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  #251  
Old Feb 14, 2020, 03:45 PM
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I've decided that I am not taking my antipsychotic anymore until I can talk to my pdoc face to face. I can't take this akathisia anymore.

I didn't take my rexulti last night and it looks like I won’t be taking any AP until my pdoc appt on feb 28th (assuming we can even come to an agreement). I am not going to continue playing phone tag with an imbecilic "assistant" who can't even spell propranolol correctly when it's written in my file right in front of her face. That's just plain stupid and inexcusable. Sorry.

Well, at least I have a journal now and I will be journaling myself off this med. We'll see if it's hurting more than it's helping.

So far, the akathisia is a little less if I'm honest. I want to see how things go when I have been off it for 2 weeks. Though, considering my pdoc said that abilify stays in your system for months and rexulti is very chemically/structurally similar, I bet I won't see full benefit until the drug is completely out of my system.

Hopefully my work won't be impacted too much, but I can't take this anymore.
I don't blame you one bit, blue. Personally, I feel the way you have been treated as a patient in this whole thing is unconscionable. For your pdoc to not have someone covering while he is gone does not meet the standard of care anywhere in Massachussetts, and most certainly, not in Boston--where I once practiced. It is absolutely ridiculous. Personally, I would be looking for a new psychiatrist.

I really, really hope you feel better soon!!!!
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  #252  
Old Feb 14, 2020, 03:46 PM
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Originally Posted by bluebicycle View Post
Sorry to hear about the storms. Tornadoes are always so frightening. I know we never get any beyond an EF3 up here, though, so we definitely don't get it as bad as you do.


I have an online friend who lives in TN and was telling me about how radars and radios work for this stuff. (Or how there are radar dead zones.) Her house almost got hit because she lives in a dead zone and a tornado cropped up between scans as well.


Continue to stay safe


Well we have satellite tv which always goes out during a storm, our cell phones get no service at home so we can’t pull a radar to see what’s going on .. We had a weather radio and not specific to my area just the entire county.

It’s really scary for sure
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  #253  
Old Feb 14, 2020, 03:58 PM
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Hey ~Christina!

Thinking of both you and Steve today!


Much Love


Thanks so much

Steve is getting his scans right now
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  #254  
Old Feb 14, 2020, 03:59 PM
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Originally Posted by ~Christina View Post
Thanks so much

Steve is getting his scans right now
thinking of both of you. will you get results today?
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  #255  
Old Feb 14, 2020, 09:33 PM
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We have an appt Wednesday.

Since he had the scans and nothing major showed up and we could leave that is a good sign.

But still a worry...

How are you feeling ?
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  #256  
Old Feb 14, 2020, 09:47 PM
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Originally Posted by ~Christina View Post
We have an appt Wednesday.

Since he had the scans and nothing major showed up and we could leave that is a good sign.

But still a worry...

How are you feeling ?
I'm so glad that the scan was clear enough to let you leave. That's a good sign for sure. I'm sure Wednesday can't come soon enough.

I'm ok. I've learned to like brown rice pasta. Barilla plus is still better but I can't have it yet. The texture is still weird but not as bothersome as the first time I tried it. I have made it through the egg challenge if I don't get sick tonight. Although if I do get sick it wouldn't rule them out as I ate some at the hospital when I took my mom for her colonoscopy this morning and I suppose they could have had milk in them. Tomorrow I should get to add something else in.

I'm estimating 5 more weeks. I can do that.
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  #257  
Old Feb 14, 2020, 10:07 PM
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Doing okay! I had a good therapy appointment this week. I went in there and said I wanted to talk about something different (usually I end up rambling about OCD symptoms and such) and she seemed pleased. We discussed my unhealthy habit of internalizing my emotions, and issues with shame, trust and intimacy. Hopefully something I can continue to work on. I realized I developed these habits when I was a child and it's strange to realize the unhealthy patterns I've been walking around with. I guess I sort of knew, but it's different to talk about and get perspective on. I think I got them from my parents, who got them from theirs most likely. Fingers crossed therapy can actually help with these issues.

I will probably be up most of the night with this project that I've procrastinated on. Then getting up early to go plant the spring garden. Sending compassion!
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  #258  
Old Feb 14, 2020, 10:53 PM
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I'm doing good mood wise. English is getting difficult to understand. H and I have resorted to typing to each other. Usually I can understand typing better if I'm having difficulty. I have my headphones on too. They'll suppose to leave me alone for the day tomorrow again but IDK. we'll see if they go tomorrow. I'm hoping they don't
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  #259  
Old Feb 14, 2020, 11:18 PM
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Happy Valentine's Day! I'm sending virtual boxes of chocolates and/or flowers to all. Which ever you prefer.
Thanks BirdDancer! Happy Valentine's Day!
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  #260  
Old Feb 14, 2020, 11:47 PM
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Originally Posted by ~Christina View Post
We have an appt Wednesday.

Since he had the scans and nothing major showed up and we could leave that is a good sign.

But still a worry...

How are you feeling ?
That is very good news!!!!
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  #261  
Old Feb 15, 2020, 12:00 AM
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Originally Posted by BeyondtheRainbow View Post
I'm so glad that the scan was clear enough to let you leave. That's a good sign for sure. I'm sure Wednesday can't come soon enough.


I'm ok. I've learned to like brown rice pasta. Barilla plus is still better but I can't have it yet. The texture is still weird but not as bothersome as the first time I tried it. I have made it through the egg challenge if I don't get sick tonight. Although if I do get sick it wouldn't rule them out as I ate some at the hospital when I took my mom for her colonoscopy this morning and I suppose they could have had milk in them. Tomorrow I should get to add something else in.


I'm estimating 5 more weeks. I can do that.


Your doing amazing !
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  #262  
Old Feb 15, 2020, 12:09 AM
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Originally Posted by yellow_fleurs View Post
Doing okay! I had a good therapy appointment this week. I went in there and said I wanted to talk about something different (usually I end up rambling about OCD symptoms and such) and she seemed pleased. We discussed my unhealthy habit of internalizing my emotions, and issues with shame, trust and intimacy. Hopefully something I can continue to work on. I realized I developed these habits when I was a child and it's strange to realize the unhealthy patterns I've been walking around with. I guess I sort of knew, but it's different to talk about and get perspective on. I think I got them from my parents, who got them from theirs most likely. Fingers crossed therapy can actually help with these issues.


I will probably be up most of the night with this project that I've procrastinated on. Then getting up early to go plant the spring garden. Sending compassion!


I’m glad you were able to focus on a new topic ! It’s hard to look at ourselves and see what we have going on with our selves as far as unhealthy coping skills , we all have them !

Hope you can wrap up your project quickly
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  #263  
Old Feb 15, 2020, 12:32 AM
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I made it through an eight hour work day. Boy, I was suffering the last couple hours. Now I have the next three days off.
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  #264  
Old Feb 15, 2020, 01:19 AM
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Tuscon enjoy your time off!!!!!!!
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  #265  
Old Feb 15, 2020, 05:03 AM
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I recall you've had a relatively stressful job as a manager. Now I am wondering if your role is, in fact, management. Please forgive me if I have it wrong. It's been awhile!


I think it makes total sense to try a therapist.


How is your son?


Great to be hearing from you!
Yes, you have a good memory! I am a manager at the company I work for. My son is doing well.
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  #266  
Old Feb 15, 2020, 07:06 AM
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I decided to take half a tablet of rexulti last night, rather than go cold turkey off the med. You guys were right that it's not a good idea to go cold turkey off these things, so I'm going to be careful now. The only downside is that the akathisia is worse today than yesterday.

Other than that, I am feeling alright. Got crappy sleep, though... again.

I will be volunteering today and tomorrow in the city, so wish me luck. I am going to be busy as hell, and I already regret signing up. It has nothing to do with the volunteering aspect, though. It has everything to do with the logistics of things (driving there, parking, lunch, dinner, etc etc). I find that stressful. But I am not going to back out. I just won't make this months long commitment again.
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  #267  
Old Feb 15, 2020, 07:17 AM
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Originally Posted by bluebicycle View Post
I decided to take half a tablet of rexulti last night, rather than go cold turkey off the med. You guys were right that it's not a good idea to go cold turkey off these things, so I'm going to be careful now. The only downside is that the akathisia is worse today than yesterday.

Other than that, I am feeling alright. Got crappy sleep, though... again.

I will be volunteering today and tomorrow in the city, so wish me luck. I am going to be busy as hell, and I already regret signing up. It has nothing to do with the volunteering aspect, though. It has everything to do with the logistics of things (driving there, parking, lunch, dinner, etc etc). I find that stressful. But I am not going to back out. I just won't make this months long commitment again.
It is really very cool.of you to volunteer Blue. I hope it goes better than expected for you.

I'm sorry the restlessness got even worse. I'm not familiar with how the progression of those symptoms goes once you begin weaning. Are you on more than just the Rexulti? Isnit possible a different med is to blame for these issues?
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  #268  
Old Feb 15, 2020, 10:03 AM
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It is really very cool.of you to volunteer Blue. I hope it goes better than expected for you.

I'm sorry the restlessness got even worse. I'm not familiar with how the progression of those symptoms goes once you begin weaning. Are you on more than just the Rexulti? Isnit possible a different med is to blame for these issues?
Yeah. I am on Zoloft, Lamictal, Rexulti, and Ritalin for my daily psych med cocktail. Then I have Propranolol and Klonopin PRN (although I have been taking propranolol twice daily and I have yet to get my klonopin Rx renewed).

It's possible that Zoloft is doing this because I know that Zoloft carries the same akathisia risk (albeit a bit lower amount), but the akathisia was definitely lessened when I skipped the rexulti for one day. I assume I had some "residual akathisia" because I still have rexulti in my system.

If I had it my way, I wouldn't be on any antipsychotic because I think they carry too many side effect risks, but I know I will get a resurgence of psychotic symptoms if I don't take one. Still, I think I need a different med because I really hate having to take an extra med simply because another one gives me side effects. It's rather annoying and frustrating, especially when the extra med doesn't work.
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  #269  
Old Feb 15, 2020, 10:23 AM
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I've ended up with a cold and my headaches at work at getting a bit worse. Plus sinuses and allergies this time of year make for a cruddy few weeks. Let's see how it pans out.
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  #270  
Old Feb 15, 2020, 11:38 AM
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Originally Posted by yellow_fleurs View Post
Doing okay! I had a good therapy appointment this week. I went in there and said I wanted to talk about something different (usually I end up rambling about OCD symptoms and such) and she seemed pleased. We discussed my unhealthy habit of internalizing my emotions, and issues with shame, trust and intimacy. Hopefully something I can continue to work on. I realized I developed these habits when I was a child and it's strange to realize the unhealthy patterns I've been walking around with. I guess I sort of knew, but it's different to talk about and get perspective on. I think I got them from my parents, who got them from theirs most likely. Fingers crossed therapy can actually help with these issues.

I will probably be up most of the night with this project that I've procrastinated on. Then getting up early to go plant the spring garden. Sending compassion!
This is great, yellow_fleurs! Looking to get insight and work on our automatic default settings is very worthy work. Best of luck with it.

**************

GOOD LUCK, BLUE! (Even though morning's almost over there...)
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  #271  
Old Feb 15, 2020, 12:05 PM
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Originally Posted by bluebicycle View Post
Yeah. I am on Zoloft, Lamictal, Rexulti, and Ritalin for my daily psych med cocktail. Then I have Propranolol and Klonopin PRN (although I have been taking propranolol twice daily and I have yet to get my klonopin Rx renewed).

It's possible that Zoloft is doing this because I know that Zoloft carries the same akathisia risk (albeit a bit lower amount), but the akathisia was definitely lessened when I skipped the rexulti for one day. I assume I had some "residual akathisia" because I still have rexulti in my system.

If I had it my way, I wouldn't be on any antipsychotic because I think they carry too many side effect risks, but I know I will get a resurgence of psychotic symptoms if I don't take one. Still, I think I need a different med because I really hate having to take an extra med simply because another one gives me side effects. It's rather annoying and frustrating, especially when the extra med doesn't work.
Preach! I am with you completely on that. The answer for side effects should not be additional medication. So very counter intuitive. I rejected that notion quite instantly when my pdoc tried to medicate me for anxiety caused by my AP.
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  #272  
Old Feb 15, 2020, 01:32 PM
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@~Christina, glad Steve's scan went well. Crossing fingers for you! Not knowing about tornados is scary! Do you even have a basement? Just turn it into a finished basement and live there all the time. That way, you're safe from the tornados!
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  #273  
Old Feb 15, 2020, 03:38 PM
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Slept another 7 hours last night, all the way through. Miracle, really, given where I was. Definitely pretty sluggish on this Depakote, though. I feel like my brain is a half-step slow. Maybe more than a half-step. It is a bit frustrating trying to complete any sort of cognitive tasks. Oh well. Still, better than being psychotic and manic, that's for sure. That is just intolerable, when it is really going and bad.

Did get a fair amount of writing done on the book yesterday. Felt good about that. Lots of memories of my time in the hospital. Quite an amazing experience. If you've never done it before, everyone with a mental illness should spend just one day on a maximum security forensic ward, just to see what it is like. I was there for 45 days. I never learned how to fight, so I was quite scared. But I survived. Noone stabbed me. Noone stomped on my head. Yeah!!!

Going to try to get out on the bike today. Raining and I am quite sluggish, but maybe I will get some energy once I get out there.

Love and hugs to all!!!
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  #274  
Old Feb 15, 2020, 04:02 PM
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Did get a fair amount of writing done on the book yesterday. Felt good about that. Lots of memories of my time in the hospital. Quite an amazing experience. If you've never done it before, everyone with a mental illness should spend just one day on a maximum security forensic ward, just to see what it is like. I was there for 45 days. I never learned how to fight, so I was quite scared. But I survived. Noone stabbed me. Noone stomped on my head. Yeah!!!

Going to try to get out on the bike today. Raining and I am quite sluggish, but maybe I will get some energy once I get out there.

Love and hugs to all!!!
@bpcyclist Glad you got some good sleep. I've kicked around the idea of writing a memoir but the ECT has baked too much of my brain. Serious memory holes make it impossible. I have a question about your book though: what is a max security forensic ward? I hope your ride went well.

I've been quite ill so that's sort of ruling my days. Not much else to report.
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  #275  
Old Feb 15, 2020, 04:21 PM
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I'm doing good mood wise. English is getting difficult to understand. H and I have resorted to typing to each other. Usually I can understand typing better if I'm having difficulty. I have my headphones on too. They'll suppose to leave me alone for the day tomorrow again but IDK. we'll see if they go tomorrow. I'm hoping they don't
Hi!

I am concerned about you and have been wanting to ask more about why English is getting more difficult to understand? Is this something that fluctuates with you or is it something more progressive in nature? I hope you do not mind my inquiry, Just concerned,

SO glad you and H have a way to communicate with one another.
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