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  #776  
Old Nov 07, 2022, 08:59 AM
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Originally Posted by downandlonely View Post
I wonder if yours is also related to hormones?
Possibly. I know I went down on the dose on my injections a couple weeks ago and I've lost 4 pounds since Friday for no reason. So it could possibly be hormonal. Today things seem better so far.
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  #777  
Old Nov 07, 2022, 11:08 AM
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Hey all,

It's been a while since I've posted. In fact, I don't think I've posted since the name change. I'm still around though. Disillusioned and frustrated as usual. Every month I have some sort of freaking issue with my medicine that becomes so overwhelmingly mentally taxing that I spiral until it can be resolved. This month is no exception except I'm fed up with it and I am not gonna play this game anymore with insurance/doctors offices.

Long LONG story short (and you all probably remember my past issues with Prior Authorizations/insurance woes) Adderall is in a critical national shortage for one, and being a schedule II controlled substance makes it a real pain in the *** to get filled. Somehow, this month, my PA on my Adderall is no longer valid and my insurance won't pay for it. My doctor puts a hold on the medicine so it can't be filled until the day you run out. So, every month I go through this fear of possibly going without my medicine -- and currently I AM going without my medicine. It couldn't be filled until Friday, which is when I learned of the issue with my insurance, which meant a weekend without medicine, and who knows how long it will take to fix.

I'm not sitting on the sidelines and just whining though. I called my doctor's office. They are short-term fix sending in another PA to hopefully get me the meds for this month if nothing else -- but I have scheduled a special appointment with the doctor for tomorrow to discuss alternatives to treat my ADHD symptoms that doesn't involved a stimulant or controlled substance. It's been a game changer and so helpful, but it's too detrimental to my mental health to try to get it every month. I just can't go through this hassle anymore over it.


Anyway-- that's that. Hope everyone is doing well.
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  #778  
Old Nov 07, 2022, 02:15 PM
*Beth* *Beth* is offline
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Hi there @Brentus Welcome back!

Ugh, I am sorry about the med issues. How terribly frustrating, difficult, time consuming, etc. What the heck is with this Adderall shortage? I've been hearing a lot about it.

As for the "controlled substance" thing - burns my azz bad. What a farce. Before I lived where I do I lived in a ghetto in a city and every pill was available for the asking and $5. Everything. I ran short of Klonopin once, paid a guy $10 for 2 pills and made it through a day so I could get my 'script. I'm so irritated with how out of touch this government is. "The drug war" - yeah, that's been a raging success What a joke.

And then they put the controlled substances on hold until the day it needs to be filled! Brilliant. A genius move. *clap*clap*

I'm pulling for you
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  #779  
Old Nov 07, 2022, 02:23 PM
*Beth* *Beth* is offline
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GRRR. Mad at the government, frustrated with the elections. This country is coming apart at the seams. All I can say is, if Gavin Newsom runs for president - vote for him. He's astute, really cares about this state and the nation. Plus, he's a serious hottie

Bipolar check-in #70
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  #780  
Old Nov 07, 2022, 02:25 PM
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Quote:
Originally Posted by *Beth* View Post
[B]
As for the "controlled substance" thing - burns my azz bad. What a farce. Before I lived where I do I lived in a ghetto in a city and every pill was available for the asking and $5. Everything. I ran short of Klonopin once, paid a guy $10 for 2 pills and made it through a day so I could get my 'script. I'm so irritated with how out of touch this government is. "The drug war" - yeah, that's been a raging success What a joke./B]
And you can't even do that now because of the fentanyl issue. My neighbor from my dad's house OD'd on fentanyl--didn't even know he was getting it--from taking Adderall.
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  #781  
Old Nov 07, 2022, 02:42 PM
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GRRR. Mad at the government, frustrated with the elections. This country is coming apart at the seams. All I can say is, if Gavin Newsom runs for president - vote for him. He's astute, really cares about this state and the nation. Plus, he's a serious hottie
I use free pandora and literally every ad break is "Don't vote for Don Bolduc" (AKA Duck balls). I don't know how the race is close here. We're the "live free or die" state but we're thinking of voting for someone who wants to control individuals' lives?
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  #782  
Old Nov 07, 2022, 03:03 PM
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I emailed my therapist and she got kinda pissed at my 4 pound weight loss. She didn't even acknowledge the part where I mentioned I thought it could possibly be from going down on my dose and that my anxiety and moods were better. I mentioned my food quality had also improved and I was eating a ton more protein. And all she does is start laying on me about the weight loss and being too skinny and stuff. I know I've said this before but if I were going the opposite way and gaining weight no mental health proffesional would give 2 shits.
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  #783  
Old Nov 07, 2022, 03:08 PM
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Originally Posted by Mountaindewed View Post
I emailed my therapist and she got kinda pissed at my 4 pound weight loss. She didn't even acknowledge the part where I mentioned I thought it could possibly be from going down on my dose and that my anxiety and moods were better. I mentioned my food quality had also improved and I was eating a ton more protein. And all she does is start laying on me about the weight loss and being too skinny and stuff. I know I've said this before but if I were going the opposite way and gaining weight no mental health proffesional would give 2 shits.
I don't know their exact thinking, but I've noticed this too. I had a 100lbs weight gain from medications and they didn't care one bit even though it put a serious limit on my favorite activities (try hiking up a 4000' mountain with an extra 100lbs). Then I lost those 100lbs and they wanted to put me on the same medications just to gain some of the weight back (instead of actually helping me with the disordered eating behaviors and thinking I was experiencing!!!)
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  #784  
Old Nov 07, 2022, 03:14 PM
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Originally Posted by MuddyBoots View Post
I don't know their exact thinking, but I've noticed this too. I had a 100lbs weight gain from medications and they didn't care one bit even though it put a serious limit on my favorite activities (try hiking up a 4000' mountain with an extra 100lbs). Then I lost those 100lbs and they wanted to put me on the same medications just to gain some of the weight back (instead of actually helping me with the disordered eating behaviors and thinking I was experiencing!!!)
Yeah my therapist wants me on a med to increase my appetite, and my weight is in the normal range. I shouldn't be gaining weight yet I hear it from her all the time about how I should be putting on weight.
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  #785  
Old Nov 07, 2022, 03:24 PM
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Originally Posted by Mountaindewed View Post
Yeah my therapist wants me on a med to increase my appetite, and my weight is in the normal range. I shouldn't be gaining weight yet I hear it from her all the time about how I should be putting on weight.
Just saying, my weight was technically in the normal range (a majority of the time I was experiencing my most severe symptoms) but I was still having problems with eating. Disordered eating is not synonymous with an unhealthy weight. I know you're having legitimate health issues so I won't say whether your issues are from disordered eating or not though. I'm just speaking from my own experience with and knowledge of a definitive eating disorder.

eta: It's better to look at other physical symptoms, although I do realize it's hard to know cause vs effect in your situation.
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  #786  
Old Nov 07, 2022, 03:49 PM
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My anxiety was kind of rough today. My med management with day light savings has been tough. I can't really wait that hour. I went to Aldis this morning to get a cheese advent Calendar. I was looking at the bread and may have freaked out a lady with my face mask. She backed away I didn't take it personally though. I came home and I watched Jenna and Hoda and I was just feeling kinda blah mentally. My mom went to the store and got a bunch of Propels and Gatorades and I just now chugged a watermelon propel and ate a strawberry wafer protein bar and I feel so much better. The Propel seemed to have worked better then all 3 of my valiums did. My primary recomended I drink Propel and Gatorade to get rid of whatever covid symptoms I have left. So I'm not sure if it was anxiety in the first place or just dehydration maybe. My mom just said if I eat and drink well what I thought was anxiety may improve.
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  #787  
Old Nov 07, 2022, 04:01 PM
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Originally Posted by Soupe du jour View Post
Christina, please be easy on yourself about needing a break from the intensive cleaning. What you're doing is still enough, for now. I totally get the disappointment you have regarding the job, but it was at least a learning experience in a way. I think you perhaps should just regroup for a bit and then if you want a new job look for something less strenuous. You're a smart chick, so I'm sure there are other ones out there.

What a life Gus has! I wish I could cuddle on my mother's lap again, sometimes.

Thanks so much. I’m trying to actively remind myself it’s okay to not clean clean clean. I think what makes it harder is that cleaning IS a coping skill I normally depend on.

How is renovations going?

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  #788  
Old Nov 07, 2022, 04:11 PM
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~Christina ~Christina is offline
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I think what it is, is that the cold here is damp. I mean, we're a coastal state. My mom, a born and raised Californian who moved to NYC when she was 19 (married my dad, a native of Brooklyn), absolutely despised the weather here. She said that the east coast cold was very dry, whereas the cold here is damp. "It goes right through your bones" is what she'd say.

Anyway. Today marks 5 years since my daughter has communicated with me. No, she does not "hate" me (someone on the forum once PM'ed me and said that). She just tells my husband that she and I were too close, she needed to be on her own, and "needs time." She's living in NYC, going to univ for her Ph.D. She's very busy and doing well. She has been diagnosed with bipolar disorder 1 (essentially, mania). But, she is committed to therapy and follows her medication needs exactly. The most recent thing she's told David, when he told her he wishes she would call me, is that "I'm so busy, I'm not really focused on calling Mom now."

Needless to say, I'm not having the best day so far. Lots of anxiety. I grieve for her, just to hear her, hug her, kiss her soft cheek. Go shopping like we used to do. But I recognize that those times are very special memories. So for now...if only I could just hear her voice.

I'm afraid of the night that will come in less than 3 hours. I'm afraid everything will go wrong. I'm terrified of losing more loved ones. I'm just so scared of everything, and so tired of feeling this way.

I can’t imagine not being able to talk to Amanda. I know that’s so very heartbreaking for you Have you ever considered keeping a journal of letter to her? Maybe that will help literally putting things on paper .. just a thought

Glad your weather finally cooled off altho that brings the hot cold issues.

Much love

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  #789  
Old Nov 07, 2022, 04:12 PM
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For the first day I’m over a month I have not had nausea and crippling stomach pain. I feel so much better. I’ve been up since 7am abd accomplished a lot. So grateful.

Finally you caught a damn break !

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  #790  
Old Nov 07, 2022, 04:18 PM
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My wrist and fingers are getting more painful every day. I don’t have my emg until Dec 9 so I can’t schedule surgery until the new year. Advil and Tylenol together make the pain bearable though so even though im waking up at night in pain I can fumble around for a Tylenol and go back to sleep pretty quickly.

We’re going to Florida for a couple of days this week during the teacher’s convention because CR and I both have off. We’re going to meet RS’s grandpa for the first time and hang out on the gulf side. Not where the hurricane hit, more north of Tampa. Im extremely claustrophobic and planes scare the bejeezus out of me but I think I still have Xanax left so I’ll bring a couple of those and download some movies on my phone, and bring a Harry Potter book or two. I think I’ll be ok. I have no worries about the plane crashing, just being trapped in an aluminum tube with no way out I don’t even like subways tbh. I almost died of panic in the crystal caves. Elevators? No thank you. I’ll take the stairs seven flights if the elevator looks rickety.

But it should be nice. It’s only for a couple of days and only with RS’s parents instead of the whole bunch of people we went with to NC two summers ago.

If it’s nice we might go for a whole week in April during spring break.

Sorry your pain is increasing. What a relief you will feel once you have the surgery

Enjoy your trip ! Yeah I hear you on the “stuck in a tube” there’s a tropical front that will hit Tampa Bay Area in a few days. But they aren’t really anything to worry about.

How’s Cheeto doing ??

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  #791  
Old Nov 07, 2022, 04:24 PM
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Hey all,

It's been a while since I've posted. In fact, I don't think I've posted since the name change. I'm still around though. Disillusioned and frustrated as usual. Every month I have some sort of freaking issue with my medicine that becomes so overwhelmingly mentally taxing that I spiral until it can be resolved. This month is no exception except I'm fed up with it and I am not gonna play this game anymore with insurance/doctors offices.

Long LONG story short (and you all probably remember my past issues with Prior Authorizations/insurance woes) Adderall is in a critical national shortage for one, and being a schedule II controlled substance makes it a real pain in the *** to get filled. Somehow, this month, my PA on my Adderall is no longer valid and my insurance won't pay for it. My doctor puts a hold on the medicine so it can't be filled until the day you run out. So, every month I go through this fear of possibly going without my medicine -- and currently I AM going without my medicine. It couldn't be filled until Friday, which is when I learned of the issue with my insurance, which meant a weekend without medicine, and who knows how long it will take to fix.

I'm not sitting on the sidelines and just whining though. I called my doctor's office. They are short-term fix sending in another PA to hopefully get me the meds for this month if nothing else -- but I have scheduled a special appointment with the doctor for tomorrow to discuss alternatives to treat my ADHD symptoms that doesn't involved a stimulant or controlled substance. It's been a game changer and so helpful, but it's too detrimental to my mental health to try to get it every month. I just can't go through this hassle anymore over it.


Anyway-- that's that. Hope everyone is doing well.

Good to see you

Filling a schedule drug is soooo annoying! Hope it all gets sorted out quickly !

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  #792  
Old Nov 07, 2022, 04:33 PM
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Did anyone ever play the game Concentration at sleepovers or at camp? I played it one time at a sleepover and it took forever to get through it all. I was randomly humming the chorus the other day and then googled it and it came back to me. Jeeze that was a messed up game.
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  #793  
Old Nov 07, 2022, 05:10 PM
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Originally Posted by Mountaindewed View Post
Did anyone ever play the game Concentration at sleepovers or at camp? I played it one time at a sleepover and it took forever to get through it all. I was randomly humming the chorus the other day and then googled it and it came back to me. Jeeze that was a messed up game.
I used to play that game all the time. Frustrated the hell out of me.
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  #794  
Old Nov 07, 2022, 09:39 PM
*Beth* *Beth* is offline
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Originally Posted by MuddyBoots View Post
And you can't even do that now because of the fentanyl issue. My neighbor from my dad's house OD'd on fentanyl--didn't even know he was getting it--from taking Adderall.

Yes, that has to be an enormous problem for a whole lot of people. I blame the government, insurance companies, and the medical industry for not standing up to insurance companies.
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  #795  
Old Nov 07, 2022, 09:41 PM
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I use free pandora and literally every ad break is "Don't vote for Don Bolduc" (AKA Duck balls). I don't know how the race is close here. We're the "live free or die" state but we're thinking of voting for someone who wants to control individuals' lives?

Oh, he looks like a real gem
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  #796  
Old Nov 07, 2022, 09:43 PM
*Beth* *Beth* is offline
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Originally Posted by Mountaindewed View Post
Did anyone ever play the game Concentration at sleepovers or at camp? I played it one time at a sleepover and it took forever to get through it all. I was randomly humming the chorus the other day and then googled it and it came back to me. Jeeze that was a messed up game.

Sleepovers, yep! Except it was the late '70's and...well, we had our own version of the game. Made it more fun.
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  #797  
Old Nov 07, 2022, 09:50 PM
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My psychologist recommended I see the local mood disorder expert where I live close to because my current pdoc of ten years is leaving in a month and I just now found out. No need to tell y’all I’ve been to the university psych center before I was eligible for Medicaid. It was hoooooorrrible! I hated it there. And I gave them a year of my life to try to get stable before leaving and seeing my current pdoc. I mentioned my friend has an awesome psych nurse practitioner who even has Saturday appt which interests me bc of my crazy schedule during the week. My psychologist said he does not recommend me seeing any np bc of my “complicated situation.” Like wtf? I’ve been stable for 2 1/2 years. We’ve been decreasing my meds to reduce sedation and I’ve been doing phenomenal.

You could say I’m confused and maybe I cried. I mean he’s told me how severe my abuse as a child was but what exactly does he think about me? I rarely email and usually it’s an fyi thing. I don’t call. I never miss appointments.

My feelings are hurt.
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  #798  
Old Nov 07, 2022, 09:51 PM
*Beth* *Beth* is offline
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Originally Posted by ~Christina View Post
I can’t imagine not being able to talk to Amanda. I know that’s so very heartbreaking for you Have you ever considered keeping a journal of letter to her? Maybe that will help literally putting things on paper .. just a thought

Glad your weather finally cooled off altho that brings the hot cold issues.

Much love

I used to write to her occasionally, or send her a small, cute gift once in a great while. Now she won't give any family her address in NYC. About 6 times/year (no more than that) I leave a message on her phone and she does get those because she tells David, "Yes. I got the message." Not a word more or less. And now my oldest sis has dementia. My daughter is my sister's pet, my sis loves N. so, so much. IF N. ever sees her aunt again...I don't even want to go there. It's tragic.

A journal of letters...that's something to consider. A really good idea, actually. If I could manage the hurt.

Much love to you, too, sweetpea
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  #799  
Old Nov 07, 2022, 09:53 PM
*Beth* *Beth* is offline
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Originally Posted by Mountaindewed View Post
....a cheese advent Calendar. ...

I've never heard of that, it sounds hilarious.
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  #800  
Old Nov 07, 2022, 10:11 PM
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These also do wine, coffee and chocolate advent calendars
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