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#1
May 06, 2020, 08:57 PM
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I want to ask that the Moderators please not move this thread as this forum is my home on PC and I need support of friends.. Thank you.
My husband has been ill almost 3 weeks now we tried an antibiotic and it wasnt helping, So chest xray, labs and sputum culture, started a new antibiotic while we waited on culture to grow out.. Well 3 days later another antibiotic based off what the culture grew out... He has Stenotrophomonas ( Pseudomonas) Maltophillia an aerobic Gram-negative bacillus. No idea how he caught this.. Its mainly something you catch in the hospital by way of irrigation solutions, IV fluids, medical implants or Aquatic enviroments ... Which he has had none of these since last August while in the hospital. This is not something that just lingers in the body and pops up months later. I ran by the Oxygen company we use and picked up doubles of Oxygen tubing and nebulzing cups and tubes. They will be cleaned daily and changed out.. He is now on Oxygen fulltime not just at night as his oxygen level is far to low. He is beyond exhausted. Hes awake for me to feed him, Make sure he takes his meds, Nebulizes and I wake him every 2 hours to keep him pushing fluids at a minimum of at least a gallon a day. Vital signs every 4 hours around the clock. We see our Doctor again on Monday unless he spikes a temp or his breathing gets worse while using oxygen 24/7 ... This is a nightmare.
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Helping others gets me out of my own head ~ |
 *Beth*, Anonymous41462, Anonymous45023, Anonymous46341, Anonymous49105, BadNews4321, beauflow, BeyondtheRainbow, Bipolarchic14, BipolaRNurse, bizi, Blue_Bird, bpcyclist, bshaffer836, divine1966, fern46, Fuzzybear, giddykitty, Guiness187055, luvyrself, MickeyCheeky, Mopey, Nammu, Polibeth, Rick7892, stahrgeyzer, Sunflower123, TishaBuv, Travelinglady, unaluna, unicornlady, Uykulu, VerMOZZica, Wander, WastingAsparagus, Wild Coyote, wildflowerchild25, wiretwister, xRavenx, zapatoes
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 *Beth*, BipolaRNurse, bpcyclist, MickeyCheeky, Nammu, Rick7892, Wild Coyote
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#2
May 06, 2020, 08:59 PM
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prayers for both of you
__________________
Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
| Anonymous46341, Rick7892, Wild Coyote, ~Christina
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| Wild Coyote, ~Christina
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#3
May 06, 2020, 09:05 PM
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I am very sorry to hear that, Christina.
 I hope your husband gets better soon. His situation sounds immensely stressful on the both of you. For what it's worth, I think you've been doing an excellent job of hanging in there for the past 3 weeks, especially given your own stressors brought about by chronic pain flare ups and COVID-19. You're very caring and selfless, and your husband and family are very lucky to have you and your supportive care. Best wishes. 
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| Anonymous41462, Wild Coyote, ~Christina
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| Wild Coyote, ~Christina
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#4
May 06, 2020, 09:08 PM
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:
 :hug oh Christina!
__________________
Nammu …Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …... Desiderata Max Ehrmann |
| Anonymous41462, Wild Coyote, ~Christina
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| Wild Coyote, ~Christina
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#5
May 06, 2020, 09:09 PM
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Christina, that sounds so horrible! Sending positive thoughts and strong wishes of healing to your husband. Sending hugs to you to stay strong during this great challenge, as well. You are clearly a wonderful wife (and nurse) who loves your husband very much. He is lucky to have you! If at all possible, please find some little time for you to relax during this stress. We care very much about you here and know that your husband wants you well, as well.
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| Wild Coyote, ~Christina
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| Rick7892, Wild Coyote, ~Christina
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#6
May 06, 2020, 09:13 PM
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I'm so sorry.
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Dx: Me- SzA Husband- Bipolar 1 Daughter- mood disorder+ Comfortable broken and happy "So I don't know why I'm tongue tied At the wrong time when I need this."- P!nk My blog |
| Wild Coyote, ~Christina
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| Wild Coyote, ~Christina
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#7
May 06, 2020, 09:15 PM
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big hugs!
__________________
Qui Cantat Bis Orat ingrezza 80 mg Propranolol 40 mg Benztropine 1 mg Vraylar 3 mg Gabapentin 300 mg Klonopin 1 mg 2x daily Mania Sept/Oct 2024 Mania (July/August 2024) Mania (December 2023) Mixed episode/Hypomania (September 2023) Depression, Anxiety and Intrusive thoughts (September 2021) Depression & Psychosis (July/August 2021) |
| Wild Coyote, ~Christina
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| Wild Coyote, ~Christina
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#8
May 06, 2020, 09:32 PM
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Thanks Everyone for the support and kind words, they truly mean alot.. He just has to be okay and get better, He HAS too...
__________________
Helping others gets me out of my own head ~ |
| *Beth*, Anonymous46341, Mopey, Nammu, stahrgeyzer, unaluna, Wild Coyote
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| Wild Coyote
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#9
May 06, 2020, 09:33 PM
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Thoughts and prayers. It sounds really stressful.
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| Wild Coyote, ~Christina
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| Wild Coyote, ~Christina
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#10
May 06, 2020, 09:34 PM
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Oh, my. I'm so sorry. I will certainly pray--and wish you both well.
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| Wild Coyote, ~Christina
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| Wild Coyote, ~Christina
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#11
May 06, 2020, 09:42 PM
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Like I said earlier I wish I could just hug
You!!!!!! I love you and I’m praying for y’all!
__________________
schizoaffective bipolar type PTSD generalized anxiety d/o haldol, prazosin, risperdal and prn klonopin and helpful cogentin |
| Fuzzybear, Wild Coyote, ~Christina
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| Wild Coyote, ~Christina
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#14
May 06, 2020, 10:34 PM
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Oh sweetie!!!! How horrible and stressful! And you are being an amazing trooper with all that is going on. You both will be in my thoughts. I fervently hope the situation improves. And soon!!
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| Wild Coyote, ~Christina
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| Wild Coyote, ~Christina
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#15
May 06, 2020, 10:44 PM
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My prayers and thoughts are with you both! Hopefully, he will recover soon. Please don't forget to take care of yourself too!!
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| Wild Coyote, ~Christina
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| luvyrself, Wild Coyote, ~Christina
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#17
May 07, 2020, 09:26 AM
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You both must feel exhausted. I am sending you loving vibes and high hopes for your husband's recovery. Please Christina, take care of yourself, too
__________________
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| Wild Coyote, ~Christina
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| Wild Coyote, ~Christina
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#18
May 07, 2020, 10:02 AM
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I'm hoping the best for you and your husband.
__________________
* Dx: Bipolar II (finally, after years at Bipolar NOS) * Rx: minimal dose of Lamictal My avatar picture is a photo of the Whirlpool Galaxy I took in April 2023. I dedicated this photo to my sister who passed away in July 2016. |
| Fuzzybear, Wild Coyote, ~Christina
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| Wild Coyote, ~Christina
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#19
May 07, 2020, 12:35 PM
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Hugs
and LOVE  and Prayers. I am here for you anytime and in any way in which I can help. It's beyond time for you AND Steve get a long well-deserved break. Love and healing for both of you! Truly, there are no words, yet I am trying to find some which might approximate my thoughts and feelings.
__________________
May we each fully claim the courage to live from our hearts, to allow Love, Faith and Hope to enLighten our paths.
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| Fuzzybear, ~Christina
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| ~Christina
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#20
May 07, 2020, 02:30 PM
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Sending sparklyness and purple healing vibes to both of you.
__________________
Nammu …Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …... Desiderata Max Ehrmann |
| Fuzzybear, ~Christina
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| ~Christina
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#21
May 07, 2020, 02:47 PM
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How is Steve doing today? What about yourself?
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| bpcyclist, ~Christina
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| bpcyclist, ~Christina
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#22
May 07, 2020, 02:50 PM
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Oh no! I’m so sorry. You are both in my prayers. I hope he improves soon.
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| bpcyclist, ~Christina
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| bpcyclist, ~Christina
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#23
May 07, 2020, 04:32 PM
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Oh my god I’m so sorry! I hope he gets better ASAP! We live you on here so much! Please don’t worry about coming on here and responding to everyone unless you want to as a distraction. I truly hope everything turns out ok.
Much love and good vibes!
__________________
Of course it is happening inside your head. But why on earth should that mean that it is not real? -Albus Dumbledore That’s life. If nothing else, that is life. It’s real. Sometimes it f—-ing hurts. But it’s sort of all we have. -Garden State |
| bpcyclist, ~Christina
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| bpcyclist, ~Christina
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#24
May 07, 2020, 04:56 PM
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I want to Thank each and everyone for such Support and Well wishes..
He is not worse today so I am grateful. His vitals are stable and no Temp, He is on Oxygen 24/7 right now....This is going to be a long haul to recover from.. I just have no idea where this has come from... I am using every distraction that I can think of. Much Love everyone
__________________
Helping others gets me out of my own head ~ |
| *Beth*, Anonymous45023, Anonymous46341, bpcyclist, Moose72, Nammu, Rick7892, Sunflower123, Uykulu, Victoria'smom, Wild Coyote, wildflowerchild25
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| *Beth*, bpcyclist, Moose72, Sunflower123, Wild Coyote
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#25
May 07, 2020, 09:03 PM
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I love you!!!’ Message me anytime. I will answer as soon as I can
__________________
schizoaffective bipolar type PTSD generalized anxiety d/o haldol, prazosin, risperdal and prn klonopin and helpful cogentin |
| bpcyclist, ~Christina
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| bpcyclist, ~Christina
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