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  #926  
Old Jun 20, 2022, 10:10 PM
*Beth* *Beth* is offline
catches the flowers
 
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Location: Downtown Vibes, California
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Quote:
Originally Posted by wildflowerchild25 View Post
I did end up ordering Gatorade through Grubhub. I felt sick until about 11:45 and then chanced Corn Pops with soy milk because I was STARVING. That didn’t make me sick, and then I was craving salt so I made air fryer French fries. I was iffy about those but they didn’t bother me either. BUT I tried to eat plain egg noodles right before work and I felt awful! I don’t understand! It was too late to call out so I went in and then by the time I got there (I had RS drive me) I was ok. Like as soon as the egg noodles traveled out I was fine? It’s so bizarre and definitely a bit worrying.

I had a garden salad for dinner because what could be safer than veggies and I feel ok. I dunno. I just want to get the endoscopy done to either prove or disprove an ulcer and then move on from there.

Thanks for all the suggestions, I MUST go grocery shopping tomorrow so I’ll be sure to grab some peppermint tea. I remember ginger wasn’t so great for me.

When is your appointment for the endoscopy?
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  #927  
Old Jun 21, 2022, 01:55 AM
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~Christina ~Christina is offline
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I want to stick a fork in a light socket

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  #928  
Old Jun 21, 2022, 02:30 AM
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Mountaindewed Mountaindewed is offline
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Quote:
Originally Posted by *Beth* View Post


Hahaha, what was the 70's Ses episode about?
It was an episode from 1976 that was only aired once where Margaret Hamilton reprvised her role as The Wicked Witch and terroized sesame street.

It seemed more like an episode of 227 or some other sitcom (besides the fact that big bird was there) then a ses episode. But it was cool seeing it. I had been following the story for over 6 years.
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  #929  
Old Jun 21, 2022, 03:19 AM
*Beth* *Beth* is offline
catches the flowers
 
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Originally Posted by ~Christina View Post
I want to stick a fork in a light socket

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Oh, no. What's happening?
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  #930  
Old Jun 21, 2022, 03:24 AM
*Beth* *Beth* is offline
catches the flowers
 
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Sidney is a poor little pin cushion again tonight. I tested her at 10:30 and her glucose had dropped low again. Not as low as 2 nights ago, but low enough that I'm needing to do this and that to get her number up and stabilized. She is so sweet, smart, and cooperative. It's heartbreaking to have to keep poking her ears. So, I'll be up for a while; hopefully, not all night. All of us in this home need sleep.
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  #931  
Old Jun 21, 2022, 07:01 AM
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I’ve turned a corner with my respiratory illness. I feel better this morning and believe I’m on the mend. I purchased a COVID test yesterday but decided not to take it as I’m getting better now. If I had to lay bets though, I believe it was COVID by the length and intensity of the illness. I’ll keep a close eye on my recovery to address anything funky that may turn up.

I have therapy at 9:45 and then I’ll go to the pool to float. Today will mainly be a catch up day after the past 9 days of illness and rest. I have much to do but will pace myself. Today for a meal I’m thinking meatloaf, mashed potatoes and gravy and fresh asparagus with chilled watermelon and berries for dessert. I have blueberries, blackberries, strawberries and raspberries. I’ve tried to be sure that mom is eating healthy and getting plenty of rest as we go through this. I’ll make us a healthy smoothie this morning after I enjoy energizing tangerine tea on the screened in porch.

I hope everyone has a peaceful day and stays cool.
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  #932  
Old Jun 21, 2022, 09:02 AM
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My dad called my sister last night. She told him all the things she would need to get his permission to do and he kept saying "You have my permission". So that's good.
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Propranolol 40 mg Benztropine 1 mg
Vraylar 3 mg
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Klonopin 1 mg 2x daily
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  #933  
Old Jun 21, 2022, 09:13 AM
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unlived unlived is offline
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Quote:
Originally Posted by *Beth* View Post


unlived - I meant to explain that in very low doses Seroquel is used for insomnia in people who have a major mental illness.

Yeah I know low doses are used for sleep. I just started on 200 because I was in hospital at the time and after that I was never able to go below 100 after getting up to 1200. It was hell getting down that low and anything lower than 100 and I could not sleep at all. I had to switch to another med to be able to sleep again. Sorry I wasn’t trying to minimise or compete or anything. Just saying I hadn’t been on that dose. I’m glad you are able to sleep on a low dose. In my book the lower the better with that drug!
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  #934  
Old Jun 21, 2022, 11:40 AM
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MuddyBoots MuddyBoots is offline
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So it wasn't the case manager that came but the FSS lady. She's helping me out with my meds but said she can go to the park with me some days. And there's a hot line too. I'm scared. I didn't show it, but I'm scared she's going to kidnap me. But maybe I'm not scared because I don't like being here anyway.
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  #935  
Old Jun 21, 2022, 11:54 AM
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Moose72 Moose72 is offline
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Quote:
Originally Posted by ~Christina View Post
I want to stick a fork in a light socket

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Qui Cantat Bis Orat ingrezza 80 mg
Propranolol 40 mg Benztropine 1 mg
Vraylar 3 mg
Gabapentin 300 mg
Klonopin 1 mg 2x daily
Mania Sept/Oct 2024
Mania (July/August 2024)
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  #936  
Old Jun 21, 2022, 03:51 PM
Soupe du jour Soupe du jour is offline
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It's evening where I am in Bretagne, France. So weird here as there's still some light at 10:30 pm. I guess it's the latitude.

Last night I had quite the meltdown after a triggering day. Poor Hubby was a bit scared from it. Long story short, this part of France isn't for us, nor was Bordeaux and the areas in between. We both decided to start looking seriously at settling long-term (or permanently) in Czech Republic. As the days passed, we (especially I) noted that things in Czech Republic seemed better. Big things and really little ones, too. Yes, Czech will be harder for me to learn, but it's best one of us speaks the language fluently. I found in France that Hubby's French was lesser than I expected. We have no support in France or really even the US. It's clearer how much more we have in CZ. It's like a Dorothy of the Wizard of Oz movie eventual moment, for us both. And now that I know what language to really study, I'll put my all into it...finally.

There are eight more days to our trip. I wish we could head home tomorrow, but we'll probably ride this trip out to the end. Seems such a waste! Home? Yes, Czech Republic feels like home.
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Psych Medications:
* Tegretol XR (carbamazepine ER) 800 mg
* Lamictal (lamotrigine) 150 mg
* Seroquel XR (quetiapine ER) 500 mg

I also take meds for blood pressure, cholesterol, and tachycardia.

Last edited by Soupe du jour; Jun 21, 2022 at 04:38 PM.
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  #937  
Old Jun 21, 2022, 04:00 PM
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Nammu Nammu is offline
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Soupe, I’m glad your hubby realized the same thing you did, maybe took him a bit longer! Czech does sound like a nice quality of life and I think having family is important. I didn’t realize how much until I moved back with mum. Sometimes you gotta look and check out dreams to realize that’s what they are, dreams.
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  #938  
Old Jun 21, 2022, 04:08 PM
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Nammu Nammu is offline
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Well I had my pdoc appointment today and all went very well. I started taking the increased latuda on the eighth so he wrote me a prescription for the 100 mg tablets. He also wrote me a script for liquid ambien. Trying to cut the 5 mg tablet in half is really hard. I get slivers and crushed tablets half the time. But all in all my journey off the ambien has been fairly uneventful. Knock on wood that that continues. I see him in a month. After that maybe every 3-6 months.
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…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
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  #939  
Old Jun 21, 2022, 04:11 PM
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wildflowerchild25 wildflowerchild25 is offline
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My GI issues are a bit better today. I’m keeping a food diary now in a different app that time stamps entries, and I’m able to time stamp symptoms as well. I’m hoping to isolate which foods may or may not upset my stomach. Today I kind of ate bad even though I know it’s a mistake, I ate full fat tuna sandwich and full fat chips (a lot of them). Obviously I don’t feel very well but better than the last three days. I took a two hour nap as well.

My endoscopy is Monday and though I am anxious about the anesthesia (just one of my things) I’m happy to finally get it done.

I should be leaving program very soon which will be a change, but I’m also hoping to reinstate myself at the library and get back in to going to the gym. I was taking outdoor walks but now I’m too nervous to be far away from home and in digestive distress, plus most days it will be hot hot hot until it starts getting dark. I don’t walk outside by myself in the dark. At least at the gym I can stop immediately and leave if need be.

I’m not sure what my plans for next year are in terms of work but I have two months to figure it out so I’m not too concerned yet.
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  #940  
Old Jun 21, 2022, 04:59 PM
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Mountaindewed Mountaindewed is offline
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I've read you have to stay very still for the hida scan and they sometimes give you something to make you sleepy. Did any of you guys get anything like that? Lying completely still for 2 hours will suck and could make me feel a bit panicky.
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  #941  
Old Jun 21, 2022, 05:07 PM
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Aurelius710 Aurelius710 is offline
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Well, today sucked, for a variety of reasons.

After I met with my therapist yesterday, I chatted with his front desk people to talk finances. The therapist and I agreed on a discounted rate for appointments going forward, so I relayed that to them. So far, so good. I then asked about billing (they work with a third party), and I'm glad I did, because their biller had me down for $1200 in unpaid bills. WAY more than I actually owed. My therapist's office agreed. They said they would call the biller, get the accounting worked out and call me back in a couple of days. OK, no complaints. This morning, I get a call from that same biller, demanding full payment. I told them good luck. You're wringing water from a stone at this point. I offered them $15 to buzz off and being the greedy little gremlins they are, they accepted. I called the therapist to figure out what happened and they told me they had got off the phone with the biller 20 minutes prior. They thought they could collect before the balance went down. Fantastic.

I've also been working to track down a missing tax refund from my state. Found out some state agency (the info specifically mentions the state) took it to cover some mysterious debt I owed. Of all the people I owe money to, the state isn't one of them. So, naturally, I'd like to know: Where's my money? Any attempts to contact the state DOR lead me either in circles or to a payment portal. I have had to schedule an appointment for a 15 min phone call this time tomorrow to discuss a 5 minute matter. Ah, bureaucracy.

Had a (sort of) heart to heart with the low-income clinic I go to and its pharmacy. I at least know what medications they fill and what medications I'll have to go elsewhere to fill. Basically, I have a guaranteed $30 expense (minimum) for non-covered meds and I've got to coordinate pickup times for the covered ones. Lovely pharmacy, with two hours open, once a day, at different times each day. I haven't even factored in actual appointments. I only have so much time to kill and they seem bound and determined to make me use all of it.

Still no specialist care. I've got an appointment with a neurologist Aug 22. I really want some help before then.
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Where the fear has gone there will be nothing. Only I will remain."
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Last edited by Aurelius710; Jun 21, 2022 at 05:27 PM.
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  #942  
Old Jun 21, 2022, 05:18 PM
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Mountaindewed Mountaindewed is offline
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Today was just a mix. Mainly it was boring. It started off fine. I slept well. My mom went for her colonoscopy. Then I got a super bad gallbladder or whatever attack. It caused a lot of distress and anxiety and basically gave me a panic attack. I got it under control with zofran and tylenol and I've been fine since. But I am anticipating the hida scan on Thursday. Overall besides the panic attack I didn't do or feel much today. This summer is just dragging on and I'm guessing time will be going slow until the baby gets here in October. Everyone is really anticipating it. My mom is tired but ok. I'm around to help her if she needs it.
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  #943  
Old Jun 21, 2022, 08:32 PM
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~Christina ~Christina is offline
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Quote:
Originally Posted by unlived View Post
Yeah I know low doses are used for sleep. I just started on 200 because I was in hospital at the time and after that I was never able to go below 100 after getting up to 1200. It was hell getting down that low and anything lower than 100 and I could not sleep at all. I had to switch to another med to be able to sleep again. Sorry I wasn’t trying to minimise or compete or anything. Just saying I hadn’t been on that dose. I’m glad you are able to sleep on a low dose. In my book the lower the better with that drug!

I’m just going to stick my nose in here for a minute lol maybe I don’t know what has already been said. But here goes.

There are 2 types of Seroquel there is XR extended release and IR instant release.

I have been on a ton of the XR over the years and not much help sleeping.

Last IP stay. He said ok Seroquel IR 50mg and it worked really well. I’m able to get mostly consistent sleep.

It unbelievable to me sometimes how small changes can really be a great result.

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  #944  
Old Jun 21, 2022, 08:33 PM
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~Christina ~Christina is offline
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Quote:
Originally Posted by Jennifer 1967 View Post
I’ve turned a corner with my respiratory illness. I feel better this morning and believe I’m on the mend. I purchased a COVID test yesterday but decided not to take it as I’m getting better now. If I had to lay bets though, I believe it was COVID by the length and intensity of the illness. I’ll keep a close eye on my recovery to address anything funky that may turn up.

I have therapy at 9:45 and then I’ll go to the pool to float. Today will mainly be a catch up day after the past 9 days of illness and rest. I have much to do but will pace myself. Today for a meal I’m thinking meatloaf, mashed potatoes and gravy and fresh asparagus with chilled watermelon and berries for dessert. I have blueberries, blackberries, strawberries and raspberries. I’ve tried to be sure that mom is eating healthy and getting plenty of rest as we go through this. I’ll make us a healthy smoothie this morning after I enjoy energizing tangerine tea on the screened in porch.

I hope everyone has a peaceful day and stays cool.

Glad your feeling better
Dinner and floating sound amazing !!!

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  #945  
Old Jun 21, 2022, 08:36 PM
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~Christina ~Christina is offline
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Quote:
Originally Posted by Soupe du jour View Post
It's evening where I am in Bretagne, France. So weird here as there's still some light at 10:30 pm. I guess it's the latitude.

Last night I had quite the meltdown after a triggering day. Poor Hubby was a bit scared from it. Long story short, this part of France isn't for us, nor was Bordeaux and the areas in between. We both decided to start looking seriously at settling long-term (or permanently) in Czech Republic. As the days passed, we (especially I) noted that things in Czech Republic seemed better. Big things and really little ones, too. Yes, Czech will be harder for me to learn, but it's best one of us speaks the language fluently. I found in France that Hubby's French was lesser than I expected. We have no support in France or really even the US. It's clearer how much more we have in CZ. It's like a Dorothy of the Wizard of Oz movie eventual moment, for us both. And now that I know what language to really study, I'll put my all into it...finally.

There are eight more days to our trip. I wish we could head home tomorrow, but we'll probably ride this trip out to the end. Seems such a waste! Home? Yes, Czech Republic feels like home.

Sorry a meltdown happened but it sounded like it really helped you’re entire situation !

Maybe you can just enjoy the remaining days ?

Many hugs

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  #946  
Old Jun 21, 2022, 08:39 PM
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~Christina ~Christina is offline
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Originally Posted by Nammu View Post
Well I had my pdoc appointment today and all went very well. I started taking the increased latuda on the eighth so he wrote me a prescription for the 100 mg tablets. He also wrote me a script for liquid ambien. Trying to cut the 5 mg tablet in half is really hard. I get slivers and crushed tablets half the time. But all in all my journey off the ambien has been fairly uneventful. Knock on wood that that continues. I see him in a month. After that maybe every 3-6 months.

Great news ! Yeah Steve takes a diuretic that’s already small but often we have to break it. I’ve told when it comes to 1/4 just lick the damn thing a few times lol

Glad you see your getting your exercise in a lot. I bet you really have noticed a difference since you first started it.

Cookies for you and a few head pats for Sir

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  #947  
Old Jun 21, 2022, 08:46 PM
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~Christina ~Christina is offline
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Quote:
Originally Posted by wildflowerchild25 View Post
My GI issues are a bit better today. I’m keeping a food diary now in a different app that time stamps entries, and I’m able to time stamp symptoms as well. I’m hoping to isolate which foods may or may not upset my stomach. Today I kind of ate bad even though I know it’s a mistake, I ate full fat tuna sandwich and full fat chips (a lot of them). Obviously I don’t feel very well but better than the last three days. I took a two hour nap as well.

My endoscopy is Monday and though I am anxious about the anesthesia (just one of my things) I’m happy to finally get it done.

I should be leaving program very soon which will be a change, but I’m also hoping to reinstate myself at the library and get back in to going to the gym. I was taking outdoor walks but now I’m too nervous to be far away from home and in digestive distress, plus most days it will be hot hot hot until it starts getting dark. I don’t walk outside by myself in the dark. At least at the gym I can stop immediately and leave if need be.

I’m not sure what my plans for next year are in terms of work but I have two months to figure it out so I’m not too concerned yet.

I hope the food diary really helps you figure out what could be a problem. Not the same but early days of diabetic foods I wrote everything down and could see trends in our numbers. I think everyone would benefit by keeping track often no matter the reason. With all kinds of APPs it makes things easy.

Hope your scope goes well and you get some answers

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  #948  
Old Jun 21, 2022, 09:07 PM
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~Christina ~Christina is offline
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Woke up hot so that’s hell on me starting the day.

I had to go pick up my meds and the overnight pulse ox to monitor Steve’s Oxygen level sleeping. Of course both different towns.

I called to schedule my next diagnostic Mammo and US /// 6 month follow up

Called and cancelled the one that I had scheduled 1.5 hours North. I simply don’t have the gas money.

Cancelled my dental appt next month.

I found a Canadian pharmacy that I want to get Steve back on a better inhaler with his insurance it’s over 300 a month. The other medication just works better and is likely $69 for 3 months. So I called and left a message with Pulmonary office to find out if they will rather send me the script or fax it directly.

So I got a lot accomplished. But holy hell my car said 99 degrees today and heat index was 112-113 humid and hazy. Glad to get back home.

( I don’t have cell service at my home so I have to make all calls from my car while I’m in town and the heat today was hellish I Can’t afford to let the car idle while calling people)

I see Richard tomorrow, return Pulse OX testing machine ( least it’s the same town)and go do my annual lab work.

Yesterday I asked my GP for Metformin to give it a whirl. Glipizide can actually cause weight gain or more so inability to lose any. Because the strict way I follow diabetic eating I should be losing.

I’m so stressed about my SSDI review paperwork I got a couple weeks ago and I’m always a nervous wreck until I get my letter saying nothing is being changed. I’m sure many of you can relate.

Hope everyone is doing well

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  #949  
Old Jun 21, 2022, 09:08 PM
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Nammu Nammu is offline
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Quote:
Originally Posted by ~Christina View Post
Great news ! Yeah Steve takes a diuretic that’s already small but often we have to break it. I’ve told when it comes to 1/4 just lick the damn thing a few times lol

Glad you see your getting your exercise in a lot. I bet you really have noticed a difference since you first started it.

Cookies for you and a few head pats for Sir

Sent from my iPhone using Tapatalk
It is a mood lifter and the exercise is really helping me with pain. It’s still tough to haul the water around to the back yard to water the flowers and stand for any length of time but it’s less painful than it used to be. The extra plus is getting to know the people my age here. It’s nice to exchange stories with the other people before class starts.

Sir asked if you washed your hand before his pat? He is critical of dog cooties
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…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
Desiderata Max Ehrmann



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  #950  
Old Jun 21, 2022, 09:11 PM
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Nammu Nammu is offline
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Quote:
Originally Posted by ~Christina View Post
Woke up hot so that’s hell on me starting the day.

I had to go pick up my meds and the overnight pulse ox to monitor Steve’s Oxygen level sleeping. Of course both different towns.

I called to schedule my next diagnostic Mammo and US /// 6 month follow up

Called and cancelled the one that I had scheduled 1.5 hours North. I simply don’t have the gas money.

Cancelled my dental appt next month.

I found a Canadian pharmacy that I want to get Steve back on a better inhaler with his insurance it’s over 300 a month. The other medication just works better and is likely $69 for 3 months. So I called and left a message with Pulmonary office to find out if they will rather send me the script or fax it directly.

So I got a lot accomplished. But holy hell my car said 99 degrees today and heat index was 112-113 humid and hazy. Glad to get back home.

( I don’t have cell service at my home so I have to make all calls from my car while I’m in town and the heat today was hellish I Can’t afford to let the car idle while calling people)

I see Richard tomorrow, return Pulse OX testing machine ( least it’s the same town)and go do my annual lab work.

Yesterday I asked my GP for Metformin to give it a whirl. Glipizide can actually cause weight gain or more so inability to lose any. Because the strict way I follow diabetic eating I should be losing.

I’m so stressed about my SSDI review paperwork I got a couple weeks ago and I’m always a nervous wreck until I get my letter saying nothing is being changed. I’m sure many of you can relate.

Hope everyone is doing well

Sent from my iPhone using Tapatalk
Oh hell yes those reviews are hell, real nail biters.
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Nammu
…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
Desiderata Max Ehrmann



Thanks for this!
*Beth*, ~Christina
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