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  #876  
Old Dec 06, 2019, 08:31 PM
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Victoria'smom Victoria'smom is offline
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I flipped out today at a Wendy's, I was too overwhelmed. Still paranoid/anxiety all day until I pass out. My parents come this weekend. I've already been told I sound tired or like I've been crying when talking to them. I wasn't but my mom is clearly concerned. I need to brush my hair and pick up a bit but I just want to try and sleep this away. I'm not over sleeping and I'm keeping busy but it's infuriating.
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  #877  
Old Dec 06, 2019, 08:43 PM
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Turns out my pdoc was at the hospital work Christmas party last night which is why they couldn’t reach him. It was the on call pdoc that they finally got through to to get a much stronger med ordered.

Today a close friend might visit me. I haven’t seen her for months. I hate meeting while I’m so ill. I get worried I’m going to burn my loved ones out. We have been friends for over twenty years so she’s seen me at my worst. I wanted to get leave so we could take her puppy for a walk, but only my pdoc can approve leave, and even if he shows up/or is asked over the phone I doubt he will let me have escourted leave after last night. Either way it will be wonderful to have a visitor that doesn’t trigger me.
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  #878  
Old Dec 06, 2019, 08:55 PM
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Quote:
Originally Posted by Fharraige View Post
Sorry to hear a lot of you are struggling and/or sick. Seems to be a thing here too. A lot of sniffles and sneezes, and some sore throats. Not a lot of sleep either. It feels like we’re getting better though. I know a lot of people locally have it worse with stomach issues but other than more heartburn than usual I’ve seemed to dodge that bullet. Emotionally, being physically ill is rough. I’m low more. But I’m not really depressed like I used to be this time of year. Trying to rest during the holiday season is hard, though.

Otherwise things are plugging along. I hope you all take gentle care of each other and yourselves.
Great to have you posting!

Glad to read you have some relief from seasonal; depression!

I think of you so often!
Thanks for checking in!

HAPPY HOLIDAYS!!!
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  #879  
Old Dec 06, 2019, 09:04 PM
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I am around. Trying to get by. Pain is much worse today. A high pain day due to weather.
Still watching the antics of the SSA. It can be so incredibly frustrating. Yet, on some level, it is also amusing. So inefficient. So.....ummm...absurd!!!

I will save you the rant.

I am VERY concerned about anyone;'/everyone losing benefits, gaining unhelpful drug plans, etc.
It's often far too difficult to make even the very basics work and it becomes so very disheartening!
If you know of potential options, we have started a thread for potential resources; please do tell!
Thanks so much for sharing!!!

Love to All!
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  #880  
Old Dec 06, 2019, 09:04 PM
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Oooooookay , I haven’t read this thread ya but wanted to dump my info here. I’ll be back to catch up on everyone.

Between yesterday and today I have spent over 12 hours on the phone dealing with social security and my drug plan along with my husbands. I even went directly to the social security office at 730 am to be first one in the door.

Condensed version ... somehow social security changed some “ section” on my profile or what ever they called it .. because that portion has been changed, my drug plan was giving me ridiculous info. So that Took almost an hour for social security to fix there F up. So I called my drug plan Humana over an hour hold and the first person I talked to still insisted I still have huge deductibles etc , I was polite but I wanted a supervisor , I was on hold for that mystery person for almost 1.5 hours and wow imagine this I was disconnect !!! I call back another way over an hour and a half blah blah blah. Next person still was clueless I was transferred another hour on hold the next person omg ! She found the info in her system and I do have same plan as this year for 2020 i was too tired to cry happy years.

Then I struggled getting my husbands plan straightened out , over 2 hours.

We do not have a home phone and no cell signal at home so yesterday and today? Over 12 hours I have spent sitting in my car doing all this in s parking lot.

I’m glad everything is okay now but none of this should have ever happened to begin with.

My blood pressure has been skyhigh think 190- 220/ 95 -130 despite leaning very heavy on Xanax.

It’s has finally come down. Last check 180/90 which is still way high for me. But it is going down

Of course I didn’t sleep last night , this afternoon I finally had to lay down mainly because my blood pressure. I honestly felt like I was fixing to die. I got about 6 hours of sleep. Which is good, woke up struggling to breath I had forgotten my morning inhalers

I just feel like I have been literally physically beaten for a couple days with bats and run over by dump trucks.

Next year I am going to start calling to verify SSDI monthly starting in June.
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  #881  
Old Dec 06, 2019, 09:12 PM
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Quote:
Originally Posted by ~Christina View Post
Oooooookay , I haven’t read this thread ya but wanted to dump my info here. I’ll be back to catch up on everyone.

Between yesterday and today I have spent over 12 hours on the phone dealing with social security and my drug plan along with my husbands. I even went directly to the social security office at 730 am to be first one in the door.

Condensed version ... somehow social security changed some “ section” on my profile or what ever they called it .. because that portion has been changed, my drug plan was giving me ridiculous info. So that Took almost an hour for social security to fix there F up. So I called my drug plan Humana over an hour hold and the first person I talked to still insisted I still have huge deductibles etc , I was polite but I wanted a supervisor , I was on hold for that mystery person for almost 1.5 hours and wow imagine this I was disconnect !!! I call back another way over an hour and a half blah blah blah. Next person still was clueless I was transferred another hour on hold the next person omg ! She found the info in her system and I do have same plan as this year for 2020 i was too tired to cry happy years.

Then I struggled getting my husbands plan straightened out , over 2 hours.

We do not have a home phone and no cell signal at home so yesterday and today? Over 12 hours I have spent sitting in my car doing all this in s parking lot.

I’m glad everything is okay now but none of this should have ever happened to begin with.

My blood pressure has been skyhigh think 190- 220/ 95 -130 despite leaning very heavy on Xanax.

It’s has finally come down. Last check 180/90 which is still way high for me. But it is going down

Of course I didn’t sleep last night , this afternoon I finally had to lay down mainly because my blood pressure. I honestly felt like I was fixing to die. I got about 6 hours of sleep. Which is good, woke up struggling to breath I had forgotten my morning inhalers

I just feel like I have been literally physically beaten for a couple days with bats and run over by dump trucks.

Next year I am going to start calling to verify SSDI monthly starting in June.
I am so sorry you have been going through this.
It's so ridiculous! The SSA has always had issues, yet it seems to be getting so much worse now.

I am still tangling with them, too.

Please do take good care of yourself. This ongoing stress cannot be helpful to you at all.

Love YA!!!
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  #882  
Old Dec 06, 2019, 09:56 PM
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~Christina ~Christina is offline
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Quote:
Originally Posted by Nammu View Post
I didn't know that, that must be why there's cookies for sale everywhere. They were three for .99 cents and those were the ones I bought, bad choice. They were hard as a rock.


Seems like every two hours I was looking at the clock last night, yet I'm sure I got some sleep. Just not solid deep sleep. I stayed in bed trying to go back to sleep after I woke this morning. I just didn't want to get up. Moms pt is going to be here soon, really got to go get dressed. Being prone even without sleep is so attractive.


Well dang ! I’m sorry you have another night of lousy sleep and then having to get up fully with PT coming. Maybe tonight will be better ????? I sure hope so
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  #883  
Old Dec 06, 2019, 10:01 PM
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Quote:
Originally Posted by xRavenx View Post
I had a meltdown when I was going to lunch with my Aunt today. I am not even sure exactly why. I'm just having a really hard time functioning and doing what is expected of me. Someone asked me if anything can solve my problems right now, what would it be? I just don't want to feel like this anymore. That's all.


Hugs to all Hang in there, and have a nice weekend.


I hate that you struggling so hard right now
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  #884  
Old Dec 06, 2019, 10:05 PM
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Originally Posted by BeyondtheRainbow View Post
I should have said this also works if your income is too high. I've had good luck with that too.


Thanks !
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  #885  
Old Dec 06, 2019, 10:09 PM
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Quote:
Originally Posted by Wild Coyote View Post
I am around. Trying to get by. Pain is much worse today. A high pain day due to weather.

Still watching the antics of the SSA. It can be so incredibly frustrating. Yet, on some level, it is also amusing. So inefficient. So.....ummm...absurd!!!


I will save you the rant.


I am VERY concerned about anyone;'/everyone losing benefits, gaining unhelpful drug plans, etc.

It's often far too difficult to make even the very basics work and it becomes so very disheartening!

If you know of potential options, we have started a thread for potential resources; please do tell!

Thanks so much for sharing!!!


Love to All!


Thank you

If I could drive in snow I’d head your way and force someone to take your pain serious ! You absolutely need a break , Now dammit !!!!!!
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  #886  
Old Dec 06, 2019, 10:12 PM
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~Christina ~Christina is offline
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Quote:
Originally Posted by Wild Coyote View Post
I am so sorry you have been going through this.

It's so ridiculous! The SSA has always had issues, yet it seems to be getting so much worse now.


I am still tangling with them, too.


Please do take good care of yourself. This ongoing stress cannot be helpful to you at all.


Love YA!!!


Yes indeed ssa help and information just keeps getting worse and worse, the woman who helped me said she honestly don’t know why section had been changed. She was getting frustrated trying to fix it, screen would freeze, or not accept the correct info. I felt bad for her. Finally it got fixed.. ridiculous mess
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  #887  
Old Dec 06, 2019, 11:04 PM
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If I didn't know better I'd think rump put evil bots in the system just to mess things in SSA up.
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…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
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  #888  
Old Dec 06, 2019, 11:26 PM
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When my husband lost his job to a workers comp claim we lost our insurance, Medicaid was never expanded in my state. We had zero insurance.

My T and Pdocs company had a program for people like me, they also had me on a medication plan , the only Med I had to pay for was Xanax.

If we needed to see a doctor for any illness we had to pay out of pocket for visit and for any meds.

Well I finally won my SSDI I got my Medicare card and social security back dated my eligibility date 10-11 months earlier so I got a huge bill for appts I had for T and Pdoc

It took almost 4 hours sitting in front of a SS employee to get them to understand that no I didn’t even get approved until X date.

Social security over all for decades has been a disaster.

The only time errors are fixed is when a person like me or someones grandmother has her power turned off because her deposit didn’t happen that month.

My husband absolutely can not handle dealing with all the crap over the last 2 days and would just stop seeing doctors and stop all his meds and just die ... and he is serious when it comes to this stuff.

And that is what every insurance company on the planet be it health , drugs or car insurance wants .. make things difficult enough and hope people give up and they save money by the truck loads

It’s disgusting
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  #889  
Old Dec 07, 2019, 12:27 AM
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Hey all!

Last couple weeks have been hard. Since I took the break from school in order to apply to the new one, I have been faced with boredom. The boredom has been making my anxiety flare up a good amount. Two days ago, I heard back from the school I was hoping to get into. They denied me admission due to a technicality. That being that my graduate program GPA won't count towards my application since it isn't finished (I had a 3.6 GPA). Instead they used my undergrad GPA which was a 2.65. The thing that pissed me off is that their cut-off is a 2.75. A bloody .1 point!!!!!!!! They also made a mistake because they told me originally that the GRE would be waived for me however it isn't finished and they didn't realize until my application was waiting for approval. So now I have to go for my backup plan which is the current master's program. I am trying to calm myself down but I am still so frustrated. On top of that, my anxiety has been making me worry about the future. I am hoping that all this frustration does not cause a episode.
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  #890  
Old Dec 07, 2019, 12:51 AM
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Quote:
Originally Posted by ~Christina View Post
When my husband lost his job to a workers comp claim we lost our insurance, Medicaid was never expanded in my state. We had zero insurance.

My T and Pdocs company had a program for people like me, they also had me on a medication plan , the only Med I had to pay for was Xanax.

If we needed to see a doctor for any illness we had to pay out of pocket for visit and for any meds.

Well I finally won my SSDI I got my Medicare card and social security back dated my eligibility date 10-11 months earlier so I got a huge bill for appts I had for T and Pdoc

It took almost 4 hours sitting in front of a SS employee to get them to understand that no I didn’t even get approved until X date.

Social security over all for decades has been a disaster.

The only time errors are fixed is when a person like me or someones grandmother has her power turned off because her deposit didn’t happen that month.

My husband absolutely can not handle dealing with all the crap over the last 2 days and would just stop seeing doctors and stop all his meds and just die ... and he is serious when it comes to this stuff.

And that is what every insurance company on the planet be it health , drugs or car insurance wants .. make things difficult enough and hope people give up and they save money by the truck loads

It’s disgusting

It is disgusting.

Hope you sleep tonight.
((((((HUGS))))))
bizi
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haldol 2x a day
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Remeron at night,
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  #891  
Old Dec 07, 2019, 01:15 AM
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~Christina ~Christina is offline
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Quote:
Originally Posted by depressedIRL21 View Post
Hey all!


Last couple weeks have been hard. Since I took the break from school in order to apply to the new one, I have been faced with boredom. The boredom has been making my anxiety flare up a good amount. Two days ago, I heard back from the school I was hoping to get into. They denied me admission due to a technicality. That being that my graduate program GPA won't count towards my application since it isn't finished (I had a 3.6 GPA). Instead they used my undergrad GPA which was a 2.65. The thing that pissed me off is that their cut-off is a 2.75. A bloody .1 point!!!!!!!! They also made a mistake because they told me originally that the GRE would be waived for me however it isn't finished and they didn't realize until my application was waiting for approval. So now I have to go for my backup plan which is the current master's program. I am trying to calm myself down but I am still so frustrated. On top of that, my anxiety has been making me worry about the future. I am hoping that all this frustration does not cause a episode.


Oh what a mess I’m sorry this is happening to you
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  #892  
Old Dec 07, 2019, 01:16 AM
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~Christina ~Christina is offline
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Originally Posted by bizi View Post
It is disgusting.

Hope you sleep tonight.
((((((HUGS))))))
bizi


Thanks Bizi

I hope so too !!
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  #893  
Old Dec 07, 2019, 01:35 AM
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Scooter9 Scooter9 is offline
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Welll the zopiclone didn't work. I'm up after just 4 hours sleep.

It was just a starter dose of 1/2 pill so I guess I need more.

I can go to 1 pill so I'll try that tonight.
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  #894  
Old Dec 07, 2019, 01:53 AM
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~Christina ~Christina is offline
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Quote:
Originally Posted by Scooter9 View Post
Welll the zopiclone didn't work. I'm up after just 4 hours sleep.

It was just a starter dose of 1/2 pill so I guess I need more.

I can go to 1 pill so I'll try that tonight.


I don’t know how Doxipen could or would interact with whatever your current cocktail is

It’s a tricyclic AD , normally I can’t take an AD’s as they fling me into a mixed episode with in a week. But ... this Med is used for Hives and for insomnia. It really helped me for about a year. Now I wasn’t sleeping every night but better than I am now. I started at 50mg eventually I had to go up to 100mg at bedtime.

It’s not a Med that will chemically force you to sleep , it’s more of a “ allow you to fall asleep and stay asleep more naturally” I never had a Med hangover from it.

It is one medication I might go back on as I’ve had a long break from it.

I did have to monitor myself closely when I first started to make sure it didn’t cause a mood shift.

I do know at one point I was put on Geodon and they can not be taken at the same time long QT so I stopped it , but close to 2 months on Geodon it was useless so I dumped it and went back on Doxipen.

Might be worth asking. So even tho I can’t take an AD in general , Doxipen is just a tad different so for some reason I can tolerate and it can offer better quality of sleep.
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  #895  
Old Dec 07, 2019, 02:41 AM
Anonymous328112
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Definitely not feeling like myself.
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  #896  
Old Dec 07, 2019, 04:00 AM
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Wander Wander is offline
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My friend cancelled her visit so I have been alone all afternoon. She promises she will come tomorrow. I love her to bits, but she is soooo unreliable. My anxiety is going through the roof again. Had some Seroquel but obviously not enough. Now I am paranoid to ask for help again. Does my brain have an exit? I am so over this.
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  #897  
Old Dec 07, 2019, 05:50 AM
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Sunflower123 Sunflower123 is offline
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My brother had gotten dehydrated according to the ER doctor and that caused everything: the liver enzymes, blood pressure, everything. I’m immensely relieved and slept a full 6 hours last night.

I’m temporarily wiped out physically and mentally. Although I’m feeling a sense of pressure around the holidays, I’m taking a few days off to reset and refresh. Traveling tomorrow to meet M halfway. That’s always a treat.

Warm regards to all and hugs to those that are struggling.
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  #898  
Old Dec 07, 2019, 09:19 AM
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Scooter9 Scooter9 is offline
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Quote:
Originally Posted by ~Christina View Post
I don’t know how Doxipen could or would interact with whatever your current cocktail is

It’s a tricyclic AD , normally I can’t take an AD’s as they fling me into a mixed episode with in a week. But ... this Med is used for Hives and for insomnia. It really helped me for about a year. Now I wasn’t sleeping every night but better than I am now. I started at 50mg eventually I had to go up to 100mg at bedtime.

It’s not a Med that will chemically force you to sleep , it’s more of a “ allow you to fall asleep and stay asleep more naturally” I never had a Med hangover from it.

It is one medication I might go back on as I’ve had a long break from it.

I did have to monitor myself closely when I first started to make sure it didn’t cause a mood shift.

I do know at one point I was put on Geodon and they can not be taken at the same time long QT so I stopped it , but close to 2 months on Geodon it was useless so I dumped it and went back on Doxipen.

Might be worth asking. So even tho I can’t take an AD in general , Doxipen is just a tad different so for some reason I can tolerate and it can offer better quality of sleep.
Thanks Christina I'll ask about it if what I'm taking now doesn't work. Even if it does, I can only use it for a short time so doxipen might be an option.
__________________
* Dx: Bipolar II (finally, after years at Bipolar NOS)
* Rx: minimal dose of Lamictal

My avatar picture is a photo of the Whirlpool Galaxy I took in April 2023. I dedicated this photo to my sister who passed away in July 2016.
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Thanks for this!
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  #899  
Old Dec 07, 2019, 10:48 AM
Anonymous45023
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Christina, I feel so much for all the wrangling you had to do!!!!! It's absolutely unconscionable beyond words the mess that stuff is.

Wednesday I finally dealt with the marketplace about my insurance for the coming year. Kept the same plan. My premium significantly more than doubled. Yes, I am making a bit more money, but not nearly justifying the level of increase. The difference alone in premium increase eats up significantly more than a third of the increase in pay. ($5,000 in pay, $2,000 in premium increase.) Premium alone is now nearly half the amount my rent is. F****** crazy!!!!!

The state of insurance/medicine/medical in this country is a ******* ******* disgrace.
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bizi, bpcyclist, Nammu, Sunflower123, Unrigged64072835
Thanks for this!
Nammu, ~Christina
  #900  
Old Dec 07, 2019, 10:57 AM
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wildflowerchild25 wildflowerchild25 is offline
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Member Since: Mar 2013
Location: NJ
Posts: 6,434
I keep forgetting to mention, I have been self harm free for two years!!!
__________________
Of course it is happening inside your head. But why on earth should that mean that it is not real?
-Albus Dumbledore

That’s life. If nothing else, that is life. It’s real. Sometimes it
f—-ing hurts. But it’s sort of all we have.
-Garden State
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Anonymous46341, bizi, bpcyclist, depressedIRL21, Nammu, Polibeth, Sunflower123, Unrigged64072835
Thanks for this!
bpcyclist, depressedIRL21, falcon09, Nammu, Polibeth, scatterbrained04, ~Christina
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