were I in your position.

If you don't mid sharing...I have heard of Humira, but don't know what it's for. Why are you taking it?